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Delve into the world of macular disease with the Macular Society. Join us as we hear from eye care professionals, providing expert insight on the latest developments in research and evolving treatments. Listen as we also share first-hand stories and explore the support available for those living with sight loss. For more information and additional support visit: https://www.macularsociety.org/
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Send us your feedback In this episode of Bitesize Benefits, we explore the government’s latest welfare reforms, what they mean for people with macular disease, and how proposed changes to benefits like PIP, Universal Credit and Access to Work could affect you. For more information on benefits available to help those living with macular disease and their families, please visit our website. The Macular Society has been supporting people with macular conditions for over 30 years. The righ...
Send us your feedback In this episode of the My Macular and Me podcast, we speak to Kelly, a mum of three living with Best disease. Kelly shares her personal journey of parenting with sight loss, from the emotional impact of her diagnosis to the challenges of family life, adapting routines, and supporting her children. This honest and heartfelt conversation explores the realities of raising a family while navigating sight loss, and the strength found in community and support. The Macular Soci...
Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. In this episode we are joined by Dominic Milne from RNIB to discuss pensions and pension credit. This episode explores the complexities of the application and what you're entitled to. For more i...
Send us your feedback Eye injections can feel daunting, but they don’t have to be. In this episode of the My Macular and Me podcast, orthoptist and advanced practitioner Catherine Williamson answers common questions and clears up misconceptions to help you feel more prepared, informed and reassured about treatment. For more information on injections and other treatments, visit our website. The Macular Society has been supporting people with macular conditions for over 30 years. The righ...
Send us your feedback What is epiretinal membrane? In this episode of the My Macular and Me podcast, we are joined by Dr. Teresa Sandinha, consultant ophthalmologist at the Royal Liverpool University Hospital and Geraldine Hoad, our head of research grants at the Macular Society, to explore this topic. If you've been diagnosed with an epiretinal membrane or you are curious of how it affects vision, this episode will provide clarity of what it is, why it develops, and what treatment options ar...
Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Claire Ashe, service administrator and former dispensing optician. Join us to find out how to get the most from your optician appointments, what to expect, what to bring, and how to be as prepared as possible. For more information on eye care and eye health, please visit macularsociety.org. The Macular Society has been supporting people w...
Send us your feedback In this special International Women's Day episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Christiana Dinah to discuss the role of women in ophthalmology and research. We explore the challenges women face in the field, why representation matters, and how we can inspire the next generation of female leaders in eye health. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and...
Send us your feedback In this episode of the My Macular and Me podcast, we are joined by guests Chris and Dawn who share their journey with macular disease. They talk through their diagnosis and it's impact, as well as how their hobbies have helped them to find joy, adapt, and maintain mental well-being during difficult times. Links to share: Instagram: Dawn, Chris Facebook: Dawn, Chris Pathway Yoga YouTube Channel Blind Man With a Backpack Blog The Macular Society has been supporting peo...
Send us your feedback For this episode of the My Macular and Me podcast, we are revisiting one of talks from Dr Matteo Rizzi, research fellow at UCL Institute of Ophthalmology, as he speaks on Stargardt disease and how it affects vision, as well as the future of gene therapy. Dr Matteo Rizzi joined the My Macular and Me podcast with Dr Omar Mahroo earlier this year to discuss photopsia and photophobia in patients with Stargardt disease. If you would like to find out more on this topic, you c...
Send us your feedback New research has found that taking a daily vitamin and mineral supplement can slow the progression of late-stage dry age-related macular degeneration (AMD), otherwise known as geographic atrophy (GA). Dr Tiarnan Keenan from the National Eye Institute joins us to discuss these new findings in more detail and answer your questions. Previously, supplements, based on the AREDS2 formula, have only been recommended for those with the earlier stages of AMD. Listen to learn how ...
Send us your feedback Being registered as sight impaired can often make it easier to get practical help and it may qualify you for certain benefits. In this episode of the My Macular and Me podcast, we are joined by ophthalmologist Christiana Dinah, and Macular Society Working Age and Young People's Manager, Colin Daniels, as they discuss the ins and outs of registering as sight impaired. For more information on registration, please visit the Macular Society website. Or if you have any ques...
Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. Join us as we look at the recent Autumn Budget announcement and explore what these updates could mean for those living with sight loss. For more information on benefits available to help those l...
Send us your feedback For this My Macular and Me podcast we are joined by Professor Linda Troeberg from the University of East Anglia as she shares updates on her Macular Society funded research project looking at Sorsby's fundus dystrophy. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular...
Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Skills for Seeing volunteer Pat McGeough. Join us to find out how eccentric viewing can help make best use of your remaining vision and to learn other useful tips and tricks to help make those everyday tasks that little bit easier when living with sight loss. The Macular Society has been supporting people with macular conditions f...
Send us your feedback Discover how to keep your eyes healthy in this episode of the My Macular and Me podcast as we are joined by Yuan Gao, an experienced optometrist from the Imperial College Healthcare Trust, and Vicky Thompson, one of our regional managers at the Macular Society. Join us as we explore what we should be doing to protect our eyesight. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help pe...
Send us your feedback In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as they discuss disclosing sight loss to an employer and the benefits of applying for an Access to Work grant. This is part of our Bitesize Benefits mini series where we look at a range of topics relating to financial and employment support for those living with ...
Send us your feedback In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as we share our key tips job searching, volunteering, job applications and CV writing. This is part of our Bitesize Benefits mini series where we look at a range of topics relating to financial and employment support for those living with macular disease. &...
Send us your feedback In this episode of the My Macular and Me podcast we are joined by Professor Jacqueline van der Spuy from the UCL Institute of Ophthalmology. She discusses the development of treatments for Doyne honeycomb retinal dystrophy, an inherited juvenile macular dystrophy affecting sight from early adulthood. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retai...
Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Connect by Tech volunteer Sheila Harris. Join us as we explore the world of smart devices and find out how technology can make life a little bit easier for those living with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome thei...
Send us your feedback In this episode of the My Macular and Me podcast, Elena Piotter, a PhD student at the University of Oxford, discusses her research project into a gene editing technique called CRISPR and how it could lead to a treatment for Stargardt disease. Her research is co-funded by the Macular Society and Retina UK. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and ...
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