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© 2025 SCI Care: What Really Matters
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A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make “Life after a spinal cord injury happy, meaningful and worth living..”
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Send us a text Key points: International collaboration is required to produce research that can be interpreted and applied across different regionsAs outcome measures and collection methods continue to evolve a methodical approach to updating research best practices is requiredA larger focus should be on including the thoughts of persons with lived SCI experience when defining research questionsSpeakers Dr. Fin Biering-Sørensen Dr Michael Fehlings The opinions of our host and guests are their...
Send us a text People with the lived experience of SCIs are one of the most vulnerable groups of in the world-both to the extreme heat and weather events which have increased in frequency because of climate change. Although health care professionals have an opportunity to educate their patients about actions they can use to protect themselves during these extreme weather events, many feel unprepared to discuss the topic. Moreover, health care professionals are beginning to experience moral di...
Send us a text Key points: This podcast summarizes the results of a rigorous evaluation of the evidence for physiotherapy interventions in spinal cord injury using the GRADE methodologyMuscle strengthening exercises are effective for partially paralyzed muscles with MRC Grade 3 and 4 strengthFurther evidence is required in the optimal management of severely paretic musclesSpeaker: Dr. Joanne Glinsky is an Associate Professor of Allied Health (Sydney Local Health District/University of S...
Send us a text Rebuilding a sense of meaning and purpose following trauma is a vital contributor to post-traumatic growth and adapting well to a spinal cord injury (SCI). This webinar shared the co-design process undertaken to develop a course that uses the concept of post-traumatic growth to foster a stronger sense of meaning and purpose after SCI. It presented the course facilitators' reflections on running the program for the last five years, its successes and challenges. Case studies were...
Send us a text Points: Cauda equina syndrome (CES) is a common emergency condition that neurosurgeons and spine surgeons deal with.The long term consequences and the impact on the person dealing with CES are poorly defined.This podcast explores the impact of CES on the person, including pain and autonomic dysfunction, and management strategies which can be implemented by health care professionals.Nish's Affiliation: Nisaharan Srikandarajah is a Consultant Neurosurgeon specialising in complex ...
Send us a text Helen Smith (Ms) Consultant Clinical Psychologist Joe Robinson, Group member and co-facilitator, freelance artist and co-author of "The Very Alternative Guide to Spinal Cord Injury" SCI is a rare condition, not well-understood outside specialist centres. Those who walk again are seen as "lucky" and not "disabled". In fact they have invisible disabilities, which take a heavy toll. Spending time with others with similar experiences, can help with their frustration and i...
Send us a text Dr. Michael G. Fehlings discusses the future of stem cell therapies for spinal cord injury with Intissar Mohcine & Asma Belarbi, high-school students from the Netherlands. Key points: 1) Stem cells are a promising therapeutic approach to repair the damaged spinal cord following injury. 2) Preclinical studies have shown exciting improvements in spinal cord structure and motor function. 3) A number of issues still need to be resolved before stem cell therapy can be su...
Send us a text The podcast for World SCI Day 2025, themed “Fall Prevention, Spinal Cord Protection,” focuses on raising awareness about the critical issue of fall-related spinal cord injuries and how they can be prevented. Falls are one of the leading causes of SCI worldwide, especially among vulnerable populations such as the elderly and individuals in high-risk environments. Discussion was based around the key risk factors contributing to falls, including environmental hazards, physical hea...
Send us a text Key points: 1) The incidence and prevalence of spinal cord injury are rising due to an aging population, increased falls with incomplete cervical injuries and the impact of nontraumatic spinal cord injury. 2) With this increased incidence of traumatic and nontraumatic SCI, there is a growing need for Spinal Cord Injury Medicine specialists . This has resulted in increased training positions in the US. 3) However, many training positions in the US go unfilled and there is a grow...
Send us a text The International Spinal Cord Injury Survey (InSCI) found that sleep problems rank among the top six most common and debilitating health issues for people with SCI — and are the second most likely to go untreated. While rehabilitation centres routinely manage issues like pain, spasticity, and bladder, bowel, and sexual dysfunction, sleep is often overlooked. Risk screening for sleep disorders is inconsistent and typically ad-hoc, and most centres refer suspected cas...
Send us a text Key points: Key sensory afferent pathways from the urinary bladder to the spinal cord often remain intact in spinal cord injuries above the level of the conus medullaris. b) The urinary bladder wall urothelial cells, sensory nerves, interstitial cells, smooth muscle cells and the chemo/mechanosensors in the urethral paraneurons or “brush cells” play a key role in bladder neurophysiology. c) Knowledge regarding the sensory afferent pathways from the bladder could guid...
Send us a text Dr. Michael Fehlings - Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto and Editor in Chief of Spinal Cord. Dr Carlotte Kiekens - Head of the Physical and Rehabilitation Medicine Unit at Ospedale San Giuseppe, IRCCS MultiMedica in Milan, Italy The opinions of our host and guests are their own; ISCoS does not endorse an...
Send us a text In this episode, Dr François Theron and Dr Federico Montero preview the upcoming 4th ISCoS International Regional Symposia, to be held on 18–19 July 2025 at the Rebouças Convention Center, São Paulo, Brazil. They share what makes this year’s symposia exceptional — from the diversity of its global speaker faculty to the urgent clinical and scientific themes being addressed. Together, they explore how the event will bring together spinal cord injury specialists, researchers, and ...
Send us a text Dr. Michael Fehlings - Professor of Neurosurgery, Robert Campeau Family Foundation-Dr. CH Tator Chair in Brain and Spinal Cord Research, Vice Chairman Research), Co-Director Spine Program, Department of Surgery, University of Toronto and Editor in Chief of Spinal Cord. Prof. Ashley Craig - Professor at Kolling Institute, Faculty of Medicine and Health, The University of Sydney. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, ...
Send us a text Traumatic SCI is a relatively common occurrence in rural areas of low income countries. However, rehabilitation services in these areas are either unavailable or inaccessible by the majority. Psychosocial services are scarce and hardly tailored towards a diagnosis such as traumatic SCI. Left with no option, healthcare professionals such as nurses, medical doctors, surgeons and therapists take responsibility of using their general counselling skills to provide some psychological...
Send us a text ISCoS OT and PT SIGs SCI Pre Workshop Day “Implementation of WHO:s Rehab 2030, Package of Interventions” How do we implement available research into interventions in our daily work? Speaker details: Guillermo Gomez, Physiotherapist from Buenos Aires, Argentina and Johanna Wangdell OT, PhD. Department of Occupational therapy and Physiotherapy at Sahlgrenska University hospital Gothenburg Sweden Current Chairperson of the International Network of Spinal Cord Injury Physiotherapis...
Send us a text The SCI Care: What Really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companie...
Send us a text The International Spinal Cord Society and Wellspect present a transformative discussion on changing care perspectives for individuals with spinal cord injuries, featuring leading medical experts Dr Charalampos Konstantinidis from the National Rehabilitation Centre and Dr Christina-Anastasia Rapidi from the General Hospital of Athens. Host Kristijan Kesinovic guides the conversation through critical aspects of rehabilitation and long-term wellbeing, with particular emphasis on b...
Send us a text In this episode, host Rima Kamal (Wellspect) explores the complexities of caring for children with spina bifida with Dr Fahad Alyami, Head of the Saudi Paediatric Urology Group and Associate Professor at King Faisal Specialty Hospital and Research Centre in Riyadh. The discussion delves into the critical aspects of paediatric care for those with spina bifida, from early intervention to adolescent transition. Dr Alyami explains the importance of bladder management from birth, th...
Send us a text In this episode, released to coincide with World Spina Bifida Day, host Anders Tennby (Wellspect) explores the challenges and opportunities in improving life quality for those with spina bifida. Joined by experts Hanna Gabrielsson from Sweden and Pierre Mertens from Belgium, the discussion delves into the complexities of this congenital disorder. Gabrielsson, a registered nurse with a thesis on adults with spina bifida, explains the condition's medical aspects and the challenge...
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