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The Rare Enough Podcast, hosted by DJ Stewart, a GBM survivor, dives deep into the world of brain cancer awareness, support, and research, inspired by the mission of the Head for the Cure Foundation.
Each episode features compelling conversations with patients, caregivers, researchers, and advocates, sharing their unique experiences and insights. We explore a variety of topics, from the latest advancements in brain cancer treatment to personal stories of resilience and hope!
21 Episodes
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Send us a textIn this episode we interview Dr. Doug Burton, a renowned spine surgeon and Professor at the University of Kansas, who shares his transformative journey from physician to patient after his own brain cancer diagnosis. Dr. Burton reflects on how this experience reshaped his perspective on care and the patient-provider relationship.
Send us a textIn the final Rare Enough Podcast episode of the year, we sit down with Matt Anthony, founder of Head for the Cure, to reflect on the journey from the foundation's early days to where it stands today. Join us as we celebrate the incredible successes of the 2024 event season, discuss the milestones achieved, and look ahead to the future of the organization. This heartfelt conversation captures the essence of hope, progress, and the power of community.
Send us a textIn this episode, we have a heartfelt conversation with Luke Anderson, the son of Lori Stevens, who bravely fought but ultimately lost her battle with brain cancer. Luke shares his personal journey and the creation of the Lori Project, an initiative dedicated to bringing awareness and support for navigating end-of-life care. Join us as we learn how Luke's mission is making a difference for families facing similar challenges. Find information on the Lori Project ...
Send us a textIn this episode we introduce Brian and Emily Godawski- an inspiring duo who faced brain cancer with unwavering resilience. Brian, a brain cancer survivor, and Emily, his devoted caregiver, overcame immense challenges by embracing "faith over fear." Their shared story offers hope and inspiration, showcasing the power of love, strength, and unwavering belief in each other.
Send us a textIn honor of Childhood Brain Cancer Awareness Month, we introduce Kelly and Evie Fisher. Kelly and Evie share the poignant and inspiring story of Allie, Kelly's daughter and Evie's little sister, who bravely battled brain cancer. Through their journey, Kelly and Evie have shown remarkable strength and resilience, navigating their profound loss with courage. They continue to honor Allie's legacy by advocating for increased awareness and support for families affec...
Send us a textMeet Simon Khagi, MD, Medical Director of Neuro-Oncology at Hoag Family Cancer Institute and a triple-board-certified oncologist. He specializes in primary brain, spine, lung, and advanced skin cancers and has extensive experience with glioblastoma, astrocytoma, oligodendroglioma, meningioma, ependymoma, medulloblastoma, brain metastases, and rare brain tumors.
Send us a textThis is a special anniversary episode celebrating the first year of the Rare Enough Podcast! For our fourteenth episode, we introduce Michael and Vanessa Hugo! The Hugo's are a patient and caregiver dynamic duo that work day in and day out on advocating for others in the brain cancer community. Learn all about their journey with glioblastoma and how they have never given up.
Send us a textFor this episode, we introduce Colin Gerner, the CEO and co-founder of StacheStrong, who is leading a dedicated fight against brain cancer. Under his leadership, StacheStrong has become a prominent force in raising awareness and funding for critical research, driven by a personal mission to transform lives and find a cure.
Send us a textFor Brain Tumor Awareness Month, we are highlighting not just one but three incredible brain cancer survivors! Our latest survivor episode features three extraordinary individuals: Blake Burke (Oligodendroglioma), Molly Marco (Astrocytoma), and Josiah Mihok (Glioblastoma), each with different tumors and different treatments. Listen along as they share their journey with brain cancer.
Send us a textMeet Frank Leonard, the President for Novocure Oncology. Frank leads the global business operations for a medical device company pioneering innovative treatment modalities for solid tumor cancers, including glioblastoma. Learn about Tumor Treating Fields and much more!
Send us a textIn our tenth episode, we introduce Laura Dill, full time caregiver to both of her parents who were diagnosed with the same incurable brain cancer only 14 days apart. Listen along to see how she triumphantly turned her tragedy around to not only help herself, but to also help others facing a similar experience.
Send us a textMeet Zach Round, a survivor and thriver who triumphed over brain cancer. In recounting his story, Zach reveals how he faced adversity head-on, while never allowing obstacles to stop him from living his best life.“I have had to dig deep every day to keep moving forward and sharing my journey helps to let everyone know that you are not alone and that you have a purpose – show up for it.”-Zach
Send us a textThis episode, we introduce Shane Brown, President at GT Med Tech, who has devoted his career to combating brain cancer. Shane is driven by his profound commitment to the company's mission of enhancing the lives of individuals with brain tumors through the innovative solutions offered by GT Medical Technologies. Listen along to learn all about the impact and intricacies of the Gamma Tile.
Send us a textGet to know Anthony Ferraro, a remarkable individual who defies expectations as a Blind pro athlete and inspirational speaker. Ferraro shares his journey of overcoming adversity and the unique challenges he has faced in his pursuit of success. Listen along to hear how he encourages others to break barriers and redefine what is possible.
Send us a textMeet Michelle, a fellow caregiver in the brain cancer community. Michelle's story takes a unique turn—starting her career at the Ivy Brain Tumor Center just as her own mother is diagnosed with Glioblastoma (GBM). Hear about her experiences, challenges, and unwavering commitment to the fight against brain cancer.
Send us a textMeet Dr. Puduvali, a renowned Neuro-Oncologist and a proud supporter of Head for the Cure. Discover his passion for understanding and addressing the complexities of brain tumors and making a significant impact in the field of neuro-oncology.
Send us a textMeet Harry Campbell: a distinguished board member of Head for the Cure, renowned speaker and writer on leadership, culture, and mindset, and the loving husband of Kris Campbell, a brain cancer survivor.In this episode, we explore Harry's extraordinary journey, from his impactful work in the fight against brain cancer to his profound insights on leadership. Delve into his inspiring story and discover the transformative power of resilience and joy.
Send us a textAnna was just twelve years old when she was diagnosed with a ganglioglioma (slow-growing brain tumor) the size of a golf ball. Listen along as her story unfolds where she talks about her countless struggles and how she coped with her diagnosis at such a young age.
Send us a textCourtney Watson was a caregiver to her mom in her early 20’s while she was battling Glioblastoma in 2016. After her mom’s passing it led her to want to make a change and now she is Head for the Cure’s Sr. Manager of Partnerships & Community Relations. Hear her story and how she managed it all.
Send us a textMeet Erin Stewart, wife and caregiver to Host DJ Stewart as well as the Program's & Advocacy Coordinator for Head for the Cure. Get to know your host and listen along as they share their story with Brain Cancer.
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