A very common sentiment we hear from caregivers is the loneliness and isolation felt as a result of misunderstandings between other family members or friends, the feeling that others don’t understand the caregiving perspective and feeling as though there is no one to share the day-to-day highs and lows with. In today’s episode, Stephanie invites her friend and fellow FTD daughter, Jacquelyn Shapiro, onto the podcast to discuss how their friendship formed, their thoughts on friendship in careg...
Having just started her career and life as a young mom, Katie Brandt’s entire world changed in an instant when her husband was diagnosed with FTD in his early 30s. The next several years, compounded by care for multiple family members in addition to her young son, threw her in the depths of ongoing crisis. But through her tremendous resiliency and learning, Katie has used her pain and story for change and tremendous ongoing advocacy in ways we often could not imagine. About Katie: Katie Brand...
We have heard about caregiving, we have heard about eldercare, but how often do you hear about working caregivers? This topic is JUST starting to come to the forefront, yet millions of caregivers have been balancing work and care for years and continue to on a daily basis. In today’s episode, Christa Haanstra, lead for the working caregiver initiative at the Canadian Centre for Caregiving Excellence (an initiative by the Azrieli Foundation), joins Stephanie to talk about the stat...
The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to participate in activities of daily living and why is this important? In today’s episode, Stephanie explores the background on why and how third pa...
Spencer Cline was only 7 years old when his father was first diagnosed with frontotemporal degeneration (behavioural variant). From a very young age, he witnessed how profoundly this illness affected his father, mother, and entire family. Today, Spencer is a passionate advocate for FTD, dedicated to changing the narrative around the disease and supporting those impacted by it. He recently biked 3600+ miles across America to raise awareness about FTD and continues to speak publicly and educate...
Vivian Stamatopoulos - advocate, professor, and long-time researcher in the field of caregiving and long-term care-joins the podcast to uncover the hidden truths about our long-term care system. Vivian shares what she realized during COVID about the nursing home crisis, where long-term care stands today, and the significant changes needed to improve care and shift the narrative for those living in nursing homes and the people who love them the most. This powerful conversation shines a light o...
Carla Velastegui began caring for her mother with Parkinson’s disease while still in high school, experiencing both the challenges and deep insights that caregiving can bring. In this episode, Carla shares how those early experiences shaped her life, her relationships, and her future. She discusses the ups and downs of her caregiving journey and how it inspired her career as a consultant working with organizations to adapt and implement technology to assist and transform the caregiving experi...
In this episode, we dive into the numbers behind caregiver mental health, sharing Canadian statistics that reveal just how many caregivers, including those who are working caregivers, face similar challenges. While it can often feel like you’re alone in your struggles, the truth is that far more people are experiencing the same difficulties than you may realize. Stephanie breaks down the facts to help you feel seen, supported, and connected in your caregiving journey. Visit us on our website...
In this episode, Stephanie explores a common question caregivers face: Do I need to change my entire routine to feel better if I am overwhelmed as a caregiver? When self-care feels overwhelming or unattainable, is a complete lifestyle overhaul the only answer-or can small, realistic steps make a real difference? Stephanie shares insights on what truly helps when you’re feeling stretched thin, offering practical ideas to support your well-being without adding more pressure. Visit us on our web...
Many of us have had the conversation- we vow to keep the person we care for home forever; We will never move them to a facility or otherwise... And then one day, reality hits, and we face the fact that we may not be able to follow through on this promise that once seemed feasible. In today’s episode, Jeanette Yates discusses how she navigated this exact situation with her own mother and what she learned in the process. She shares her experiences and learnings with listeners that are sur...
In this episode, Stephanie shares some of the most memorable (frankly, ridiculous) things people have said to her while she was caring for her mother and following her mother’s passing. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving *The content shared on this podcast is for educational and informational purposes only. It is not intended to be a subst...
Charles Morris has an incredible story, and we are so thankful he is sharing it on our podcast today. From not speaking to his mother for years, to forming a beautiful and meaningful relationship with her, to moving in with his parents and caring for them for years… And then a traumatic brain injury…. This is an episode you do not want to miss. About Charles Morris: Charlie Morris was a full time live-in caregiver for his mother as she died from dementia and cancer, during the peak of the ...
Canada is in dire need of a national caregiving strategy. And on today’s episode, we welcome James Janeiro, director of policy and government relations at the Canadian Centre for Caregiving Excellence (CCCE), a program of the Azrieli Foundation, to discuss what he and the CCCE are tirelessly working on to make this dream a reality. If you have ever wondered how policies come into effect and what it takes behind the scenes to make this happen (and how a Canadian caregiver strategy may be close...
In today’s episode, caregiver @debbieelkins , shares her story caring for her husband Chuck with frontotemporal degeneration (FTD), and discusses how @theaftd supported her during both her caregiving journey, and provided her a sense of purpose through volunteer and advocacy. AFTD’s director of support and education, Esther Kane, also joins us on today’s insightful episode to discuss all that AFTD provides currently, how they support caregivers and those with an FTD diagnosis, and what ...
This is not commonly provided education so do not worry if this is all new or confusing! Most people are confused about powers of attorney, advanced directives and wills and why they can be extremely important/ what they can help with. In today’s episode, Stephanie discusses her perspectives on having a power of attorney document and what she has seen in her personal life and in hospital and private practice when it comes to powers of attorney and advanced directives. *please ...
This is a common scenario- perhaps when there was an initial diagnosis, people showed up and offered support and over time they stopped coming as often or at all. Or maybe even at the time of diagnosis people did not visit. Whatever the case may be, if you are finding that no one visits, this episode is for you. Stephanie breaks down the most common reasons why people don’t visit, how you can communicate your wish for visitors with others and pave the way to continue visits ongoin...
If you have ever faced navigating the healthcare system through a dementia diagnosis, you know the difficulties that can be faced. A confusing path to navigate, difficulties receiving diagnoses, often not knowing what comes next and staying up-to-date and confident in the way forward. In today’s episode, we are pleased to welcome Dr. Saskia Sivananthan who shares her knowledge about how we approach dementia in our healthcare system, her organization The Brainwell Institute, and how we w...
Caring for someone can add complexity and conflict in a romantic relationship. Whether your partner disagrees with your decisions and beliefs regarding caregiving or whether they feel you are not present for them the way you once were, this is for any caregiver experiencing changes in a romantic relationship. Barry Jacobs and his wife Julie Mayer are clinical psychologists who specialize in family therapy and caregiving and provide their perspectives on different case examples in this enlight...
What leads to anger and resentment in caregiving and is there anything you can do to help prevent or mitigate these very intense, and sometimes overpowering, emotions? Today Stephanie talks about what can commonly trigger feelings of anger and resentment in caregiving and provides some realistic strategies to help you through these emotions while caring for someone else. If you are sick and tired of yelling and snapping at others and feeling out of control- this episode is for you. Visit us...
Do you care for multiple family members or friends? Do you feel like you are not doing all you ultimately ‘should be’ doing given the limitations of caring for multiple people (plus potentially working and other responsibilities)? In today’s episode, Stephanie discusses this element of guilt and what happens & what you can do about being pulled in 3,4,5 or 90 different directions. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For...