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Girls with Grafts
Author: Phoenix Society for Burn Survivors
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Description
Girls with Grafts is a podcast hosted by Amber Wilcox and Rachel Kudlak, Burn Survivors, and supporters of the nonprofit, Phoenix Society for Burn Survivors. The Girls with Grafts podcast is for burn survivors, caregivers, hospital staff, and corporate partners in the burn community. Hear in-depth conversations about burn survivor stories, gain resources for managing a burn injury, hear up-to-date information about Phoenix Society for Burn Survivors community news, and listen in on burn prevention and advocacy information.
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The anniversary of the date of your burn injury trauma is a date for many that can be filled with lots of emotions, thoughts, and memories. For many, the date of your burn injury can bring both happiness of survival, while also mourning the loss and difficult tragedy that was the injury. In the burn survivor community, the ‘burniversary’ as it is called, doesn’t come with a set of instructions with the ‘right’ or ‘wrong’ ways to do it—the day itself is solely up to the survivor themselves how they choose to honor it.
In this episode, Amber and Rachel talk about their own burniversaries; Rachel celebrates 25 years on April 1st and Amber celebrates 3 years on April 4th. The girls dive into what a burniversary is or is not, how it can be celebrated or mourned, and discuss all of the unique ways they have heard of other survivors choosing to spend that day. They take questions from the audience live and share their own personal thoughts about what a trauma anniversary is like from the point of view of a survivor.
About Rachel Kudlak
Rachel Kudlak is a burn survivor and marketing professional residing in Charleston, South Carolina. As the Marketing Lead, Rachel manages and leads Phoenix Society’s marketing and digital strategies. Before joining Phoenix Society’s team, Rachel served as the Marketing and Communications Phoenix Fellow and worked in the SEO/ORM industry. When not working, Rachel enjoys going on walks with her dog Remy, trying a new recipe, or binge-watching reality tv.
About Amber Wilcox
Amber Wilcox is a burn survivor, yoga instructor, and marketing professional from Ormond Beach, Florida. After her kitchen accident in 2020, Amber faced burns on 20% of her body from a hot caramel spill. After two skin graft surgeries from Orlando Regional Burn Center, Amber experienced hypertrophic scarring and underwent a series of laser burn surgeries at Tampa General Hospital. As a Revenue Operations Strategist, Amber enjoys helping a wide range of industry clients with their marketing and revenue needs. Amber enjoys volunteering for the Phoenix Society as a Peer Supporter, practicing yoga, and enjoying sunny Florida with her husband, dachshund Nala, and their soon-to-be baby boy!
Resources from the Show
Read about ways survivors honor their burniversaries: https://www.phoenix-society.org/resources/ways-to-celebrate-or-honor-your-trauma-anniversary
What is the burniversary effect? https://www.phoenix-society.org/resources/the-burnaversary-effect
https://www.groppernejat.com/
Learn more about virtual support from Phoenix Society for Burn Survivors: https://www.phoenix-society.org/what-we-do/virtual-support
Read Amber’s virtual open mic: https://www.phoenix-society.org/resources/virtual-open-mic-amber-wilcox
Share your burn story: https://www.phoenix-society.org/open-mic-submission
Learn about providing peer support: https://www.phoenix-society.org/what-we-do/peer-support
About Gropper & Nejat
For over 25 years, the team at Gropper & Nejat have helped individuals who have suffered fractures, surgeries, amputations, severe burns and other injuries get the financial reparations they deserve. If you are local to the New York, New Jersey, or PA areas, contact them today for a free evaluation of your case! https://www.groppernejat.com/
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Enjoyed the show?
Tell us on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
In this heartfelt episode, Rachel and Amber sit down with Kimaree Lewis, the resilient mother of a burn survivor, to hear her powerful story of navigating trauma, healing, and hope. Kimaree opens up about the day her family's life changed forever, her son and family's emotional and physical challenges, and how her family's faith got them through the toughest times.
Join us as Kimaree shares insights on caring for her family and also herself, how giving back as a Phoenix SOAR Peer Supporter has impacted both her and her son, and her advice for other caregivers. Tune in to hear how one mother's journey can offer hope to anyone facing life's most challenging moments.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Kimaree Lewis is the mother of five children and the wife to an awesome husband. She is a Human Resources Manager and in 2024, she received the Human Resources Professional of the year. Kimaree lives by the motto: “Lead others to look up to the person they see in the mirror.” She wants to help others create a reflection that they are proud of and a shadow they don't mind lurking behind them. Helping people is her passion and she feels full and accomplished when she knows she’s helped better another's situation or circumstance.
Links
Watch our latest podcast episode with physical therapist, Ingrid Parry, where we talk about the importance of movement in burn recovery: https://www.youtube.com/watch?v=yCNBFMtTUkQ
Read “Me, Enough? A Sibling's Story of Becoming Free of Guilt and Shame,” where Katherine Hill shares her journey of letting go of the shame and guilt she felt after living through a house fire that injured her twin sister: https://www.phoenix-society.org/resources/me-enough-a-siblings-story-of-becoming-free-of-guilt-and-shame
Read “Self-Care for Caregivers:” https://www.phoenix-society.org/resources/selfcare-for-caregivers
Learn more about Phoenix SOAR (Survivors Offering Assistance in Recovery) and how to become a trained Peer Supporter: https://resources.phoenix-society.org/phoenix-soar
Podcast Sponsor
Today’s podcast is powered by the Pritzker Hageman Law Firm! The Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more at: LegalJourney.guide.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
It's World Burns Week, and today's podcast episode features a special takeover by Phoenix Society for Burn Survivors' CEO, Amy Acton! Amy, who has been actively representing the organization on the World Burns Week steering committee, welcomes two incredible guests from Nigeria: Dr. Onuh and Patience. Dr. Onuh is a passionate and skilled surgeon dedicated to advancing burn care, while Patience is a courageous burn survivor eager to share her story.
World Burns Week envisions a future where burns are prevented and everyone—no matter their location, income, gender, age, or ability—has access to timely and effective care. In this inspiring episode, Dr. Onuh and Patience discuss the realities of burn care in Nigeria and survivors' unique challenges in achieving equitable treatment. As a special surprise, Patience's role model, Kechi, joins the conversation, creating a heartfelt and unforgettable moment.
Listen in today to learn more about World Burns Week and discover ways to get involved in the global movement to reduce inequality in burn care and support survivors worldwide!
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guests
Dr. Onuh is a dedicated burn, plastic, and reconstructive surgeon from Nigeria with a passion for burn care. She advocates for multidisciplinary burn care and is actively involved in managing burn patients. Dr. Onuh is also committed to research, education, and prevention to reduce the burden of burns in her country. Through her work, she aims to improve outcomes for burn patients, burn survivors and advance the field of burn care. Patience is also from Nigeria and sustained a burn injury not that long ago.
Links
Learn more about World Burns Week: https://worldburn.org/world_burns_week.aspx
Watch our latest Girls with Grafts episode featuring Kechi! https://www.youtube.com/watch?v=RQLpqfJ4v30
Sign up for Phoenix Society’s newsletter: https://www.phoenix-society.org/email-signup
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
In this episode of Girls with Grafts, Amber, and Rachel are joined by the incredible Ingrid Parry, a passionate physical therapist and rehabilitation researcher with years of experience supporting burn survivors on their recovery journey. Ingrid's unique perspective, gained from her extensive research and leadership roles, adds a valuable dimension to our discussion.
Together, we explore physical therapy's vital role in burn recovery, the importance of exercise and movement, and the benefits of yoga. Ingrid also shares insights from her numerous research projects, her work with Cutaneous Functional Units (CFUs), and her time as president of the American Burn Association (ABA).
Tune in for practical insights, inspiration, and tips on integrating movement into your burn recovery!
⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Ingrid Parry MS, PT, BT-C, PhD candidate, is a Physical Therapist and a Rehabilitation Researcher at Shriners Hospitals for Children, Northern California, and the University of California, Davis. She has worked in burn care for 29 years. Her study interests are diverse within burn rehabilitation and include facial scar management, cutaneous functional units, burn scar contracture, pediatric burn rehabilitation, and early exercise with burn survivors. In 2022-23, she was named president of the American Burn Association as the first non-surgeon to lead the organization. She has published over 53 peer-reviewed publications and volunteers extensively with various domestic and international burn organizations. She is presently working on her Ph.D. at the University of California, Davis, School of Nursing and Healthcare Leadership with a focus on using cutaneous functional units to predict contracture risk. In her free time, Ingrid enjoys yoga, dancing, paddleboarding and loves to travel with her husband and three sons.
Links
Read “The Miracle of Yoga for Burn Survivors” https://phoenix-society.org/resources/the-soul-saving-miracle-of-yoga
Learn more and Ingrid Parry and her role with ABA https://www.shrinerschildrens.org/en/news-and-media/news/2022/04/ingrid-parry-named-president-of-american-burn-association
Podcast Sponsor
Today’s podcast is powered by Buses by the Beach! Buses by the Beach is a group of VW bus lovers, based in West Michigan. They camp, host events, and raise funds for Phoenix Society for Burn Survivors. Learn more about them and save the dates for their 2025 events by visiting https://busesbythebeach.org/.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
In this special Girls with Graft episode, we’re spotlighting Fire Prevention Week with Phoenix Partner Summit Fire & Security! Rachel sits down with Steve Rice, a seasoned expert with years of experience as the Operations Manager of the Installation Department at Summit Fire & Security, to discuss all things commercial fire safety.
Steve shares practical information on how Summit Fire & Security works with commercial spaces to design, install, and maintain fire systems. He provides valuable insights on prevention systems, the importance of routine safety checks, and what you need to know to stay safe in commercial spaces. Whether at work, staying at a hotel, or going out to eat, this episode equips you with critical information to help you be prepared and protect what matters most.
Fire Prevention Week 2024
This year’s FPW campaign, “Smoke alarms: Make them work for you!™” strives to educate everyone about the importance of having working smoke alarms in the home. Learn more about FPW and how to keep you and your family safe by visiting: https://www.nfpa.org/events/fire-prevention-week
🔗 Looking for links? Check out our show’s description on Apple Podcasts or Spotify.
⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
With a robust 22-year tenure in the fire protection industry, Steve Rice brings a wealth of experience to the table. Currently serving as the Operations Manager of the Installation Department at Summit Fire & Security in Cleveland, Ohio, he has been instrumental in overseeing all installs and major repairs in Northern Ohio since 2005. Previously, he worked as a fire protection systems installer for Custom Engineered Fire Systems in Willoughby, Ohio.
Steve holds many specialized trainings and certifications such as NICET III Special Hazard Suppression Systems, NICET III Fire Alarm Systems, OSHA 30 Safety Trained, Previously Wind Energy Competent Climber Certified, Vice Chair of the Installers Division for the FSSA (Fire Suppression Systems Association)(Previously the Program Committee Chair for five years), Committee Member of the NFPA 409, 415 and 423 - Standards on Aircraft Hangars, Manufacturer Training from many companies such as Notifier, Ansul, Firetrace, Kidde, Minimax, Janus, and Hochiki.
Links
Learn more about Summit Fire & Security: www.summitfiresecurity.com
Learn more about Fire Prevention Week: https://www.nfpa.org/events/fire-prevention-week
Find your nearest Summit Fire & Security location: https://summitfiresecurity.com/locations/?address=
Learn more about the Fire Suppression Systems Association: https://www.fssa.net/
Get involved with Phoenix Society’s advocacy efforts: https://www.phoenix-society.org/become-an-advocate
Podcast Sponsor
Today’s podcast is powered by Summit Fire & Security! Summit Fire & Security is your trusted partner for all your fire protection and life safety needs. From fire extinguishers and alarms to security systems, suppression solutions, and special hazard protection, Summit Fire & Security supports you at every stage—from design and installation to ongoing maintenance and inspections. Ensure your business is fully protected and compliant with Summit Fire & Security by your side. Learn more by visiting www.summitfiresecurity.com
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
In today's episode, Rachel and Amber sit down with burn survivor Jason Nelson and experienced burn injury attorney Matt Cunningham to explore the complexities of navigating a burn injury legal case.
Jason shares his inspiring story of resilience and recovery, showcasing firsthand how you can turn a tragedy into triumph. Matt provides expert legal insight, breaking down the anatomy of a burn injury lawsuit—from the importance of contacting an attorney quickly and assessing damages to the critical steps in building a strong case.
Together, they shed light on the challenges survivors and families face and how the legal system can offer a lifetime of support. Tune in to learn about the intersection of personal experience and legal expertise in burn injury cases and how justice can help rebuild lives.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guests
Matt Cunningham is a trial attorney who has been handling burn injury cases for over 25 years. He is recognized as one of the top burn injury lawyers in the United States. He is the owner and President of the Cunningham Law Firm which is recognized as America’s top burn injury law firm.
Since 1996, Matt and the Cunningham Law Firm have represented over 124 clients involving burn related injuries. Matt is a member of the National Fire Protection Association, American Burn Association, Phoenix Society for Burn Survivors, and previously a guest speaker at the North American Burn Society. During his career he has obtained some of the highest verdicts and settlements involving burn related injuries. In 2008 he obtained the highest burn injury verdict in Arizona state history.
Matt and the Cunningham Law Firm are recognized as true advocates on behalf of burn survivors, their families, and generously supports the work of burn foundations across the United States. Matt is recognized as one of the Top 100 Trial Lawyers by the National Trial Lawyers Association, Best Lawyers of America, Elite Lawyers of America, Arizona’s Finest Lawyers, and Southwest Super Lawyers.
Dr. Kevin Foster, Director of the Arizona Burn Center, stated about Matt, “Matt Cunningham has earned the respect of the burn community through his hard work, compassion, and deep understanding of the true impact of burn injuries.” Matt is honored to be a part of the burn community and a champion of justice for burn survivors and their families.
Jason Nelson, a Phoenix, Arizona native, experienced a life-altering event on February 9, 2014. A natural gas explosion in a rental home he owned left him with a staggering 80% Total Body Surface Area (TBSA) burn. The trauma was immense, but Jason's resilience shone through.
After enduring countless surgeries, enduring grueling therapy sessions, and navigating the long road to recovery, Jason found a purpose beyond his own healing. Driven by a deep-seated desire to give back to the organizations and individuals who supported him through his ordeal, he dedicated his life to advocating for burn survivors.
Jason's involvement with the Arizona Burn Foundation is a testament to his commitment. As a member of the Board of Directors, he actively contributes to shaping the foundation's mission and strategies. His personal experience provides invaluable insights into the unique challenges faced by burn survivors, enabling him to advocate for programs and initiatives that address their needs effectively.
Moreover, Jason's fundraising efforts have been instrumental in generating over a million dollars to support burn survivors' journeys. His passion and dedication have inspired others to contribute to this worthy cause, ensuring that burn victims receive the necessary resources to thrive.
Jason Nelson's story is a powerful reminder of the human spirit's ability to overcome adversity. His unwavering commitment to helping others recover from the devastating impact of burns serves as an inspiration to countless individuals. Through his tireless efforts, he continues to make a significant difference in the lives of burn survivors, transforming their experiences from tragedy to triumph.
Links
Connect with the Cunningham Law Firm team by calling 602-257-1750 or visiting their website: http://cunninghamlawfirm.com.
Watch the Courage Rising Film: https://kino.studio/titles/66a95ed20e3855af3da31897-courage-rising.
Podcast Sponsor
Today’s podcast is powered by Cunningham Law Firm! Located in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Medley Zeigler Bokun and her husband, Kevin, were just three weeks into their marriage when tragedy struck, and they were both involved in a home gas explosion. The two newlyweds found themselves spending what typically is considered the "honeymoon phase" in the ICU.
In today's podcast episode, Medley joins Rachel and Amber to talk about her burn injury, the struggles she faced after going home from the hospital, and how she and Kevin navigated their journeys with their unwavering family and friends by their side. ❤️ We also chat about motherhood and fears Medley had before having her son Levi, the common struggle of overheating, and the fantastic drink Body Armor.
Tune in today to see how Medley truly embodies the word resilient!
⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Medley Zeigler Bokun, BSN, RN graduated from nursing school at Southeastern Louisiana University at the end of 2017 and immediately began her career at a Women’s Hospital in Baton Rouge, LA working as a med-surg and oncology nurse. In June of 2019 she married her wonderful husband, who at the time was a third year medical student. Just three short weeks after their wedding, they were in a gas explosion in their home. It was nearly fatal for both of them, but Medley especially sustained second, but mostly third degree burns across 96% of her body. Her chance of survival was not high, but God had other plans. Now Medley and her husband, Kevin, feel that God has called them from a place of medical ministry to a ministry that’s focused on spiritual and emotional healing. Medley and her husband now travel and speak at conferences, churches and social gatherings sharing their story of survival. And most recently in February of 2024, they welcomed their first baby into the world, a sweet baby boy named Levi.
Links
Follow Medley Zeigler Bokun on Instagram
https://www.instagram.com/medleyregan/?hl=en
Read “Working Through Guilt after a Burn Injury”
https://www.phoenix-society.org/resources/working-through-guilt-after-a-burn-injury
Get Amber’s “Scars are Tattoos” shirt
https://www.bonfire.com/store/phoenix-society/
Podcast Sponsor
Today’s podcast is powered by Exsurco Medical! Exsurco engineers high precision products for both the healthcare and tissue bank professionals and are dedicated to advancing the healing power of skin to patients who need it the most. Learn more at www.Exsurco.com.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
What's something that rhymes with no-handed? Bandit!
In today's podcast episode, podcast hosts Rachel and Amber are joined by Samoana Matagi, better known as the No-Handed Bandit. Sam talks about the high-voltage electrical accident that caused him to lose both arms and how the No-Handed Bandit was born. We also chat about Sam's first time through a toll booth, his recent encounter with a moose, his experiences wakeboarding, and the power of peer support. Tune in today!
⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Samoana Matagi earned a Bachelor of Arts in Broadcast Journalism in 2004. After two years in the field of Broadcast Journalism, he changed career paths to a high-voltage electrical line worker. Three years into his apprenticeship, he was involved in an electrical work accident that cost him his hands. He then became critically acclaimed for his recovery story, which drove him to create a YouTube channel to help other amputees. Now, he speaks to audiences about resilience. Learn more at www.nohandedbandit.com or by connecting with him on YouTube, Facebook, or Instagram.
Links
Follow the No Handed Bandit on YouTube
https://www.youtube.com/thenohandedbandit
Follow the No Handed Bandit on Facebook
https://www.facebook.com/TheNoHandedBandit
Follow the No Handed Bandit on Tik Tok
https://www.tiktok.com/discover/no-handed-bandit
Learn more about Phoenix SOAR and become a Peer Supporter
https://resources.phoenix-society.org/phoenix-soar
Subscribe to Journey Magazine
https://www.phoenix-society.org/journey-magazine
Get Amber’s “Scars are Tattoos” shirt
https://www.bonfire.com/store/phoenix-society/
Podcast Sponsor
Today’s podcast is powered by UL Solutions! A global leader in applied safety science, UL Solutions transforms safety, security and sustainability challenges into opportunities for customers in more than 110 countries.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Kechi Okwuchi, a living example of resilience, faced a life-altering plane crash that left her with burns over 65% of her body. However, Kechi's story is not one of despair, but of hope and positivity.
During our live episode, Amber and Rachel caught up with Kechi and learned more about her America's Got Talent experience (including who her favorite judge is!), and what's next with her singing career. Kechi also shared her experience writing a book and tips for others who want to share their story. We closed the episode by talking about how Kechi keeps it real on social media and how she handles negative comments.
⭐️ Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Kechi is a Nigerian-born author and powerful singer. She is an inspirational and TEDx keynote speaker, MBA student, and bullying prevention advocate. Her dramatic story, as well as her impactful messages of resiliency and overcoming combine powerfully to inspire personal and cultural transformation.
Kechi found her true voice after her accident- a plane crash that took the lives of 107 of 109 passengers in Nigeria in 2005. Throughout the difficult journey of burns recovery, Kechi was sustained by her Christian faith, her family and her music. She resumed high school in 2009 and in 2015 she graduated First Class from University of St. Thomas, Houston, with a Bachelors in Economics.
Becoming a finalist on America’s Got Talent 2017 was Kechi’s truest dream realized, and on June 10th 2018, she released her debut single, ‘Don’t You Dare’ on all digital music platforms. She became a burn survivor advocate for multiple organizations, including the hospital she herself was treated at- Shriners Burns Hospitals for Children- now Shriners Children’s TX- Galveston, Texas.
In 2019, Kechi became a finalist on the premiere season of America’s Got Talent: The Champions through Simon Cowell’s golden buzzer. Since then, she has become an active ambassador for multiple organizations such as WEMovement, Be Strong Global and the United Nations Foundation #TOGETHERBAND project, advocating for various global causes such as youth empowerment, bullying prevention advocacy, and sustainable living.
Kechi’s memoir ‘More Than My Scars’ released on March 29th, 2022 under Baker Publishing Group, and her self-titled debut album is currently streaming on all digital music platforms. Kechi hopes to use her voice and her story to ignite hope all over the world within those that need it.
Links
Get your copy of “More Than My Scars” https://www.amazon.com/More-Than-Scars-Perseverance-Unrelenting/dp/1540901599
Listen to Kechi’s music https://www.kechiofficial.com/music
Follow Kechi on Instagram https://www.instagram.com/kechiofficial/
Podcast Sponsor
Today’s podcast is powered by AlloSource! AlloSource is one of the largest human tissue providers, honoring tissue donors by creating innovative skin allografts to help burn surgeons heal patients. Learn more about AlloSource and their continuing education hours by visiting their Resource Marketplace Listing directly on Phoenix Society’s website: https://resources.phoenix-society.org/resource-marketplace/allosource.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
We say it all the time: nothing heals survivors like other survivors. In today's podcast episode, Diana Tinney joins us again to discuss research, advocacy, and helping other survivors. Diana shares how she got involved with research, sheds light on common survivor struggles with nutrition, and opens up about overcoming addiction.
Upon her return from the hospital, Diana found solace in peer support visits, a transformative experience that underscored the healing power of survivors sharing their stories. This realization, coupled with her proactive curiosity, connection with the local burn care team, and the strength of peer support, propelled Diana into the realm of research and advocacy for the burn community. Over the years, she has actively participated in various research studies, including the recent CLIMB study. Her active involvement in these initiatives, irrespective of the research project or advocacy issue, has always been driven by her goal to enhance the lives of future survivors.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
In 2010 at the age of 54, Diana Tenney was burned 94% of her body, which consisted of mostly third degree burns. Dianna spent over a year recovering from her injury in the hospital and then went on to have reconstructive surgeries for the next seven years.
She has spent most of the last 10+ years working with other burn survivors and medical researchers. She is the past president, secretary, and treasures of Burn Survivors of New England, co-coordinator of Knowledge Translation for the Boston-Harvard Burn Model Systems, trained Phoenix Society peer supporter, previous speaker with the American Burn Association, former Wellness Room Leader at Phoenix World Burn Congress, and so much more. She is extremely active in burn research and advocacy. Diana has also been sober for many years and is active in AA.
Diana married her sweetheart, Jerry, in 2023 and has currently relocated with her husband, dog Barney, and cat Pebbles, to Tennessee to help care for her mother. Additionally, Diana is very physically active and participates in ZUMBA and yoga.
Links
Watch Diana’s previous episode on Youtube https://www.youtube.com/watch?v=t6HkxscdXAc&t=1s
Read Diana’s book: “God Never Moved: A Couple's Journey Through Fire to Life” https://www.amazon.com/God-Never-Moved-Couples-Journey/dp/B0CFZ9P673
Join Vanderbilt Burn Center’s support group https://www.vumc.org/burn/resources
Learn more about Burn Survivors of New England https://www.bsone.org/
Join Phoenix Society’s support group https://www.phoenix-society.org/what-we-do/virtual-support-group
Participate in the CLIMB study
Explore resources from the Burns Model System https://msktc.org/about-model-systems/burn
Learn more about burns being a chronic condition https://resources.phoenix-society.org/resource-marketplace/burns-as-a-chronic-condition
Explore resources on nutrition for burn survivors https://www.phoenix-society.org/resources?query=nutrition&page=1
Get your copy of “Living a Healthy Life with Chronic Conditions" https://www.amazon.com/Living-Healthy-Life-Chronic-Conditions/dp/1945188316/ref=sr_1_1?dib=eyJ2IjoiMSJ9.9clY35pjqFRVo-jVJ0vBLq_XJEZuIjKoBM-EHQWnxVsyuw9DZg5YXDSEqR8ZGF6oPSST0b3b9O5QUUKtqCvsjdnV_n-T7TIwdbMIwfgAgll_GiSFPGlFNqGKch3o3Skp7P_MWcXw4o-2UCw7sGmnSIOV8LPbvEIrEoBZA052cVOkvasnUZJXqap7hJUqhqOHHORX13YeowvYZlMe0H744MtPZVlX9bQyTrNpnWTAAdw.iSuLHQJ3Glgk9ejEb6Ftn0cDL_8ZeD_CyfYFuTQGgfk&dib_tag=se&keywords=Living+a+Healthy+Life+with+Chronic+Conditions&qid=1721403027&sr=8-1
Learn more about Al-Anon https://al-anon.org/
Podcast Sponsor
Today’s podcast is powered by Johnson Controls! Johnson Controls is a global leader in fire safety and suppression technologies, helping to save lives and protect people around the world. Learn more about Johnson Controls by visiting their website: https://www.johnsoncontrols.com.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
We're kicking off Season 5 of Girls with Grafts with a fun Q&A with your hosts, Rachel Kudlak and Amber Wilcox! Rachel and Amber start today's podcast by sharing their burn survivor stories, how they're doing now, and how they got connected with Phoenix Society for Burn Survivors. They also chat about their love of reality TV before running through ten rapid-fire questions. Whether you are an OG listener or a new fan, you're bound to learn something new about the girls behind Girls with Grafts!
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guests
Amber Wilcox is a burn survivor, yoga instructor, and marketing professional from Ormond Beach, Florida. After her kitchen accident in 2020, Amber faced burns on 20% of her body from a hot caramel spill. After two skin graft surgeries from Orlando Regional Burn Center, Amber experienced hypertrophic scarring and underwent a series of laser burn surgeries at Tampa General Hospital. As the Solutions Marketing Manager at United Rentals, Amber helps drive the company's growth by operationalizing the experience throughout the customer lifecycle; from prospect to delight. When not marketing, Amber enjoys volunteering for Phoenix Society as a Phoenix SOAR Peer Supporter, teaching yoga for Kula for Karma supporting youth in Florida detention centers, or providing free yoga for peers on her website, yogaamber.com.
Rachel Kudlak is a burn survivor and marketing professional residing in Charleston, South Carolina. As the Marketing Lead, Rachel manages and executes Phoenix Society’s marketing and digital strategies. She develops online marketing tactics, creates dynamic content, and maintains consistent engagement across online platforms. Before joining Phoenix Society’s team, Rachel served as the Marketing and Communications Phoenix Fellow and worked in the SEO/ORM industry. When not working, Rachel enjoys going on walks with her dog Remy, trying a new recipe, or binge-watching reality tv.
Links
Catch up on Girls with Grafts on YouTube https://www.youtube.com/@PhoenixSocietyforBurnSurvivors
Sign up for Phoenix Society’s monthly newsletter https://www.phoenix-society.org/email-signup
Watch “Advocating for the Burn Survivor Patient” https://www.youtube.com/watch?v=vRxlOiHPXag
Watch “Parenting After a Burn Injury: Brittney & Henley Horton” https://www.youtube.com/watch?v=Qkb6rMLLM7s
Watch “The Latest Trends in Burn Care with Burn Surgeon and Survivor Dr. Jason Heard” https://www.youtube.com/watch?v=ZdCNjwjyo3Q
Follow Amber on Instagram https://www.instagram.com/namastay_in_florida/?hl=en
Sign up for Phoenix Society's support group https://www.phoenix-society.org/what-we-do/virtual-support-group
Podcast Sponsor
Ad: Today’s podcast is powered by Gropper & Nejat! Gropper & Nejat is a personal injury firm with offices in New York and New Jersey. They take pride in fighting to achieve the best results for those who have suffered fractures, surgeries, amputations, severe burns and other injuries.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
If you’re subscribed to Phoenix Society’s mailing list, you’ve most likely received at least one email asking you to partake in a burn care research study. As survivors, our stories and voices are crucial in providing true lived experience on the physical, emotional, and social recovery after a burn injury. However, most studies simply ask survivors to complete a survey - and once the survey is complete, the outcomes are hard to find or even harder to understand. But Dr. Callie Thompson is on a mission to change that.
In today’s episode, Burn and Trauma Surgeon, Dr. Callie Thompson, talks about her recent burn care studies and how she involves survivors from start to finish. She also discusses why involvement throughout the entire research process is important, what factors make a “good” research project, and how other researchers can follow a similar format. Dr. Thompson also shares insight on her role as a surgeon and her passion for helping survivors thrive after a burn injury.
Looking for links? Check out our show’s description on Apple Podcasts or Spotify.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Dr. Callie Thompson is a burn and trauma surgeon by training. She specializes in the care of the thermally injured patient and other skin and soft tissue diseases that require surgical intervention. Her research is focused on implementing changes to care delivery that improve patient-centered outcomes for burn survivors and engaging burn patients as equitable partners in the entire research process.
Links
Explore current research participation opportunities https://www.phoenix-society.org/advocacy/research-opportunities
Download the 2023 State of the Survivor Report https://resources.phoenix-society.org/2023-state-of-the-survivor-report
Explore the Journal of Burn Care & Research https://ameriburn.org/research/journal-of-burn-care-and-research/
Podcast Sponsor
Today’s podcast is powered by the D.C. Firefighters Burn Foundation. The D.C. Firefighters Burn Foundation is dedicated to assisting in the recovery and rehabilitation of injured firefighters and burn survivors. Learn more by visiting www.dcffburnfoundation.org.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
A burn injury often changes how we feel about ourselves, and for survivors who lose their hair, their whole identity can feel different. The emotional impact of hair loss is significant, and it's a journey that many survivors can relate to. When a survivor does experience hair loss, they usually turn to wigs as a solution to help them feel like themselves again—however, wigs are not the only option anymore!
In today’s episode, Amber and Rachel are joined by non-surgical hair replacement specialist Emily Gutierrez. Emily, with her deep empathy and dedication, shares insights on what hair prosthetics are, the process for installing and maintaining a prosthetic, and who would benefit from them. She also recounts her touching experience working with a young burn survivor, highlighting her passion for instilling hope and restoring confidence through hair for those experiencing hair loss.
Looking for links? Check out our show’s description on Apple Podcasts or Spotify.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Emily Gutierrez is a licensed cosmetologist and IAT certified trichologist. She is the owner of Advanced Hair Loss & Scalp Solutions LLC, a certified hair replacement brand who caters to those who have been impacted by hair loss. Emily and her team work with men, women, and children who have been affected by genetic and traumatic types of hair loss. They utilize modern technology to help prevent hair loss, reverse scalp disorders, and restore one's appearance while building a long-lasting relationship with the clients.
Links
Learn more about Advanced Hair Loss & Scalp Solutions https://www.advhairloss.com/
Follow Emily Gutierrez on Instagram https://www.instagram.com/emilygutierrez.hair/
Watch Aden’s hair transformation https://www.instagram.com/p/C1VUoUqLAKb/
Visit the American Hair Loss Association’s website https://www.americanhairloss.org/
Learn more about CRLAB https://crlab.com/en_en/
Podcast Sponsor
Today’s podcast is powered by the Bert Martin Foundation! The Bert Martin Foundation was established to assist those who help others and provide financial support for nonprofit organizations. We’re honored to have the Bert Martin Foundation as a long-standing Phoenix Society Partner.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Summer is quickly approaching, which means summer camps are in full swing! Summer camp is usually an extremely positive and beneficial experience for any child - but for burn survivor children, camp offers more than just fun. It provides a supportive community where they can share feelings and experiences with other children who have experienced similar trauma, fostering a sense of belonging and understanding.
In this episode, Rachel is joined by two esteemed guests, Daniel Chacon and Kristen Quinn. Both are renowned burn camp experts and board members of the International Association of Burn Camps (IABC). They delve into the benefits of burn camps, offer valuable tips on preparing your children (and yourself as a caregiver!), and guide you on selecting the right camp. Rachel and her guests also share cherished camp memories and ways to keep the 'camp magic' alive long after camp ends.
Looking for links? Check out our show’s description on Apple Podcasts or Spotify.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guests
Kristen Quinn has been a passionate advocate for burn survivors and meaningful aftercare programs since 1993. She started her career as a burn center Child Life Specialist, earned her Masters in professional counseling in 2000 and spent the next 24 years as a mental health clinician at the burn center, with aftercare and burn camp as her focus. Kristen believes that every interaction, activity and discussion at camp has the ability to foster emotional growth and that camp provides challenges that allow campers to push beyond perceived limitations.
Kristen has two children who are now forging their own lives as young adults. She has been married to a fire fighter for the past 30 years. There is always at least one dog in the house. Joy is found on rivers, hiking trails, in a good book or over a great meal. Friendships mean the world to Kristen.
Daniel Chacon is the Executive Director of the Alisa Ann Ruch Burn Foundation, a California-based nonprofit organization that is committed to preventing burns and fires, and providing services to those who have been affected by burn injuries. Before joining AARBF, Daniel worked as an emergency dispatcher, firefighter, and high school teacher.
Daniel is a proud member of various organizations such as the American Burn Association, the American Camp Association, and the International Association of Burn Camps, where he served on the board of directors in 2016 and was the immediate past president. He is passionate about discovering outcome measurements and has partnered on numerous research studies for burn survivors. He has also presented dozens of conferences throughout the United States.
Links
Learn more about the International Association of Burn Camps (IABC) https://iaburncamps.org/
View the IABC Camp Directory https://iaburncamps.org/camp-directory/
Learn more about the Alisa Ann Ruch Burn Foundation https://www.aarbf.org/
Learn more about the University of Utah Health Burn Camp Program https://healthcare.utah.edu/burn-center/burn-camp
Research: Impact of a pediatric residential burn camp experience on burn survivors' perceptions of self and attitudes regarding the camp community https://pubmed.ncbi.nlm.nih.gov/17351455/
Read “Burn Camps Offer Unique Growth Opportunities” https://phoenix-society.org/resources/burn-camps-offer-unique-growth-opportunities
Read “Taking That “Camp Magic” Home With You” https://phoenix-society.org/resources/taking-that-camp-magic-home-with-you
Podcast Sponsor
Today’s podcast is powered by the National Fire Sprinkler Association! NFSA aims to protect lives and property through the advancement of fire sprinklers. Learn more about fire sprinklers, fire advocacy, and how to get involved by visiting nfsa.org.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Most burn survivors and caregivers can remember a special burn nurse who truly impacted and changed the trajectory of their healing journey. In honor of National Nurses Day, we’re celebrating all of the wonderful burn care professionals with Emily Werthman, Ph. D. (c), BA, RN, CBRN!
After losing her mother to a house fire, Emily was drawn to burn care and began her career as a bedside nurse. Over the past 10+ years, she has advanced her career and now holds many positions within the field, including burn program coordinator at the Johns Hopkins Burn Center.
In this episode, we talk with Emily about the trauma, compassion fatigue, burnout burn care nurses face, the recently launched burn nursing specialty certification (CBRN), and research projects involving acute burn pain and childhood adversity. Tune in to hear more about the advancements in burn care nursing!
Looking for links? Check out our show’s description on Apple Podcasts or Spotify.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Emily Werthman is the burn program coordinator of the Johns Hopkins Burn Center, where she has been a nurse since 2012. A graduate of the Allegany College nursing program, she also holds a BA in History from the University of Wisconsin-Madison, as well as a BSN and MSN from the University of Notre Dame of Maryland. She is a PhD candidate at the University of Maryland where she studies the relationship between acute burn pain and childhood adversity. Emily is the lead nurse planner for the American Burn Association where she also holds a national committee appointment to the Nursing Committee. She is a subject matter expert, item writer, and exam content review committee member for the Board of Certification for Emergency Nursing’s Certified Burn Nurse (CBRN) exam. She also serves as a member of BCEN’s board of directors. She was recently appointed a special advisor to the Biomedical Advanced Research and Development Authority (BARDA)’s burn and blast injury special advisory group. Additionally, she holds adjunct faculty positions in the Johns Hopkins and Stevenson University Schools of Nursing. She publishes and lectures frequently on burn resuscitation, critical care nursing, and burn pain.
Links
Listen to The Importance of Good Sleep with Dr. Sheera Lerman Zohar on Apple Podcasts: https://podcasts.apple.com/us/podcast/the-importance-of-good-sleep-with-dr-sheera-lerman-zohar/id1646466634?i=1000623088494
Listen to Beyond Survival: A Journey of Self-Love & Resilience With Michelle Escamilla Valladares on Apple Podcasts: https://podcasts.apple.com/us/podcast/beyond-survival-a-journey-of-self-love/id1646466634?i=1000645179665
Visit the Board of Certification for Emergency Nursing (BCEN)’s website: https://bcen.org/
Learn more about the Certified Burn Nurse (CBRN) exam: https://bcen.org/cbrn/
View the list of the American Burn Association’s verified burn centers: https://members.ameriburn.org/verified-burn-centers?_gl=1*k9s99h*_ga*MTEzNDI3NDQxLjE2OTc2NTMyMjM.*_ga_FPEW9Z01GV*MTcxMjI2NDM1My43Mi4xLjE3MTIyNjQ1NjkuMC4wLjA.*_gcl_au*MTAxMDE3OTY5LjE3MDU1MTAxNDg.&_ga=2.211312981.130195158.1712264353-113427441.1697653223
Podcast Sponsor
Today’s podcast is powered by Johns Hopkins Medicine! The mission of Johns Hopkins Medicine is to improve the health of the community and the world by setting the standard of excellence in medical education, research and clinical care. Learn more by visiting: www.hopkinsmedicine.org.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
In honor of National Volunteer Week, Rachel and Amber are joined by our Volunteer of the Month, Xiomari Castro! Whether she's helping survivors and caregivers find their miracle of the day or providing hope through hugs, Xiomari's passion for helping the burn survivor community is truly inspiring. Her commitment and dedication are evident in her roles as Phoenix SOAR Coordinator and Spanish Instructor, and Patient Services Coordinator at the Burn and Reconstructive Centers of America (BRCA).
During the episode, Xiomari shares how she first got involved with the burn community, her favorite part of her job, and the importance of peer support. She believes we all have a role in helping others and embodies what it means to give back with a humble heart. Thank you, Xiomari, for all that you do for our community!
Looking for links? Check out our show’s description on Apple Podcasts or Spotify.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Xiomari Castro is the Patient Services Coordinator at Burn and Reconstructive Centers of America (BRCA) in Augusta, GA, where she has worked since March 2015. She has been an invaluable source for patients and their families at Joseph M. Still Burn Centers at Doctors Hospital of Augusta. Xiomari works to help patients, their families, and colleagues through positivity, encouragement, and compassion. She first became a Phoenix SOAR Coordinator in 2018, and in 2023, she became an Instructor, including instructing the first Spanish Phoenix SOAR Peer Supporters class. Xiomari is a native of Puerto Rico and lives with her husband and best friend, Robinson, in Augusta, GA. They have two children and four grandchildren. Outside of work, she loves to spend time with her grandkids church family, serving God, and preaching the word of God.
Links
Follow Phoenix Society on Facebook: https://www.facebook.com/PhoenixSocietyforBurnSurvivors
Learn more about Phoenix SOAR: https://resources.phoenix-society.org/phoenix-soar
Contact Phoenix Society’s team: https://resources.phoenix-society.org/contact-us
Join our Facebook group for survivors and caregivers (English): https://www.facebook.com/groups/phoenixsocietypeersupport
Join our Facebook group for survivors and caregivers (Spanish): https://www.facebook.com/groups/phoenixsocietyspanish
Learn how to watch our Youtube videos in your preferred language: https://support.google.com/youtube/answer/13339776?hl=en
Learn more about Angel Flight: https://www.angelflight.com/
Podcast Sponsor
Today’s podcast is powered by the National Fire Protection Association! NFPA is a nonprofit that seeks to save lives and reduce loss with information, knowledge, & passion. Learn more about fire safety and explore their educational resources by visiting www.nfpa.org.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
We've all heard of post-traumatic stress disorder (PTSD), but have you heard of post-traumatic growth? Post-traumatic growth is all about the positive transformations people can undergo after experiencing trauma. During this episode of Girls with Grafts, we hear from Christopher Gage, a burn survivor, and his caregiver and wife, Holly, on how post-traumatic growth impacted their healing journeys.
You'll also get a behind-the-scenes look at Chris and Holly's Healing Phoenix Arts Program, designed to provide a post-traumatic growth experience by introducing a new perspective on healing from a traumatic event. Through the dynamic and engaging program, Chris and Holly help survivors recognize the progress they have made towards their future and healing.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guests
Holly Gage is the creator and instructor of the Warrior Scar Jewelry workshops and co-founder of the Healing Phoenix Arts Program. Holly is a world-renowned jewelry artist and has instructed students of all ages and abilities with a soulful brend of creating during in-person workshops, interactive online classes, and retreats worldwide for almost 25 years. After her husband and son were involved in an explosion and fire in 2018, she became trained to support burn survivors and their families through the Phoenix SOAR program and certified in the Post Traumatic Growth program from the Boulder Crest Foundation. Together with her husband, Christopher Gage, they combine art with discussion as a healing modality for a Post Traumatic Growth experience.
Christopher Gage is the Group Discussion Facilitator of the Warrior Scar Jewelry Workshop and Co-Founder of the Healing Phoenix Arts Program. Christopher is a burn survivor whose recovery experience from his accident in 2018 is the number one event that has driven him to his current line of work. The explosion, fire, and destruction of his mobile restaurant has completely reshaped Christopher’s life for the better, in a positive way, resulting from working through the Post Traumatic Growth (PTG) process. Christopher learned there is a teaching component to PTG, and he has a need to give hope to those who have suffered trauma. Christopher is peer support trained and certified in Burn Survivor and PTG. Christopher speaks about PTG and is the author of a book detailing his journey to come later this year.
Links
Learn more about the Healing Phoenix Arts Program: https://www.healingphoenixlapidary.com
Learn more about the Warrior Scar Workshop: https://www.healingphoenixlapidary.com/about-warrior-scar-jewelry
Read Holly’s testimonial of Phoenix World Burn Congress 2023: https://www.phoenix-society.org/news/warrior-scar-jewelry-program-2023
Learn more about Phoenix SOAR (Survivors Offering Assistance in Recovery): https://resources.phoenix-society.org/phoenix-soar
Podcast Sponsor
Today’s podcast is powered by the Pritzker Hageman Law Firm! The Pritzker Hageman burn injury legal team helps burn survivors and their loved ones pursue compensation and justice throughout the United States. Learn more more at: LegalJourney.guide
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Have you ever filled out our "contact us" form? If you have, then you've already met today's podcast guest: Liliana Palacios, Phoenix Society's Community Resource Coordinator! Liliana is a burn survivor who has worked with trauma survivors in various capacities throughout her career. She discovered her passion for community service after sustaining a major burn injury when she was 19.
In our conversation, Liliana provides a behind-the-scenes look at her role with Phoenix Society, reveals some of the frequently asked questions she hears from survivors and caregivers, talks about her own struggles as an amputee, and offers tips for those who are interested in giving back.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
Liliana Palacios grew up in Los Angeles and is a proud mother to three grown-up kids. She studied at San Francisco State University, earning a Bachelor of Science in Health Education with a minor in Holistic Health and Women's Health Issues. Over the years, Lili has mainly worked supporting trauma survivors in various capacities. She discovered her passion for community service through her own experience as a burn survivor. Forty-one years ago, at the age of 19, Lili was in a house fire (she's on OG, y’all!). She attended Phoenix World Burn Congresses throughout the years. Through a fellow burn survivor and her mentor, she learned about the different resources available to the survivor community - which inspired her to get involved in community service. Her other interests include art, photography, cooking, and gardening, among other things.
Links
Join our Facebook Group for Spanish-speaking survivors and caregivers: https://www.facebook.com/groups/phoenixsocietyspanish
Download Sara’s STEPS in Spanish: https://resources.phoenix-society.org/saras-steps-e-book-spanish
Sign up for Phoenix Society’s Virtual Support Group: https://www.phoenix-society.org/what-we-do/virtual-support-group
Join our weekly Peer Support Chat: https://www.phoenix-society.org/what-we-do/peer-support-chat
Contact Phoenix Society for Burn Survivors: https://resources.phoenix-society.org/contact-us
Visit our Burn Community Calendar: https://www.phoenix-society.org/community-calendar
Podcast Sponsor
Mölnlycke Health Care is a world-leading MedTech company that specializes in innovative solutions for wound care and surgical procedures. Mölnlycke products and solutions are used daily by hospitals, healthcare providers, and patients in over 100 countries around the world. Learn more by visiting: https://resources.phoenix-society.org/resource-marketplace/molnlycke.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
Ever wondered about donor-less skin grafts? Or how cryotherapy is used for pain control? What about spray-on skin? In this captivating podcast episode, we're joined by burn survivor and burn surgeon Dr. Jason Heard to explore these intriguing topics and more, as we delve into the latest trends and treatments in burn care.
Dr. Jason Heard, a burn survivor turned burn surgeon, brings a unique perspective to the field. At the age of 12, he experienced second and third-degree burns over 40% of his body. This life-altering event inspired him to dedicate his career to caring for others. Now a faculty member at the UC Davis Firefighters Burn Institute and Shriners Children's Northern California burn units, Dr. Heard's journey from patient to practitioner is a testament to the resilience of the human spirit.
Join us as we delve into the cutting-edge world of burn care with Dr. Heard. We'll explore the latest trends and treatments, from revolutionary laser surgeries and donor-less skin grafting to innovative cryotherapy for donor-site pain control and the game-changing foam dressing.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
After sustaining a burn injury on almost half of his body at the age of 12, Dr. Jason Heard was drawn to the medical field and knew he wanted to help other burn survivors in the future. He completed his Bachelor of Science degree in Genetics and Biotechnology at the University of Iowa in 2011. During his undergraduate years, Jason completed many burn related research projects leading to multiple peer reviewed publications. He was also able to be heavily involved with a regional burn non-profit organization, Saint Florian Fire and Burn Foundation. Through this organization, Jason was able to not only attend but develop programming for multiple burn survivor programs. He was fortunate to serve on their Board of Directors from 2012-2014.
He enrolled into medical school at the University of Iowa Carver College of Medicine in 2012 and matched into general surgery residency at UC Davis in 2016, and ultimately completed his residency at the University of Iowa Hospitals and Clinics in 2021. Jason's passion for burn care and my aspiration of doing a burn/critical care persisted throughout my training and he completed his fellowship at UC Davis in 2022. He is currently a faculty member at UC Davis/Shriners Northern California Burn Units, where he continues to care for burn survivors during their initial hospital admission and throughout their recovery, including reconstructive procedures/treatments. Jason is also on Phoenix Society for Burn Survivors’ Board of Directors.
Links
Laser Treatment for Burn Scars: What Burn Survivors Want to Know https://www.phoenix-society.org/resources/laser-treatment-for-burn-scars-what-burn-survivors-want-to-know
Will My Burn Skin Graft Go Away Over Time? https://www.phoenix-society.org/resources/will-my-burn-skin-graft-go-away-over-time
Learn more about Spray-On Skin https://www.templehealth.org/about/blog/spray-skin-technology-heal-severe-burns
Learn more about the different type of skin grafts https://www.healthpartners.com/care/hospitals/regions/specialties/burn-center/skin-grafting/
Podcast Sponsor
Today’s podcast is powered by Cunningham Law Firm! Located in Phoenix, Arizona and helping clients nationwide, the Cunningham Law Firm specializes in personal injury, wrongful death and burn related cases. Learn more by visiting https://cunninghamlawfirm.com.
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
In this inspiring episode of Girls with Grafts, Diana Tenney-Laperriere shares her story of survival. In 2010, one surprisingly warm early spring day turned into tragedy when Diana was burned over 90% of her body. At the age of 54, Diana was given less than a one percent chance to live. More than 400 days later, Diana returned home.
Years and countless surgeries later, Diana and her husband, Jerry, found a new calling to advocate and support burn survivors nationwide. In this episode, we talk with Diana about her struggle with alcoholism, how she and Jerry navigated their relationship post-accident, the importance of physical fitness in recovery, and how to advocate for yourself and loved ones.
Enjoyed the show? Tell us by leaving a 5-star review and sharing on social media using hashtag #GirlswithGrafts and tagging Phoenix Society for Burn Survivors!
Meet Our Guest
In 2010 at the age of 54, Diana Tenney-Laperriere was burned 94% of her body, which consisted of mostly third degree burns. Dianna spent over a year recovering from her injury in the hospital and then went on to have reconstructive surgeries for the next seven years.
She has spent most of the last 10+ years working with other burn survivors and medical researchers. She is the past president, secretary, and treasures of Burn Survivors of New England, co-coordinator of Knowledge Translation for the Boston-Harvard Burn Model Systems, trained Phoenix Society peer supporter, previous speaker with the American Burn Association, former Wellness Room Leader at Phoenix World Burn Congress, and so much more. She is extremely active in burn research and advocacy. Diana has also been sober for many years and is active in AA.
Dianna married her sweetheart, Jerry, in 2023 and has currently relocated with her husband, dog Barney, and cat Pebbles, to Tennessee to help care for her mother. Additionally, Diana is very physically active and participates in ZUMBA and yoga.
Links
Get Your Copy of God Never Moved https://www.amazon.com/God-Never-Moved-Couples-Journey/dp/B0CFZ9P673
Information about Alcoholics Anonymous https://www.aa.org/
Burn Survivors of New England https://www.bsone.org/
Boston-Harvard Burn Model Systems https://spauldingrehab.org/research/programs-labs/burn-injury
Volunteer for Phoenix SOAR with Phoenix Society https://www.phoenix-society.org/phoenix-soar-peer-supporters
Research Opportunities with Phoenix Society https://www.phoenix-society.org/advocacy/research-opportunities
Become a Phoenix Advocate https://www.phoenix-society.org/become-an-advocate
Podcast Sponsor
Today's podcast is powered by Solvita (formerly Community Blood Center/Community Tissue Services). Solvita comes from “sol” meaning sun and “vita” meaning life. As sunlight nurtures new life, Solvita takes the donor gift and transforms it into new hope, bringing the light of healing to patients through blood donations and tissue transplants. Learn more about them here: https://solvita.org/
Sponsor Girls with Grafts
Interested in becoming a sponsor of the show? Email us at info@phoenix-society.org.
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