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Family, Whanau and Disability

Author: Family, Whanau and Disability

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Tune in to Parent to Parent's podcast Family, Whanau and Disability. This podcast features interviews with parents, professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities in New Zealand. Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with a disability.
40 Episodes
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Presenters: Jo Hannah Produced by Parent to Parent NZGuests: Jo Ellis Jo Ellis is a single mum to Harvey, an enthusiastic, inquisitive teenage boy that was born with Cri Du Chat Syndrome. Prior to Harvey being born, Jo had lived overseas but returned to her hometown in New Zealand to set up a new life for her and Harvey not long after he was born. Jo has navigated the world of disabilities with her son for 15 years, and over this time she has purposely built relationships with those aro...
Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network.Just b...
Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0GuestsAnne Wilkinson ONZMEnabling Good Lives (EGL)Anne’s involvement in the sector began over 30 years ago as a parent. She has a background of working with families and for 25 years worked for and held a number of roles within Parent to Parent New Zealand. In early 2016 she resigned after 12 years as Chief Executive, but continues to be a volunteer Support Parent and member of the organisation. Anne ...
Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0GuestsCarolyn JurySupport and Information Co-ordinatorI have been involved with Parent to Parent for 10 years, first as a requester looking for support and information, then as a volunteer support parent and now as the Support and Information Coordinator at National Office in Hamilton. I have previously worked as a medical professional, but in recent years I retrained as a counsellor, graduating in 20...
Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Paula Tesoriero, MNZM Disability Rights CommissionerDisability advocate, former Paralympian and Human Rights Commission’s Disability Rights Commissioner. Working for the rights of disabled New Zealanders, she is an amputee and a mum to a five-year-old son. Paula Tesoriero took up her three-year appointment as the Human Rights Commission’s Disability Rights Commissioner on July 31, 2017. “Ms Te...
Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Justine BrockAccredited Facilitator for Vision Education and parent of five boys on the Autism SpectrumFrom Vision Education website: I have been working as a literacy facilitator for Vision Education since the beginning of 2013 and as a team leader for Vision Education since 2014. I have experience working with a wide range of schools, who face a variety of complex challenges including low li...
Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Joanne DacombeJoanne Dacombe has spent 21 years working at the Reserve Bank in the area of monetary policy. She was diagnosed with autism later in life and has a son on the Autism Spectrum. Joanne currently serves on the Board of Autism New Zealand as well as the Board of the ASK Trust, an autistic-led organisation for autistic adults.Cat Noakes-DuncanCat is the mother of three beautiful child...
Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Catherine Trezona M.A. Psychology (1st Hons) National manager at Altogether AutismCatherine joined Altogether Autism as a researcher in 2014, and moved into a managerialrole in 2015. She is one of the programme developers and lead facilitators for PRISM.Catherine takes the principle of ‘nothing about us without us’ seriously and highly values theinput of Altogether Autism’s consumer reference ...
07. Neurodiversity

07. Neurodiversity

2018-06-0728:52

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Paula Jessop and Jason EdgecombePaula Jessop is an autistic woman who advocates for ‘radical acceptance’ of autism as a valid type of neurological difference and supporting autistic people through strengths-based methods. She has been a member of a range of autism reference groups most recently including a Te Pou group aimed at formulating an autism skills framework for the disability workforc...
08. Autism and Girls

08. Autism and Girls

2018-06-0828:32

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Rachel WiltshireRachael Wiltshire found out she was an Aspie when she was 12, and graduated Dux of Samuel Marsden Collegiate School in 2012. Rachael has completed four years of study at university majoring in History and Earth Sciences, and is currently studying dance fulltime (or was, until she tore a ligament in her ankle- hopefully surgery will be able to fix that, and she’ll head back to d...
Research: Rebecca ArmstrongPresenters: Val Ockenden and Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Programme SynopsisEdited excerpt from One in Five programme (link below) with Wellington panel discussing disability and sexuality back in June 2008Introduction to Sexuality and Gender Identity discussion with Val and LouiseMusic“Sexuality” Billy BraggTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and ...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Val Ockenden & Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Mike PulmanMike Pulman is a 26 year old advocate, public speaker and content creator based in Hamilton. He was a 2016 Youth with Disability Award winner and has been the Guest Speaker for several events, including the Enabling Good Lives Waikato Launch. Mike believes in the power of having a dream, and one of his core values includes advocat...
Research: Rebecca ArmstrongPresenters: Val Ockenden & Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Denise IvesDenise Ives has a background in teaching adults to use computers and IT projectmanagement. She has a diploma in Breastfeeding Counselling and took a certificate in teacher aiding shortly after arriving in NZ, working as a teacher aide at a primary school. She is a full-time home-educating mum to Nash, and also has a 24 year old son and three year old granddau...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Val Ockenden and Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Julia DruryJulia Drury is a Health Promoter for Family Planning, based in the Hamilton Office, covering the Midland region.She supports schools, professionals, community groups and agencies with sexuality and relationships related education programmes, training and events.In this role she promotes a positive view of sexuality so that people ar...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Val Ockenden and Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Continued conversation with Julia Drury from last weekProgramme SynopsisExcerpts From One In Five December 2014Teaching children about the birds and the bees is often challenging. But it can be tougherstill for parents whose young people have learning difficulties. Katy Gosset from One in Five meets sexual health educator Annette Milligan who ...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Sue PairaudeauDirector, MyKind MyKind director Sue Pairaudeau spent 23 years in the media as a newspaper journalist, sub-editor, and editor, and trained as a volunteer LifeLine counsellor.That was followed by head of communications for a nationwide natural health retailer, beforechoosing to work specifically for a non-profit, rather than in retail. She landed ...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Programme SynopsisLouise discussing teaching sex ed to her own children, and how that can include discussions on consent, sexuality and disabilityA short discussion on teaching non-disabled people how to become more inclusive andunderstanding of disability in the world around them.Music“If I had one wish” The Mutes (from Mars)“Teach your children” Crosby, Stills, Nash ...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Tina LincolnFamily Member Facilitator (SAMS)Tina has 19 years’ experience in the disability sector and has been with SAMS for 11 years. Tina believes everyone should be treated equally and have opportunities in the community. Tina has a wide range of experience – having a family member with a disability and Level 4 Certificate in Social Services. She is also a ...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Tyler BrummerOperations and Research Lad, MyCare Tyler co-founded WeVisit along with Sam Johnson which aimed to improve the lives of elderly and young people by matching them up in mutually beneficial relationships. In 2017, they merged WeVisit with Mycare to grow and scale what they started at WeVisit and help Mycare realise its ambition of creating a communit...
Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: David TaylorDad, Husband, Carer, Builder, Inventor David grew up on Waiheke Island the youngest of 4 siblings. In the 1970s, his older brother, Ken, had a motorbike accident which left him an amputee and with severe spinal injuries. Eventually, David and his wife decided to care for Ken in their own home as he needed round-the-clock care as his condition slowly...
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