Dust Disease Diaries: Real lives, real stories of asbestos & beyond

In this episode of Dust Disease Diaries, James O’Loghlin sits down with Amy O’Donnell, Clinical Nurse Consultant and the first lung cancer nurse at Chris O’Brien Lifehouse, about why specialist nurses aren’t just important – they can change lives.  Supporting patients from the point of diagnosis and all the way through – it is the nurses that are uniquely positioned to provide both medical care and emotional support. They help patients understand their diagnosis,  help them navigate through treatment, answer questions and provide emotional and psychological support.  And this is exactly why Amy loves her role.  She talks to James about the range of patients she supports - from those experiencing homelessness to those surrounded by loving families. And the challenges? Balancing the needs of lung cancer patients and mesothelioma patients. Without a dedicated mesothelioma unit, these patients are lumped into the lung cancer service—but their needs are completely different. Amy breaks down how she supports people facing this tough diagnosis: a cancer with a poor prognosis, limited treatment options, and a huge psychological burden—especially because it’s an avoidable disease.She also dives into the wider challenges of lung cancer care, including the stigma around smoking that can make this illness incredibly isolating, and the education and support she provides.Looking ahead, Amy shares her vision for what’s needed – greater awareness and understanding, more compassion and support for patients, dedicated specialist nurses and continued research to expand treatment options.This is a must-listen conversation for anyone wanting to understand the crucial role specialist nurses play in supporting patients with mesothelioma and lung cancer—and what more can be done to improve care and outcomes. ·       Since this episode was recorded, the National Lung Cancer Screening Program   launched in July 2025 to help detect lung cancer at an early stage in people at higher risk, particularly long-term smokers and former smokers. Amy O’Donnell is a Lung Cancer Clinical Nurse Consultant (CNC) at the Chris O’Brien Lifehouse. Amy was the first appointed lung cancer nurse in Lifehouse in May of 2019 and has developed the role of the specialist lung cancer nurse there.  Her dedication to the role has been invaluable and has attracted further funding.  She now works alongside a lung cancer Nurse Practitioner. You can find out more about Amy here. Amy is a member of the Specialist Lung Cancer Nurse Advisory Group coordinated by ADDRI as part of the Commonwealth Mesotheliomas Alliance – a partnership between ADDRI and Mesothelioma UK, supported by the Biaggio Signorelli Foundation, to share research and nursing expertise to support people suffering from mesothelioma across the Commonwealth.  Find out more about the CMA here. To find out more about ADDRI, visit our website.  Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios <hyperlink https://sydneypodcaststudios.com.au/ If you have any questions or comments, please email info@addri.org.au

In this episode, James O’Loghlin sits down with Heather Von St. James – a remarkable 20-year survivor of mesothelioma, research advocate, and author from Minnesota, USA.Heather was just 36, and a brand-new mum to a three-month-old baby, when she was diagnosed with malignant pleural mesothelioma in 2005. Likely exposed through second-hand asbestos from her father’s work in construction and demolition, she suddenly faced devastating odds. Heather shares how she made the life-changing decision to travel across the country to Boston, where she underwent radical extrapleural pneumonectomy (EPP) surgery. Separated from her baby, she endured months of chemotherapy and radiation – but never once entertained the thought of dying.You’ll hear Heather talk about her incredible journey of survival – from those early years of diagnosis, treatment, and recovery, through to rebuilding her life, raising her child, and finding her purpose through advocacy. She also opens up about the lack of patient support in the US at the time of her diagnosis, and why she so deeply values the services organisations like ADDRI provide today.Now, two decades on, Heather has not had any recurrence – and she uses her voice to remind people everywhere that there is hope. She’s become a global advocate for rare cancer awareness, working closely with the Mesothelioma Applied Research Foundation, serving on research funding review panels, and offering vital peer support to newly diagnosed patients around the world.Heather’s story is deeply personal, but it’s also one so many can connect with. No matter where you live, a mesothelioma diagnosis carries the same heavy weight. But the way care, advocacy, and support play out can feel very different from country to country.By the end of this conversation, you’ll understand why Heather’s father called her a ‘beacon of hope.’ She truly brings light and strength to people facing a mesothelioma diagnosis – and we hope her story leaves you feeling inspired too. ·       In the U.S. around 40,000 deaths per year are attributed to asbestos exposure.  In June 2025, the U.S. Environmental Protection Agency (EPA) stated their intention to reconsider the ban on the ongoing uses of chrysotile asbestos Heather Von St. James is an American Mesothelioma Survivor, Research Advocate and Author based in in Minnesota, USA.  Heather was diagnosed with malignant pleural mesothelioma at age 36 in 2005, shortly after delivering her first and only child.  In 2006 she underwent the radical extrapleural pneumonectomy (EPP) surgery, and has been very open about her journey.She is a passionate advocate for rare cancer awareness and research. *The personal views shared in this episode are those of the individual participant.You can read more of Heather’s story here.To find out more about ADDRI, visit our website.Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios .If you have any questions or comments, please email info@addri.org.au

Just this week, a new legal battle is taking place in Indonesia.  Activists who successfully secured a court ruling for mandatory labelling of asbestos-containing products as “Hazardous” are now facing defamation lawsuits from a global pro-asbestos lobby group representing some of the world’s largest asbestos producers, including those based in Russia and China.How can this happen? In this episode, James O’Loghlin speaks with Phillip Hazelton, Senior Advisor at Union Aid Abroad – APHEDA, the international development agency of the Australian union movement, who provides a fascinating insight into the global use of asbestos.Phillip brings more than 30 years of experience working across Southeast Asia, where asbestos-related diseases often go undiagnosed due to limited capacity to diagnose.  And if it can’t be diagnosed – does that mean there is no disease?  In many countries this is exactly what’s happening – but we know that it is widespread and increasing.  In Indonesia alone, the Global Burden of Disease study estimates more than 1,000 people die each year from asbestos-related diseases.  Yet public awareness remains low, and the pro-asbestos lobby continues to spread misinformation—including the dangerous myth that “white asbestos” can be used safely.This conversation covers: The aims and impact of Union Aid Abroad-APHEDA’s regional asbestos campaign in Cambodia, Indonesia, Lao PDR and Vietnam.The persistence of asbestos use globally, including countries still exporting and importing asbestos-containing products.The disinformation campaigns by the pro-asbestos lobby and the strategies used to counter them.The barriers health professionals face in diagnosing asbestos-related diseases in countries where asbestos is still in circulation.  If they can’t diagnose, there is no problem. The importance of international collaboration, especially in listing hazardous substances like chrysotile asbestos under the Rotterdam Convention. As part of the global effort to eliminate asbestos-related diseases, Union Aid Abroad – APHEDA, in close collaboration with ADDRI and with support from the Australian Government agency ASSEA, has been delivering specialist clinical training in the region. In recent years, teams have travelled to Indonesia, Vietnam and Laos, equipping local health professionals with the skills to identify and diagnose asbestos-related diseases.In late August, a specialist ADDRI training team will travel to Cambodia to continue this vital work. As Phillip says ‘’We fought long and hard for workers’ rights in Australia and compensation for victims, people in our neighboring countries shouldn’t be dying unnecessarily.” Phillip Hazelton has spent more than 35 years working in international development, project management, industrial relations and OHS — including 18 years based in Southeast Asia. His extensive experience includes senior roles with Union Aid Abroad – APHEDA, the Australian Manufacturing Workers’ Union, and the International Labour Organization (ILO).Phillip led the Ban Asbestos campaign for seven years, coordinating efforts to reduce the incidence of asbestos-related diseases through policy change, worker education, and regional partnerships. He now works as a Senior Advisor based in Sydney. Union Aid Abroad APHEDA (Australian People for Health, Education and Development Abroad) is a non-government organisation of the Australian union movement and serves as the international aid agency of the Australian Council of Trade Unions.  It receives funding from the Federal Government. You can find out more about Union Aid Abroad – APHEDA – here.Learn more about the Asbestos and Silica Safety and Eradication Agency (ASSEA) here.Find out about ADDRI’s international training programs here.To find out more about ADDRI, visit our website. Thank you to our Podcast Interviewer and host James O’Loghlin  If you have any questions or comments, please email info@addri.org.au

When a person receives a mesothelioma diagnosis, they are often desperately searching for answers. In today’s episode, James O’Loghlin sits down with Carmel Oostveen, one of the dedicated Mesothelioma Support Nurses at the Asbestos and Dust Diseases Research Institute (ADDRI), to explore the compassionate and complex world of supporting people affected by mesothelioma. Carmel shares her journey into nursing, from surgical and intensive care units through to her current role, where she provides one-on-one emotional, psychological, and clinical support to patients and carers navigating this rare and devastating disease.We learn how Carmel first encountered mesothelioma patients during her time in a cardiothoracic ICU, caring for them after surgery and witnessing the intensity of Trimodal Therapy. That early experience sparked a deep commitment to helping patients and their families through some of the most challenging moments of their lives.In conversation with James, Carmel discusses how ADDRI’s Support Service—unique in being independent of hospitals and available across Australia—offers both clinical expertise and emotional support to individuals and families navigating a mesothelioma diagnosis.Alongside fellow nurse Pamela Logan, she provides one-on-one guidance through complex healthcare systems, starting from the very first phone call. Carmel discusses the realities of a typical day, the importance of listening, and how she helps patients and carers through the most difficult conversations. She also highlights how support extends beyond the person diagnosed—because carers need care too. If you or someone you love has recently been diagnosed, Carmel explains how to reach out and why doing so can make all the difference. Carmel Oostveen is a Mesothelioma Support Coordinator with the Asbestos and Dust Diseases Research Institute (ADDRI).  A Clinical Nurse Consultant Carmel’s career in nursing spans over several decades, marked by her unwavering dedication to her patients. Her journey into the specialised field of mesothelioma was built on a strong foundation of experience as an Intensive Care (ICU) nurse, with a particular focus on cardiothoracics.  In her role at ADDRI, Carmel works closely with diagnosed mesothelioma patients, offering vital support and guidance to both them and their families.   Find out more about the ADDRI Support Service here: https://addri.org.au/support/getting-support/To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin  https://jamesologhlin.com/> and Producer Rod Morri from Sydney Podcast Studios https://sydneypodcaststudios.com.au/.If you have any questions or comments, please email info@addri.org.au

In this episode, we speak with Shane Wormald, a road tunnelling and mining worker who has been diagnosed with Progressive Massive Fibrosis, Silicosis, COPD, and Rheumatoid Arthritis after a 30-year career in an industry he loves.  Shane was the first person in his field to publicly speak out on the dangers tunnel workers face working in incredibly dusty conditions, raising awareness of the deadly risks associated with respirable crystalline silica exposure.Shane's story became widely known when he appeared on Channel 10’s The Project in late 2021, speaking out about silicosis and the impact it had on his life. As a well-respected member of the tunnelling community, Shane's courageous decision to speak out has helped spark change and shine a light on the hidden dangers of the profession, which affect not only workers like him but also future generations, including his sons and nephews in the same industry.In this interview with James O’Loghlin, Shane shares his personal experience with his work, the years of misdiagnosis and ultimately, his official diagnosis of silicosis in 2016.  He discusses the emotional toll it has taken, and the importance of early diagnosis.  And, he provides valuable advice for workers in the tunnelling and mining industries, especially the younger generation, and discusses his hopes for future improvements in safety and health standards.During this conversation discover:  An introduction to Shane WormaldExposure history and Occupational backgroundSymptoms, misdiagnosis and diagnosisThe decision to speak outEmotional ImpactAdvice for workers and families in the IndustryLooking forwardShane’s powerful story – his courage and resilience - and his call to action for better awareness, safety, and early diagnosis for workers in hazardous industries is a must-listen. Resources and Links:The Silicosis Support Hub @ silicosis.org.auThe Project Episode: ⁠Silicosis Fears for Tunnel Workers⁠To find out more about ADDRI, visit our website: ⁠www.addri.org.au⁠ Thank you to our Podcast Interviewer and host ⁠James O’Loghlin⁠ and Producer Rod Morri from ⁠Sydney Podcast Studios⁠.If you have any questions or comments, please email ⁠info@addri.org.au

Each year, 4,000 Australians lose their lives to asbestos-related diseases—making it the leading killer of workers, not just in Australia but around the world. In Australia alone, an estimated 6 million tonnes of asbestos remains in the built environment. So, what happens when this material starts to break down? Additionally, around 600,000 Australian workers are exposed to hazardous silica dust in their workplaces.In today’s episode, we dive deep into the critical role that unions play in advocating for the fundamental right of every worker to a safe and healthy working environment. We're joined by Liam O’Brien, Assistant Secretary of the Australian Council of Trade Unions (ACTU). With over 23 years of experience as a union official, Liam is passionate about ensuring that every worker has access to a safe workplace.Liam sits down with James O’Loghlin to discuss the ongoing asbestos and silicosis crisis in Australia, the importance of combating complacency around invisible workplace hazards, and the phases of activism that have driven significant changes over the decades. The conversation also highlights the work that remains to be done—and the vital task facing today's generation of workplace safety activists.  Though the benefits of this work may not be immediately apparent, the long-term impact in terms of lives saved will be huge. In this episode, we explore: The role of the ACTU and current initiatives to combat asbestos and silica dust exposure. How unions have played a pivotal role in raising awareness of the asbestos and silicosis issues over the decades. The history of asbestos in Australia and the pressing question today: How can we safely and swiftly remove it from our buildings? The accelerated rate of disease amongst engineered stone workers – and the successful campaign leading to Australia’s world-first ban on engineered stone. The risks associated with tunnelling and the crucial work unions are doing to protect workers exposed to silica dust in this field. The current state of workplace exposure to hazardous dust, and what further actions are necessary to ensure workers' safety. Australia’s leadership in the global fight against asbestos exposure. Liam O’Brien Liam was re-elected as Assistant Secretary at the ACTU Congress in June 2024.  As ACTU Assistant Secretary, he is responsible for leading the movements policy, industrial and campaigning work on work health and safety and workers’ compensation matters. Liam is passionate about the rights of all workers to have safe, healthy and decent work, and is a member of Safe Work Australia (SWA) and the Asbestos and Silica Safety and Eradication Council (ASSEC). You can find out more about Liam and the ACTU here: https://www.actu.org.au/officer/liam-obrien/ To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@addri.org.au

In this episode, we are joined by Jonathan Walsh, a Principal Lawyer specialising in asbestos, silica, and occupational diseases with Maurice Blackburn Lawyers. Jonathan is an expert in dust diseases law and a dedicated advocate for those impacted by these diseases. With a deep passion for justice and compassion for his clients, he works tirelessly to secure the best possible outcomes for individuals affected by these life-changing conditions.    Jonathan sits down with James O’Loghlin to discuss the legal landscape and the health implications for those impacted by silicosis. During this conversation, we discuss the connection between silica dust exposure, workers' rights, and the historical context of these illnesses. Jonathan shares really important insights into how these diseases have affected clients, how litigation has evolved, and the practical process for people who have been impacted.    In this episode, you’ll learn:    ·       The various types of dust exposure that cause disease ·       What to do if you think you’ve been exposed  ·       Why workers should see a specialised lawyer as soon as possible to help navigate the state-based systems  ·       How to start the process with a lawyer - it’s easier than you think! ·       What’s involved in claiming workers compensation and common law damages  ·       How silicosis claims differ from asbestos claims  ·       What needs to be done in Australia to protect workers      Jonathan Walsh is a Principal Lawyer and the Practice Group Leader of the QLD, NT and NSW Dust Diseases teams at Maurice Blackburn Lawyers.  He is the Practice Leader for Queensland/Northern Territory, New South Wales and New Zealand, and an Accredited Specialist in Personal Injury (Dust Diseases),   You can find out more about Jonathan here:https://www.mauriceblackburn.com.au/our-lawyers/jonathan-walsh/ To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios https://sydneypodcaststudios.com.au/   If you have any questions or comments, please email info@addri.org.au

In August 2024, we were thrilled to host UK-based Professor Dean Fennell, a renowned expert in mesothelioma research, in Sydney.  He has designed and led numerous investigator-initiated trials from phase 1 through phase 3, placing him at the forefront of this critical field.   Join James O’Loghlin as he engages in a thought-provoking discussion with Professor Fennell about his clinical and translational research in mesothelioma, as well as the latest treatment options available in the UK.   In this episode, you’ll discover: Insights into Professor Fennell’s groundbreaking research on the gut microbiome and its influence on treatment response. How genetic discoveries are shaping precision medicine and personalised therapy for mesothelioma. An overview of the clinical trials he’s spearheading and the significant advancements in this area.   Professor Fennell also shares details about the exciting collaborations between the UK and ADDRI in Australia, exploring the potential for simultaneous clinical trials in both countries to better serve patients.   His optimism about new therapeutic developments and the commitment to global collaboration shines through, making this a must-listen episode for anyone interested in the future of mesothelioma treatment.   You can find out more about Professor Dean Fennell’s work here: https://mesothelioma-research-leicester.com/team/dean-fennell/   To find out more about ADDRI, visit our website: www.addri.org.au   Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios https://sydneypodcaststudios.com.au/   If you have any questions or comments, please email info@addri.org.au

In this episode, James O’Loghlin sits down with Vicki Hamilton OAM, the CEO/Secretary of the Asbestos Council of Victoria and Gippsland Asbestos Related Diseases Support (GARDS). With over 20 years of dedicated service, Vicki has been a beacon of support for those suffering from asbestos and silicosis in Gippsland and across Victoria.   Vicki’s journey into advocacy and support began after the tragic loss of her father to asbestos-related lung cancer in 2000. At that time, she was unaware of available support groups. Her personal fight to remove asbestos-containing water pipes from her street led her to GARDS. From attending support groups with her mother to leading and expanding GARDS into Victoria’s largest asbestos support and advocacy organisation, Vicki has been a relentless advocate for those affected. Her efforts include significant lobbying that has led to changes in Victoria’s legal claims system.   In this personal and passionate conversation, Vicki reflects on her experiences and shares how GARDS offers essential personal, emotional, and community support, ensuring people are aware of their rights. Vicki also played a crucial role in supporting James himself during the campaign to aid those impacted by ‘Mr Fluffy’ homes in the ACT.   Tune in to gain insight into the impacts of asbestos and silicosis over the past two decades and to appreciate the vital role victim support groups play. Vicki’s dedication, warmth, and commitment to helping others make this episode truly inspiring. As she puts it, “We are always happy to talk to anyone who calls us for help.”   Disclaimer: The viewpoints and opinions expressed in this episode are those of the individual participant.  You can find out more about the Asbestos Council of Victoria/GARDS and the support they provide here   Read more about Vicki Hamilton OAM here  To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios.  If you have any questions or comments, please email info@addri.org.au

In this very special episode, friends Bruce Wallner and James O’Loghlin catch up to remember Bruce’s younger brother and James’ dear friend James ‘Jum’ Wallner and the community campaign they ran together in the months leading to his passing in May 2021, to secure assistance (financial and medical) for victims of the notorious ‘Mr Fluffy’ homes in the ACT.  Jum Wallner contracted mesothelioma after growing up in a home sold by the company that became known as 'Mr Fluffy'. The Wallner family was one of more than a thousand families in the ACT that used loose-fill asbestos for insulation.  During this conversation, Bruce recalls how he and his three younger brothers played in the pile of loose-fill asbestos that had been stored in their garage during renovations. Jum was three years old; 50 years later in July 2020 he was diagnosed with mesothelioma.  What they then discovered was that if you contracted an asbestos disease from work you were eligible for compensation, however, if you got it from living in a ‘Mr Fluffy’ home – you weren’t.  Jum, with the support of Bruce and James set out to remedy that.  Faced with the unthinkable position of foregoing treatment so as not to leave his family destitute, they galvanised a community campaign to lobby the ACT government and then the Federal Government – in the middle of the COVID-19 pandemic – for assistance, not only for Jum, but for any future victims.  As Bruce and James recall they had never run a community campaign – and it was like playing a game where everyone else knew the rules.  They combined their skills and Jum became the face of the all-consuming ten-month campaign that galvanised media and amassed the support of a broader group of allies. They asked everyone they knew who could help.  In the last few weeks, as Jum became sicker, and his life expectancy went rapidly from months to weeks to days, Bruce and James continued to update government ministers daily. On 5 May 2021, the ACT and Australian Governments jointly announced an agreement to establish an asbestos diseases support scheme, to be administered by the ACT Government.  Jum passed away two days later at 54 years of age.  The establishment of this scheme will provide much-needed services and financial support to future victims who contract an asbestos disease due to living in a ‘Mr Fluffy’ home in the ACT. For Bruce and James, the campaign was initially a way of processing and deferring grief and handling the sense of bitterness at the injustice. Three years after Jum’s passing, they recall the pain and privilege of working together to create something solid that will benefit people in the future – and that serves as a long-lasting legacy to their brother and friend James ‘Jum’ Wallner.  You can read more about James Wallner and the Loose-Fill Asbestos Disease Support Scheme here. Visit ADDRI and access support here: https://addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@addri.org.au

Receiving a mesothelioma diagnosis can be overwhelming for patients and their families. Often, they may not understand what this means, where to start, or what options are available. In this episode, James O’Loghlin sits down with specialist nurse Jocelyn McLean, the founder of the ADDRI Support Service. With over 20 years of experience in providing pre-and post-operative education and support to thoracic surgery patients, including those diagnosed with mesothelioma, Jocelyn worked closely with Professor Brian McCaughan, a surgeon offering trimodality therapy (TMT), which involves chemotherapy, radical surgery (Extrapleural pneumonectomy EPP), and subsequent radiotherapy. Her firsthand experience with the vulnerability of these patients inspired her in 2014 to establish a service offering both emotional and practical support. During this conversation, Jocelyn explains the vital role of the ADDRI Support Service. She discusses how specialist nurses help patients and their families navigate the healthcare system, clarify the information they receive, manage the complexities of medical treatments, and provide emotional support through phone, email, and group meetings. If you or someone you care for has been diagnosed with mesothelioma, this is a must-listen conversation. Find out more about the ADDRI Support Service here: https://addri.org.au/support/getting-support/ Read more about Jocelyn here: https://addri.org.au/addri-farewells-jocelyn-mclean-mesothelioma-support-coordinator/ You can listen to the conversations with the patients Jocelyn has supported: Sandie Foreman, Trevor and Shirley Seaman here: https://podcasters.spotify.com/pod/show/dust-disease-diaries   Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@addri.org.au

Caring for a loved one with mesothelioma may be one of the greatest challenges a person may face. The heavy symptom burden of mesothelioma means that patients are significantly dependant on caregivers and the uncertain prognosis makes it hard to predict how things will go and what the patient will need.  In this episode, James talks to Shirley Seaman about her experience in caring for her husband Trevor, who was diagnosed with mesothelioma in 2021. Shirley shares openly what it was like when Trevor first received the diagnosis of a condition she had never heard of. She describes her extensive efforts to gather any information she could, the impossible loss of her mother in Singapore while she was supporting Trevor through radical surgery, and the lifeline the ADDRI Support service provided.   Shirley's story of strength, resilience and honesty offers invaluable insights and support for anyone in a similar situation. Don't miss this powerful conversation. Access resources for carers here: https://addri.org.au/carers/ You can listen to the conversation with Trevor (Shirley’s husband) here: https://podcasters.spotify.com/pod/show/dust-disease-diaries To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@addri.org.au

In this latest episode, James sits down with Professor Deborah Yates – the leading voice on silicosis and dust diseases. Professor Yates is a Respiratory Physician and specialises in thoracic medicine and occupational lung disease.  She was also the first person to diagnose engineered stone silicosis in Australia in 2013.  Australia's mining legacy has made silicosis a longstanding part of our history. In this extremely insightful conversation, Professor Yates discusses where exposure to silica dust occurs, how this causes disease and why engineered stone is the ‘perfect storm’ for accelerated disease development.  She shares what a diagnosis of silicosis actually means, how it impacts the body (and the mind!), the financial and social impacts and the available treatment and management options.   This is a must-listen episode to understand what a diagnosis of silicosis means and what to do next.  Deborah Yates is a Respiratory Physician, most recently in the Department of Thoracic Medicine at the St Vincent’s Hospital in Sydney and a Conjoint Professor at the University of NSW. She has a longstanding clinical and research interest in obstructive lung disease, including asthma, COPD and lymphangioleiomyomatosis (LAM), and also in occupational lung disorders. She has published widely in the field of asthma and occupational lung disease including asbestos-related disorders and occupational asthma. You can find out more about Professor Deborah Yates here: https://addri.org.au/who-we-are/our-expert-consultants-and-advisors/   For further insights into silicosis and to listen to the  personal journey of Deborah’s patient with silicosis Ken Parker, visit:  https://podcasters.spotify.com/pod/show/dust-disease-diaries   To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios.   If you have any questions or comments, please email info@addri.org.au

If you or someone you care about has received a diagnosis of silicosis or is worried about potential exposure, knowing where to start can feel overwhelming. To help with that, in this episode we’ve got Jacqueline Hughes, a Partner at Turner Freeman Lawyers in Sydney, who specialises in compensation law, particularly focusing on dust diseases like silicosis. In our chat with Jacqueline, hosted by James O’Loghlin, we dive into the compensation process specifically tailored for individuals dealing with silicosis. With her wealth of experience and passion, Jacqueline shares how she takes the weight off her clients' shoulders and fights for the best possible outcomes on their behalf. Jacqueline is dedicated to helping a younger demographic affected by silicosis, many of whom are supporting young families – and this is what drives her to ensure that they receive the support and compensation they deserve. This conversation is a goldmine for understanding how lawyers navigate compensation claims, how ‘pain and suffering’ is awarded in different states around the country, and how Jacqueline prioritises her clients' needs above all else. But beyond the legal jargon, what truly shines through is Jacqueline's empathy and determination to tirelessly advocate for her clients. So, if you're seeking insight into the compensation process for silicosis, or just want to be inspired by someone making a real difference, this episode is a must-listen. Note: On 13 December 2023, the Federal Government committed to a national ban on engineered stone to come into effect 1 July 2024.  Read more about Jaqueline Hughes here: https://www.turnerfreeman.com.au/team/jacqueline-hughes/   You can listen to the interview with Dr Stephen Kao here: https://podcasters.spotify.com/pod/show/dust-disease-diaries/episodes/A-medical-oncologists-perspective-on-mesothelioma-management-e2ij41j    You can listen to Armando Gardiman’s episode here: https://podcasters.spotify.com/pod/show/dust-disease-diaries/episodes/I-will-carry-you--Meet-one-of-the-pioneering-lawyers-of-asbestos-litigation-in-Australia-e2eohma To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@addri.org.au

What happens when someone receives a diagnosis of mesothelioma and is referred to an oncologist? In this episode, we delve into the world of mesothelioma management through the lens of Associate Professor Steven Kao. Steven oversees the thoracic oncology clinical service at Chris O’Brien Lifehouse, bringing both expertise and compassion to his patients.  In this conversation with James O’Loghlin, Steven answers the key questions: what happens after diagnosis? What are the different treatment options? Chemotherapy vs Immunotherapy? What is the role of surgery in mesothelioma management? And why is continued research so important?    Steven’s expertise, compassion and optimism provides a rare insight into an oncologist’s world. Through it all, he reminds us that there is always hope – and that comes in many different forms.      Associate Professor Steven Kao is a Medical Oncologist with Chris O’Brien Lifehouse where he oversees the thoracic oncology clinical service – particularly the programme of malignant mesothelioma. He completed his PhD at ADDRI and continues to drive key projects through the institute. He has received many awards in recognition of his research.    You can find out more about Dr Steven Kao here: https://addri.org.au/research/research-team/ and Chris O’Brien Lifehouse here: https://www.mylifehouse.org.au/   For further insights into mesothelioma management and the personal journeys of Steven’s patients, listen to previous interviews with Sandie Foreman and Lisa Hoggard here: https://podcasters.spotify.com/pod/show/dust-disease-diaries To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios.   If you have any questions or comments, please email info@addri.org.au  

How would it feel to be able to walk and talk – but not at the same time? Or to feel like you are breathing through a wet towel? Ken Parker is 48 years old and this is what it’s like to live with severe engineered silicosis. Silicosis is an incurable, but preventable, work-related lung disease caused by inhaling tiny particles of carcinogenic crystalline silica dust released when cutting engineered stone.  Ken worked as Stonemason for 20 years. He was very good at his job. And he had no idea that the dust which was everywhere – in the factory, all over his clothes, in his eyes/mouth – was dangerous.  In this episode, Ken talks to James about how he became a Stonemason, the impact of receiving his diagnosis in 2018 and an official life-expectancy of 5-10 years.  He is now on trial medication to manage his condition in the hope that it will postpone the need for a double lung transplant.  In this conversation, Ken talks candidly about his diagnosis, the impact it has had on every aspect of his life and his advice to people who think they may have been exposed. His incredibly resilient outlook is an inspiration – as he says: ‘Don’t let it bring you down.’  You can watch Ken on the Channel 9 60 minutes episode ‘The Last Gasp’ here: https://www.youtube.com/watch?v=q_hUJmtsucg   On the 03 April 2024, the NSW Government formally committed $5m to ADDRI for critical research into silicosis. You can watch the announcement here. To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@addri.org.au    

This is the story of Biaggio Signorelli, a young migrant from Italy who arrived in Pyrmont, NSW, in the mid-1950s. From humble beginnings, Biaggio went on to found the iconic Doltone House Group – making a significant impact on Sydney's hospitality scene.  In October 2007 at the age of 70, a seemingly minor cough revealed a devastating diagnosis of mesothelioma. Despite undergoing surgery and chemotherapy, Biaggio passed away just eight months after his diagnosis. In this episode, we delve into the profound impact of Biaggio's illness on his family and his son Paul, who served as his primary caregiver during his final months. We're joined by Joanne Wade from Slater and Gordon Lawyers, who played a pivotal role as the acting lawyer on behalf of Biaggio Signorelli. As Head of Asbestos and Dust Diseases, Joanne shares her perspective on managing the legal claim and reflects on her personal motivation drawn from her father's own battle with asbestos-related disease. Biaggio's dying wish was to prevent others from suffering the same fate, leading to the establishment of the Biaggio Signorelli Foundation. To date, the foundation has generously donated over $1 million to the Asbestos and Dust Diseases Research Institute (ADDRI), continuing Biaggio's legacy of advocacy and support. This episode explores the resilience, determination, and enduring impact of Biaggio Signorelli's remarkable journey – the impact on his family, the lawyer who represented him and his legacy.  You can read more about the Biaggio Signorelli Foundation here:   https://www.biaggiosignorelli.org.au/ You can read more about Joanne Wade, Head of Asbestos and Dust Diseases at Slater and Gordon Lawyers here:  https://www.slatergordon.com.au/people/joanne-wade   To find out more about ADDRI, visit our website: www.addri.org.au Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios.   If you have any questions or comments, please email info@addri.org.au

Welcome to Episode 9 of our podcast series. Today, we're diving into the lingering issue of asbestos contamination in Sydney, particularly discussing why the cleanup process seems to be dragging on for so long.    Since our last episode recorded on the 2nd February discussing the asbestos exposure in Sydney's Rozelle Parklands, the problem has spread all over Sydney with signs of contamination cropping up across many neighborhoods. Many of these affected areas, which are vital community spaces, remain cordoned off. But why is the cleanup effort moving at such a sluggish pace? Join James as he reconnects with Peter Tighe, the Independent Chair of the Asbestos and Dust Diseases Research Institute (ADDRI), to address some pressing questions: ·       Who bears the responsibility for the cleanup efforts? ·       How exactly is the cleanup conducted, and what measures ensure safety? ·       Seven weeks have passed since Rozelle Parklands closed its gates to the public, yet only a fraction of the cleanup is complete. Why the delay? ·       Where does the contaminated waste end up? ·       Crucially, once the asbestos is eradicated, can we confidently return to these parks without fearing exposure?   Tune in as we tackle the issues surrounding the asbestos cleanup, and importantly, understanding when our community spaces will be safe again.   To find out more about what the EPA NSW is doing visit their website here: https://www.epa.nsw.gov.au/working-together/community-engagement/updates-on-issues/rozelle-parkland-asbestos-investigation   To find out more about the Asbestos and Dust Diseases Research Institute (ADDRI) and to access support, please head to https://adri.org.au/   Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios.

In the late 1970’s and 1980’s, Trevor Seaman worked as an apprentice electrician in his hometown of Wagga Wagga. He then spent the next 35 years travelling the world working on various oil rigs and mines. In 2020, Trevor and his wife Shirley returned home to Australia, planning to retire and work on the farm they had purchased in country Victoria, near the Albury-Wodonga border. Feeling increasingly breathless, but not overly concerned, Trevor decided to seek medical advice and after numerous appointments and tests, Trevor received a call that would change his life. He had been diagnosed with mesothelioma. When his wife Shirley asked him what that was, he simply replied it’s “a death sentence.” In this raw and inciteful conversation, Trevor opens up to James about what it was like to receive the mesothelioma diagnosis. He walks us through the radical surgery he underwent, the post-surgery complications and mental anguish he suffered. He offers insight into the support he received from his medical team, and how making contact with the ADDRI Support Service was truly life-saving.  By sharing his story, Trevor aims to offer advice to those who may find themselves in a similar situation – and to share how he has learnt to build a decent quality of life despite the ongoing challenges – finding ways to continue doing the things he loves with this wife.  To find out more about the Asbestos and Dust Diseases Research Institute (ADDRI) and to access support, please head to https://adri.org.au/ A clinical overview of the treatment for mesothelioma is available here  https://adri.org.au/whocc/etoolkit-2021/treatment-of-mesothelioma/ Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios. If you have any questions or comments, please email info@adri.org.au

It’s early 2024 and bonded asbestos has been found in mulch across Sydney. What do we need to know and should we be worried?  In early 2024, bonded asbestos was discovered in the mulch of the brand-new Rozelle Parklands, sparking public concern. Then more was found in landscaping sites across Sydney. This has shone a light on the fact that asbestos is still very much a problem today.  Peter Tighe, Independent Chair of the Asbestos and Dust Diseases Research Institute (ADDRI) and the former CEO of the Asbestos Safety and Eradication Agency (ASEA) has an enormous wealth of experience and knowledge about asbestos in Australia. In this episode, he clearly explains why asbestos is still a problem today and more prevalent than we think. He answers the questions everyone is now asking: What is bonded asbestos and what are the risks? Should we be worried? And what needs to happen to ensure people are protected?  To find out more about the Asbestos and Dust Diseases Research Institute (ADDRI) and to access support, please head to https://adri.org.au/   Thank you to our Podcast Interviewer and host James O’Loghlin and Producer Rod Morri from Sydney Podcast Studios   If you have any questions or comments, please email info@adri.org.au