Exceptional Stories and the People Who Live Them

With your host currently under the weather, we hope you enjoy this re-airing of episode 13 with our good friend and supporter Dustin Phillips. Today we have an extraordinary guest, Dustin Phillips, whose passion and dedication to the exceptional needs community are truly amazing. Dustin's remarkable journey and the impact he's making in the lives of individuals with special needs are nothing short of inspiring.Dustin's story is rooted in his deep love and connection with his older brother, Chad, who was born with Down syndrome. This familial bond ignited Dustin's lifelong commitment to making a difference in the lives of individuals with exceptional needs. As a special education teacher, he works tirelessly to support children who have faced trauma, providing them with the care, understanding, and education they need to thrive.Dustin's involvement with the Helen Keller Institute is another testament to his dedication. He spearheads the incredible "Camp Courage: A Helen Keller Experience," a program designed to empower young students with visual and/or hearing impairments. This transformative three-day camp fosters confidence, lasting connections, and a vision for the future, leaving a lasting mark on the lives of these young participants.But that's not all. Dustin is also deeply engaged with "Night to Shine," an unforgettable prom night experience that radiates love and inclusion for people with special needs. Through this event, individuals aged 14 and older are given a chance to shine, dance, and celebrate life with the warmth of community and acceptance.In addition to his educational and advocacy work, Dustin is turning his dreams into reality with "The Chadwick Center." This brand-new event venue is being developed in honor of his beloved brother, Chad. The Chadwick Center stands out as a place of celebration, unity, and accessibility. It's designed to be inclusive and accommodating to individuals with disabilities, ensuring that everyone can participate fully and feel embraced. Dustin's goal is to create a hub where more services can be offered to the exceptional needs community and their families, with plans to open to the public in the Fall of 2024. Dustin's dedication to promoting inclusivity, accessibility, and a brighter future for individuals with exceptional needs is a story that will touch your heart and inspire you. So, stay tuned as we delve deeper into his exceptional journey and the impact he's making in this week's episode.Here's how you can reach out to Dustin:InstagramX (formerly Twitter)FacebookThe Chadwick Center websiteThe Chadwick Center InstagramSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Welcome, my friends, to another captivating episode of "Exceptional Stories and the People Who Live Them." Today, we embark on a deeply personal exploration into the intricate world of genetic legacies, as we delve into the profound impact of Q28 duplication on second-generation individuals. Our guest, Kaylee Sartin, shares a story that transcends generations, weaving a tale of strength, love, and the complexities of inherited quirks.In a remarkable twist of fate, Kaylee's journey with Q28 duplication echoes through her family's history. She brings a unique perspective to the table. Kaylee's familial connection to the condition doesn't end with her own experiences – she watched her brother navigate life with the same diagnosis, a poignant narrative we explored in our inaugural episode. Now, as the mother of Wyatt, an almost six-year-old with Xq28 duplication, Kaylee opens up about the challenges, triumphs, and emotional rollercoaster of caring for her son, offering us a glimpse into the echo of her past and the profound impact it holds for her family's future. Join us as we listen to the heartwarming and challenging moments that define the Sartin family's exceptional journey.Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

In our last episode, Dr. Rodney Gilmore touched our hearts with valuable insights on navigating grief. This week, we're thrilled to bring you Part 2 of "Beyond the Challenges: Finding Hope Amid Special Needs Grief." Join us as we dive deeper into the conversation, exploring a facet of grief often overshadowed. Discover practical strategies and heartfelt perspectives on addressing and overcoming this unique form of grief. Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Welcome to another episode of "Exceptional Stories and the People Who Live Them." Today, we’ll embark on an emotional journey as we delve into the profound topic of navigating grief in the realm of special needs parenting. In this episode titled "Beyond the Challenges: Finding Hope Amid Special Needs Grief," we aim to illuminate the path toward resilience and hope, acknowledging that the journey is often marked by profound challenges and unexpected turns. Our guest today is a friend and confidant to my family. Today, you’ll hear how he helped our family during our time of grief in May of 2015 as I share things, I’ve never publicly shared about our journey. He is a seasoned counselor and pastor and brings insights that go beyond conventional narratives, offering solace and inspiration to parents and caregivers navigating the intricate terrain of grief. Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Welcome to this week’s episode. Today, I want to explore the crucial role of caregivers, educators, and community members in advocating for children. In this episode, we introduce the "5 A's for Advocating for Kids" framework—a guide empowering individuals to be effective advocates. Whether you're a parent, educator, or community member, these principles, focusing on awareness, assertiveness, alliances, adaptability, and access to resources, will be your roadmap for impactful advocacy. Join us as we work towards a world where every child's voice is heard and their potential celebrated.Let’s embark on this advocacy journey together, ensuring that every child has the opportunity to thrive and reach their full potential.If you would like a PDF copy of this framework, send an email to exceptionalstoriespodcast@gmail.com and we'll get it right out to you. Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Today, we are privileged to host the incredible mother-and-son duo, Michelle and Mason Harvey. In 2020, Mason faced the unexpected challenge of a Crohn's disease diagnosis, altering the course of their lives. Together, they will open up about their journey, offering insights into the daily realities of living with Crohn's. With unwavering courage and a commitment to thriving despite the hurdles, Michelle and Mason share their experiences, showcasing not only their toughness but also the strength that binds them together. You’ll also hear Mason explain why he feels, his diagnosis is a gift and what he considers a “victory”. Their podcast, 'IBDetermined,' is a beacon of support for others on similar paths. Join us as we delve into their remarkable story, discovering the triumphs, challenges, and the indomitable spirit that defines their journey.IBDetermined PodcastIBDetermined YouTube ChannelKarmatude Candles Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

This week, we are honored to have Savannah Loudin as our featured guest. Savannah is a beacon of inspiration and resilience, having dedicated the past decade of her life to working with the special needs population, plus almost a year with a remarkable ministry at Asbury, where she shares profound insights into the team's tireless commitment and the unique requirements they navigate every Sunday.In this episode, Savannah pulls back the curtain on the extraordinary efforts that go into making a typical Sunday at Asbury truly exceptional. From the meticulous team requirements to the ongoing dedication that fuels their impactful work, Savannah provides an intimate look into the heart and soul of this transformative ministry. As a seasoned leader, Savannah also imparts valuable guidance for local church leaders eager to initiate similar initiatives, offering a roadmap for those looking to make a meaningful impact in their communities. Join us as we delve into the stories that shape lives and explore the unwavering dedication that defines Savannah Loudin's extraordinary journey at Asbury.Links: Asbury ChurchSend an email to SavannahSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Today, we're focusing on a crucial aspect often overlooked—caregiver health. Our episode, "Navigating Emotional and Mental Health Challenges: Tips for Special Needs Parents," aims to provide valuable insights and tips for parents navigating the unique journey of raising children with developmental and intellectual disabilities.Caregiving for children with special needs comes with its own set of challenges, and often, the emotional and mental well-being of parents takes a back seat. In this episode, we'll explore the impact of caregiver health on life satisfaction and share practical tips to enhance the overall well-being of special needs parents. Join us as we navigate through the complexities of this journey, offering guidance to foster a healthier and more satisfying life for both parents and their children with special needs. Stay tuned for a conversation that combines empathy, expertise, and actionable advice.Links:Child Mind Institute Article: Why Self-Care Is Essential to Parenting - Child Mind InstituteNational Library of Medicine: The psychosocial, endocrine and immune consequences of caring for a child with autism or ADHD - PubMed (nih.gov)Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

In this week's emotionally compelling episode, we have the privilege of sitting down with Valorie Sibley, a resilient and inspiring mother whose journey unfolds in the extraordinary life of her eight-year-old daughter, Audrey Lane. Audrey Lane grapples with a very rare genetic mutation, the DNM-1 gene mutation, shedding light on the daily challenges and triumphs of living with such a condition. Valorie generously shares the intricacies of Audrey's life, offering a poignant narrative that speaks to the heart of the special needs parenting community.As Valorie opens up about the impact of the DNM-1 gene mutation on Audrey's daily life, you will gain a profound understanding of the unique experiences that define their family. Valuable advice for parents facing similar circumstances is woven throughout the conversation, providing a beacon of support and empathy. Discover how horseback riding has become an integral part of Audrey Lane's therapy, showcasing the innovative approaches embraced by families navigating the complexities of rare genetic conditions. With no cure for DNM-1 and a decrease in life expectancy starting in the early teen years, Valorie shares the family's approach to making the most of every precious day. Stay tuned for an episode that resonates with courage, resilience, and the unbreakable bond between a mother and her extraordinary daughter. Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

In this poignant podcast episode, we had the privilege of hosting Michelle Norwood, co-founder of "A Little Something Extra Ice Cream," as she shared the inspiring story of her son, Hunter, who has become a symbol of resilience and joy in the face of living with Down syndrome. Michelle painted a vivid picture of Hunter's life, highlighting the challenges and triumphs that have shaped his journey. You will gain  a deep understanding of the Norwood family's unwavering commitment to supporting individuals with disabilities, using their experiences to fuel the creation of the extraordinary ice cream venture that is "A Little Something Extra Ice Cream."As Michelle delved into the backstory of their business, the podcast explored the meaningful impact of the ice cream truck beyond its delicious offerings. The truck serves as a vehicle for training, employment, and social integration, embodying the Norwoods' dedication to fostering inclusivity. From the heartwarming anecdotes of the Ice Cream Experts they've trained to the joyful moments shared at events across Alabama, the episode encapsulated the Norwood family's mission to spread a little something extra—love, acceptance, and opportunity—in every scoop of ice cream.Links for this show:A Little Something Extra Ice Cream websiteFacebookInstagramEmailTo reach Michelle by phone, call 256-601-7125Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Today, we're immersing ourselves in a topic that profoundly touches the hearts of many – 'Navigating the Holidays' with our exceptional children.As we enter the holiday season, with all its joy, celebrations, and, let's be honest, some distinctive challenges, we want to assure you that this episode serves as a guide for practical advice, shared stories, and the unwavering strength that characterizes our exceptional community.Throughout today's episode, we'll be exploring a five-point navigation plan. Each segment is a treasure trove of practical advice, that will be a resource that will continue to support you beyond the duration of this episode. At the end of this episode, I will tell you how you can get a copy of this plan sent to your inbox. Whether you're maneuvering through sensory sensitivities, orchestrating inclusive celebrations, or simply aiming to craft enduring memories, consider this your comprehensive navigation plan. So, settle into a comfortable space, perhaps with a cup of your favorite warm beverage, as we embark on this collective journey. For a .pdf copy of our 5-step navigation plan, send an email to exceptionalstoriespodcast@gmail.com and we'll get it to you promptly. Links for this show:Raising Your Spirited Child Sensory Friendly hours return to WalmartSensory Processing Disorder FoundationAutism Speaks List of ResourcesVisual Schedules: A Practical Guide for FamiliesSelf-Care resources for parents of special needs childrenSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Welcome to another inspiring episode of "Exceptional Stories and the People Who Live Them." Today we have an extraordinary guest, Dustin Phillips, whose passion and dedication to the exceptional needs community are truly amazing. Dustin's remarkable journey and the impact he's making in the lives of individuals with special needs are nothing short of inspiring.Dustin's story is rooted in his deep love and connection with his older brother, Chad, who was born with Down syndrome. This familial bond ignited Dustin's lifelong commitment to making a difference in the lives of individuals with exceptional needs. As a special education teacher, he works tirelessly to support children who have faced trauma, providing them with the care, understanding, and education they need to thrive.Dustin's involvement with the Helen Keller Institute is another testament to his dedication. He spearheads the incredible "Camp Courage: A Helen Keller Experience," a program designed to empower young students with visual and/or hearing impairments. This transformative three-day camp fosters confidence, lasting connections, and a vision for the future, leaving a lasting mark on the lives of these young participants.But that's not all. Dustin is also deeply engaged with "Night to Shine," an unforgettable prom night experience that radiates love and inclusion for people with special needs. Through this event, individuals aged 14 and older are given a chance to shine, dance, and celebrate life with the warmth of community and acceptance.In addition to his educational and advocacy work, Dustin is turning his dreams into reality with "The Chadwick Center." This brand-new event venue is being developed in honor of his beloved brother, Chad. The Chadwick Center stands out as a place of celebration, unity, and accessibility. It's designed to be inclusive and accommodating to individuals with disabilities, ensuring that everyone can participate fully and feel embraced. Dustin's goal is to create a hub where more services can be offered to the exceptional needs community and their families, with plans to open to the public in the Fall of 2024. Dustin's dedication to promoting inclusivity, accessibility, and a brighter future for individuals with exceptional needs is a story that will touch your heart and inspire you. So, stay tuned as we delve deeper into his exceptional journey and the impact he's making in this week's episode.Here's how you can reach out to Dustin: Instagram X (formerly Twitter) Facebook The Chadwick Center websiteThe Chadwick Center InstagramSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Ladies and gentlemen, welcome to another heartwarming episode of "Exceptional Stories and the People Who Live Them." Today I have the privilege of introducing Kenneth and Jamie Larson, hailing from My home state of Alabama.Their story is a testament to the strength of family, love, and determination as they share their journey of raising their vibrant and inspiring daughter, Kendle. Kendle was born with Down Syndrome, but her diagnosis was a revelation that forever changed the Larson family's life. At the moment of her birth, nurses noticed certain down syndrome markers and delivered the news to Kenneth, which stopped both parents in their tracks. the news left them grappling with fear, shattered life plans, anger, and moments of depression.Kendle's journey also took an unexpected turn when doctors found three holes in her heart, including an atrial septal defect (ASD), ventricular septal defect (VSD), and patent ductus arteriosus (PDA). Yet, in the face of these challenges, Kendle's heart healed, and today, she's a spirited 18-year-old senior in high school, full of life and energy.As Kendle's educational path unfolded, the Larson family navigated the transition from inclusion to one-on-one support, with invaluable insights gained from a transformative visit to Vanderbilt University. Kenneth and Jamie are here to share their experiences and offer advice to parents who may be going through similar journeys, particularly when it comes to IEP (Individualized Education Plan) meetings. their aim is to empower families not to be intimidated by the process.But perhaps most inspiring is their family motto, which encapsulates their unwavering commitment to Kendle: "Society may limit Kendle, other people may limit Kendle, but we don't want to." This motto serves as a guiding light, pushing them to defy limitations and expectations, ensuring that Kendle's potential knows no bounds.Stay tuned to hear the Larson family's incredible story, including a lesson taught to them by Kendle's older brother. Their journey is a testament to the power of love and determination, and it's sure to touch your hearts and inspire you to embrace life's challenges with open arms. Don't miss this SPECIAL episode of "Exceptional Stories and the People Who Live Them."Kendle's Friends on FacebookJamie Larson on FacebookSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

This week, we have a truly exceptional guest with us, Leanne Pritchett. Leanne is a dedicated special education professional hailing from the sunny state of California. With over 17 years of experience, she has touched the lives of countless children with a wide range of disabilities, spanning from ages 3 to 22. Her unique perspective and approach to her work truly set Leanne apart. She proudly states that she sees the child, not the diagnosis, and this compassionate viewpoint has guided her through nearly two decades in the classroom.Currently, Leanne's focus is on working with visually impaired students and serving as an orientation and mobility specialist. Her mission extends far beyond her teaching duties, though. Leanne is deeply involved in respite care for parents, offering much-needed support to families in her community. Her goal is to shed a positive light on the challenges faced by special needs families and educate the public on how to interact with and assist these incredible families with empathy and understanding.In today's episode, we'll delve into Leanne's remarkable journey, as she shares her invaluable experiences and insights from her years in the special education field. We'll also explore what she believes is the most significant misconception about special needs kids, providing an eye-opening perspective on the world of special education. So, grab your headphones and get ready to be inspired by Leanne Pritchett's incredible story of love, dedication, and the power of seeing beyond the diagnosis.Find Leanne's podcast on SwellFind Leanne on X (formerly Twitter)Find Leanne on FacebookSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

 Welcome to another heartwarming episode of our podcast, where we are thrilled to introduce our special guest, Jacob Malone. In this captivating episode, we delve into the extraordinary journey of Jacob and his resilient family, particularly, focusing on his remarkable daughter, Nora Rose, who was diagnosed with Trisomy 13. Imagine the emotional rollercoaster of a gender reveal sonogram, where the joyous anticipation of your child's gender is eclipsed by the staggering revelation that your unborn child is 99% positive for Trisomy 13—a condition often deemed "not compatible with life." The doctor's prognosis was grim, with little hope that Nora Rose would survive her first year. Yet, Jacob and his wife Katie were determined to rewrite the narrative. Their sole mission from that pivotal moment forward was to give their daughter a chance at life, no matter how daunting the odds may have seemed. Against all predictions, Nora Rose not only survived birth but continued to surpass expectations, beating the odds in a truly miraculous way. Jacob will also enlighten us about his wife Katie's instrumental role in advocating for "Simon's Law," a groundbreaking piece of legislation in their home state of Alabama. This law carries profound implications for families navigating the challenging journey of Trisomy 13 and similar medical conditions. Moreover, Jacob will share his personal experience of being a parent to a special needs child, shedding light on the joys, challenges, and unwavering love that define his family's story. He will draw compelling parallels to the 1987 renowned essay, "Welcome to Holland," penned by Emily Kingsley, offering profound insights into the emotional landscape that many families with special needs children navigate. In this episode, we will uncover the inspirational and uplifting journey of the Malone family, where love, resilience, and determination have triumphed over adversity. Join us as we explore their remarkable story and gain a deeper understanding of what it means to be a parent of a special needs child. This episode promises to be a beacon of hope, touching the hearts of all who listen. So, stay tuned as we embark on this extraordinary episode of "Exceptional Stories and the People Who Live Them," and join us in celebrating the incredible spirit of Nora Rose, her family, and the enduring power of love. Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

This week we have the privilege of introducing two incredible guests, Carey and Lisa McDaniel, who call the charming Hahira, Georgia their home.Their story is one that epitomizes resilience in the face of adversity. Carey and Lisa are the loving parents of Collin McDaniel, a remarkable young man whose life was tragically cut short nine years ago by a rare and relentless disease known as Neuromyelitis Optica, also known as NMO. In today's episode, we'll delve into the depths of their experiences, from the heart-wrenching moment of Collin's diagnosis to the remarkable struggles he faced throughout his life, and the profound lessons Carey and Lisa have gleaned since his passing.But there's more to this story—Lisa McDaniel has stepped into a pivotal role in the fight against NMO. She is now the Director of Patient Advocacy at The Guthy-Jackson Charitable Foundation. In this role, Lisa leads the advocacy team, overseeing an array of advocacy projects and programs, and maintains daily communication with the NMO community. Her tireless efforts represent a beacon of hope, raising awareness through educational events for parents and clinicians alike, working tirelessly to make a difference in the lives of those affected by this rare disease.So, sit back, and prepare to be inspired as we explore the extraordinary journey of Carey and Lisa McDaniel, parents who have faced unimaginable challenges with unwavering strength and grace. This tale of love, loss, and unwavering determination will inspire and move you. Let’s get into this week's interview. The Guthy-Jackson Charitable Foundation - The Guthy-Jackson Charitable Foundation | Funding NMO ResearchNMO FAQ’s Frequently Asked Questions About Neuromyelitis Optica (guthyjacksonfoundation.org)Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

We have the privilege of welcoming a remarkable guest whose journey through motherhood is a testament to the power of love, resilience, and unwavering hope.Our guest today is Elizabeth Creed, a mother whose story will touch your heart and inspire you. Elizabeth's 14-year-old daughter, Bella, defies the odds every day. Bella's life began with a diagnosis of Down syndrome, a revelation that initially left Elizabeth in the depths of uncertainty. But it was in those moments of doubt that she found her strength and purpose.Elizabeth's path to motherhood was marked by 11 years of determination and countless fertility treatments. The journey was long and arduous, but it was a journey she refused to abandon. And then, during the summer after the loss of her mother, Elizabeth received the incredible news that she was pregnant. It was a glimmer of hope amidst the darkness.But this hope was soon met with the unexpected diagnosis of Down syndrome for her unborn child, Bella. The news took the wind out of Elizabeth's sails, but a heartfelt conversation with her father changed the course of their story, igniting a flame of inspiration and courage.Bella's early days were marked by resilience and a strong will to overcome. She spent 6-8 weeks in the hospital after her birth, a period filled with challenges that brought the Creed family closer together.But the journey didn't stop there. At just 11 months of age, Bella faced another formidable obstacle – a diagnosis of acute myeloid leukemia. It was a heart-wrenching moment for the Creeds, but Bella's indomitable spirit shone through. After only four months of grueling chemotherapy, Bella achieved something truly remarkable – she entered remission, a remission that has now lasted for over 13 years.Along the way, Bella received early intervention services until she was three years old, setting the stage for her incredible progress. Today, she's a thriving 14.5-year-old, and her journey is nothing short of exceptional.During our conversation today, Elizabeth will also shed light on what she believes to be the greatest misconception regarding individuals with Down syndrome, challenging stereotypes and fostering understanding.So, dear listeners, prepare to be inspired as we delve into the incredible story of Elizabeth Creed and her daughter Bella – a story of love, resilience, and the unbreakable bond between a mother and her exceptional child.Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

It's an absolute privilege to introduce our remarkable guest this week, Rebekah Freeman, hailing from the heart of Alabama.Today, we delve into the extraordinary life of a young girl who's known as "the social butterfly" in her community. Sarah Hope, at just 15 years old, has already touched the lives of many with her infectious spirit and zest for life.Sarah's journey is nothing short of remarkable. Born with multiple health challenges, she became Rebekah's first "full-term" pregnancy and her very first child. What makes this story truly unique is that Rebekah, like many parents, didn't realize that her pregnancy with Sarah was anything but ordinary until she had her second child.It was during her pregnancy with Sarah that Rebekah discovered a critical anomaly - an umbilical cord with only one artery instead of the usual two. Little did she know that this seemingly small detail would unravel into a series of health issues and an unknown syndrome that would shape Sarah's life in ways Rebekah could have never imagined.Today, Rebekah joins us to share her story, a story of resilience, love, and unexpected twists of fate. She'll take us through the challenges they've faced, the moments of uncertainty, and the strength that has carried them through it all.But that's not all. Rebekah will also shed light on how an error in Sarah's due date, a seemingly trivial mistake, might just have been the twist of fate that saved her daughter's life.This episode promises to be an emotional and inspiring journey, as we explore the unconquerable spirit of Sarah Hope and the unwavering love of a mother who's faced adversity head-on.So, whether you're a parent, a caregiver, or simply someone looking for a story of hope and determination, this episode is bound to resonate with you. Join us as Rebekah Freeman opens her heart and takes us into the world of Sarah Hope.Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

Today, we have an incredibly inspiring story that will touch your hearts and shed light on the strength that emerges in the face of adversity.From the quiet town of Scottsboro, Alabama, we have the privilege of hosting two remarkable individuals, Kendall and Sadie Teague. They are here to share their exceptional journey, a story that revolves around a rare and challenging condition called Epidermolysis Bullosa, or EB, that has deeply impacted their lives.Epidermolysis Bullosa, or EB, is a group of rare genetic diseases that make the skin incredibly fragile, and prone to blisters, tears, and sores at the slightest touch. It's a condition that affects approximately 1 in 50,000 live births and occurs across all races and ethnicities, affecting both boys and girls alike. What makes today's story even more compelling is that Kendall, the father of the Teague family, has lived with EB his entire life. And this condition passed down through genetics, has been inherited by their beloved son, Jackson Lee.Kendall and Sadie will take us on a journey through the early days of Jackson's life, where his care requirements were unique and demanding. They will share the emotional and physical challenges they faced as parents, as well as the incredible courage and resilience their son has demonstrated from day one.But it doesn't stop there. We'll also delve into Jackson's latest milestone - starting K-4 this year. We'll discover the triumphs and tribulations of a child with EB entering the world of education, and how Kendall and Sadie have navigated this important chapter in their lives.So, whether you're a parent, a caregiver, or just someone seeking inspiration and hope, this episode promises to be a heartwarming and enlightening experience. Kendall and Sadie Teague's story is a testament to the power of love, determination, and the unbreakable spirit of families facing extraordinary challenges.Join us in this captivating conversation with Kendall and Sadie as we explore their exceptional journey and the love that binds their family together. Ladies and gentlemen, get ready to be moved, as we dive deep into the world of EB and the Teague family's remarkable story of strength, love, and resilience.Epidermolysis Bullosa resources: EB Research PartnershipNational Organization for Rare Disorders (NORD)EB Research NetworkSupport the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.

 As we approach World CP Day on October 6, 2023, we're dedicating this week's episode to raise awareness and show our unwavering support for those living with Cerebral Palsy.In today's episode, we have the privilege of speaking with Annette Wright, who hails from Franklin, GA. Annette will take us on a remarkable journey, sharing the life story of her incredible daughter, Jess. At birth, Jess was diagnosed with Quadriplegic Spastic Cerebral Palsy, a condition stemming from a birth-related brain injury.Spastic Cerebral Palsy presents unique challenges to those it touches. In the case of Jess, it affected both legs, arms, the trunk, and even her face. But here's where the true magic lies – Annette was initially told that Jess might not live past 5 years. Today, Jess is 37 and thriving. Annette's unwavering advocacy and boundless love have been instrumental in Jess's journey.Listen closely as Annette opens up about her initial reaction to the diagnosis, the profound realization that Jess was a blessing, not a punishment, and how she became a fierce advocate for her daughter's quality of life.And if that's not enough to warm your heart, stay tuned for an incredibly touching story about how Jess's sister made extraordinary accommodations to ensure that Jess was an integral part of her wedding day.Join us in celebrating World CP Day and the indomitable spirit of those like Jess who inspire us all. Cerebral Palsy ResourcesUnited Cerebral Palsy (UCP)Quadriplegic Spastic Cerebral Palsy InformationNational Institute of Neurological Disorders and StrokeCDC - What is Cerebral Palsy (CP)World CP Day - October 6, 2023Support the showHost: Steve DoverEmail: exceptionalstoriespodcast@gmail.comSend a voice message to Exceptional Stories PodcastSocial Media Links: Facebook Instagram Royalty free music provided by Pixabay.