Real Talk CDH

In this episode of Real Talk: CDH, we’re joined by Carry Me Health to discuss the importance of mental health support for families navigating a CDH diagnosis. From the emotional weight of the Diagnosis, the NICU to the ongoing impact beyond it, this conversation offers validation, insight, and encouragement — reminding parents they don’t have to carry it alone. 💙

Our topic today is one that is near and dear to every CDH parent’s heart — innovation in CDH care, ventilation strategies, and reducing the need for ECMO. Dr Suneetha Desiraju joins us to explain the strategies she employs at Johns Hopkins Baltimore and the wonderful outcomes she is seeing.If you’ve had a child on ECMO, then you know all too well the fear, the weight, and the heartbreak that can come with it. So any advancement that helps lessen the need for ECMO is something worth talking about.

On this episode I chat with Dr. Wendy Chung, Chief of Pediatrics at Boston Children’s Hospital and founder of DHREAMS, the longest-running CDH research study. Dr. Chung shares what DHREAMS has uncovered, how families can get involved, and answers listener questions in this insightful and hope-filled conversation.Whether you’re a CDH parent, family member, or supporter, this conversation offers hope, knowledge, and a reminder that research is paving the way toward better understanding and brighter futures.

Join us as we hear from CDH dads Tom Polizzi and Jordan Casey. Both have walked through the heartbreaking loss of a child to CDH—at very different points in the journey. They share openly about grief, hope, and the unexpected beauty found in the hardest moments. 💙

On this episode I speak with Roxanne's mom Erin. She shares her journey from pregnancy to diagnosis and from bringing her baby home to an unexpected loss. You may shed a tear but you will also be so unbelievably proud of the legacy Roxanne's mom is creating in honor of her daughter's fight against CDH.