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Movers and Shakers: a podcast about life with Parkinson's
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Movers and Shakers: a podcast about life with Parkinson's

Author: Podot

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Movers and Shakers finds six friends – Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman – gathered in a Notting Hill pub to discuss the realities of life with Parkinson's. And maybe find a few silver linings!

Hosted on Acast. See acast.com/privacy for more information.

65 Episodes
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Reasons to be Cheerful

Reasons to be Cheerful

2024-12-0733:40

We're back in the Notting Hill pub for our final episode of 2024. And after some rather gloomy subjects in recent weeks – from caring responsibilities to assisted dying – the Movers and Shakers are turning their attention to something a little more optimistic. With contributions from listeners – and a couple of special guests – this episode looks at the reasons all Parkies have to be cheerful. Whether that's defying the condition or embracing it, there's always a silver lining to be found.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Pumps

Pumps

2024-11-3034:41

Could discreet pumps, constantly providing adjustable doses of your top Parky drugs, be the future of 24-hour care? That's one of the suggestions made by advocates of a new range of pumps, one of whom, Professor Ray Chaudhuri (aka the Judge's neurologist), joins the Movers and Shakers in the Notting Hill pub. And if that's not a sufficiently bumper discussion, Prof Chaudhuri also discusses a new project that's he's developing: a Parkinson's dashboard to help make sure that new patients are asked all the right questions in the weeks after a diagnosis.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Pets

Pets

2024-11-2330:41

This week the Movers & Shakers are celebrating our four-legged friends, both canine and feline. But how do pets help or hinder the experience of having Parkinson's? With expert testimony from Bilbo Mostyn, Derek Paxman, Sophie Cellan-Jones and Lana Del Grey Mardell – not to mention several listeners calling in – and some special guests, this episode explores the special bond between animals and humans.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
In this special live edition of Movers and Shakers half of the gang – The Judge, Rory and Paul – head to the famous Belfry golf club, where Sport Parkinson's were hosting their annual Four Nations golf tournament. In this wide-ranging conversation about the merits of sports (and a few pitfalls), special guests join to discuss the various initiatives for motivating Parkies into athletic endeavour. From golf and football to horse riding and – you guessed it – ping pong, this will be the inspiration you need to get off the couch and dust off those trainers!Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Women and Parkinson's

Women and Parkinson's

2024-11-0934:251

Women make up about 40% of all Parkinson's cases – but the Movers and Shakers panel doesn't often reflect that! Do we pay enough attention to women's experience with the disease? And does medical science have the same blindspot? On this week's episode of the show, we're talking about the female experience with PD, how the disease differently impacts the genders, and what we need to do to even the playing field for biomedical research. Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Bas Bloem

Bas Bloem

2024-11-0232:46

In the world of Parkinson's, Bas Bloem is something of a rockstar. The Dutch neurological giant (in more ways than one) joins the Movers and Shakers in the Notting Hill pub for this special interview, where he talks about his personal journey into PD research, his suspicions on the causes of the illness, and his pathological optimism for the future of the condition. Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Help!

Help!

2024-10-2634:32

When Paul titled his episode "Help! (me please, I beg you, because I've been a bloody pillock)" we knew he'd bring his typical humour and candour to the trickiest of subjects. This week, the Movers & Shakers (minus Rory and Jeremy) are talking about care, and the assistance that can be offered both by loved ones and the state. If you haven't thought about how to arrange and finance care – whether that's domiciliary or residential – then this episode will guide you through the opportunities and pitfalls (and offers The Judge a chance to pick through the benefits system once again).Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Assisted Dying

Assisted Dying

2024-10-1936:35

Assisted dying is currently on the agenda in the UK, as a private member's bill enters Parliament. But with legislation comes a moral debate: should the state be involved in easing the passing of the sick? And, if so, what should the conditions be? What guardrails can be put in place to ensure that what ought to be about mercy doesn't become the subject of abuse? To discuss this difficult topic and the impact that the contemporary political push could have on the Parky community, the Movers & Shakers are joined in the pub by Lord Falconer, whose bill in the House of Lords has set out many of the expected parameters of this new attempt to change the law. Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
The NHS Health Check

The NHS Health Check

2024-10-1232:24

Keir Starmer's new Labour government have been in power, now, for 100 days. After big promises to raise pay, slash the backlog and reduce waiting times, have Labour, and new Health Secretary Wes Streeting, made any in-roads? On this episode, the Movers and Shakers are joined in the pub by Gaynor Edwards and Professor Michele Hu (Paul's neurologist), as well as, down-the-line, by new social care minister Stephen Kinnock MP, and Parkinson's UK CEO Caroline Rassell.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Who's To Blame?

Who's To Blame?

2024-10-0540:18

Were it not for the eventual verdict of the Court of Appeal, Holmes vs Poeton may well have been a landmark case for Parkies. Or so claims the (ex) Judge, Nicholas Mostyn, who serves as the guide in today's episode, where the Movers & Shakers look into some thorny questions: what causes Parkinson's? And who, if anyone, is to blame? Our guide is Professor Yoav Ben-Shlomo from the University of Bristol, who dissects the evidence – from controversial twin studies to a contaminated Marine encampment – and delivers his verdict on the balance of probability.This episode was generously sponsored by Purdy & Figg. For 50% off your first starter kit, as well as a free bottle for life and cloth, click here.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Targeted Ultrasound

Targeted Ultrasound

2024-09-2836:281

Targeted ultrasound might sound like something a Bond villain would use to incinerate a Swiss canton, but, in reality, it could be the next big, breakthrough Parkinson's treatment. On today's episode, the Movers & Shakers gather in the Notting Hill pub to discuss this new therapy and are joined in that undertaking by returning guest Professor Ludwic Zrinzo, an expert in both this technique as well as its main rival, Deep Brain Stimulation (so expert that he had the honour of performing Gillian's procedure). Is this a less invasive alternative to DBS? Or are we some way away from this being offered on the NHS?This episode was generously sponsored by Purdy & Figg. For 50% off your first starter kit, as well as a free bottle for life and cloth, click here.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Music

Music

2024-09-2134:59

If music be the food of love (or, given we're in the pub, "the love of food"), play on. On this week's Movers and Shakers, the gang have gathered to discuss music, and the many ways it can impact the Parky community. From vocal warm-ups and singing helping to bring back Mark's booming voice, through to dance and gesture exercise keeping you fit and lyric translations keeping you brainy, music can have a huge impact. The team are joined in the pub by opera singer Bibi Heal (who gives a very special performance) along with the team from Neuro Heroes.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
Enzyme Blockers

Enzyme Blockers

2024-09-1433:36

Every hero needs a sidekick: Batman and Robin, the Lone Ranger and Tonto, Ronald McDonald and Grimace. And, in Parkinson's world, if Levodopa is the crime-fighting vigilante, then enzyme blockers (or inhibitors) are keeping the seats warm in the Batmobile. To discuss the vital role that this group of drugs play, the Movers and Shakers are joined in the pub by Professor Peter Jenner, a pharmacological expert, and Lynn Guldin, a new PhD student looking into Parkinson's treatments.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones. Hosted on Acast. See acast.com/privacy for more information.
We Will Survive!

We Will Survive!

2024-09-0731:19

Pour yourself a drink and pull up a chair: the Movers and Shakers are back in the pub! To open our fourth (yes, fourth – we can hardly believe it either) season, the gang gather to discuss their summer holidays – from Scottish ping pong to Alpine dystonia – and make a big announcement. Whilst pretending to be on their jollies, Gillian and Mark have been leading the charge with a brand new music video extravaganza, a Parky version of Gloria Gaynor's 'I Will Survive'. In addition to all this, we're joined at the boozer by Rowan Wathes, Associate Director of Policy & Health Strategy at Parkinson's UK, and Dr Kevin McFarthing from the Cure Parkinson's research committee. They'll guide you through the latest Parky news, from petitioning government to clinical trial breakthroughs!Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Leon Radschinski-Gorman.Sound mixing by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
Mailbag #3

Mailbag #3

2024-05-0437:301

It's the season finale of Movers and Shakers, which means that it's time to answer some of your letters. From discussion about the Charter to playing walking football at the Emirates, this is a diverse mailbag that captures the wit and wisdom of the Movers and Shakers community. And then, at the end of the episode, we have a little treat: music extracted from Parky tremors!Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
Cell Therapy

Cell Therapy

2024-04-2741:112

From levodopa to Deep Brain Stimulation (DBS) we're all pretty familiar with the treatments for Parkinson's. But could there be something, just around the corner, that could change the whole game, not just stalling but reversing the tide of symptoms? That's the subject the Movers and Shakers are discussing today as they gather in the Notting Hill pub with special guest Professor Roger Barker, a world-leading expert on the application of stem cells as a potentially revolutionary treatment for Parkinson's.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
What Causes Parkinson's?

What Causes Parkinson's?

2024-04-2028:321

What causes Parkinson's? This is one of the trickiest questions facing researchers and doctors – not to mention patients – and it's the topic being tackled by the Movers and Shakers as they take to the Notting Hill pub today. Is there something atmospheric? Or does the club lie in our DNA? Our guide through this topic is Professor Matt Farrer, one of the leading lights of this research area.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
This week we have a very special episode of Movers and Shakers: live from Downing Street! On World Parkinson's Day, the Movers and Shakers, along with representatives from Parkinson's UK, Cure Parkinson's and Spotlight YOPD took to the streets of Westminster to hand over the #ParkyCharter, a list of 5 demands (well, polite requests) to government. Join Rory, Gillian, Mark, Paul, Nick and Jeremy in that experience, and listen to the testimonies of the many listeners to the show who made the trip down to SW1A to show their support.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
From Love and Other Drugs to Shrinking, Curb Your Enthusiasm to Emmerdale, Parkinson's only occasionally makes it to screens (big or small). On today's Movers and Shakers, the gang gather in the Notting Hill pub to discuss the representation of Parkinson's across film and TV. Is there enough Parkinson's? Is it done well? And how could it be improved – both in quantity and quality?Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
Medicine in Hospital

Medicine in Hospital

2024-03-3034:15

What times do you take your Parkinson's medication? Some people are regular as clockwork – morning, lunchtime, evening – while others work to a more erratic schedule. However and whenever you usually take your meds, that system is likely to be disrupted in hospital. On this episode of Movers and Shakers, the gang gather at the Notting Hill pub to sort through the challenges of keeping up your medication regimen in hospital, and are joined by some fabulous guests who are revolutionising the pharmaceutical distribution from within the health service.Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.Produced and edited by Nick Hilton for Podot.Additional production by Ewan Cameron.Music by Alex Stobbs.Artwork by Till Lukat.PR by Sally Jones.For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM Hosted on Acast. See acast.com/privacy for more information.
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Comments (5)

Sally Mellalieu O'Hare

Will you be getting an interview with an expert on Thiamine protocol for PD?

Oct 24th
Reply

Hayley Hammond

brilliant love the show really good idea to have specialist parky nurse

Jan 18th
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Dawn Stockley

Brilliant show, I learn something new every episode. keep up the fabulous work.

Aug 9th
Reply

Vic Powell

Thank you for doing this and sharing your experiences. I will be sharing this with my NHS team.

Jul 25th
Reply

phil gaylard

I love the show! keep up the good work!

Apr 25th
Reply