PsA HQ Podcasts

Hello and Welcome to PsA HQ Podcasts -  I’m Mel Brooke, and I am hosting a podcast mini-series called “Voices Making a Difference”, highlighting people who have used their musculoskeletal or chronic condition experiences to drive positive change  - whether through advocacy, research, writing, or community support. In this episode, I’m joined by Ailsa Bosworth, MBE and founder of National Rheumatoid Arthritis Society (NRAS). We talk about her experience of severe rheumatoid arthritis and fighting to access treatment, to starting an organisation from a blank sheet of paper and discovering the power of peer support. We also discuss what has changed in patient advocacy over the past 25 years, what still hasn't changed, and the people patient organisations may still struggle to reach.Please tune in again, follow this channel and help celebrate Ailsa and all the other amazing people in this series – all making a difference to people with MSK. Lived experience doesn’t just tell a story - it can drive real change. Link:Website:  https://creators.spotify.com/nras.org.uk   If you would like to share your experience or think of someone who would be a great fit for this series please get in touch.My website and contacts can be found via ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one of my links ⁠⁠here⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and I would love it if you follow me on your listening platform for news of more episodes!  DisclaimerThis episode reflects personal experiences, opinions and discussion. It is not intended as medical advice. Always speak to a healthcare professional for individual guidance. *Music by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Alex Morgan from ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠*

Hello and Welcome to PsA HQ Podcasts -  I’m Mel Brooke, and I am hosting a podcast mini-series called “Voices Making a Difference”, highlighting people who have used their musculoskeletal or chronic condition experiences to drive positive change  - whether through advocacy, research, writing, or community support. In this episode, I’m joined by Dr Catherine O’Leary, a Clinical Psychologist and author living with Psoriasis. We talk about what it’s like to grow up with Psoriasis, deal with the emotional and psychological impacts and stigmas. We also talk about coping strategies, her motivation for writing the book 'Coping with Psoriasis' and why she felt raising awareness of the invisible burdens of Psoriasis is so important.Please tune in again, follow this channel and help celebrate Catherine and all the other amazing people in this series – all making a difference to people with MSK. Lived experience doesn’t just tell a story - it can drive real change.Links:Website:   https://copingwithpsoriasis.comInstagram:  https://www.instagram.com/drcatherineoleary/You Tube:  https://www.youtube.com/@catherineoleary3517 If you would like to share your experience or think of someone who would be a great fit for this series please get in touch. My website and contacts can be found via ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one of my links ⁠here⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and I would love it if you follow me on your listening platform for news of more episodes!  DisclaimerThis episode reflects personal experiences, opinions and discussion. It is not intended as medical advice. Always speak to a healthcare professional for individual guidance. *Music by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Alex Morgan from ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠*

Hello and Welcome to PsA HQ Podcasts -  I’m Mel Brooke, and I am hosting a podcast mini-series called “Voices Making a Difference”, highlighting people who have used their musculoskeletal or chronic condition experiences to drive positive change  - whether through advocacy, research, writing, or community support. In this episode, I’m joined by David Chandler of  The Psoriasis and Psoriatic Arthritis Alliance   (PAPAA for short ). Many people will have heard of PAPAA, fewer will know the personal story behind how it began. As we chat, David reflects on living with psoriasis and psoriatic arthritis, the frustration of finding almost no information after diagnosis, and how a simple search for answers along with his wife Julie unexpectedly grew into a national patient organisation that has helped thousands of people over three decades! Please tune in again, follow this channel and help celebrate David and all the other amazing people in this series – all making a difference to people with MSK.  Lived experience doesn’t just tell a story - it can drive real change.PAPAA can be found here: ⁠ ⁠ https://www.papaa.org  If you would like to share your experience or think of someone who would be a great fit for this series please get in touch. My website and contacts can be found via ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one of my links ⁠here⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and I would love it if you follow me on your listening platform for news of more episodes!  DisclaimerThis episode reflects personal experiences, opinions and discussion. It is not intended as medical advice. Always speak to a healthcare professional for individual guidance. *Music by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Yevhen Onoychenko⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠*

Hello and Welcome to PsA HQ Podcasts -  I’m Mel Brooke, and I am hosting a podcast mini-series called “Voices Making a Difference”, highlighting people who have used their musculoskeletal or chronic condition experiences to drive positive change  - whether through advocacy, research, writing, or community support.In this episode, I’m joined by Debbie Wilson and Katy Pieris from Inflammatory Arthritis UK. They talk about their motivation to set up the charity and together, we talk about life with inflammatory arthritis, the importance of peer support, community, and the power of honest conversations like their podcasts and this discussion that hopefully will help people feel seen and less alone.Please tune in again, follow this channel and help celebrate Debbie, Katy and the others people in this series – all making a difference in MSK.  Lived experience doesn’t just tell a story - it can drive real change.  Inflammatory Arthritis UK can be found here: ⁠ https://inflammatoryarthritis.orgInflammatory! Podcasts:  https://inflammatoryarthritis.org/podcast-2/And on Instagram they are @inflamarthritis  If you would like to share your experience or think of someone who would be a great fit for this series please get in touch. My website and contacts can be found via ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one of my links here ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and I would love it if you follow me on your listening platform for news of more episodes!  DisclaimerThis episode reflects personal experiences and discussion. It is not intended as medical advice. Always speak to a healthcare professional for individual guidance. *Music by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Yevhen Onoychenko⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠*

Hello and Welcome to PsA HQ Podcasts -  I’m Mel Brooke, and I am hosting a podcast mini-series called “Voices Making a Difference”, highlighting people who have used their musculoskeletal or chronic condition experiences to drive positive change  - whether through advocacy, research, writing, or community support.In this conversation, I sit down with Rebecca Beesley from The JAR Project, sharing a powerful and honest story of living with arthritis, parenting through it, and finding a voice in advocacy. This is a gentle, real conversation about challenges, resilience, and what it means to turn personal experience into something that helps others.Please tune in again, follow this channel and help celebrate Rebecca and more people in this series – all making a difference in MSK. Lived experience doesn’t just tell a story - it can drive real change.The JAR Project can be found here: https://www.jarproject.orgAnd on Instagram they are @_jarproject  If you would like to share your experience or think of someone who would be a great fit for this series please get in touch. My website and contacts can be found via ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠one of my links here ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ and I would love it if you follow me on your listening platform for news of more episodes! DisclaimerThis episode reflects personal experiences and discussion. It is not intended as medical advice. Always speak to a healthcare professional for individual guidance.*Music by ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Yevhen Onoychenko⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠*