Long Covid Real Talk Podcast

Season 4, Episode 1: It’s Not Hopeless” (guest: Vicki)How to connect with Vicki: www.mycreativecorner3.comPlease subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice

Season 3, Episode 25: Why I Got Bamboozled/How To Avoid Getting ScammedDiscusses recent encounter with a scammer and explores how a disabled state may influence gullibility. In other words, the allure of being able seemingly help someone even when you can barely take care of yourself due to disability/Long Covid.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 24: How To Brush Your Teeth With Long COVIDDiscusses two recommendations from my dental hygienist and dentist to help people with Long COVID perform dental care/oral hygiene when symptomatic.​Electric toothbrush- More expensive than regular toothbrushes butIdeal for us when our arms are tired/aching and it is hard to move our arms around.- I think of it as an investment to avoid having to pay for fillings, etc.- I have an Oral B iO toothbrush but any electric toothbrush will do​ OraCare Mouthwash:- You have to get it from your dentist - It kills bacteria, viruses, and fungi and breaks down Biofilm- It is recommended for people undergoing chemotherapy who are too weak to perform oral/dental hygiene.- $45 per box of two 16 oz bottles- pump 3 pumps from each bottle, allow it to mix/mingle for 30 seconds, then swish for 30-60 seconds and spit - website: https://www.oracareproducts.com/oracarehealthrinse.htmlALSO: this was not mentioned in the episode but if I am tired I will sit in a chair or on the bathroom floor while performing oral hygiene.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 23: “It Was Hell & It Is Hell” (guest: Lydia)Listen to Lydia’s story of going from working full time and being a homeowner to becoming homeless and everything in between. Grateful to hear her powerful story!Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 22: The Mental Game of Long COVIDOur guest, Laurie, returns to finish up the part of the interview that was cut off last time by the recording and to explore some other topics, including the Mental Game you have to play when you have Long COVID.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 21: When You Know More About Long COVID Than Your DoctorDiscusses how it felt to have symptoms minimized/not be believed at my recent appointments which leads to the question: is it our job to educate our doctors on Long COVID?Please subscribe, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

BONUS EPISODE #6: My Long COVID Clinic AppointmentDiscusses recent appointment at the Stanford Long COVID clinic and gives general overall treatment update.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 20: How To Go To A Baby Shower With Long COVIDTips and tricks for people with Long Covid, ME/CFS, POTS, and dysautonomia to help prepare for a baby shower/travel. And remember — you’re not alone in this!Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 18: Long COVID & The Risk Of SuicideIf you are considering suicide, please call 988 or your local suicide/crisis hotline.- Long COVID evokes significant emotional stress as it is an untreatable disease that causes severe distress … social isolation and loss of income can result in significant distress (Sher, 2021).- Long COVID may induce a mental health condition or aggrevate a previously existing condition… the combination of systemic infection, hypoxia and Neuro inflammation can precipitate or worsen a mental health condition (Sher, 2021).- Depression is one of the most frequent neuropsychiatric disorders related to the damage to the brain caused by neuroinflammation; depressive symptoms have been linked to pro-inflammatory factors and neuroglial failure (Sher, 2021). - When comparing healthy patients to patients with long COVID, patients with long COVID are 46% more likely to have suicidal ideation (Xie, Xu & Al-Aly, 2022).References:Sher, L. (2021). Post-COVID syndrome and suicide risk. QJM: An International Journal of Medicine 114(2), 95-98. doi: 10.1093/qjmed/hcab007.Sher, L. (2023). Long COVID and the risk of suicide. Gen Hospital Psychiatry 80, 66-67. doi: 10.1016/j.genhosppsych.2022.12.001.Xie, Y., Xu, E. & Al-Aly, Z. (2022). Risks of mental health outcomes in people with Covid-19: cohort study. BMJ 16: 376. doi: 10.1136/bmj-2021-068993.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 17: When You Start To Cry At The Drop Of A HatDiscusses the profound effect Long COVID can have on emotion regulation. Here are the levels of support discussed:inpatient hospitalization = highest level of support, you are staying in a secured inpatient hospital unit with safety checks every 15 minutespartial hospitalization program (PHP) = you come to the outpatient place of the hospital for several hours a day but sleep at homeintensive outpatient program (IOP) = you come to the outpatient place of the hospital for a few hours a day and sleep at homeoutpatient = baseline mental health help (ie therapy once a week, mental health med management once a month, etc.)Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

Season 3, Episode 16: When $#!+ Gets RealGuest star 🌟 my sister, MJ, who is a fellow long hauler, discusses the moment when having Long Covid got real for her. The shout out mentioned during this episode is Dr. Zeest Khan of the Long Covid, MD podcast.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

Season 3, Episode 15: Aiming for the Goldilocks Zone Guest star 🌟 my husband, Michael, discusses the three types of days and how to best conserve and sustain one’s energy. Please like, subscribe, share and leave a 5 star 🌟 🌟🌟🌟🌟review wherever you are listening! It really means a lot and helps other long haulers find the podcast! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217

A snapshot into the life of someone living through a Post-Exertional Malaise (PEM) episode after minimal exertion the previous day.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

I was able to try putting music in the background but there is no way to adjust the volume so I was on the fence as to whether to keep the music or not.Today my brain is not working well and is very tired. I hope if you are having a similar day that it passes quickly. Remember - you are not alone!Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

This episode discusses the importance of having things to look forward to in order to keep your mental health on point. Furthermore, discusses the universal dilemma of finding one’s worth. Whether you are able-bodied or not, your worth is exactly the same, you are not worthless because your productivity has diminished compared to what you used to be able to do.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

Home repairs and feeling left out — how people with Long Covid, ME/CFS, POTS, and dysautonomia have to miss social gatherings and fun outings because of our illness.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

Discusses the loss of a colleague to Amyotrophic Lateral Sclerosis (ALS) which leads to grief and existential distress — am I doing what I was meant to be doing? How do I know? How do we carry on after the loss of a person in our life? How do we carry on after the loss of our lives as we knew them to Long COVID? How do we, the survivors of COVID, carry on after all the people we have lost to COVID?Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

For all of us with Long Covid, ME/CFS, POTS, dysautonomia, brain fog, severe, debilitating fatigue, significant weight gain (or loss) who feel like this entire experience has essentially ruined our lives as we knew them, aged us, and made us feel really old and fat (or too thin). One of the things mentioned is to dress for your current body type/size and to try to embrace yourself just for being your awesome self. Two of the clothing companies I recommend for clothes that make me feel cute are:7 Degrees Hoodies: https://www.shop7degrees.com**$10 off referral code: LXZ-YC4CWL1Democracy ABsolution Jeans: https://democracyclothing.comThe app discussed in this episode to help stabilize and ideally help lose weight is called NOOM. You can get a 14-day free trial + 20% off if you use this link https://noom.com/r/JbEZcyAPAPlease rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

A topic I should have discussed way before now — tips and tricks for people with Long Covid, ME/CFS, POTS, and dysautonomia to help make getting ready in the morning or at nighttime a little bit easier. And remember — you’re not alone in this!Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217

How having symptoms of Long COVID, ME/CFS, POTS,MCAS, Fibromyalgia, etc. such as debilitating fatigue, brain fog, myalgias, dysautonomia, etc. affects relationships.Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217