In this episode, Dr. Kelsey Corrigan, who works in the lab with Dr. Wendy Woodward at MD Anderson in Houston, TX, discusses how they are recruiting metastatic inflammatory breast cancer patients or survivors and their caregivers to complete a brief 5-minute survey assessing patient and caregiver perception of the disease and treatment options as well as preferences regarding treatment options.
Dr. Wendy Woodward is the Executive Director of the MD Anderson Cancer Center Inflammatory Breast Cancer Clinic and Program. Here she discusses inflammatory breast cancer and the need for dedicated centers and networking with other specialty centers.
In this episode of TalkIBC we are discussing lymphedema with certified specialist Dr. Marc Miller.
Ivy was diagnosed as Stage 3B IBC in November 2021. After 5 months of Doxorubicin+AC and Taksol, Double Mastectomy (have gene mutation called PALB2), and 30 radiation sessions, she is NED since August 2022. Professionally, Ivy is a chemist providing consulting in the chemistry and biology field to the U.S. Government. She lives in Maryland with her husband and 7 year old twin girls.
Description of DiscussionSISU- A Finnish concept of strength of will, determination, perseverance, and acting rationally in the face of adversity. Sisu is not momentary courage, but the ability to sustain that courage. How has Robin applied sisu through the course of her IBC treatment from 2016 to recent developments of brain metastatic activity and stepping into whole brain radiation while still living with inflammatory breast cancer with quality of life and hope. BioMeet Robin Matrai, from Calgary, Alberta Canada, whose YES attitude may inspire you, cause you to scratch your head or call you to action. Her perspective of living a life with joy, grit and sisu, despite a double diagnosis of Lupus (1996) and Metastatic Inflammatory Breast Cancer (2016) has not stopped her from successfully parenting, operating her own company, painting, travelling, mentoring, speaking, writing, competing in fitness competitions and so much more.
Martha Van Dam, MS, LMHC, NCC tells her story of inflammatory breast cancer and offers advice based on her experience and her education as a licensed therapist.
Dr. Ueno gives a candid interview with Terry Arnold about leaving MD Anderson and the future of his research and team.
In this episode of TalkIBC Terry Arnold sits down for a conversation with Nina Surden who was diagnosed with inflammatory breast cancer in 1996, making her currently a 26+ years survivor. She retired as a public school teacher after 35+ years in elementary and middle school teaching in 2009. She lives in the Philly area, calls herself a fair weather Philly fan, loves to summer at the Jersey Shore and winter in Florida. She is deeply committed to her synagogue and is an avid volunteer there. She also loves to read and play Maj Jong.
Diane's daughter, Lindsay Thul, was diagnosed with Inflammatory Breast Cancer at the young age of 28. She died just 10 short months later. She was was strong, brave, funny & fun, a loving daughter, sister, niece, cousin, granddaughter, auntie, and loyal friend.In this podcast, Diane tells the story of her daughter's diagnosis with inflammatory breast cancer and how it inspired her to start Lindsay's Legacy Fund to help provide financial assistance to families with financial issues get prompt, expert medical attention required to diagnose and treat IBC.
Terry interviews Drew DeMaree who will be hosting the Unicorn Ball as a fundraiser in honor of his wife Kimberley DeMaree who passed away from inflammatory breast cancer in 2022. Kimberely was only 42 years old. This is her story.Event proceeds will go to The IBC Network Foundation and the Virginia Breast Cancer Foundation.
Breast Medical Oncologist, MD AndersonExecutive Director of IBC Program
This is Terry Arnold's story, in her own words, of the struggle to get a correct diagnosis through founding the non-profit The IBC Network Foundation.