My Spoonie Sisters

<p>My Spoonie Sisters features stories from special guests dedicated to empowering those with chronic illnesses. We share stories, discussing everything from Rheumatoid Arthritis to anxiety and sex therapy. Our goal? To connect people and provide the support and tools they need to live a better life.</p><p><br>For those with a chronic illness, our energy levels fade faster. We must be more purposeful with the "spoons" allotted to us. Grab your coffee, sister, and tune in as my Spoonie Sisters share stories of living with chronic illness.<br><br>All guests on or mentioned in this podcast will also be listed for your benefit. Be sure to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for new episodes and more. If you would like to be featured on My Spoonie Sisters, please email me at MySpoonieSisters@gmail.com. We look forward to speaking and hearing from all our Sisters! <br><br>*Disclaimer* I am not a doctor or a Health Care Practitioner. This is my and my guests' personal story and the things we have done for ourselves. Everybody is different when it comes to medications and remedies. If you have any questions regarding your health, please speak to and ask your Primary Doctor or Rheumatologist.<br><br>You can also visit our website at https://myspooniesisters.chewack.com</p>

Josie's Guide to Overcoming Autoimmune Challenges

Ever wondered if there's more to managing chronic illness than just medication? Discover the transformative journey of Josie, a fervent advocate for natural treatments for autoimmune diseases, as she shares her powerful story. From childhood ailments to grappling with rheumatoid arthritis and Hashimoto's, Josie's quest for healing led her to a holistic center in Denver, where she found that emotional well-being was key to her recovery. Hear how she unraveled the emotional roots of her conditi...

06-17
46:09

Jessica's Recipe for Emotional and Physical Well-Being

When Jessica Mitchell, a health coach driven by a deeply personal narrative, steps into our podcast venue, the air fills with an undeniable energy of transformation and hope. Her sister's untimely passing ignited a fire in Jessica to champion the cause of lifestyle disease prevention, and she's here sharing her wisdom on how to forge a path towards sustainable health. The conversation we engage in goes beyond the typical chatter about diets and workouts; we pierce the heart of what it truly m...

06-10
55:02

Being Each Other’s Lifeline

Do you ever feel like you're drowning in the midst of life's challenges? In this heartfelt mini-episode, I, Gracefully Jen, reflect on the importance of recognizing when our Spoonie Sisters are struggling and how vital it is to be that supportive lifeline for one another. We all wear masks to navigate our daily lives, but it's crucial to see beyond those facades and extend a helping hand, especially when the burdens become too much to bear.This episode also highlights the "Cards 2 Warriors" p...

06-02
06:47

Jen's Guide to Thriving with Arthritis: Five Strategies for a Fulfilling Life

Are you ready to transform how you navigate the daily hurdles of arthritis? Join me, Gracefully Jen, for practical advice that promises to enhance your daily living with arthritis. Overcoming the challenges of chronic illness is no small feat, but with our latest episode, you'll learn five key strategies to rework your routine for the better. We focus on making each day not just bearable but more fulfilling—celebrating the little triumphs and ensuring your well-being never takes a back seat.F...

05-27
06:41

Annie's Blueprint Your Health & Wellness Coach

Navigating life with an autoimmune condition can feel like a solo journey, but it doesn't have to be. I had the pleasure of bringing in Annie, my health and wellness coach, who's an expert in turning living with autoimmune diseases into thriving despite them. Together, we unpack the art of crafting wellness plans that are as unique as your fingerprint, offering hope and actionable advice for anyone aiming to steer their health in a positive direction. Through our candid conversation, I open u...

05-20
46:44

Unraveling the Threads of Invisible Illnesses with Olivia

As your host, Jen, I've witnessed firsthand the transformative power of getting the right diagnosis - it's a journey that can be as tumultuous as it is enlightening. That's why I invited Olivia Dennis to the show, where she bravely recounts her quest through the tangled healthcare system, grappling with the often invisible web of IBS, anxiety, OCD, and autism. Olivia's candid narrative strikes a chord, revealing the emotional toll of being misunderstood and the subsequent liberation of unders...

05-13
44:11

Laughing Through the Layers of Chronic Illness with Jewel

When your world is turned upside down by chronic illness, finding humor and connection can be your lifeline. That's exactly what happened when Jewel, the effervescent @thelipedemacushie, joined me for a chat that'll make you laugh, and nod along with understanding. We dove into Jewel's experiences with Cushing's disease, her surgeries, and the daily dance with adrenal insufficiency. There's something incredibly powerful about sharing stories of resilience, and Jewel's candidness about her spi...

05-05
42:34

Leila's Melodic Journey

Leila's voice crackles with emotion as she recounts the moment her life took an unexpected turn with the diagnosis of Lupus and Sjogren's disease. Her candid narrative details the trials and triumphs of living with these stealthy autoimmune diseases, from the early signs that something was amiss to the latest treatment that's been her saving grace. We're honored to have her on our show, sharing invaluable insights into the world of chronic illness, emphasizing the importance of self-advocacy,...

04-29
30:14

Resilient AF a Chronicle of Courage with Delicia

Struggle and healing often go hand in hand, as Delicia's gripping tale of resilience unfolds in our latest conversation. Facing a health odyssey that begins with severe allergies and the emotional scars of childhood trauma, she takes us through her diagnosis and the powerful connection between emotional distress and physical health. Her story is a beacon of hope for anyone facing similar battles as she recounts her experiences with hay made from barley on a Swiss farm, propelling a discussion...

04-22
50:59

Charting a Courageous Path Over Lupus and Polymyositis

When Lisa Norris, a part-time paramedic and former clinical trials researcher, recounts her 20-year struggle with lupus and polymyositis, it's not just a story of illness but of extraordinary perseverance. Our latest episode invites you into Lisa's world, where she navigates the complexities of her autoimmune diseases with the same precision and focus she once brought to emergency scenes and research labs. Her candid discussion of the sudden emergence of her symptoms, the winding path to a co...

04-15
36:36

Suzanne's Tale of Triumph and Transformation Through Holistic Practices

There's nothing more humbling than hearing the story of someone who's faced the gauntlet of health challenges and emerged with wisdom to share. That's precisely what you'll get as Suzanne Casamento joins us to recount her battles with chronic Lyme disease, medical gaslighting, and a complexity of health issues that would test anyone's resolve. Her story isn't just a sequence of struggles; it's a beacon for anyone who's felt unheard or misunderstood by the medical system, and it's packed with ...

04-08
46:29

Journey to Sexual Fulfillment Amidst Medicinal Realities

Have you ever wondered why we carry certain beliefs about sexuality, or how those beliefs impact our intimate relationships? In a riveting discussion with Dr. Fanny the Baker, an acclaimed sex coach, we unravel the intricate web of sexuality myths and the profound influence of sex education on our perceptions. As we examine the delicate interplay between intimacy and expectations, Dr. Fanny and I illuminate the significance of pleasure, safety, and communication in sexual relationships. You'l...

04-01
42:12

Traversing the Terrain of Still's Disease with Carrie

When resilience meets wisdom, stories like that of Carrie Shepperson unfold. Her journey through the labyrinth of Still's disease, narrative rich with city savvy and mountain wisdom, is one I had the privilege to uncover. Carrie, hailing from Kentucky and a steadfast volunteer at AiArthritis, shares her personal odyssey from bewildering symptoms to a fierce advocacy for those entangled in the complexities of autoimmune disorders. Her analytical nurse's mind, coupled with an unwavering spirit,...

03-18
49:16

The Heartfelt Journey Geri an Advocate & Writer

Have you ever found a friend in the most unexpected of places? On our latest episode, we're joined by Geri, a beacon of hope from the chronic illness community on Instagram, who opens up about her life with Lupus and Sjogren's syndrome. Her story is a testament to the strength and solace that virtual friendships can provide, especially when real-life connections to those who truly understand are few and far between. We navigate the all-too-common experience of medical gaslighting and the shee...

03-10
31:07

Emmanuel's Crusade for Workers with Autoimmune Diseases

When Emmanuel's life was touched by the invisible struggles of autoimmune disease within his family, it ignited a fire within him to champion the rights of workers grappling with similar battles. As the founder of the Workers with Autoimmune Aliments Alliance, his story—shared on our latest podcast—encapsulates the drive behind a movement that's not just personal but pivotal for countless individuals. Together, we unravel the complexities of autoimmune diseases in the workplace and the essent...

03-04
23:25

Unbreakable Bonds of a Rare Mom

Imagine shouldering the weight of chronic illness while your partner is deployed, leaving you to single-handedly care for children who also navigate their own health complexities. Welcome back Kenzie, the Rare Mom, as we delve into her raw and hopeful narrative of managing mixed connective tissue disease and a blood coagulation defect. As she courageously steps into the role of both mother and medical student, Kenzie unveils the intense reality of parenthood under such unique pressures—chroni...

02-29
38:20

Sailing the Spoonie Seas: Jess Hay's Journey Through Chronic Illness and Finding Joy

As the sun sets on another day of managing the delicate balance of chronic illness, I sat down with Jess Hay, a resilient "Spoonie Sister" who graciously opened up about her life woven with challenges and triumphs. Our intimate conversation traverses Jess's early health struggles to her current dance with multiple conditions, including celiac disease and POTS. She candidly discusses the tapestry of treatments, both conventional and holistic, that color her daily life and offers an honest look...

02-18
35:17

Gathering Strength with Every Spoon A Poetic Journey

Have you ever felt the weight of the day before it even begins, knowing that each task demands a piece of your already dwindling energy? Embrace the power of the girl with spoons as I, Gracefully Jen, recite a moving poem that captures the essence of living with chronic illness. Through spoken word, we explore the tender narrative of conserving energy, where each spoon symbolizes a precious resource, a unit of strength that must be carefully allocated to overcome the day's hurdles. This episo...

02-11
04:03

Terry Tucker's Playbook for an Extraordinary Journey

Have you ever met someone whose sheer presence, both physical and metaphorical, can fill a room with inspiration? Terry Tucker, a former NCAA Division I basketball player turned SWAT hostage negotiator, embodies just that. Balancing on the towering height of six-foot-eight, Terry walks us through the valleys of his life, including his battle with a rare form of cancer, and how these experiences have fueled his mission to inspire others through Motivational Check LLC and his book "Sustainable ...

02-05
39:35

The Voyage Through Epilepsy with Tiffany

When Tiffany Kairos was just 16, her life took an unexpected turn with the onset of epilepsy, a journey that taught her how to find humor in the face of adversity. Join us as Tiffany, founder of the Epilepsy Network, shares her transformative tale from confusion to advocacy, infusing each challenge with a dose of laughter. In our heartfelt conversation, we uncover the realities of living with epilepsy, from addressing the stigmas to embracing the power of a united community. Tiffany's inspiri...

01-29
30:55

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