Life with Long Covid

Long Covid is a debilitating reaction to the Covid virus that affects millions worldwide. In this podcast, Paul shares his experience of what it is like to live with it. <br/><br/><a href="https://www.lifewithlongcovid.co.uk?utm_medium=podcast">www.lifewithlongcovid.co.uk</a>

52: "Happy Christmas"

In this episode, I am joined by Rachel to talk about the fear of getting the flu and managing energy levels over Christmas. To join the community, visit our website at www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

12-19
20:50

52: "It's only Christmas!"

Christmas can be magical… but navigating chronic illness makes that harder. This episode explores the hidden labour, the energy budgeting, and the emotional weight of big occasions when your body doesn’t cooperate.Visit www.lifewithlongcovid.co.uk to become part of the community. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

12-10
14:23

51: "You look better"

I recorded something a bit personal this week. Some friends visited recently and reminded me that I’ve made progress this year. I have a little bit more energy, capacity, and can do things I genuinely couldn’t have done twelve months ago.But there’s a tension there, isn’t there? As soon as we say “I’ve improved,” people hear “I’m getting better and it’s never that simple.If you’re living with Long Covid or any chronic condition, you’ll get this one. ”Hope it helps someone feel a little less alone today.Life With Long Covid is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

12-03
15:11

50: "What’s going on with all these bizarre long covid symptoms?"

It’s the 50th episode of Life with Long Covid — and what better way to celebrate than by talking about the most baffling, bizarre, and frankly ridiculous symptoms long Covid throws at us?In this episode, I explore the strange side of chronic illness: the jelly legs, the electric zaps, the temperature chaos, the sensory weirdness, and that moment when you forget why you opened the fridge in the first place. If it’s odd, unpredictable, or impossible to describe… I will probably cover it.Episode 50 is all about validation —Life can be exhausting and sometimes the only way to cope with these ridiculous symptoms is to talk and laugh about them together. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

11-24
20:18

49: "Why is it so hard to explain long covid to other people?"

Living with long Covid means explaining the same things again and again — what fatigue really is, why brain fog isn’t just forgetfulness, and why rest isn’t laziness. In this episode, Paul shares the things people with long Covid wish others understood, without having to repeat them every week.I talk about unpredictable symptoms, cancelled plans, the emotional labour of keeping up appearances, and why recovery isn’t a neat, upward line. If you’re living with long Covid or supporting someone who is, this honest conversation is for you. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

11-17
18:52

48: “What are your plans for the future?”

How do you rebuild a future when so much is uncertain? In this episode, I try and explain how I am coming to terms with chronic illness and what things might look like in the future. It is raw and unfiltered (even my dog Maisie makes a background appearance!). To subscribe to receive an update and for all my previous work, including details of my book, visit: www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

11-10
22:04

47: “You blame everything on Covid”

In this episode, I discuss how Covid has caused secondary conditions and go on a rant about what it is like to live with them! I also reflect on the difficulty of making and keeping hospital appointments. Subscribe and become part of the community at www.lifewithlongcovid.co.uk. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

11-02
18:00

46: "Do I have to earn my worth?"

This week, Rachel joins me as we discuss very honestly how my frustration at not being able to do things makes me question my self-worth. We also discuss whether Florence Nightingale might have had ME/CFS. www.lifewithlongcovid.co.ukTo receive weekly posts and support my work, consider becoming a free or paid subscriber. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

10-27
21:46

45: "You should be working"

It's impossible to live up to others’ expectations when you have a chronic illness. In this episode, I reflect on the negative influence of social media and the feeling that I should be contributing to the workplace.Visit www.lifewithlongcovid.co.uk to subscribeMy book is available on Amazon. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

10-17
14:34

44: "Don't let your illness define your life"

In this update, Paul shares openly and honestly about how long covid affects his mental health, particularly during a crash. www.lifewithlongcovid.co.uk Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

10-13
10:09

43: "Why are you still talking about Covid?"

I have now had the symptoms of Long Covid for more than three years. In this episode, I reflect on the journey so far and how the world seems to have moved on without us. To subscribe, please click here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

10-03
21:00

42 "You Have Changed"

What does it feel like to have not only your job, but your self-identity stripped away? In this episode, Paul reflects on how much his life has changed since contracting Covid in 2021 and how the journey is far from over.www.lifewithlongcovid.co.ukBook Available on Amazon now, please click here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

09-26
21:28

41 "You might get a speeding ticket in that!"

My scooter and wheelchairs have given me some of my freedom back and I am incredibly grateful for them. However, they also come with a lot of stress and sometimes I get fed up with having to use them. In this episode, I reflect on buying and using my wheeled friends and the shock of how much they cost. Please consider visiting and subscribing to my community here You can purchase my book here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

09-19
27:07

40: "You just need a good nights sleep"

What is it like to suffer from chronic fatigue? In this episode I try to describe living with this aspect of long covid and peoples reactions to it. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

09-12
19:59

39: "Did you have a nice holiday?"

After a summer break, the podcast is back! This week, I reflect on the experience of going on holiday and the challenge of changing routines with a chronic illness. If you find this podcast useful, please do consider following and reviewing. There is a lot more to 'Life with Long Covid', visit our page here to subscribe and receive all my updates. My book is available on Amazon here. Thank you so much for your support. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

09-01
21:59

38: "I should be doing more"

Sometimes I get stuck in the past and think that I am the Paul who used to have lots of energy and had lists of things to do everyday. Living with a Chronic illness has meant a period of adjustment, which I am still struggling with.You can purchase my book hereYou can subscribe to the community here Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

06-02
14:23

37: "What do you do all day?"

The covid pandemic might be a thing of the past for most people, but to some, it has changed their lives forever. In this episode, I reflect on having to stop doing some of the things I loved and coming to terms with a new life, with long covid. You can purchase my book here. Please subscribe to become a member of the community. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

05-16
16:28

36: "I cannot face recording a podcast episode"

Chronic Illness can get you down. In this episode, I talk about why I have not uploaded an episode lately and how my illness affects my mental health. It's a candid, raw and honest exploration of how it affects me. Please do consider subscribing hereYou can purchase my book here Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

05-07
15:29

35: "Let's go out for the day"

This week I reflect on a visit to London on the train and rant about assessments! Please support the podcast if you can by subscribing here.My book is available here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

04-14
20:54

34: "It's just a routine appointment."

This week, I reflect on a recent post and a trip to our local hospital for a blood test. Rachel joins me again, and we read through some of the responses to the post and how, by sharing experiences, we can feel less alone. Subscribe to the show here to join the community and to receive posts and episodes. You can purchase Paul's book here. Get full access to Life With Long Covid at www.lifewithlongcovid.co.uk/subscribe

04-08
24:39

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