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A monthly podcast about pediatric palliative care, hosted by two pediatric palliative care docs, Sarah Dabagh, MD, and Daniel Eison, MD, MS. Sharing the insights, opinions, narratives, commentaries, and invectives of #pedpc.
Email us at pedipalcast@gmail.com
39 Episodes
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Send us a text"About suffering they were never wrong, / the old Masters: how well they understood / Its human position..." wrote W.H. Auden. For all that suffering seems to be central to our practice, how do we in pediatric palliative care actually stack up against Brueghel et al when it comes to understanding it, though? Dan and Sarah dig deep with guests Erica Salter, PhD, and Lauren Draper, MD to explore what suffering really means for children, families, and the clinicians who care for them.
Send us a textEven before heading homeward from the Annual Assembly, Dan and Sarah decided that we needed to do an episode about one of our favorite presentations, palliative home transports. So in this interview, Ashley Autrey from Children's Hospital New Orleans and Lindsay Ragsdale from Kentucky Children's Hospital bring it on home to you, our audience, sharing their wisdom and expertise about how to get some of our most complex and fragile patients out of the hospital, and what it means t...
Send us a textPerinatal Palliative Care! Thanks to a healthy dose of serendipity, PediPal finally wades into the ever-changing waters of palliative care before, during, and after birth. Sarah and Dan talk with Brian Carter, Kelstan Ellis, and Jenni Linebarger about their collaborative, creative work at the Children's Mercy Kansas City Fetal Health Center and beyond. So come for the birth planning, stay for the unrivaled power of narrative, everyone's favorite pediatric bioethical Zone, hot-bu...
Send us a textPediPal goes on the road! Dan brings his microphone to Phoenix, AZ, for the 2024 Annual Assembly of Hospice and Palliative Medicine, ambushing unsuspecting guests with that classic PediPal question, "What are your take-home points?" Sarah, unable to attend the conference, shares her take-homes from home.Major thanks to AAHPM and all our enthusiastic participants: Tyler Badding, Gabe Daniels, Kelstan Ellis, Rachel Kentor, Jen Hwang, Matt McEvoy, Jennifer Salant, Alexis Santos, Me...
Send us a textWhere do the fields of Palliative Care, Neurology, and PM&R overlap? Where can we learn more about how to approach the dreaded uncertainty of neurologic prognostication? In this episode! Overcoming some technical difficulties, Dan (kinda) and Sarah discuss the field of Pediatric Neuropalliative Care with Marina Ma and Lauren Treat.
Send us a textThe episode we really wanted to call "2 Julie 2 Hauer."Julie Hauer is back on PediPal! This time, she's here to discuss with Sarah and Dan what we do when we're beyond the guidelines, short on evidence, and way past the point of randomized control. What influences do culture and anecdote have on our prescribing? How much of pediatric palliative care is science and how much is art... and how much does the difference matter?Julie's forthcoming book:Childhood Onset Severe Neurologi...
Send us a textIt's 2024! As PediPal enters its fourth year, we want to take a moment to look back on what we've learned over the last three years. So for the first time (and hopefully the last), we have no guests, just the reflections, opinions, and bad jokes of the two pedi pals ourselves.
Send us a textHow and where do we draw the boundaries between ourselves and our patients and families? What other boundaries do we draw--or not draw so well--in pediatric palliative care? Here to discuss these questions and more are Stacy Remke, MSW, and Rev. Bentley Stewart.
Send us a textDeath. Dying. Simple words, but often hard to say, and even harder to say to a child. In this episode, Sarah and Dan turn to some experts on saying difficult things to children, Certified Child Life Specialists Kelley Gavel and Nicole MackDiaz. Find out why Child Life is particularly adept at helping kids grapple with the toughest questions, and then stick around for a special guest who tries his best to stump Kelley and Nicole...Books mentioned by our guests:All About the Inten...
Send us a textTurn on, tune in, and drop your preconceptions, because in this episode, Sarah and Dan are your guides on a trip into the realm of psychedelics in pediatric palliative care. We join Dingle Spence, Chris Adrian, and Elisha Waldman to learn about how they came to do this work, how psilocybin is helping some bereaved parents on their journeys of grief, and what the future might hold for psychedelic therapies in pediatrics.
Send us a textInterdisciplinary teams are so vital to the practice of palliative care, and in today's episode, the PediPal team explores a new kind of team member: What has four paws, has mastered the art of being present, and is guaranteed to increase the popularity of your palliative care team? A therapy dog!Join Sarah and Dan as they hear two tales of wagging tails who are dedicated members of Peds Palliative teams in British Columbia (Gaia) and Michigan (Fawn). We hear mostly from the hum...
Send us a textGet psyched because PediPal is back! In this episode, Sarah and Dan interview two psychologists, Amanda Thompson and Rachel Kentor, about creating competencies for pediatric palliative psychology and how we can bring more psychology into the world of pediatric palliative care.You can read their recent paper here:https://pubmed.ncbi.nlm.nih.gov/37141582/And if you're interested in contacting them for more information about how to involve psychology in your pediatric palliative ca...
Send us a textIf you're working in pediatric palliative care and you haven't heard of Courageous Parents Network, put down this podcast immediately and go make yourself familiar with the amazing resource that is CPN. Sarah and Dan are thrilled to have three courageous parents - Blyth Lord, Amy Graver, and Liz Morris - discuss how their children's stories intersected with palliative care.And if you haven't heard the CPN podcast, make sure to check it out here: https://courageousparentsnetwork....
Send us a textWelcome to a special "Best of" PediPal episode! The notion, concept, and implementation of silence is integral to the practice of pediatric palliative care. Perhaps even more important than what we say is what we don't say, and how we don't say it, and when it isn't said. Join Sarah and Dan for an exploration of this truly golden feature of our specialty."Even a fool is thought wise if he keeps silent, and discerning if he holds his tongue." Proverbs 17:28
Send us a textA social worker, a nurse practitioner, and three physicians walk into a podcast... There's no punchline, just the latest episode of PediPal, where Dan and Sarah interview three of the interprofessional fellows from the Boston Children's interprofessional fellowship program--Jennifer Donovan, Amy Porter, and Thomas Haire--and challenge ourselves to say the word "interprofessional" as many times as possible. We also include some clips from past episodes that resonate with the them...
Send us a textHow do you talk to a child about illness and death? For a field that deals with these challenging topics every day, we don't always feel comfortable helping our young patients and their families engage with them. For guidance, Dan and Sarah turn to Elena Lister (@elenalistermd1) and Michael Schwartzman (@schwartzmanma), authors of Giving Hope: Conversations with Children About Illness, Death, and Loss.Links to buy Giving Hope here at Indie Bound and Penguin Random House; a...
Send us a textThe holiday season is ending and boy are we stuffed... with educational and entertaining content about one of pediatric palliative care's more misunderstood and controversial topics: overfeeding. Sarah and Dan round out 2022 talking with skeletal dysplasia expert Ricki Carroll (@RickiCarroll), hospice guru Glen Komatsu, and the inimitable Julie Hauer about those times when our patients are getting too much nutrition and all the problems that can cause.
Send us a textDoes practicing pediatric palliation promote positive parenting? Does parenthood put palliative practitioners in a preferable position? Dan and Sarah partner up to ponder these profound puzzles and palaver with Jessica Casas and Daniel Mahoney (@DanielMahoneyMD), and Claire Crawford (@PalliativClaire), all from the Pediatric Advanced Care Team at Texas Children's Hospital.(CN: This episode deals with the topic of pregnancy loss.)
Send us a textIn our final international episode, Sarah and Dan speak with Doctora Rut Kiman (@KimanRut) about pediatric palliative care in Argentina and throughout Latin America.
Send us a textCurative therapy and hospice... at the same time?! Since the Affordable Care Act, pediatric patients don't have to give up one to benefit from the other. But does this model really work, and does it make sense for the realities of pediatric palliative care and hospice as in 2022? To figure it all out, Sarah and Dan have a concurrent conversation with Steven Smith (@stevenmsmith913) and Conrad Williams (@conradw4) about Cadillacs, cookies, and #PedPC's biggest Twitter rivalry.
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