Sarcoma Stories

We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, what exactly a sarcoma center is, and the decision to disclose or not disclose your diagnosis at work.Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/Facebook Group: https://www.facebook.com/groups/512452631597704Where to connect with Susie:IG: @susie.donohueLinkedIn: https://www.linkedin.com/in/susie-donohue-9286579/FB: https://www.facebook.com/susie.donohue.9

We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between care team, patient, and care partners. She also talks about the challenges of being an adolescent young adult going through a life changing diagnosis during big life transitions, finding supportive communities and purpose in advocacy work, and shares her advice on supporting someone during their sarcoma diagnosis.Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704Where to connect with Jenna: IG: @jennapothier19TikTok: https://www.tiktok.com/@jpot13

Join us for our first episode of our new podcast "Sarcoma Stories". We're thrilled to welcome our first guest, Natasha Allen! Join us as this synovial sarcoma survivor shares her inspiring journey, from diagnosis and clinical trials to using social media as a therapeutic tool and platform for awareness.Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704Where to connect with NatashaIG: @natashaallenTikTok: https://www.tiktok.com/@possiblynatasha

Our new podcast is launching soon.Sarcoma Stories PodcastSFA created the “Sarcoma Stories” podcast to highlight the voice and experiences of patients, survivors, and care partners. The people directly affected by sarcoma.Connect with others who share a sarcoma journey. Share in their story and connect with a community.The landscape of cancer related podcasts focus mainly on the medical, research, pharmaceutical, and other expert voices. However, there is no sarcoma podcast that is designed to share the voice of those directly impacted by a sarcoma diagnosis and their stories and experiences.“Sarcoma Stories” is a resource for those seeking connection, community, education, information from the personal accounts of individuals. These stories also help to raise awareness about the impact sarcoma has on the lives it touches.