Bendy Bodies with Dr. Linda Bluestein

In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end! Takeaways: Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS. Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies. Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues. Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients. Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kara Wada: Website: https://www.drkarawada.com/ Instagram: @immuneconfidentmd Youtube: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. Takeaways: Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD. Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing. Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy. Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration. Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Lara Bloom: Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5! Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Learn more about your ad choices. Visit megaphone.fm/adchoices

In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world. Takeaways: Strength is Essential: While flexibility came naturally to Adji, she quickly learned that building strength is crucial for controlling movement, especially in ballet. Strength allows dancers to safely showcase their flexibility without risking injury. Listening to Your Body: Adji emphasized the importance of tuning into your body to understand when to push through fatigue and when to rest, striking the right balance to avoid injury while still progressing. Sleep and Recovery Matter: Adji prioritizes sleep, often getting 9 to 10 hours per night, to allow her body to recover and stay resilient, particularly in demanding environments like high-altitude performances. Cross-Training for Dance Longevity: To maintain balance and strength, Adji incorporates Pilates, gyrotonics, and strength training into her routine, allowing her to stay in peak condition and mitigating injury risks. Flexibility Doesn’t Equal Strength: Adji learned early on that flexibility alone isn’t enough for successful dancing—building core and muscle strength is key to controlling movements and maintaining beautiful lines. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Adji Cissoko: Instagram: @adji_cissoko Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability. Lara shares why traditional yoga practices may be putting hypermobile people at risk and offers crucial advice on how to avoid injury, build strength, and prioritize stability. Don’t miss this eye-opening discussion on how to practice yoga safely with hypermobility. Takeaways: Yoga for Hypermobile People: Hypermobile individuals can benefit from yoga if they focus on stability and avoid pushing into extreme ranges of motion. Stability Over Flexibility: Building strength and stability should be prioritized over achieving deep flexibility in yoga practice. Body Awareness is Key: Proprioception and awareness of body position are essential for safe movement in yoga for hypermobile individuals. Props and Feedback: Using blocks, the wall, and other props can help provide feedback and enhance stability during practice. Finding the Right Instructor: It's crucial to find a yoga teacher who understands the unique needs of hypermobile individuals and emphasizes stability over flexibility Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Lara Heimann: Instagram: @lara.heimann Facebook: @lara.f.heimann Youtube: @LYTMethod Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you’re dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions. Takeaways: Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body’s natural healing processes. Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery. Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery. PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues. Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. John Pitts: IG: @johnpittsmd & @centenoschultzclinic Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions. Dr. Atwal explains the importance of genetic testing, the significance of variants of uncertain significance (VUSs), and the complexities of gene interactions in understanding EDS. They also explore the future of genetic research and what patients should know about genetic testing to avoid misinformation and unnecessary stress. Whether you're new to the world of EDS or looking for cutting-edge insights, this episode offers valuable guidance. Takeaways: Importance of Genetic Testing: Genetic testing can reveal rare types of Ehlers-Danlos Syndromes (EDS), even when hypermobile EDS is suspected. Understanding Genetic Variants: Variants of uncertain significance can lead to confusion, making expert interpretation crucial for proper diagnosis. Gene-Environment Interactions: Genetic variants do not work in isolation—gene-gene and gene-environment interactions play a significant role in how conditions manifest. Complexity of Genetics in EDS: The absence of a genetic marker for hypermobile EDS highlights the need for continued research into the genetic basis of the condition. Avoiding Direct-to-Consumer Pitfalls: Be cautious with direct-to-consumer genetic testing, as inaccurate results can cause unnecessary stress. Always consult a geneticist for interpretation. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Paldeep Atwal Website: https://atwalclinic.com/ IG / X / FB : @atwalclinic Youtube: https://www.youtube.com/channel/UCffZDBcvf-vFRsT7k9GppTQ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr. Bluestein offers valuable insights on living with chronic illness. Learn what to ask your doctor, how to pace yourself with hEDS and POTS, and discover Dr. Bluestein’s favorite hypermobility hacks. Whether you’re newly diagnosed or have been managing symptoms for years, this episode provides practical advice for navigating the complexities of hypermobility. Takeaways: Diagnosis Matters: A correct diagnosis can provide validation and guide more effective treatment strategies. Pacing with POTS: Learning to listen to your body and finding the right balance between activity and rest is crucial in managing POTS and EDS. Doctor-Patient Communication: Organize and report symptoms clearly to your doctor to improve diagnosis and treatment. Importance of Empathy: Finding a healthcare provider who shows empathy and is willing to learn about EDS can make all the difference. Hypermobile Hacks: Simple strategies, like journaling symptoms and gradual movement, can help manage hypermobility-related pain. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thinks about the Beighton Score and the 2017 hEDS Classification Criteria. He also shares when he feels genetic testing is indicated and how to interpret variants of uncertain significance (VUSs).   Takeaways: Difference Between Connective Tissue Disorders: Dr. Hakim clarifies the difference between hereditary connective tissue disorders like EDS and autoimmune connective tissue disorders such as lupus and rheumatoid arthritis. Evolving EDS Criteria: The 2017 classification of EDS has improved the understanding of conditions like hypermobile EDS, but there’s still ongoing research and work being done to refine the criteria. Dr. Hakim shares his thoughts on the criteria and the process.  Comorbidities in EDS and HSD: Conditions such as POTS (Postural Orthostatic Tachycardia Syndrome) and GI disorders often accompany hypermobility-related disorders, though more research is needed to establish how these comorbidities are connected. The Importance of Instability: Joint instability, rather than just hypermobility, may play a more significant role in patient symptoms, making proper diagnosis and treatment plans essential. Future of Genetic Testing: While genetic markers for hypermobile EDS have not yet been identified, significant research is underway to find biomarkers and better understand the genetic components of these disorders. Dr. Hakim shares his thoughts on when genetic testing should be performed and covers red flags for more rare types of EDS and other hereditary connective tissue disorders.   Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Alan Hakim: Instagram: @ehlers.danlos Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders. Takeaways: Fascia’s Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain. Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction. Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients. Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients. Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Tina Wang: Linkedin: @tupelopointe Tiktok: @tupelopointe Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life. Takeaways: Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error. Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies. Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly. Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health. Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Whealth Founders Katie & Andrew Dettelbach: X / Twitter: @spreadwhealth Instagram: @whealth Facebook: @spreadwhealth Youtube: @whealth Tiktok: @whealth_ Andrew IG: @the.shirtlessdude Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life. Takeaways: Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability. Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being. Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person. Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss. Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Natasha Trujillo: Instagram: @npttherapy Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance. Takeaways: Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies. Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively. Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels. The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting. Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Emily Rich: Instagram / YouTube: @emilyrichot Linkedin: @emilymrich Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain. Takeaways: Psychological Factors and Pain: Psychological factors such as stress, anxiety, and fear can significantly influence the perception of chronic pain and its severity. Pain as a Danger Signal: Pain is often a response to perceived danger, not just physical injury. The brain’s interpretation of pain involves complex neural circuits. Cognitive and Behavioral Therapy: CBT and ACT are effective therapies for managing chronic pain by addressing thought patterns and behaviors that influence pain perception. Importance of Self-Compassion: Developing self-compassion and psychological flexibility can improve resilience and coping strategies for individuals with chronic pain. Understanding Pain Neuroscience: Educating patients and healthcare providers about pain neuroscience can empower individuals to better manage their pain and improve their quality of life. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kaitlin Touza: Linkedin: https://www.linkedin.com/in/kaitlin-touza-phd-9117148a/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors. Learn about the latest research, diagnostic challenges, and effective treatments, including diet, supplements, and surgery. Don't miss the valuable insights and practical advice shared in this episode. Takeaways: Lipedema Misdiagnosis: Lipedema is often misdiagnosed as regular obesity or confused with lymphedema, highlighting the need for better awareness and diagnostic criteria. Connection to Hormones: Hormonal changes, such as those during puberty, pregnancy, and menopause, can trigger or worsen lipedema due to increased fat and hormonal fluctuations. Inflammation and Fibrosis: Inflammation in lipedema leads to fibrosis, making the tissue nodular and tender, and potentially contributing to the chronic pain experienced by patients. Diet and Supplements: Anti-inflammatory diets, intermittent fasting, and certain supplements like berberine and CoQ10 can help manage lipedema symptoms by reducing inflammation and supporting metabolic health. Surgical and Non-Surgical Treatments: While liposuction can significantly improve symptoms, non-surgical treatments such as compression therapy, manual lymphatic drainage, and whole-body vibration are also beneficial in managing lipedema. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.        Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Karen Herbst: Instagram: @advancedlipedematreatment Tik Tok: @alt.program Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body. Takeaways Chronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy. Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response. The brain's priority is survival, which can lead to maladaptive responses and chronic illness. The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day. An independent audit looked at 16 different conditions for three months. They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivities Clinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems. The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Neuroplasticity Intervention, Amygdala and Insula Retraining (AIR), Significantly Improves Overall Health and Functioning Across Various Chronic Conditions https://pubmed.ncbi.nlm.nih.gov/38404605/ Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot Randomized Controlled Trial Mindfulness-Based Program Plus Amygdala and Insula Retraining (MAIR) for the Treatment of Women with Fibromyalgia: A Pilot https://www.guptaprogram.com/ https://www.youtube.com/@GuptaProgram #MECSF #GuptaProgram #BrainRetraining #ChronicIllness #Hypermobility #ZebraStrong #ZebraWarriors #Neuroplasticity #ChemicalSensitivity #LongCOVID #LymeDisease #MoldIllness #MindBodyConnection #HypermobilityHacks #Podcast #BendyBodiesPodcast #BendyBodies #MedicalPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients. Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS. Takeaways Healthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms.  Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions. Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms. Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients. Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms. Treatment approaches for EDS are discussed.  Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think. The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations. Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast. Chapters ➡ 00:00 Introduction and Celebration of 100 Episodes 25:52 Understanding and Empathizing with Patients' Struggles 36:40 The Top Three Concerns Among EDS Patients 41:20 The Most Effective Treatment Approaches for EDS 44:23 The Role of Mast Cell Activation Syndrome (MCAS) 52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team 01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness 1:05:21 Improving Quality of Care for Everyone 01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your Body Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  https://journals.lww.com/topicsinpainmanagement/citation/2023/04000/hope_for_hypermobility__part_2_an_integrative.1.aspx https://www.sciencedirect.com/science/article/abs/pii/S0161589014000546 https://www.edsguardians.org/ #MedicalPodcast #PatientAdvocacy #EDSAwarenessMonth #EDSAwareness #DoctorPatientCommunication #HSD #MCAS #ChronicIllness #EmpathyInMedicine #HealthcareInsights #Hypermobility #ZebraStrong #ZebraWarriors #hEDS #HypermobileEhlersDanlosSyndrome #Podcast #BendyBodiesPodcast #BendyBodies #BendyBuddy #HypermobilityMD #100thEpisode Learn more about your ad choices. Visit megaphone.fm/adchoices

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome). #dysautonomia #ChronicIllness #POTSAwareness  Takeaways Getting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis. Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding. Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace. Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need. Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities. Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life. Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment. Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure. It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts. The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident. Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack.  Chapters ➡ 00:00 Introduction and Background 08:01 Supportive Coworkers and Accommodations 16:01 Benefits of Remote Work 32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach 42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure 49:39 The Role of Technology in a Car Accident 56:11 The Support System: Family, Friends, and Coworkers 01:06:31 Valuing Oneself and Advocating in the Workplace Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources:  Learn more about Summer Dashe https://www.summerdashe.com/ #SummerDashe #dysautonomia #ChronicIllness #POTsie #POTSAwareness #ZebraWarriors #ZebraStrong #POTS #EhlersDanlos #Podcast  #BendyBodiesPodcast #BendyBuddy #HypermobilityMD  Learn more about your ad choices. Visit megaphone.fm/adchoices

Summary Dr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease.  Takeaways Infections can trigger mast cell reactions and people with MCAS may react differently than those without. Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS.  Immunotherapy for allergies and asthma may impact MCAS symptoms.  Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.  Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms. Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish. Testing mercury levels can help identify potential toxicity and guide treatment. Antihistamines can be beneficial for managing MCAS symptoms and should not be feared. Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs. Finding healthcare providers who understand and can effectively treat MCAS is crucial. Chapters ➡ 00:00 Introduction to MCAS and Dr. Tanya Dempsey 02:28 Infections and MCAS 14:31 Immune Deficiency and Infections 28:37 Environmental Triggers 37:00 Air Purification and Food Quality 42:01 Quality of Meat vs. Pesticide-Free Vegetables 43:11 Fish as an Alternative to Meat 44:32 Toxins in Fish and Mercury Levels 46:02 Detoxing Mercury and Sushi Concerns 47:08 Reactions to Sushi and Scombroid Food Poisoning 48:43 Sensitivity to Scents and Environmental Triggers 49:30 Long-Term Antihistamine Use and Dementia 52:21 Reactions to Laundry and Facial Products 56:23 Treatment Options after Failing Xolair 57:12 Food Dyes and MCAS 58:18 EMFs and MCAS 59:22 Why Some Doctors Fail to Believe in MCAS 01:03:41 Immunotherapy for Allergies and MCAS 01:04:56 Managing Heat, Sun, and Exercise Triggers 01:09:54 Diagnosing MCAS and Lab Testing Challenges 01:11:20 Final Thoughts and Finding Answers Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.     YOUR bendy body is our highest priority! 🧬🔬🦓 Resources: Learn about Dr. Tania Dempsey, MD: Website: https://www.drtaniadempsey.com/ Twitter Link: https://twitter.com/drtaniadempsey Instagram Link: https://www.instagram.com/drtaniadempseymd/ Facebook Link: https://www.facebook.com/taniadempseymd/ Linkedin Link: https://www.linkedin.com/in/tania-dempsey-m-d-82834a44 Mast Cell Matters Podcast https://podcasts.apple.com/us/podcast/mast-cell-matters-deep-dives-on-mcas-with-tania/id1717106678 Article: Learned Cautions Regarding Antibody Testing in MCAS  https://pubmed.ncbi.nlm.nih.gov/37566881/ Article: Diagnosis of mast cell activation syndrome: a global "consensus-2 https://pubmed.ncbi.nlm.nih.gov/32324159/ Article: Molecular Mechanisms of Scombroid Food Poisoning https://pubmed.ncbi.nlm.nih.gov/36614252/ Supportive Oligonucleotide Therapy (SOT) as a Potential Treatment for Viral Infections and Lyme Disease: Preliminary Results https://pubmed.ncbi.nlm.nih.gov/36412742/ Efficacy of Double-Dose Dapsone Combination Therapy in the Treatment of Chronic Lyme Disease/Post-Treatment Lyme Disease Syndrome (PTLDS) and Associated Co-infections: A Report of Three Cases and Retrospective Chart Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7690415/ #MCAS #MastCell #MastCellActivationSyndrome #MastCellActivationDisorder #MastCellDisease  #EDSAwarenessMonth #HSDAwarenessMonth #Podcast #BendyBodiesPodcast #BendyBuddy #BendyBodies #HypermobilityMD Learn more about your ad choices. Visit megaphone.fm/adchoices