Interviews with past presidents of the Ontario Rett Syndrome Association.
The Ontario Rett Syndrome Association (ORSA) is a volunteer, not-for-profit charity for parents, caregivers, researchers, medical professionals and other interested agencies and individuals. ORSA became incorporated in 1991. The association provides support to families, awards grants for Canadian research projects, funds three Rett syndrome clinics and developed the Canadian Rett Syndrome Registry. ORSA advocates to the needs of individuals with Rett syndrome and their families provincially and nationally.
What is it like leading the Ontario Rett Syndrome Association? In this special 30th anniversary podcast, we hear from 3 past presidents: Gene Valeriote, Gregg Bereznick and Terry Boyd.