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Orangesocks.org - Every four and a half minutes a child is born or diagnosed with a condition parents never dreamed would be their reality. If this is you, you’re in the right place. You’re not alone. Find Hope! There are others out there who know exactly how you feel.
42 Episodes
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Immediately following his daughter's birth, the doctor told them she suspected their baby girl had Down syndrome.
The post Erick: Down syndrome appeared first on Orangesocks.org.
After Lucas missed milestones around nine months old, they sought help. They were told to see a geneticist who thought because of Lucas’ unique hair texture that he had a copper related disorder.
The post Daniel: Menkes Disease appeared first on Orangesocks.org.
Brittney and Derik share what SHINE syndrome is and how it has made an impact in their life. Their daughter has been a joy in their life despite some of the difficulties that come when having a child with SHINE syndrome.
The post Brittney and Derik appeared first on Orangesocks.org.
When Matt was only 3 hours old, Wendy was told he had Down syndrome. When we asked her how she felt receiving that news she told us, "I think I every emotion known, I was going through. I experienced shock, fear, trauma, devastation, anger. I thought, what did I do? Why me? I was afraid that my life had just been ruined'
The post Wendy and Matt: Down syndrome appeared first on Orangesocks.org.
During a routine ultrasound, Madison and Ty found there was something was wrong with their baby boy. When they went to the specialist, they were told their baby’s bladder was large, and his kidneys were covered in cysts and had little to no function- a condition that is incompatible with life. Devastated, Madison thought about […]
The post Madison and Ty: Expecting a Terminal Baby appeared first on Orangesocks.org.
First signs something was wrong Erika and Steve first noticed something was different with their son Blaise when he was 18 months old. Erika recalled, “He went to daycare and we would go in and notice that all the kids are playing in one area and he’s over to an area by himself. He always did […]
The post Erika and Steve: Autism appeared first on Orangesocks.org.
utero something was wrong and were candid about their worries and stress. When Hadley was born all of that changed.
The post Kristy and Andrew: Pfeiffer Syndrome appeared first on Orangesocks.org.
for good. She is a fierce advocate by paving the way for future research to help others who may receive the same diagnosis.
The post Mariah: THAP12 Mutation appeared first on Orangesocks.org.
Matthew has three very rare abnormalities. He has been diagnosed with Goldenhar syndrome, agenesis of the corpus callosum, and an extra copy of his 78N22 chromosome. Now at 12 years old, Regan, Matthew's mom, shares her experience with Matthew so far.
The post Regan: Goldenhar Syndrome appeared first on Orangesocks.org.
Dani and her family fought hard to receive an official diagnosis for her daughter Hayden. After many specialists they finally received a diagnosis of DDX3X. So rare that there that at that time there were less than 500 people that have ever been diagnosed with this genetic deletion.
The post Danielle: DDX3X syndrome appeared first on Orangesocks.org.
Carrie was only 22 years old when she received the unexpected news that her son, Luke, was born with several disabilities. She lived far away from family, and single was single.
The post Carrie: Gervais syndrome, Cerebral Palsy, Autism, and SCN1A Gene Mutation appeared first on Orangesocks.org.
Wrayanne was a first time mom when she learned her daughter, Morgan, was born with a rare severe epileptic seizure disorder. Wrayanne was candid about her struggles and her hopes for Morgan’s future.
The post Wrayanne: Lennox-Gastaut syndrome appeared first on Orangesocks.org.
Lily was born at 24 weeks gestation weighing only one pound. Lily is a twin and unfortunately, her sister was stillborn. Lily has Bronchopulmonary Dysplasia. Her mom, Jess talks about the grief of losing a child while dealing with the news her daughter had a disability.
The post Jess: Bronchopulmonary Dysplasia appeared first on Orangesocks.org.
In this episode, we dive into the history surrounding the formation of the Special Olympics. We interview Rebecca Ralston, who is the director of the Young Athletes Program of The International Special Olympics.
The post Sock Talk: All About The Special Olympics appeared first on Orangesocks.org.
Amy Jandrisevits created A Doll Like Me, so kids with physical differences could love and cherish their very own doll that looked exactly like them. She personally makes each doll by hand, and to date she has raised more than $225,000 to help off set the financial burden for those who could not otherwise afford a doll.
The post Sock Talk: A Doll Like Me with Amy Jandrisevits appeared first on Orangesocks.org.
Candace comes from a big family; 11 children to be exact. The youngest child was born with Down syndrome. Candace shares her special relationship with Angelita and how she has impacted her family and life for good.
The post Candace appeared first on Orangesocks.org.
In this episode, Gerald talks with Josh Veach, the co-director for Go Shout Love. A cause-driven for-profit business that raises funds and awareness for families on unique medical journeys. Go Shout Love The formation of Go Shout Love Go Should Love was first created by Kristen Estock in 2014. She used her blog as a platform to […]
The post Sock Talk: Go Shout Love appeared first on Orangesocks.org.
Denise shares how her son, Matt, who is on the autism spectrum inspired her to create two amazing companies that strive to better the lives of people with disabilities.
The post Denise: Autism and Epilepsy appeared first on Orangesocks.org.
Katherine has a sister she never knew existed until she was 12 years old. A sister, who is profoundly disabled was placed in an institution as a young child. Katherine reconnected with her and has become her guardian.
The post Katherine: A Guardian For Her Sister With Profound Disabilities appeared first on Orangesocks.org.
Dr. Gerald Nebeker talks about a few adoption agencies that help facilitate international adoptions for children with disabilities. In this podcast you will also hear from Michelle, the CEO of Reece’s Rainbow as well as Kecia and Chris who have adopted two children with Down syndrome from the Ukraine.
The post Sock Talk: Special Needs International Adoption appeared first on Orangesocks.org.
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