In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system’s role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover holistic approaches to managing these conditions and gain valuable insights into the latest research and treatments. Don't miss the special hypermobility hacks at the end! Takeaways: Interplay Between Immune System and EDS: The immune system plays a significant role in hypermobility disorders, with conditions like mast cell activation syndrome and autoimmunity frequently seen in patients with EDS. Differences in Allergy and Mast Cell Activation: Allergy involves the immune system's memory of proteins, whereas mast cell activation syndrome can be triggered by various factors, often without the presence of traditional allergies. Inflammation's Role in Chronic Conditions: Chronic inflammation is a core issue in many modern diseases, including EDS and autoimmune disorders. It's the body's prolonged response to injury or infection that can lead to various health issues. Impact of Hormones: Hormones, particularly estrogen and progesterone, significantly influence immune system functioning and can affect conditions like POTS, often seen in EDS patients. Holistic and Lifestyle Approaches: Managing EDS and related conditions can benefit from holistic approaches, including anti-inflammatory diets, regular movement, adequate sleep, and stress management techniques such as meditation and journaling. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kara Wada: Website: https://www.drkarawada.com/ Instagram: @immuneconfidentmd Youtube: @drkarawada Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria. Tune in to learn about the challenges, successes, and future directions in EDS research and patient care. Takeaways: Global Progress: The Ehlers-Danlos Society has significantly advanced global awareness and research on EDS and HSD. Diagnosis Challenges: Misdiagnosis and lack of understanding among doctors persist; re-education efforts are ongoing. Bloom's Journey: Lara Bloom's path from volunteer to CEO highlights the impact of lived experience in advocacy. Diagnostic Criteria Update: The 2017 criteria for hypermobile EDS will be revisited by 2026, involving extensive research and collaboration. Movement and Self-Care: Regular physical activity is crucial for managing EDS and HSD symptoms, as emphasized by both Bloom and Bluestein. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Lara Bloom: Website: https://www.larabloom.com/ Twitter: @larabloom Instagram: @lara.bloom Youtube: @LaraBloom Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5! Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! 🧬🔬🦓 Learn more about your ad choices. Visit megaphone.fm/adchoices
In this raw and reflective Office Hours episode, Dr. Linda Bluestein responds to listener feedback and dives deep into the cultural and clinical gaslighting faced by people, especially women, navigating complex health conditions. From the dismissal of perimenopause to the rise of so-called “TikTok diseases,” Dr. Bluestein explores the dangerous disconnect between lived experiences and clinical skepticism. She also unpacks a now-infamous comment involving tuna, and what it reveals about how the medical community sometimes chooses ridicule over reflection. This episode is equal parts fiery and thoughtful, a must-listen for anyone tired of being misunderstood. Find the episode transcript here. Additional Information: Red Flags: https://www.bendybodiespodcast.com/p/redflags/Bobby Jones CSF Together We Thrive Summit Lectures: https://bobbyjonescsf.org/i-am-patient/patient-conference/ Road to 2026: https://www.ehlers-danlos.com/road-to-2026/Registries: Dysautonomia Project: https://thedysautonomiaproject.org/find-a-provider/ Dysautonomia International: https://dysautonomiainternational.org/page.php?ID=14Genetic Counselor Registry: https://abgc.learningbuilder.com/Search/Public/MemberRole/VerificationMy Webinar ‘Hypermobility – Diagnosis and Treatment in the MCAS patient’: https://shop.ehlers-danlos.org/product/dr-linda-bluestein-the-hypermobility-md-hypermobility-disorders-specialist/?utm_source=chatgpt.comMENS PMMS Approach: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307&utm_source=chatgpt.comCurbsiders Episode: Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155): https://www.bendybodiespodcast.com/gluten-mthfr-mast-cells-and-more-office-hours-ep-155/?utm_source=chatgpt.comNIH article on mercury and mast cells: https://pmc.ncbi.nlm.nih.gov/articles/PMC2850891/Dr. Mary Claire's Substack: https://open.substack.com/pub/drmaryclairehaver/p/what-nearly-1000-women-told-me-about?r=1vualn&utm_medium=iosTestosterone is Essential for Women with Dr. Kelly Casperson (Ep 131): https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/Sex hormones and allergies: exploring the gender differences in immune responses: https://www.frontiersin.org/journals/allergy/articles/10.3389/falgy.2024.1483919/fullImpact of progesterone on the immune system in women: https://pmc.ncbi.nlm.nih.gov/articles/PMC10024519/ Want more Dr. Linda Bluestein, MD?Website: https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: https://www.instagram.com/hypermobilitymd/Facebook: https://www.facebook.com/BendyBodiesPodcastX: https://twitter.com/BluesteinLindaLinkedIn: https://www.linkedin.com/in/hypermobilitymd/Newsletter: https://hypermobilitymd.substack.com/Shop my Amazon store https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority! Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
Abdominal pain in EDS can be a puzzle with countless hidden pieces. In this episode, Dr. Linda Bluestein welcomes back Dr. Pradeep Chopra for part two of their exploration into gastrointestinal problems. Together, they uncover overlooked causes of abdominal pain, from drooping intestines and tethered spinal cords to mast cell activation and nerve entrapment. Listeners will hear surprising connections between the spine, bladder, ribs, and gut, with insights that could explain symptoms often dismissed or misunderstood. Takeaways: How intestines “dropping” into the pelvis complicate digestion and bladder function. Why tethered cord surgery may relieve unexpected symptoms, including GI issues. The overlooked role of mast cell activation in abdominal pain and food intolerances. How abdominal pain can actually begin in the ribs, nerves, or pelvic floor. Why abdominal migraines and CRPS challenge traditional medical thinking. Find the episode transcript here. Want more Dr. Pradeep Chopra? Website: https://www.painri.com/Contact Dr. Chopra’s Office: snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd To check out all of my favorite products, please click on this link: https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Check out the following episodes to learn more: Find previous Bendy Bodies episodes featuring Dr. Pradeep Chopra here:https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/Find previous Bendy Bodies episodes featuring Dr. Theoharis Theoharides here:https://www.bendybodiespodcast.com/guests/theoharis-theoharide/Hidden Causes of Pain ‘Down There’ with Dr. Andrew Goldstein (Ep 148):https://www.bendybodiespodcast.com/hidden-causes-of-pain-down-there-with-dr-andrew-goldstein-ep-148/Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein (Ep 130): https://www.bendybodiespodcast.com/hidden-causes-of-painful-sex-ep-130/Slipping Rib Surgery in EDS with Adam Hansen, MD: https://www.bendybodiespodcast.com/videos/84-slipping-rib-surgery-in-eds-with-adam-hansen-md/Testosterone is Essential for Women with Dr. Kelly Casperson (Ep 131) https://www.bendybodiespodcast.com/testosterone-is-essential-for-women/Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137): https://www.bendybodiespodcast.com/signs-of-tethered-cord-you-shouldnt-ignore-with-dr-petra-klinge-ep-137/Why Do Some GI Problems Hide from Every Test? with Dr. Zachary Spiritos (Ep 153): https://www.bendybodiespodcast.com/why-do-some-gi-problems-hide-from-every-test-ep-153/ Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
In honor of Pain Awareness Month, I wanted to share an episode of one of my favorite healthcare podcasts, “Knock Knock Hi with the Glaucomfleckens.” In this interview from last July, Will and Kristin Flanary (AKA Dr. and Lady Glaucomflecken) kindly invited me on to talk about my journey from ballet to anesthesiology to integrative pain care, and how hypermobility and chronic pain are often overlooked or misunderstood in both medicine and everyday life. Listen to more episodes of “Knock Knock, Hi! with the Glaucomfleckens” wherever you get your podcasts, or watch on YouTube. https://www.human-content.com/kkh Bendy Bodies, alongside Knock Knock Hi with the Glaucomfleckens, is a proud part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this informative and eye-opening episode, Dr. Linda Bluestein sits down with foot and ankle surgeon Dr. Patrick Agnew, who specializes in treating patients with joint hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes. Together, they explore why lower extremity pain and dysfunction are so common and often misunderstood in EDS and HSD (Hypermobility Spectrum Disorders). From failed orthotics to unnecessary surgeries, they break down the biggest foot myths and offer practical advice for building stability, choosing footwear, and getting the right help before things spiral. This conversation will change the way you walk, literally and metaphorically. Takeaways Patrick Agnew explains why the “fallen arch” theory doesn’t always apply to hypermobile bodies and what to focus on instead. Learn when foot surgery helps, when it hurts, and why many EDS patients should think twice before going under the knife. Not all orthotics are created equal. Agnew shares why many fail—and how to find support that works with (not against) your anatomy. Chronic ankle injuries may signal more than weakness—they could be your body’s way of screaming for a new approach. Forget the trends. Discover how to pick footwear that supports your unique structure without creating more dysfunction. Find the episode transcript here. Want more Dr. Patrick Agnew? YT: https://www.youtube.com/watch?v=sPTK1lhGuP0 FB: https://www.facebook.com/profile.php?id=100068257805669 Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd To check out all of my favorite products, please click on this link: https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn’t), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (craniocervical instability) is a concern, and what truly drives gum disease vs “EDS-specific” issues. We also address periodontal EDS (a rare subtype), toothpaste choices (fluoride vs hydroxyapatite vs chelators), and the surprisingly powerful habit of “spit, don’t rinse.” Stay to the end for practical Hypermobility Hacks you can implement tonight. Takeaways Is wisdom teeth surgery happening too often… or dangerously too late? What if the biggest risk during oral surgery isn’t the tooth—but how your neck is positioned? Why do some people with EDS feel every cut and drill—even after “getting numb”? Could one cheap hack—“spit, don’t rinse”—protect your teeth better than $30 toothpaste? Are sharks hiding the secret to stronger enamel in your bathroom cabinet? Find the episode transcript here. References: 2012 Paper- The effects of NICE guidelines on the management of third molar teeth: https://pubmed.ncbi.nlm.nih.gov/22955790/ 2020 RCS Guidelines on Third Molars: https://www.rcseng.ac.uk/-/media/files/rcs/fds/guidelines/3rd-molar-guidelines--april-2021-v2.pdf AAOMS Guidelines on Third Molar Management: https://aaoms.org/wp-content/uploads/2024/03/management_third_molar_white_paper.pdf Bendy Bodies Podcast on Preparing for Surgery with Linda Bluestein, MD: https://www.bendybodiespodcast.com/58-preparing-for-surgery-with-linda-bluestein-md/ GIRFT RCS TMD Document: Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf Dr. Mike Harrison’s Talk on EDS Support UK: https://www.ehlers-danlos.org/information/webinar-with-dr-mike-harrison-on-why-dental-issues-occur-with-connective-tissue-disorder/ EDS and Dental Issues Talk by Ines and Ulrike: https://www.youtube.com/watch?v=Lsf0YEeps5c&t=65s EDS Society on Periodontal EDS: https://www.ehlers-danlos.com/peds/ Austrian Conversation on pEDS (PubMed): https://pubmed.ncbi.nlm.nih.gov/28836281/ Genetics Home Reference on Ehlers-Danlos Syndrome: https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome#statistics Perioperative Care in Patients with Ehlers Danlos Syndromes (SCIRP): https://www.scirp.org/journal/paperinformation?paperid=97524 Want more Dr. Audrey Kershaw? Facebook: https://www.facebook.com/audrey.kershaw.3 Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd To check out all of my favorite products, please click on this link: https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
Dr. Linda Bluestein is joined by award-winning psychiatrist and author Dr. Shimi Kang to explore a radical, yet intuitive concept: that play, creativity, and rest aren’t luxuries - they’re medicine. In a world where high-achievers and neurodivergent thinkers are pushed to exhaustion, Dr. Kang unpacks how this cultural mindset leads to burnout, inflammation, and chronic illness. Drawing from both cutting-edge neuroscience and her own clinical experience, she offers practical tools to help listeners regulate their nervous systems, reconnect with joy, and reclaim their health. If you've ever felt overwhelmed, misunderstood, or stuck in survival mode, this episode will reframe everything. Takeaways - Discover the surprising connection between neurodivergence and hypermobility that could redefine your understanding of chronic illness. - Burnout isn’t just in your head—uncover the biological triggers that shut your system down and what you can do about it. - Curious about how play can rewire your nervous system? This episode reveals its unexpected power to transform your well-being. - Could "dolphin parenting" be the secret to breaking free from the stress of overachievement? Tune in to find out! - Forget control—learn why embracing curiosity might just be the game-changer you need for true healing. Find the episode transcript here. Want more Dr. Shimi Kang? Twitter/X: https://x.com/drshimikang Instagram: https://www.instagram.com/drshimikang/?hl=en Facebook: https://www.facebook.com/drshimikang/ Youtube: https://www.youtube.com/channel/UCfqNKUKkxgM8M7Psn2f8fPA Linkedin: https://www.linkedin.com/in/drshimikang/?originalSubdomain=ca Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd To check out all of my affiliate accounts, please click on this link: https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
After a wave of passionate listener feedback sparked intense conversations behind the scenes, The Bendy Bodies Podcast returns with a candid and heartfelt follow-up. In this episode, Dr. Linda Bluestein is joined by author and communications expert Kate Colbert to openly address the concerns raised about recent content and to set the record straight. From questions about language and lived experience to the emotional cost of being misunderstood, Dr. Bluestein and Kate hold nothing back. Together, they unpack what went wrong, what they stand by, and what they’ll do differently moving forward. This is the episode that proves growth is messy, but worth it. Takeaways What sparked intense pushback from listeners this season Why language matters more than ever in the chronic illness community Why science isn't always black and white The frustrations of medical and scientific uncertainty What happens when a podcast decides to grow in public Find the episode transcript here. Want more Kate Colbert? Linkedin: https://www.linkedin.com/in/katecolbert/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone’s pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person’s experience. Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community. Takeaways Why pain is always real—even when labeled “non-structural” How mast cell research intersects with autism without erasing identity Why a hEDS diagnosis matters for some patients—but not for all What the upcoming 2026 hEDS criteria changes could mean for the community How listener feedback shapes the future of Bendy Bodies Find the episode transcipt here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices
In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr. Louw breaks down the science of how the brain processes pain, why knowledge can reduce fear, and how changing your understanding can actually decrease your pain experience. Through engaging stories and evidence-backed insight, he shares how rewiring the nervous system starts not with a pill, but with a conversation. Takeaways Why pain persists even after healing has occurred Connecting fear, misunderstandings, and pain What you can learn about pain to start to reduce it What clinicians often miss when treating chronic symptoms How to approach pain as a brain-and-nervous-system issue—not just a body issue References: Guest: Dr. Adriaan Louw Bio & publications: Evidence In Motion Podcast appearance on PNE+: Integrative Pain Science Institute Books by Dr. Louw: Pain Neuroscience Education: Teaching People About Pain Why Do I Hurt? Louw et al. (2016) “The Clinical Application of Pain Neuroscience Education” – https://pubmed.ncbi.nlm.nih.gov/26828801/ And more: Dr. Bluestein's Favorite Books Want more Dr. Adriaan Louw? X: https://www.twitter.com/EIMTeam IG: https://www.instagram.com/eimteam/ FB: https://www.facebook.com/EIMTeam LinkedIn: https://www.linkedin.com/company/evidence-in-motion-eim- Website: https://whyyouhurt.com/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract. From teeth to the stomach and beyond, they uncover how connective tissue disorders like EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders) along with POTS (Postural orthostatic tachycardia syndrome) and MCAS (Mast cell activation syndrome), can trigger unexpected abdominal pain and digestive challenges. Along the way, they explore overlooked diagnoses like Eagle Syndrome, SIBO (Small Intestinal Bacterial Overgrowth), and MALS (Median Arcuate Ligament Syndrome), while also revealing hacks and strategies that empower patients to better understand and manage their symptoms. This is part one of a two-part deep dive into GI issues you won’t want to miss. Takeaways Why EDS patients often have “dancing teeth” and unique dental vulnerabilities How Eagle Syndrome can masquerade as severe TMJ pain or headaches The hidden role of MCAS in driving throat and GI inflammation Why overlooked compression syndromes like MALS and SMA cause devastating abdominal pain A surprising at-home hack with beets that can reveal slowed gut motility Note: If you found Dr. Chopra's comments about teeth intriguing, we will address listener feedback in Episode 159, coming soon. Find the episode transcript here. References: AGA Clinical Practice Update on GI Manifestations and Autonomic or Immune Dysfunction in Hypermobile Ehlers-Danlos Syndrome: Expert Review: https://pubmed.ncbi.nlm.nih.gov/40387691/ Want more Dr. Pradeep Chopra? Find previous Bendy Bodies episodes with Dr. Chopra here: https://www.bendybodiespodcast.com/guests/dr-pradeep-chopra/ Website: https://www.painri.com/ Contact Dr. Chopra’s Office: snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss. Takeaways: Why Beighton scoring alone doesn’t cut it for diagnosing EDS The truth about MTHFR variants and their link to EDS The overlap between SVT, POTS, and when to worry What to ask your doctor if you’re not sure they "get" dysautonomia A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most References: The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com hEDS Diagnostic Criteria Checklist Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/ Hope for Hypermobility Article: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307 Substack: https://open.substack.com/pub/hypermobilitymd/p/navigating-treatment-for-hedshsd Find the episode transcript here Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/ Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/ Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/ https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/ LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/ LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, parent, or provider, this episode just might change how you see joint hypermobility and connective tissue disorders forever. Takeaways Why men and boys may be getting overlooked by the current EDS diagnostic model The difference between dislocations and subluxations—and why that matters A surprising source of CCI: what your dentist, surgeon, and anesthesiologist may not know The 2017 criteria: well-meaning, but are they dangerously outdated? What every hypermobile patient should bring to their next surgery (yes, it’s a hack) Want to follow along? Find the episode transcript here. References: Episode 70: https://youtu.be/BoRyQh12X2c Episode 71: https://youtu.be/yDT3JTzfiJk Episode 72: https://youtu.be/CYhnKkVjIxM Episode 73: https://youtu.be/2OxtZGNswfo Episode 77: https://youtu.be/d9A1aJB5GRo Episode 151: https://youtu.be/ho0rRcjUobI Perioperative Care in Patients with EDS by Linda Bluestein & Pradeep Chopra: https://www.scirp.org/journal/paperinformation?paperid=97524 Diagnostic Criteria: https://www.bendybodiespodcast.com/p/diagnostic-criteria-checklist/ The Incidence of Misdiagnosis in Patients with EDS: https://www.mdpi.com/2227-9067/12/6/698 Living Well with Orthostatic Intolerance by Peter C. Rowe: https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?linkCode=sl2&tag=onamzlindablu-20&ref_=aip_sf_list_spv_ofs_mixed_d 2023 Diagnostic Framework: https://www.ehlers-danlos.com/diagnosis/new-diagnostic-framework-for-pediatric-joint-hypermobility-v2/ Want more Dr. Pradeep Chopra? Website: https://www.painri.com/ Contact Dr. Chopra’s Office: snapa102@gmail.com Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast Cell Activation Syndrome), especially those whose GI tests always come back “normal.” From misunderstood motility problems to surprising treatment twists, this episode is full of revelations that might change the way you think about your gut. And yes, there’s even a how-to on better pooping. Takeaways: Why your GI test results might be “normal”… but your symptoms are anything but. How slow motility and visceral hypersensitivity often masquerade as IBS. The overlooked connection between hypermobility, dysautonomia, and GI dysfunction. Why some patients are misdiagnosed for years—and how that’s finally changing. A surprising but effective tip to improve your daily bathroom routine. References: Breath-Test for SIBO (small intestinal bacterial overgrowth): https://www.triosmartbreath.com/ Mark Pimentel, MD: https://www.cedars-sinai.org/provider/mark-pimentel-887112.html Episode 127: https://www.youtube.com/watch?v=9ngUY9VPRcc Want more Dr. Zachary Spiritos? Website: https://www.everbettermedicine.health Instagram: https://www.instagram.com/drzacspiritos/ Facebook: https://www.facebook.com/zachary.spiritos/ Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices
Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing. From overlooked diagnostics to cutting-edge therapies and startling new research, this conversation peels back the curtain on symptoms often dismissed or misdiagnosed. A must-listen for patients, clinicians, and anyone who's been told "everything looks normal." Takeaways: Hypermobile patients often experience voice, breathing, and swallowing issues—but go undiagnosed. Imaging and scope studies often miss the root causes of symptoms in EDS patients. Certain vocal exercises may actually harm people with fragile connective tissues. Sniffing can break a dangerous airway cycle caused by inducible laryngeal obstruction. An international team is working to create speech therapy protocols specifically for EDS. Find the episode transcript here. Want more Stacey Menton?Website: http://staceymenton.comFacebook: https://www.facebook.com/profile.php?id=100077671590313 Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction? In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain. Together, they dive into groundbreaking research on neuroinflammation, autism, histamine, stress, and why brain fog may not be “all in your head”—but inflammation inside it. From overlooked biomarkers to misunderstood triggers, this episode unpacks the science most doctors still don’t know… but patients desperately need Takeaways: What you didn’t know about the link between stress and mast cell activation in the brain. A surprising breakdown of how mast cells could be fueling neuroinflammation and foggy thinking. Why autism and MCAS might share more than we think—especially in early development. The overlooked role of environmental stressors in triggering immune responses that affect cognition. How one researcher’s journey into mast cells rewrote everything we thought we knew about inflammation. Fine the episode transcript here. Want more Dr. Theoharis Theoharides? Website: https://www.drtheoharides.com/Podcast Link: https://algonot.com/Blogs: https://www.nova.edu/nim/neuroinflammation-research/index.htmlLinkedIn: https://www.linkedin.com/in/theoharis-theoharides-ms-phd-md-faaaai-67123735 Want more Dr. Pradeep Chopra? Website: https://www.painri.com/ Reference Episodes: Episode 70: https://youtu.be/BoRyQh12X2cEpisode 71: https://youtu.be/yDT3JTzfiJkEpisode 72: https://youtu.be/CYhnKkVjIxMEpisode 73: https://youtu.be/2OxtZGNswfoEpisode 77: https://youtu.be/d9A1aJB5GRo Episode 139: https://youtu.be/u1pxvAzXh7M Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/. YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you’ll hear something in this episode that makes you feel seen. Takeaways: How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients. What one family doctor learned when her toddler was flagged for autism... and EDS. The truth about low-dose naltrexone—and why it’s not a quick fix. Why a change in your diagnosis doesn’t change your reality. A life-saving strategy for traveling to high altitudes with EDS or POTS. Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Instagram: https://www.instagram.com/hypermobilitymd/ Facebook: https://www.facebook.com/BendyBodiesPodcast X: https://twitter.com/BluesteinLinda LinkedIn: https://www.linkedin.com/in/hypermobilitymd/ Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices
souvlaki2000
This is such a helpful episode! It gives me lots of things to check into for my daughter who has hEDS.