Daughterhood The Podcast: For Caregivers

My guest today is world-renowned dementia expert Teepa Snow, occupational therapist and founder of the Positive Approach to Care, which offers training, services, and resources to families and professionals worldwide.  Teepa has spent decades helping people understand the brain changes behind dementia and, just as importantly, how to support both the person living with dementia and the caregiver. In our conversation, we discuss strategies for interacting with your care partner from mild cognitive impairment on, what changes and what stays the same, accepting help from others, why knowing your person and knowing yourself are equally essential while providing care and so much more. TeepaSnow.com Daughterhood.org TRANSCRIPT

Dr Shoshana Ungerleider, is a board-certified internal medicine physician, science journalist, and passionate advocate for compassionate end-of-life care.  She hosts and produces TED Health and the NY Radio Award–winning podcast Before We Go, and founded the End Well Foundation to make end of life a part of life.  Shoshana regularly appears as a medical expert on CNN, MSNBC, and CBS News, with bylines in TIME, USA Today, Scientific American, and more.  She executive produced the Oscar-nominated Netflix film End Game, funded the Emmy-winning Extremis, and produced Robin’s Wish, about the final years of Robin Williams.  In this episode, we explore how popular culture and healthcare meet—how film, media, and storytelling shape the way we see end-of-life, grief, loss, and caregiving—and we’ll hear Shoshana’s story of caring for her father through cancer. From documentaries to news headlines, including EndWell’s part in consulting on HBO’s Emmy winning drama The Pitt, these cultural moments guide how we talk about death, support those we love, and face our own final chapters. TRANSCRIPT with resources Daughterhood

My guest today is Susanne White, The Caregiver Warrior, an author advocate, Daughterhood circle leader and veteran, family caregiver who turned her personal journey into a mission to support others.  After caring for her parents through illness and dementia, she emerged with powerful lessons in compassion, resilience and self care. Her new book, self care for caregivers is a guide for anyone navigating the emotional roller coaster of caregiving.  In this conversation, we explore the difference between guilt and shame. We talk about the weight caregivers carry, the second guessing the family dynamics, the difference between accountability and responsibility, even the quiet grief that shows up along the way. Most of all, we share ways to ease that burden and how to remind ourselves that being human is more than enough.  TRANSCRIPT Caregiver Warrior For support and community visit: Daughterhood

Rebecca Dittrich is a healthcare attorney, a former corporate executive, a death doula, a Daughterhood circle leader and Founder and CEO of The Reprise Project. After working professionally for years on issues related to Medicare, longterm care and senior living, her dad’s catastrophic stroke in 2021 turned all of those issues deeply personal. She’s since committed her career to supporting caregivers and fostering the honest intentional conversations that help families approach aging and dying with clarity, purpose, and connection. She is a millennial caregiver who lives in San Francisco with her husband and dad, and who will enter the sandwich generation in the fall of 2025 when she welcomes a baby girl. In this episode, Becca shares what it’s really like to be a younger caregiver, navigating big responsibilities while your peers are living totally different lives. We talk about balancing caregiving with your own goals, building a support system, setting boundaries, having that conversation with your parents, and more. Whether you’re just starting out or have been caregiving for years, we share tools and insights that apply to every stage of the journey. TRANSCRIPT The Reprise Project Instagram: drdwillseeyounow Daughterhood

I'm delighted to welcome back to the podcast Dr. Barry Jacobs, and equally excited to welcome his co author and wife, Dr. Julia Mayer. Dr. Barry Jacobs is a clinical psychologist, family therapist, author and principal at Health Management Associates, a national healthcare consulting firm. He's the author of the emotional Survival Guide for Caregivers, and has been a trusted voice for caregivers through his long running aarp.org advice column. Dr. Julia Mayer is a clinical psychologist with over three decades of experience supporting women in caregiver roles as well as those with troubled marriages and histories of sexual trauma. She's the author of the novel A Fleeting State of Mind, and co-host of the psychology and social justice podcast Shrinks on Third. Together, Barry and Julia have co authored several AARP titles, and now they're back with their latest collaboration, The AARP Caregiver Answer Book. This compassionate and practical guide is a must have for anyone navigating the caregiving journey. Today, we're discussing some of the topics in their book, covering common challenges in caregiving: breaking promises, dealing with guilt and burnout, the emotional realities of caregiving and so much more. TRANSCRIPT For more support and community, find us at Daughterhood

Dementia family caregivers face an overwhelming journey—without adequate support or resources. Supporting someone with dementia is a complex, emotional, exhausting journey. Yet, dementia family caregivers face this challenge without the coordinated support, training, or resources needed to provide the best care possible. But that’s beginning to change. On July 1st Medicare is launching a new, first-of-its-kind program called GUIDE—Guiding an Improved Dementia Experience—created to provide comprehensive, FREE support for dementia family caregivers. Daughterhood has partnered with PocketRN, an approved Medicare provider for the GUIDE program and a nationwide organization offering families 24/7 access to nurses—right from their pocket. My guest today is Jenna Morgenstern-Gaines, the CEO and co-founder of PocketRN. In our conversation, Jenna will share more details about the GUIDE program and its comprehensive benefits, including ongoing caregiver support, education and training, access to respite care, how to enroll, everything you need to know to access the program. Episode TRANSCRIPT Access Daughterhood's GUIDE page with information and locator HERE CMS website information on GUIDE

If you or someone you love has ever faced a health scare, this is a conversation you won’t want to miss. My guest today is Dr. Edward G. Rogoff, an accomplished educator and advocate whose personal journey is nothing short of extraordinary. Diagnosed with hemophilia as a child, Dr. Rogoff faced a lifetime of uncertainty—until a liver transplant in adulthood led to an unexpected cure. His experience sparked a lifelong commitment to patient advocacy, organ donation awareness, and reshaping how we approach chronic illness. He’s served on the boards of the Hemophilia Association of New York since 1980 and LiveOnNY, the major organ donor organization for the New York City metropolitan area, and now he’s sharing his wisdom in his new book: "Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve." In this conversation, we explore the power of building the right medical team, managing uncertainty, denial, having tough conversations, staying resilient and how to not let a scary diagnosis overtake your life and keep it all in perspective. TRANSCRIPT Scary Diagnosis Navigating Fear, Finding Strength, and Securing the Health Care You Deserve  Daughterhood

Today, my guest is Amy Fuchs, a Licensed Clinical Social Worker and Aging Life Care Professional with over 15 years of experience supporting families through the complexities of caregiving for aging loved ones. As the founder of The Elder Expert, Amy combines her compassion, empathy, and expertise to provide personalized care and guidance for older adults and their families. In today’s episode, we’ll discuss a challenging and all too familiar struggle: denial in caregiving. Whether it’s denial from our care partners, our siblings, or even from ourselves, it’s an obstacle many caregivers face. Amy shares practical strategies and insights to empower, cope, and manage it all. TRANSCRIPT The Elder Expert Daughterhood

My guest today is Dr Mary Frances O’Connor, Professor of Clinical Psychology and Psychiatry at the University of Arizona, Director of Clinical Training and a grief researcher. Dr O’Connor shared such great insights the first time she was on the podcast, I’m so glad she’s back to discuss her new book The Grieving Body: How the Stress of Loss Can Be an Opportunity for Healing. Today we discuss the physical nature of grief, the physiological response of your body and how grief affects every system, We talk about our immune system, brain fog, ways to cope with grief, how to rebuild after loss and so much more. TRANSCRIPT OF THIS EPISODE MaryFrancesOconnor.org Daughterhood

In these BONUS episodes of Daughterhood the Podcast, Daughterhood Founder Anne Tumlinson joins Rosanne to bring the caregiving conversation to a different level as we’re joined by change leaders and policy experts. Today we speak with Howard Gleckman, senior fellow at the Urban Institute, where he is affiliated with the Tax Policy Center and the Retirement Policy Program. He speaks and writes frequently on aging and caregiving, as well as on tax policy. Howard is the author of Caring for Our Parents: Inspiring Stories of Families Seeking New Solutions to America’s Most Urgent Health Care Crisis, as well as two blogs—TaxVox and Caring for Our Parents which you can find on Forbes.com. In 2016, I was a named one of the nation’s top 50 Influencers in Aging by Next Avenue. Today, we discuss the recent changes in Washington regarding potential cuts to Medicaid, changes to Medicare, drug production, The Older Americans act, the ACA and much more. EPISODE TRANSCRIPT HowardGleckman.com Daughterhood

Jerri McElroy is a full time in home dementia family caregiver and a Caring Across Generations Fellow. She is passionate about care advocacy and created first care for me to encourage family caregivers to prioritize self preservation for their own health and well being. Jerry is a published author, artist, minister, and also a Daughterhood circle leader. Aisha Adkins is an Atlanta based family caregiver, founder, writer, thought leader, speaker and organizer, who is passionate about building an equitable, inclusive and comprehensive public health and care infrastructure using media, storytelling, culture and policy change. She is committed to making an impact across the country for unpaid caregivers of color through her new venture, Caregivers of Color Collective. In this episode, we dive deep into the challenges faced by marginalized caregivers, sharing powerful insights into their experiences within the healthcare system and family dynamics. We also tackle critical issues like generational trauma, the vital role of allyship and much more. TRANSCRIPT OF EPISODE Jerri McElroy’s - Facebook Group - A Life for a Life: A Caregiver’s Journey  https://www.facebook.com/groups/303568590482029/?ref=share&mibextid=NSMWBT Aisha Adkins - https://aishaadkins.com/ Daughterhood

Boundaries. We know they are important in everyday life and even more crucial in caregiving. But how do we establish them? My guest today is Loren Gelberg-Goff, psychotherapist, author and speaker, who has become best known for creating the powerful, life-changing program for caregivers: “Take Back Your Life”. Loren and I explore the crucial topic of boundaries in caregiving. In this conversation we discuss how to create and maintain boundaries, how to feel good about yourself while practicing them, how to deal with others when you find your boundaries and much more. TRANSCRIPT OF EPISODE Daughterhood LorenGelbergGoff.com

David Kessler is one of the world’s foremost experts on grief and loss. and his insights are invaluable. He is the author of six books, including his latest bestseller, Finding Meaning: The Sixth Stage of Grief. David also coauthored On Grief and Grieving with Elisabeth Kubler-Ross which updated her five stages of grief to include the grieving process.  David’s journey into grief and trauma work began after witnessing a mass shooting as a child while his mother was dying. He has since taught professionals in various fields, including healthcare and law enforcement, about the end of life, trauma and grief. In this compelling discussion, Rosanne and David delve into the unique struggles caregivers face in their grief journey. They address the importance of allowing ourselves to process these emotions, the impact our personal grief narratives have on our lives, and the vital steps towards rediscovering our true selves amid loss. Don’t miss this opportunity to learn how to navigate grief and emerge stronger. TRANSCRIPT David Kessler - Grief.com DAUGHTERHOOD

In 2016, Kitty Norton left her job as an NBC assistant editor in Los Angeles, CA for her hometown of Portland, OR to care for her mother living with dementia.  While caring, she authored the dementia caregiver blog Stumped Town Dementia, writing tales of dementia life, not dementia death, which resonated deeply with readers around the world.  After her mother’s death in 2021, Kitty took to the road in an RV to produce and direct her cross-country documentary film Wine, Women, and Dementia  This film honors the journey with her mother, as well as spreads awareness of the caregiver side of the equation in dementia, and celebrates family caregivers - to let them know they are not alone and that they are worthy of being seen, heard, and celebrated alongside who they are caring for on this difficult road to the end of life. In this episode we discuss common tropes and platitudes most often heard in dementia, the reality behind them, and how Kitty’s caregiving journey led her to create her film. TRANSCRIPT Daughterhood.org

Cheryl Phillips, M.D., AGSF, is the immediate past president and CEO of the Special Needs Plan Alliance, and currently a Senior Program Consultant with the John A Hartford Foundation. She has extensive experience in health policy, Medicare Advantage and the Program of All-inclusive Care for the Elderly (PACE). As a fellowship-trained geriatrician, her clinical practice focused on the continuum. She served as a primary care health policy fellow under Secretary Tommy Thompson and currently chairs The SCAN Foundation Board of Directors and serves as a director on the SCAN Health Plan and Group Boards. Today, we discuss the 4 M’s that will help you prepare for each appointment, the burden of being the connector and care coordinator with specialists, dealing with assumptions and expectations, the dangers of anesthesia and falls, and much more. I hope you enjoy our conversation. TRANSCRIPT Daughterhood.org

Mental health is crucial for overall well-being at every stage of life. It encompasses our emotional, psychological, and social well-being, influencing our thoughts, feelings, actions, stress management, relationships, and decision-making. Supporting your mental health is especially important during caregiving.  In this episode, we discuss the difference between depression and malaise, how to spot depression in our cells and our care partners, and practical strategies and resources to support our mental health on a daily basis. I hope you enjoy our conversation. TRANSCRIPT AND RESOURCES Daughterhood.org

When Alzheimer’s dementia arrived without warning, Dr. Sheri L. Yarbrough (Praxis Senior Care-Giving Solutions)used her ability to view a circumstance from multiple perspectives to understand what her mother was experiencing. That became the genesis for her care management strategy, the Praxis for Care. Living the Praxis for Care helped create her motto: care-giving is what you do for your loved one; giving-care is what you do for both of you. In this episode, Dr. Yarbrough and I discuss a range of topics, including identifying your need for support and the specific type of support you require as a caregiver. We also talked about focusing on what remains rather than what is lost, allowing relationships to evolve through your dementia journey, and the important difference between caregiving and giving care. TRANSCRIPT OF EPISODE Praxis for Care Daughterhood.org

Today my guest is Nancy Gentle Boudrie. For 35 years, Nancy helped Business Owners and Corporations achieve peak perform and create exponential success until she found her true passion and purpose working with people to manage high levels of stress and navigate unprecedented challenges.  She blends her business knowledge with her training from Jon Kabat Zinn’s Mindful Based Stress Reduction and Naropa University’s Mindful Leadership Training.  In this episode, Nancy and I discuss what mindfulness is, how to access it, the difference between detachment and dissociation, steps to mindfully accept your emotions, and simple techniques on how to incorporate mindfulness into your caregiving. SHOW NOTES Nancy's website - Awaken With Light Daughterhood.org

Traveling with your care partner can be stressful. Carol Giuliani of Senior Travel Companion Services is here to provide strategies and some little-known tips for caregivers. She has planned and executed over 125 domestic and international trips through all 50 states and across the globe. In this episode, Carol and I discuss tips for traveling with your care partner, everything from how to plan your trip, which airlines and resources can assist best how to handle long car rides, traveling with medical equipment, and everything in between.  SHOW NOTES Daughterhood.org

More than half of Americans take four or more medications a day. That number increases to at least seven when we add over-the-counter medications. All of these have side effects and interactions. Today my guest is DeLon Canterbury, Founder of Geriatrix.org who hopes to revolutionize the way we look at medications by educating the public on deprescribing. In this episode, we discuss the importance of knowing the medications your care partners are taking, what he considers dangerous drugs, the most over prescribed drugs and how to discuss deprescribing with your care partners physician. SHOW NOTES Daughterhood.org