Patient from Hell

In this episode of The Patient From Hell, host Samira Daswani speaks with Neal K. Shah — TEDx speaker, former hedge fund manager, and now social entrepreneur reshaping the caregiving economy.After building a multi-billion-dollar hedge fund in his 20s, Neal’s life changed dramatically when cancer struck his wife. As her primary caregiver, he experienced firsthand the crushing financial toxicity, social isolation, and emotional toll caregivers face.Today, Neal runs social enterprises tackling the caregiving crisis, has authored Insured to Death, and is exposing how AI is being weaponized by insurance companies to deny life-saving care.This conversation covers:The untold burden on family caregiversWhy health insurance often fails in catastrophic illnessHow financial toxicity devastates householdsThe rise of AI-driven claim denialsNeal’s mission to “arm the resistance” with AI tools for patientsIf you’ve ever wondered why healthcare feels broken — or how we can fix it — this episode will leave you informed and inspired.🧑‍💼 Guest BioNeal K. Shah is a TEDx speaker, investor-turned-social entrepreneur, and caregiver advocate. Formerly a hedge fund partner by his late 20s, Neal left finance after his wife’s cancer battle to focus on fixing the broken caregiving system. He is the founder of multiple social enterprises, a national leader in the caregiving movement, and author of Insured to Death: How Health Insurance Screws Over Americans and How We Take It Back.⏱️ Chapter Timecodes00:00 – Introduction & Neal’s background02:00 – From hedge funds to caregiving05:00 – The hidden burden on family caregivers08:00 – Why caregiving is isolating and overlooked10:20 – ICU, coma, and decision-making as caregiver14:00 – How caregiving changes your personality16:20 – The financial toxicity of illness19:00 – Writing Insured to Death23:30 – Weaponization of AI by insurers28:40 – Medical bankruptcy and broken insurance31:15 – Singapore vs. U.S. healthcare models34:30 – Positive uses of AI for patient advocacy37:30 – Rapid fire: rights, myths, and advice44:00 – Closing thoughtsConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Grief is not one-size-fits-all. In this episode of The Patient From Hell, grief coach Holly Gainsboro breaks down anticipatory grief after a cancer diagnosis (incl. glioblastoma/GBM), the harm of “be strong,” and simple daily practices that actually help patients, caregivers, and clinicians. We cover how to talk to kids after diagnosis, caregiver exhaustion, why grief isn’t linear, and what to ask when seeking a therapist with real grief training.About Our Guest: Holly Gainsboro, founder of Golden Heart Grief Support & Education, is a Grief Coach/Support Specialist & Grief Educator. Holly’s late husband, Steven, died in December 2010, from glioblastoma. Holly began her work in the grief field more than a decade ago, earning her first certification as a Grief Recovery Specialist. She continued her studies and received her certification as a Grief Educator with world renowned grief expert, David Kessler, as well as being certified as a Grief Support Specialist from the University of Wisconsin. Holly believes that learning never stops and recently completed another training and certification as a Grief & Loss Provider with Claire Bidwell Smith. Holly recognizes that grievers don’t need to be fixed, they need to be heard, seen, and supported. Holly’s passion/purpose is to be present for those who have experienced losses by guiding them through the feelings of grief and leading them to a place of peace and hope while honoring their relationships/experiences. Holly says," I normalize grief and invite growth and learning throughout the journey using a heart centered, and holistic approach.”Holly works 1:1 with women who have lost a loved one to a brain tumor or are caring for a loved one diagnosed with a brain tumor, facilitates grief support groups, and leads grief education workshops for various organizations. She is the co-host of the podcast Creating Space for Grief & Hope. What you’ll learn:What anticipatory grief is (and why it’s not just anticipating death)How to support a spouse/partner & children after a GBM diagnosisThe difference between platitudes and evidence-informed supportPractical tools: movement, journaling, nature, hydration, restWhy feeling your feelings = real strengthConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.Tags:grief, anticipatory grief, glioblastoma, GBM, brain tumor, cancer caregiving, caregiver support, oncology, oncology support, patient advocacy, grief coach, grief educator, grief myths, grief practices, palliative care, bereavement, grief tools, cancer diagnosis, mental health in medicine, The Patient From Hell, Manta Cares

Samira is joined by legal expert, patient advocate, and author Rebecca — a powerhouse voice in the cancer and healthcare world. Rebecca shares her unique journey from big law to breast cancer advocacy, and offers practical, game-changing advice for patients navigating diagnosis, treatment, insurance, and employment.Whether you're newly diagnosed, supporting a loved one, or simply want to understand your rights, this conversation is a masterclass in layered patient advocacy.👉 Subscribe and hit the bell to stay updated on future episodes of Patient from Hell.About Our Guest: Rebecca Bloom is a Yale College and New York University School of Law educated patient and workplace advocate. A former workplace and benefits attorney, Rebecca’s longest and proudest affiliation is with Bay Area Cancer Connections, where she has served as a patient advocate and healthcare, insurance and workplace advisor for women fighting breast and ovarian cancer for 25 years. Rebecca was a contributing writer and editor for Breast Cancer in the Workplace, published by the Northern California Cancer Center in the early 2000s. The book has recently been updated, expanded and reissued by the Cancer Prevention Institute of California and is now titled Working with Cancer.Rebecca serves as a listener, learner, supporter and advocate for the clients of Bay Area Cancer Connections, primarily one at a time but also in groups that she’s led and conferences where she’s presented. When she worked as a lawyer, her clients were companies, and she brings that perspective to her interactions with BACC clients and other people on whose behalf she advocates. Her knowledge of the complex rules that employers, insurers and medical providers follow, as well as the dynamics and incentives that exist between stakeholders helps her give the women she supports a constructive and comprehensive foundation so that they can integrate all available information with comfort and confidence and focus on recovery and wellness. Rebecca is also a professional storytelling coach, helping her clients get their stories told and shared.⏱️ CHAPTERS / TIMECODES00:00 – Cancer Bills, Greed & the Broken System01:00 – Meet Rebecca: Legal Ninja-Turned-Advocate03:50 – What Changed in 26 Years of Oncology Work06:45 – Why the Maze Is More Complex Today09:50 – The Rise of the Medical Industrial Complex11:40 – How Tech Complicates Cancer Care13:00 – The Story Behind Her New Book16:00 – Advocacy Success Story: Karen’s Journey20:00 – How to Talk to Insurers & Employers (Magic Words)23:30 – Legal Advice: Your Benefits Are Yours — Take Them26:00 – Drafting Your Support Team (Like a Startup CEO)28:40 – The Hidden Risk of Insurance Plan Changes31:15 – Rapid Fire: Insurance, FMLA, Disability, COBRA Explained38:55 – Other Hidden Workplace Benefits Most Patients Miss40:35 – If You Could Fix One Thing About Healthcare...41:30 – What Being a "Patient from Hell" Really Means42:00 – Closing Thoughts and One Thing to RememberTakeaways: Rebecca Bloom's diverse background includes law, advocacy, and storytelling.Stories of hope can empower patients and provide valuable insights.Understanding your rights as a patient is essential for effective advocacy.Insurance complexities can create barriers to care that patients must navigate.Connect with Us: Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Samira and guest Chris Schuler delve into the emotional and practical challenges faced during the cancer diagnosis and treatment process. Chris shares his personal experiences as a caregiver for his father diagnosed with glioblastoma, highlighting the confusion and fear that accompany such news. The conversation explores the importance of understanding treatment options, the role of family in caregiving, and the complex emotions of grief that arise during this journey. Chris emphasizes the need for clear communication and advocacy in healthcare, as well as the disconnect between the information provided and the emotional realities faced by families. About our Guest:Chris is a staunch brain cancer awareness advocate. He was the primary caregiver to his late Dad, Donald Schuler, who was diagnosed with GBM in July 2021. He works closely with organizations across the globe, amplifying their critical work and building key relationships to further improve outcomes for patients.His career has spanned almost two decades through philanthropic roles in a variety of industries including non-profit, public and private higher education, and healthcare. He's currently working with Cure Brain Cancer Foundation, an Australian non-profit dedicated to improving outcomes in brain cancer. He's a Venture Partner with Varia Ventures, working to raise awareness for emerging venture funds dedicated to uncovering and funding innovative discoveries to improve brain health. He also works closely with SageMedic, a precision oncology start-up supporting patients looking for the most effective treatment for cancer. TakeawaysChris felt a sense of responsibility to support his parents after the diagnosis.The emotional impact of a terminal diagnosis can be overwhelming.Understanding treatment options is crucial for caregivers.Grief can manifest differently in family members during a health crisis.Clear communication from healthcare providers is essential.Many caregivers feel lost in the healthcare system.The binder provided by the hospital was not helpful for Chris or his mom.Caregiving involves navigating complex emotions and responsibilities.Patients and families need to advocate for themselves in medical settings.The experience of receiving a terminal diagnosis is traumatic and disorienting. The feeling of helplessness is a common struggle for caregivers.Chris's mother chose not to Google her husband's condition, living in the moment instead.Chris believes there are hidden joys in caregiving, despite the challenges.Chapters00:00 Introduction and Context of Caregiving02:54 Navigating the Diagnosis Process05:54 The Emotional Impact of a Terminal Diagnosis08:50 Understanding Treatment Options and Next Steps11:53 The Role of Family in Caregiving15:07 Grief and Its Manifestations in Caregiving17:56 The Disconnect Between Information and Understanding25:00 Navigating Cancer: A Personal Journey31:48 The Search for Answers: Clinical Trials and Second Opinions39:51 The Emotional Toll: Grief, Faith, and Resilience46:49 The Caregiver's Perspective: Finding Joy Amidst SorrowConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Vicki McGrath, an exercise physiologist specializing in breast cancer recovery. They discuss Vicki's journey into creating exercise programs for breast cancer patients, the importance of movement and setting achievable goals during recovery, and personal stories of patients who have benefited from her programs. The conversation also covers the challenges of lymphedema, advice for newly diagnosed and metastatic patients, and the significance of functional fitness in enhancing quality of life post-treatment.About Our Guest:Vicki McGrath's career is a testament to her dedication to both fitness and cancer care, as well as her unwavering commitment to improving the lives of those affected by health challenges. With over 30 years of experience in fitness and wellness, Vicki has developed a deep expertise that spans a variety of populations, from individuals with special health needs to those recovering from cancer. Her extensive qualifications, including certifications from the American College of Sports Medicine (Certified Cancer Exercise Trainer, Health Fitness Director, Exercise Physiologist, and Exercise is Medicine) and her specialization in cancer exercise, position her as a highly skilled professional in the wellness community. In 2024, Vicki's passion for cancer advocacy deepened when she joined the Board of Directors at Bay Area Cancer Connections, solidifying her leadership in the cancer support community. Her recent graduation from the Project Lead Institute through the National Breast Cancer Coalition further highlights her commitment to health promotion and cancer advocacy. This combination of experience and education allows Vicki to make a lasting impact, advocating for both cancer prevention and support while empowering individuals through her work and leadership.Vicki's dedication to bridging fitness and cancer care continues to make a significant difference in the lives of countless individuals, demonstrating her as both a health expert and a passionate advocate for cancer support and prevention.Takeaways:Vicki McGrath transitioned from personal training to focus on wellness for breast cancer patients. She created exercise programs due to a lack of resources for athletes recovering from breast cancer. The program has helped over 215 women since its inception in 2011. Personal stories highlight the emotional and physical impact of exercise on recovery. Setting realistic goals is crucial for patients at different stages of treatment. Functional fitness focuses on flexibility, strength, and balance for daily activities. Movement is essential for improving energy levels during treatment. Lymphedema management includes breathing techniques and gentle exercises. Post-treatment exercise is vital for maintaining lean body mass and overall health. Chapters00:00 Introduction and Background03:08 The Journey into Breast Cancer Exercise Programs06:09 Impact on Patients: Personal Stories08:55 Setting Goals in Recovery11:57 Functional Fitness Explained14:57 The Importance of Movement and Exercise17:48 Navigating Post-Treatment Fitness20:58 Lymphedema: Understanding and Management23:50 Advice for Newly Diagnosed Patients27:07 Advice for Metastatic Patients30:00 Rapid Fire Questions and Closing ThoughtsConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alyssa Wachley shares her journey as a stage three breast cancer survivor and the founder of Warriors That Pray, a jewelry line that supports cancer warriors. She discusses the emotional and spiritual challenges faced during her diagnosis, the importance of community and prayer, and how her faith evolved through adversity. Alyssa emphasizes the significance of connection and support for those battling cancer, and shares inspiring stories of how her organization has made a difference in people's lives.Warriors That Pray website: https://www.warriorsthatpray.com/ Warriors That Pray Instagram: https://www.instagram.com/warriorsthatpray/About Our Guest:Alyssa Wakeley | Founder of Warriors That PrayAlyssa Wakeley, with a heart for serving others, founded Warriors That Pray on the belief that every person is uniquely created with a purpose to fulfill. As a wife, mother, and devoted dog-lover, she strives to make a meaningful impact in the lives of those around her, offering encouragement and hope to those facing difficult times.In 2020, at just 27 years old, Alyssa was diagnosed with breast cancer—a life-altering moment that could have defined her. Instead, she chose to walk through the journey with unwavering faith and a positive spirit. Refusing to let cancer steal her joy, she became a source of strength and inspiration to those around her, from family and friends to her medical team. Her resilience and deep-rooted faith carried her through the toughest moments, reminding her that she was never alone.Now cancer-free, Alyssa is living life to the fullest and using her experience to uplift others. Out of her journey, Warriors That Pray was born—a movement designed to encourage and support those navigating their own battles. Through prayer bracelets, she offers a tangible reminder that even in the valley, God is with you… and PRAYER CHANGES THINGS.Alyssa’s mission is clear: to spread hope, faith, and love, reminding others that no matter the challenge, they are seen, valued, and never alone. Through WTP, she continues to make a lasting impact, trusting in God's plan and using her story to bring light to those in need.Takeaways:You're allowed to feel that way when diagnosed with cancer.Community support was crucial during Alyssa's treatment.Warriors That Pray was founded to give back to cancer warriors.Jewelry serves as a tangible reminder of support and encouragement.Prayer played a significant role in Alyssa's healing journey.Everyone's faith journey is unique and valid.It's important to advocate for yourself in medical settings.Asking for help is a strength, not a weakness.Connection is vital for those going through tough times.Alyssa's organization aims to bless others and foster community.Chapters00:00 Navigating Faith and Cancer Diagnosis03:04 The Birth of Warriors That Pray05:55 The Role of Prayer in Healing08:59 Personal Growth Through Adversity11:59 Creating Community and Connection15:03 Rapid Fire Insights and AdviceConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates. Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.Tags: faith, cancer, prayer, community, support, healing, Warriors That Pray, personal growth, adversity, connection

Valerie David, also known as The Pink Hulk, is a three-time cancer survivor (non-Hodgkin’s lymphoma, stage 2 breast cancer, and stage 4 metastatic breast cancer) who turned her journey of resilience into an award-winning one-woman show. Through humor, raw honesty, and advocacy, she inspires audiences worldwide—proving that even cancer won’t stop her from taking center stage.Check out Valerie’s show, The Pink Hulk here: https://pinkhulkplay.comKey Highlights:- Valerie trusted her inner voice when symptoms appeared, even when doctors initially dismissed them. If you are able to get second opinions, advocate for yourself, and listen to your gut, you’ll find this to be useful in other parts of your own life.- Balancing intuition with fear over symptoms can be tricky, but Valerie advises: don’t panic over nothing, don’t choose to live in fear. Instead, stay proactive by communicating with your care team about any arising symptoms.About our guest:Valerie David is an actor, playwright, writer and editor. Her greatest accomplishment in life is being a three-time cancer survivor. She was diagnosed and treated for Stage III Non-Hodgkin’s Lymphoma in 1999, Stage II Breast Cancer in 2014 and 2015, and Stage IV Breast Cancer in 2018. As of April 2019, she has beaten cancer again! Valerie reactivated her superhero within, and exactly 5 months after receiving hormone treatment only in pill form–no surgery, no radiation, no chemotherapy, Valerie no longer has active disease. She has since kept up a full schedule of performances–nothing has stopped her. Valerie’s inspirational solo show, The Pink Hulk, has been accepted into almost 50 different play festivals worldwide since its 2016 debut, won multiple awards and has been touring since its very first performance, impacting audiences with the show’s universal message of hope and empowerment. She has performed in over 25 different cities and globally, including in England, Sweden, Iceland, and Finland. A graduate of the American Academy of Dramatic Arts, her credits include the Off-Broadway production of A Stoop on Orchard Street, Cookie in Rumors and Claudia Shear’s Blown Sideways Through Life. Films: How I Became that Jewish Guy, which premiered at a November 2015 NYC Film Festival, and Bridges and Tunnels. Valerie volunteers as a motivational speaker at the Leukemia & Lymphoma Society’s Team in Training events and Make-A-Wish Foundation. As a marathon cyclist, she co-founded Cycle of Hope, which raises money for national and international cancer organizations through bike marathons. Her most recent biking event raised almost $5,000 for the American Cancer Society and the Leukemia & Lymphoma Society.Key Moments:At 7 minutes 28 seconds “What is my choice? Is my choice going to live in fear every single day? Is it going to be well, we'll deal with it when it happens. So I think what I've learned from cancer is don't worry until there's something to worry about.”Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Samira, a breast cancer survivor and CEO of Manta Cares, discusses the latest advancements in cancer treatment with Dr. Doug Blayney at the ASCO conference. They explore the significant impact of exercise on cancer treatment tolerance and survival, the de-escalation of chemotherapy, the introduction of new therapies like SERDs and antibody drug conjugates, and the role of circulating tumor DNA in monitoring cancer recurrence. The conversation emphasizes the importance of patient convenience and self-advocacy in cancer care.About Our Guest:Douglas W. Blayney, MD is a Professor of Medicine (Oncology), Emeritus, former Medical Director of Stanford Cancer Center, and specializes in the treatment of breast cancer. He has a special interest in the quality and value of cancer care. Dr. Blayney is a past president of the American Society of Clinical Oncology (ASCO), a founder of the ASCO Quality Symposium, a co-author of the ASCO value framework descriptions, and instigated the ASCO clinical "big data" effort, which is now CancerLinQ. He received the inaugural Ellen Stovall Award for Leadership in Patient Centered Care from the National Coalition for Cancer Survivorship in 2016. He was previously a Professor of Internal Medicine and Medical Director of the Comprehensive Cancer Center at the University of Michigan, and prior to that practiced and led Wilshire Oncology Medical Group, Inc. a physician owned multidisciplinary oncology practice in southern California. He has expertise on clinical trial development, use of oncology drugs in clinical practice, reimbursement and marketing strategies and information technology use.Chapter Codes00:00 The Impact of Exercise on Cancer Treatment02:00 Interview at ASCO Starts06:00 Advancements in Cancer Treatment: De-escalation and AI11:52 Emerging Therapies: SERDs and Antibody Drug Conjugates18:11 Circulating Tumor DNA: A New Frontier in Monitoring24:01 Convenience in Cancer Care: A Patient-Centric ApproachTakeaways- Regular exercise can increase tolerance to cancer treatments.- Data shows exercise has tangible benefits on survival rates.- De-escalation of chemotherapy is a key focus in cancer treatment.- AI is being integrated into cancer treatment guidelines.- Patients can take proactive steps to improve their health.- Oral SIRDs are emerging as a more convenient treatment option.- Antibody drug conjugates target cancer cells with fewer side effects.- Circulating tumor DNA can help detect cancer recurrence earlier.- Convenience in treatment is becoming a priority for patients.- Competition among treatments may help reduce costs for patients.Tags & Keywords:cancer treatment, ASCO, exercise, AI, SIRDs, antibody drug conjugates, circulating tumor DNA, patient care, chemotherapy, cancer survival, health technologyConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Elsewhere: Website: https://mantacares.com/pages/podcast?srsltid=AfmBOopEP5GJ-Wd2nL-HYAInrwerIVhyJw67salKT-r9Qb_gadBvbHie YouTube: https://youtu.be/UjsAtpbedA8 Spotify: https://open.spotify.com/episode/7HwhjXHZU0ZWWVkXrCSV7V?si=d5e986f0885a4bbb Apple: https://podcasts.apple.com/us/podcast/cervical-cancer-and-hpv-what-you-need-to-know/id1622669098?i=1000710235401 Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Dr. Barbara Moscicki discusses the critical role of HPV in women's health, particularly its association with various cancers, including cervical cancer. She explains the dual nature of HPV as both a commensal organism and a pathogen, emphasizing the importance of understanding its oncogenic potential. The conversation also covers the significance of screening methods, such as Pap smears, in detecting precancerous changes and the complexities surrounding the treatment of different cervical intraepithelial neoplasia (CIN) stages. This conversation delves into the complexities of cancer screening methods, particularly focusing on cervical and anal cancer. Dr. Barbara Moscicki discusses the importance of understanding various screening guidelines, the role of HPV vaccination in preventing cancers, and the need for clear communication between clinicians and patients regarding these topics. The discussion highlights the evolving nature of cancer screening practices and the importance of patient education in navigating these changes.About Our Guest:Dr. Moscicki is a Pediatrician, Board Certified in Adolescent Medicine. She is the current Division Chief of Adolescent and Young Adult Medicine with clinical expertise in reproductive health care for menstrual irregularities, sexual health, and sexually transmitted diseases. Dr. Moscicki has expertise in HPV -related disease including diagnosis of cervical dysplasia and treatment. She also offers medical care for women with eating disorders.Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://pubmed.ncbi.nlm.nih.gov/33632649/ ‘Effect of 2 Interventions on Cervical Cancer Screening Guideline Adherence’Chapter Codes00:00 Introduction to HPV and Women's Health03:00 Understanding HPV's Role in Cancer06:01 The Dual Nature of HPV: Commensal vs Pathogenic08:57 Oncogenes and Their Impact on Cellular Regulation12:09 The Intersection of HPV and Screening Methods14:58 Cervical Cancer Screening and Pap Smears20:30 Understanding Cancer Screening Methods23:17 Guidelines for Cervical and Anal Cancer Screening31:02 The Importance of HPV Vaccination39:35 Key Messages for Clinicians and PatientsTakeaways- Dr. Moscicki specializes in adolescent and young adult medicine.- HPV is linked to multiple cancers beyond cervical cancer.- The understanding of HPV's role in cancer has evolved significantly.- E6 and E7 proteins from HPV disrupt normal cell regulation.- CIN3 is considered a true pre-cancer that requires treatment.- Liquid cytology has improved the accuracy of Pap smears.- CIN1 is often self-resolving and does not require treatment.- CIN2 presents a diagnostic dilemma due to variability in interpretation.- Women have options regarding the management of CIN2 lesions.Connect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Elsewhere: Website: https://mantacares.com/pages/podcast?srsltid=AfmBOopEP5GJ-Wd2nL-HYAInrw YouTube: https://www.youtube.com/@mantacares Spotify: https://open.spotify.com/episode/3TR1lFLtf6em5YyKtlWy2L?si=6ma-9g_w Apple: https://podcasts.apple.com/us/podcast/navigating-cervical-cancer-screening-surger Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In this episode of The Patient From Hell, host Samira Daswani speaks with oncology pharmacist Megan Hartranft about the critical role of oncology pharmacists in cancer care. They discuss the unique responsibilities of oncology pharmacists, the importance of patient education, and the growing field of oral chemotherapy. Megan shares insights on medication adherence, the use of mobile health technologies, and the significance of symptom management in improving patient outcomes. The conversation highlights the need for better integration within healthcare systems and offers practical tips for patients navigating their treatment journey.About Our Guest:Dr. Megan Hartranft is a Clinical Lead with the Clinical and Digital Solutions team, advising on precision oncology products.Prior to joining Labcorp, Dr. Hartranft was a Field Medical Scientific Associate Director at Sanofi, in charge of training for the hematology-oncology medical science liaison team. Earlier as a practicing clinician, she established an oral chemotherapy education program and participated in interprofessional clinics at Rush University Cancer Center. She has also spent time in academia as the oncology faculty member at Rosalind Franklin University of Medicine and Health Sciences, where she maintains an adjunct appointment. Dr. Hartranft is active in several professional organizations, including her roles on the Hematology Oncology Pharmacy Association's Public Policy & Advocacy Committee as well as the American Society of Health System Pharmacy Section of Pharmacy Informatics and Technology Clinical Decision Support and Analytics Advisory Group.BS in Biochemistry/Molecular Biology and BA in Classical Studies - Michigan State University Doctor of Pharmacy - University of North Carolina at Chapel Hill PGY1 Pharmacy Residency - University of Michigan PGY2 Oncology Specialty Residency - University of Georgia/Augusta University Health SystemResources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://pubmed.ncbi.nlm.nih.gov/30964... ‘Integrating Advance Care Planning Videos into Surgical Oncologic Care: A Randomized Clinical Trial’00:00 Introduction to Oncology Pharmacy02:49 The Role of Oncology Pharmacists in Patient Care06:03 Patient Interaction and Education09:09 Exploring Oral Chemotherapy11:45 Adherence to Oral Anti-Cancer Medications15:01 Mobile Health Technologies in Oncology17:58 Symptom Management and Patient Support21:11 The Future of Oncology Pharmacy24:09 Final Thoughts and Tips for PatientsConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Elsewhere: Website: https://mantacares.com/pages/podcast?... YouTube: https://www.youtube.com/@mantacares Spotify: https://open.spotify.com/episode/3TR1... Apple: https://podcasts.apple.com/us/podcast... Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

Dr. Anita Srinivasan, a surgical oncologist, discusses her journey in oncology, the challenges faced in safety net hospitals, and the importance of patient-centered care in surgical oncology. The discussion covers the pain comparison between mammograms and cosmetic treatments, the impact of fear on surgical choices, and the significance of advanced care planning and patient education in making informed decisions about breast cancer treatment.About Our Guest:Surgeon, Health Executive, Healthcare Operational Excellence and Profitability Leader | 20+ years as a surgeon, health executive, thought leader, innovator, and advocate for health equity and accessResources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://pubmed.ncbi.nlm.nih.gov/30964385/ ‘Integrating Advance Care Planning Videos into Surgical Oncologic Care: A Randomized Clinical Trial’Chapter Codes00:00 The Pain of Mammograms vs. Cosmetic Treatments02:55 Dr. Anita Srinivasan's Journey in Oncology05:51 Understanding Safety Net Hospitals09:08 Challenges in Treating Advanced Breast Cancer12:02 Surgical Oncology: Approaches and Techniques15:08 The Importance of Patient-Centered Care17:56 Advanced Care Planning in Surgical Oncology21:07 The Role of Patient Education in Decision Making24:01 The Impact of Fear on Surgical Choices26:53 Future Directions in Surgical OncologyConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Elsewhere: Website: https://mantacares.com/pages/podcast?srsltid=AfmBOopEP5GJ-Wd2nL-HYAInrwerIVhyJw67salKT-r9Qb_gadBvbHie YouTube: https://youtu.be/2SxvTqJht34?si=2U_98RfJJeWkTaT3 Spotify: https://open.spotify.com/episode/3TR1lFLtf6em5YyKtlWy2L?si=6ma-9g_wTIWTCLmHiHF_Aw Apple: https://podcasts.apple.com/us/podcast/navigating-cervical-cancer-screening-surgery-and/id1622669098?i=1000706666920 Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute. Tags & Keywords:oncology, breast cancer, surgical oncology, patient care, mammograms, safety net hospitals, advanced care planning, patient education, mastectomy, lumpectomy

Dr. Shannon McLaughlin-David discusses the complexities of cervical cancer, HPV, and the role of gynecologic oncology. The dialogue explores the emotional and clinical challenges faced by both patients and clinicians, emphasizing the importance of effective communication and empathy in patient care. The discussion also highlights the various types of gynecologic cancers, surgical interventions, and the difficult decisions patients must make regarding their treatment options. This conversation delves into the complexities of patient autonomy, the emotional challenges faced by oncologists, and the systemic incentives within healthcare that can impact patient care. The discussion also covers the evolution of cervical cancer screening guidelines, the role of HPV in cervical cancer, and the importance of patient advocacy and education regarding vaccination.About Our Guest:Shannon MacLaughlan David, MD, MS is a board-certified gynecologic oncologist and Founder of SMacDavidMD, LLC, a Coaching and Consulting firm. Following her residency in Ob/Gyn, Dr. MacLaughlan David went on to complete fellowship training in Gynecologic and Breast Oncology at Alpert Medical School of Brown University and spent her career in academic medicine at Stanford University's School of Medicine and the University of Illinois - Chicago. She also holds a master's degree in integrative medicine, which she used to build innovative clinical practice models for gynecologic cancer survivors as Director of the Gynecologic Oncology Integrative Practice Unit at the University of Illinois Cancer Center. Shannon, or "SMac," is a fierce advocate for women's health, cancer prevention and survivorship, and health equity.  Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://www.google.com/url?q=https://pubmed.ncbi.nlm.nih.gov/33632649/&sa=D&source=editors&ust=1746483503903350&usg=AOvVaw0SNo_jk-rzoVp85P5E3s6F ‘Effect of 2 Interventions on Cervical Cancer Screening Guideline Adherence’Chapter Codes00:00 Introduction to Cervical Cancer and HPV02:49 The Journey to Gynecologic Oncology05:57 Understanding Gynecologic Cancers09:05 Surgical Interventions in Gynecologic Oncology11:59 The Complexity of Patient Decisions15:07 Patient-Clinician Communication Challenges17:45 The Role of Empathy in Oncology21:05 Navigating Hormonal Treatments and Patient Reactions27:30 Navigating Patient Autonomy and Medical Ethics29:47 The Emotional Toll of Oncology33:00 Understanding the Healthcare System's Incentives35:58 The Role of Patient Advocacy39:05 The Evolution of Cervical Cancer Screening Guidelines51:46 HPV and Its Impact on Cervical Cancer54:48 Current Screening Protocols and HPV VaccinationConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In this episode of The Patient From Hell, host Samira Daswani speaks with Dr. Sara Char about her journey into oncology, the evolution of cancer biology, and the significant role of the microbiome in colon cancer. They discuss the complexities of cancer survivorship, the effectiveness of different methods of delivering survivorship care plans, and the importance of colonoscopy in monitoring colorectal cancer. The conversation also delves into the impact of diet on cancer risk, emphasizing the need for a comprehensive understanding of dietary patterns rather than focusing solely on individual foods. In this conversation, Dr. Sara Char discusses various aspects of survivorship care for colorectal cancer patients, focusing on dietary recommendations, exercise, and the emotional challenges faced during the transition from active treatment to survivorship. The dialogue emphasizes the importance of balancing nutrition, understanding the role of GLP-1 agonists, and the need for a supportive care team. Additionally, the conversation highlights the unique mental health needs of survivors and the significance of providing patients with a roadmap for their cancer journey.About Our Guest:Dr. Sara Char is a hematology and oncology fellow at Dana-Farber Cancer Institute. She specializes in the care of patients with gastrointestinal cancers with a specific interest in young-onset colorectal cancer. Her research explores the molecular underpinnings of diet and lifestyle factors implicated in colorectal cancer development and progression. Dr. Char received her M.D. from Tufts University School of Medicine and completed her residency training in internal medicine at Massachusetts General Hospital, where she also served as chief resident. Outside of work, she is a self-identified foodie and devoted dog-mom. Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://pubmed.ncbi.nlm.nih.gov/34302474/ - ‘Simplifying Survivorship Care Planning: A Randomized Controlled Trial Comparing 3 Care Plan Delivery Approaches’Chapter Codes00:00 Exploring the Microbiome and Colon Cancer05:59 The Transition to Survivorship Care11:57 Understanding Adherence in Survivorship Plans17:49 The Role of Colonoscopy in Survivorship24:06 Dietary Patterns and Cancer Risk25:04 Inflammatory Diet and Health Outcomes28:11 Dietary Recommendations for Cancer Survivors30:34 Exercise and Body Composition in Cancer Care31:59 Managing GI Issues with GLP-1 Agonists34:43 Navigating Multidisciplinary Care35:50 The Transition from Active Treatment to Survivorship38:08 Mental Health Challenges Post-Treatment41:41 The Need for Psycho-Oncology Support46:47 The Importance of Patient Education and ResourcesConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In this episode, Dr. Tejas Jayakrishnan discusses the rising incidence of young onset colorectal cancer (CRC) and the potential environmental factors contributing to this trend. The conversation delves into the importance of screening protocols, the challenges faced in early detection, and the role of education in increasing awareness and understanding of cancer risks. Dr. Jayakrishnan emphasizes the need for tailored approaches in patient care, particularly for younger patients, and highlights ongoing research efforts aimed at improving outcomes in this demographic.About Our Guest:Dr. Thejus Jayakrishnan is a gastrointestinal medical oncologist at Dana-Farber Cancer Institute and Brigham and Women’s Hospital, and an Instructor in Medicine at Harvard Medical School. Originally from India, he completed his medical training in New Delhi and continued his journey through residency in Pittsburgh and oncology fellowship at Cleveland Clinic.Dr. Jayakrishnan's research explores why some people develop cancers like colorectal cancers at a younger age. He studies how metabolism, gut bacteria, and genetics contribute to these patterns, with the goal of developing better tools for screening and treatment.In the clinic, he treats patients with all types of gastrointestinal cancers and works closely with Dana-Farber’s Young-Onset Colorectal Cancer Center. His focus is on translating scientific discoveries into meaningful improvements in care through clinical trials. Outside of work, he’s an avid cyclist, outdoor enthusiast, and lover of books and movies.Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI research study here: https://pubmed.ncbi.nlm.nih.gov/30578103/ - ‘Impact of including quantitative information in a decision aid for colorectal cancer screening: A randomized controlled trial’Chapter Codes:00:00 - Understanding Young Onset Colorectal Cancer10:03 - Screening Protocols and Challenges19:50 - The Role of Education in Cancer Awareness30:04 - Future Directions in Colorectal Cancer ResearchConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates.Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute. 

Join us as we welcome Dr. Fauzia Riaz, Samira’s oncologist, who believes in treating the whole person—not just the cancer. In this episode, we explore survivorship care: What does it truly mean? What insights does a thousand-person study reveal about different cancer survivorship care models? How can oncologists optimize treatment plans to improve quality of life for survivors? And what gaps must care providers address to ensure lasting, meaningful impact? This episode features the following PCORI study: Quality of life among cancer survivors by model of cancer survivorship care by Holly Mead.Your Cancer GPS is here! Step-by-step breast cancer maps based on what others have gone through and what oncologists recommend: https://mantacares.com/pages/new-see-how-it-works Sound Bites"You're helping me live and thank you for saving my life.""It's important to look at the emotional and psychological impact.""Survivorship is recognizing that cancer care extends beyond treatment.""Quality of life is influenced by emotional and psychological factors.""Survivorship care should be integrated from the beginning.""We need to think about how we're delivering cancer care.""Treatment optimization is going to be so important."Chapters00:00 The Journey of Cancer Care09:59 Understanding Survivorship19:50 The Impact of Treatment Models30:08 Research and Future Directions in OncologyKey Highlights:- Being attentive as a physician involves more than just careful monitoring during each step of treatment; it also requires providing support and compassion to the whole person you’re treating.- The goal of survivorship is more than just surviving; it is to thrive and lead a high-quality life moving forward. There are two main survivorship care models from the study we reviewed, post-survivorship treatment and oncology-embedded survivorship. Each survivorship care model has their role.👤 Guest Bio:Dr. Riaz is dedicated to advancing breast cancer treatment through an innovative clinical trial program that focuses on cutting-edge therapeutics and biomarkers. Dr. Riaz is studying circulating tumor (ct) DNA-minimal residual disease (MRD) as a pivotal biomarker for early-stage breast cancer. She aims to enhance its use in surveillance and early detection while guiding personalized treatment strategies through novel clinical trials. Furthermore, she is committed to improving immunotherapy efficacy by modifying the tumor microenvironment. Her research involves developing early-phase trials that integrate novel therapeutic approaches, combining immunotherapy and radiotherapy. As a Clinical Assistant Professor at Stanford University School of Medicine, Dr. Riaz is also committed to improving the accessibility of cutting edge therapies to all patients. She is leading a collaborative effort with multiple institutions to develop databases that track patient outcomes and inform treatment practices. Dr. Riaz’s overarching goal is to expand early-phase clinical trials and foster academic-industry partnerships to advance the field of breast oncology and improve patient care.Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Manta Cares, cancer survivorship, survivorship care, cancer treatment, oncology care models, cancer survivor care, cancer treatment optimization, effective cancer care, personalized cancer treatmentThis episode was supported by the Patient Centered Outcomes Research Institute (PCORI)

In this episode of The Patient From Hell, host Samira Daswani speaks with oncology nurse Joshua Carter about his path into cancer care, shaped by personal experiences with family illness. They explore the differences between palliative and hospice care, the complexities of pain management, and the vital role nurses play as advocates. Josh also discusses misconceptions around pain medication, the promise and challenges of e-health tools, and the often-invisible workflows nurses navigate daily. He shares practical advice for patients, caregivers, and fellow clinicians, emphasizing the importance of early palliative care and being a bold advocate within the healthcare system.About Our GuestJosh Carter is an Oncology Nurse at Stanford Women's Cancer Center. His entire 17-year nursing career has been in oncology, with inpatient, industry, and outpatient experiences in Cleveland, Chicago, San Diego, and San Francisco. Josh holds undergraduate degrees from Kent State University and Ohio University and is currently on track to complete his Master's at the University of Michigan School of Nursing this Fall. He is a certified Oncology and Breast Care Nurse. His interests include Nursing Innovation, Digital Health, Patient Advocacy, Patient Education, Patient-Centered Design, Healthcare Improvement, Quality, and Implementation Science. With his interests in Healthcare Quality, Josh is currently a Site Assessor for the Michigan Oncology Quality Consortium. Josh has spoken at the National Oncology Nursing Society Congress and Authored Chapters of Oncology Nursing Society Text Books. Josh has been involved with research for caregivers of Cancer patients and has helped in the launch of newly approved cancer treatments. Josh has experience working on a cancer care delivery team at ASCO and has been awarded the DAISY Award for Extraordinary Nurses. Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI study “A Stepped-Wedge Randomized Controlled Trial: Effects of eHealth Interventions for Pain Control Among Adults With Cancer in Hospice”Sections00:00 - Journey into Oncology Nursing03:22 - Understanding Palliative vs. Hospice Care07:04 - Pain Management in Cancer Care10:23 - Pain Management Strategies and Misconceptions20:32 - E-Health Interventions in Pain Management23:19 - The Complex Workflow of Oncology Nursing27:48 - Quick Tips for Patients and CaregiversConnect with Us:Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on instagram, facebook, or linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Listen Across Platform:Website: https://mantacares.com/pages/podcast?srsltid=AfmBOopEP5GJ-Wd2nL-HYAInrwerIVhyJw67salKT-r9Qb_gadBvbHie YouTube: https://www.youtube.com/@mantacares Spotify:  https://open.spotify.com/show/6gM1GxDBUgXrHwlO0Zvnzs?si=9edb8680461d4eaa Apple: https://podcasts.apple.com/us/podcast/patient-from-hell/id1622669098 Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

Episode Summary:In this episode of The Patient from Hell, we sit down with Samira and Dr. Samantha, two storytellers who delve into the power of personal narratives, cultural identity, and representation. They share their experiences navigating different spaces, finding their voices, and embracing authenticity. Whether you’re interested in storytelling, personal growth, or the intersections of culture and identity, this episode offers deep insights and inspiration.About Our Guest:Dr. Samantha Siegel is an onco-pcp and survivorship physician at Kaiser Permanente. She has survived relapsed/refractory Hodgkin Lymphoma, including an autologous bone marrow transplant in June 2022. This has made her passionate about integrative oncology, AYA survivorship, longterm toxicities, returning to work after cancer and more. Dr. Siegel is the cofounder of PCP-ONC CARES program, a longitudinal cancer survivorship care model beginning at diagnosis and she serves as the current director of Cancer Survivorship for Kaiser San Francisco. She is the host of AIM at Melanoma’s supportive cancer care podcast, “Beyond the Clinic.” Dr. Siegel is focused on elevating cancer survivorship to a distinct board certification status. She lives in Davis with her husband, three kids and energetic dog. They enjoy outdoor activities and plant-based living.Key Highlights:[00:10:30] The Power of Storytelling in Identity: Sam and Samira discuss how personal experiences shape the stories we tell and the impact storytelling has on self-identity and cultural understanding.[00:22:45] Challenges in Representation: They share their experiences with representation in the media and the barriers they’ve faced in telling authentic stories.[00:35:00] Embracing Authenticity in Creative Work: A conversation about the importance of staying true to oneself and how authenticity can lead to more meaningful storytelling and connection.Key Moments:[00:02:15] - Introduction to Sam and Samira[00:10:30] - How personal experiences shape storytelling[00:22:45] - Overcoming challenges in representation[00:35:00] - The impact of authenticity in creative work[00:48:20] - Closing thoughts and takeawaysConnect with Us: Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @mantacares and visit our website at mantacares.com for more episodes and updates.Resources & Links:This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features the PCORI ⁠study⁠ “Effects of a Communication Intervention Randomized Controlled Trial to Enable Goals-of-Care Discussions” by Nina BickellDisclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

In this episode of The Patient From Hell, host Samira Daswani sits down with Dr. Cara Bohon, a clinical psychologist and researcher, to explore the unique mental health challenges faced by cancer patients and survivors. They discuss the role of cognitive behavioral therapy (CBT) in cancer care, the complexities of treating cancer-related insomnia, and the shortage of mental health professionals trained in oncology.Dr. Bohon and Samira also review a PCORI-funded study led by Dr. Jun J. Mao, comparing the effectiveness of CBT-I (cognitive behavioral therapy for insomnia) versus acupuncture for cancer-related insomnia. Dr. Bohon breaks down step-by-step sleep strategies for cancer patients, offering practical tools to improve sleep, emotional well-being, and cancer-related anxiety—even for those without access to therapy.This episode was supported by the Patient Centered Outcomes Research Institute (PCORI) and features this PCORI study by Jun J Mao, MD.Check out the free mental health resources mentioned in this episode from Veterans of America here.--Your Cancer GPS is here! Step-by-step breast cancer maps based on what others have gone through and what oncologists recommend.Key Highlights:Insomnia is a major issue for cancer patients and survivors alike – beyond just trouble sleeping, it exacerbates pain, fatigue, cognitive impairment, and emotional distress, making cancer treatment even more challenging.  The clinical trial covered in this episode found that cognitive behavioral therapy for insomnia (CBT-I) led to better sleep improvements compared to acupuncture, with lasting effects even after treatment ended. While acupuncture may not be as effective as CBT-I for sleep, it showed short-term benefits for managing cancer-related pain, which can still be valuable for your mental health as wellThe problem with therapy today is not just accessibility, but also the fact that many therapists aren't trained in psycho-oncology, making it difficult for cancer patients to find mental health support tailored to their unique challenges.  Techniques from CBT-I, such as sleep restriction, stimulus control, cognitive restructuring, and relaxation exercises, can significantly improve sleep quality—even for those who can't afford professional therapy.About our guest: Dr. Cara Bohon is a clinical psychologist and researcher from Stanford University with experience scaling delivery of evidence-based mental health treatments to meet the huge needs of patients across the United States. She led clinical programs and research at Equip Health, which addressed the demand for effective eating disorder treatment by providing training and virtual delivery of evidence-based eating disorder treatment across the country and is passionate about expanding her work in oncology in the future.Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.This episode was supported by an award from the Patient-Centered Outcomes Research Institute.

Nine years with no evidence of disease—yet Megan-Claire Chase’s cancer journey isn’t over. As she once fought cancer alongside her mother, she now faces something even harder: losing her. In this episode, Megan-Claire shares a deeply vulnerable side—a daughter losing her mother. Facing your own mortality is one thing, but facing the mortality of your loved ones—friends, family, fellow cancer patients, and survivors—and the hole they leave behind is something entirely different.Key Highlights:Witnessing her mother’s cancer progression brings anticipatory grief, yet despite that grief, Megan strives to learn as much about her mother as possible, including fond memories from her childhood.Despite the anticipatory grief, Megan and her mother engage in a bonding exercise using question cards, and she records their conversations. One of the most meaningful things she learned was that her mother reflects on her life with joy—ultimately, the greatest goal is to leave this world happy.Facing your own mortality can unearth many emotions: the need to be confident and not tolerate disrespect, the desire to live life on your own terms and to the fullest, yet also a deep sense of loneliness and isolation.About our guest:Check out thefirst episode Megan-Claire Chase appeared in here. Megan-Claire Chase, also known as Warrior Megsie, is the Breast Cancer Program Director and host of theOur BC Life podcast at SHARE Cancer Support. As an invasive lobular carcinoma (ILC) breast cancer survivor and passionate patient advocate based in Atlanta, GA, Megan-Claire is a dedicated champion for the needs of breast cancer patients, particularly in addressing the disparities faced by minoritized communities and those in the adolescent and young adult (AYA) communities.In addition to her pivotal role at SHARE, she serves on Bayer Oncology's Digital Patient Council, is a patient advocate for the Oncology Data Advisor Editorial Board, and recently joined the Worth the Wait Charity advisory board. She also contributes as a writer and advisory board member for Patient Power, amplifying the voices of breast cancer patients.Megan-Claire’s advocacy efforts include participating as a panelist onLeveraging Technology to Support Patient-Centered Multidisciplinary Oncologic Care at the 2024 ASCO Quality Care Symposium, co-authoring a podcast and infographic on genetic testing in metastatic breast cancer, collaborating with Pfizer on theAction Guide to Disrupt Inequitable Health Outcomes, and sharing her personal journey on PBS’sBeyond Cancer throughStories from the Stage. Her work has been spotlighted in notable publications likeThe New York Times,People Magazine,Cancer Health,Cancer Today, andCURE Magazine.Beyond her cancer advocacy, Megan-Claire is a versatile voiceover actor, a dedicated social justice activist, and a proud cat mom to Phoebe.Disclaimer:All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only.  This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.Looking for tools to help you take control of your cancer experience? Check out My Cancer GPS™, a step-by-step map that guides you through the entire cancer experience.

In this enlightening episode of the Patient From Hell, host Samira Daswani interviews Dr. Sara Tolaney, a leading oncologist specializing in breast cancer. They delve into the evolving landscape of triple-negative breast cancer (TNBC), exploring advancements in treatment, from targeted therapies to immunotherapy, and the challenges faced by patients in both early-stage and metastatic settings. With her characteristic warmth and expertise, Dr. Tolaney provides actionable insights for patients and caregivers, offering hope and understanding in navigating this complex diagnosis. Key Highlights: 1. A New Paradigm in Early-Stage TNBC Treatment: Dr. Tolaney explains how neoadjuvant chemotherapy combined with immunotherapy has revolutionized outcomes, achieving pathologic complete response rates above 60%. 2. Metastatic TNBC Advances: The discussion highlights the critical role of biomarker testing and the introduction of innovative therapies like antibody-drug conjugates, providing extended survival for many patients. 3. Empowering Patient Symptom Management: The episode underscores the importance of patient-reported outcomes and emerging tools like health apps to enhance self-management and real-time support for side effects. About our guest: Sara Tolaney, MD, MPH is the Chief of the Division of Breast Oncology at Dana-Farber Cancer Institute, and is internationally recognized for her research and education leadership in breast cancer. She also serves as Associate Director of the Susan F. Smith Center for Women’s Cancers and is a Senior Physician at Dana-Farber Cancer Institute and Associate Professor of Medicine at Harvard Medical School. Dr. Tolaney received her undergraduate degree from Princeton University and her medical degree from UC San Francisco. She subsequently completed her residency in Internal Medicine at Johns Hopkins University, and fellowships in hematology and medical oncology at Dana-Farber Cancer Institute. She obtained her Masters in Public Health from Harvard School of Public Health. Her research focuses on the development of novel therapies in the treatment of breast cancer and developing more effective and less toxic treatment approaches. Her work has demonstrated that a relatively low risk regimen is beneficial in women with early stage node-negative HER2-positive cancers, and this works has been incorporated into national and international guidelines. She has developed several follow-up studies looking at novel approaches to early stage HER2-positive disease and has also played a significant role in development of cdk 4/6 inhibitors, antibody drug conjugates, and immunotherapy in breast cancer. She is the author of over 150 peer-reviewed publications with manuscripts included in many prestigious journals such as the New England Journal, Lancet Oncology, Journal of Clinical Oncology, and JAMA Oncology. Key Moments: At 8 minutes: "It used to be that if someone had a triple negative breast cancer, we would often take someone to surgery and then after surgery give them some chemotherapy to kill any stray cells that might've gotten into the bloodstream and integrate radiation as needed. But we've really changed our approach very dramatically over the last few years where we've learned that if someone has an early stage, stage two or three triple negative breast cancer, it is actually very critical that they not go to upfront surgery, but in fact get chemotherapy with immunotherapy prior to surgery." Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. This episode is sponsored by Gilead Oncology. Gilead had no involvement or input in the podcast content. Gilead Oncology is working to transform how cancer is treated. We are innovating with next-generation therapies, combinations, and technologies to deliver improved outcomes for people with cancer. From antibody drug conjugates and small molecules to cell therapy-based approaches, our portfolio and pipeline assets are creating new possibilities for people with cancer.