The Caregiver's Journey

Adding a new caregiver to your support team can be a challenging transition, whether they're coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer's or dementia, as changes in routine can cause confusion and resistance. If your loved one doesn't think they need help (and let's be honest, many don't), don't give up too quickly. Be patient and allow the process time to unfold. As one experienced caregiver shared, "He told the new caregiver for at least the first couple of weeks, every time she came, 'You need to go home.' She would just smile at him and say, 'Well, I'm not going home just yet.'"

Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder and CEO of Eleplan, about what a care plan is and how to create one that works for your unique situation. Amanda's journey to creating Eleplan was deeply personal. Her brother Liam, who has autism, is her "North Star" and the inspiration behind her career path, including going to law school for special education law. Through observing her parents' caregiving journey with Liam, Amanda recognized the need to capture all the knowledge that lived in her parents' heads so that others could provide care that truly honored who Liam is as a person. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned Episode 32: Navigating The Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/Eleplan Website: https://www.eleplan.com/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Full Show Notes https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias Takeaways Tip 1: Start with the Basics The first step in creating a care plan is to document the essential information that would allow someone to provide short-term care (even for just 30 minutes) while you step out. This includes: Emergency contactsMedications and dosagesHigh-level meal preferencesAllergiesRelevant medical conditions Tip 2: Outline Preferences and Daily Routines Beyond the basics, a good care plan should capture what makes your loved one unique—their preferences, personality traits, and daily routines. Your care plan should include: Likes and dislikesDaily schedule and routinesBedtime and morning ritualsBehavioral patternsEmotional triggers (both positive and negative) Tip 3: Document What to Do in an Emergency Crisis situations demand clear instructions. Your care plan should outline: What constitutes an emergency for your loved oneWhen to call 911 vs. other resourcesWho to contact and in what orderSpecial instructions for EMTs or ER staffLocation of important medical documents Tip 4: Collect Key Contacts and Documents Gathering important documents in one accessible location is critical for seamless care. This includes: Insurance cardsHealthcare directivesPower of Attorney documentsGuardianship formsMedical history and medication lists Tip 5: Keep Everything Accessible and Current A care plan is only effective if it's up-to-date and easily accessible. Amanda frames this with an important question: "Do I have a system that is as dynamic as the needs of my loved one and the ever-changing piles of documents and information?" Whether you're using a physical binder, shared digital documents, or a specialized platform like Eleplan, the key is having a system that makes updates easy and ensures the information is available whenever and wherever it's needed. Read More in This Blog

When the time comes to bring professional caregiving support into your loved one’s life, the process can feel overwhelming. Whether you’re hiring a caregiver for home care or to complement care in a community setting, understanding how to find, evaluate, and select the right person is crucial for both your peace of mind and your loved one’s well being. We are Nancy Treaster and Sue Ryan, we’ve developed five essential tips for hiring a paid caregiver, based on real experiences and practical advice from caregiving experts. These insights will help you navigate this important transition with confidence and clarity. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Episode 5: Home Alone https://thecaregiversjourney.com/leaving-your-care-receiver-alone-six-essential-tips-alzheimers-and-other-dementias/Episode 28: Home and Community Living Options https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/Episode 30: Elder Law Attorneys https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/Episode 33. How To Create a Care Plan: Five Essential Tips / Alzheimer’s and Other Dementias https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementiasSupport the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess Your Loved One’s Needs Before you begin searching for a caregiver, it’s important to thoroughly understand what kind of support your loved one requires. This assessment will guide all your subsequent decisions about the type of caregiver, frequency of care, and specific qualifications needed. Consider these key areas when assessing needs: Activities of Daily Living (ADLs)Medical NeedsHousehold Management TasksSafety ConcernsTransportation and MobilityCompanionship Needs Tip 2: Determine the Type of Caregiver and Frequency Needed There are three main categories of paid caregivers, each with different training levels and capabilities: Companion CareCertified Nursing Assistant (CNA)Skilled Nursing Tip 3: Understand Your Financial Resources Review Your Financial Resources Savings and investment accountsLong-term care insurance policiesRegular income sourcesFamily financial contributions. Explore Available Benefits MedicareMedicaidVeterans Benefits Consider Family Contributions Tip 4: Decide Between Agency or Private Hire When you work with a caregiving agency: They Handle Administrative TasksThey Provide Backup CoverageThey Offer Training and SupervisionThey Assume Liability Private Hire Benefits It’s Usually Less ExpensiveYou Have Complete ControlThere’s Often More FlexibilityYou May Find Through Word-of-Mouth Private Hire Challenges You’re the EmployerNo Backup CoverageLimited Screening Resources Tip 5: Evaluate potential caregivers thoroughly Key Questions for Interviews Scheduling and AvailabilityQualifications and ExperienceApproach to CareCommunication Style Background Checks and References Set Clear Expectations Especially for private hires, establish from the beginning that the arrangement is on a trial basis. Include Your Loved One When Appropriate Next Steps: Care Plans and Integration Develop a written plan Develop an Integration Strategy Read More in This Blog here 

We don't know what we don't know. But elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you're dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how and when to work with an elder law attorney can make all the difference in your journey. In this episode, we'll explore four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with a Master of Laws in elder law. Their expertise in Medicaid planning, VA benefits, estate planning, probate, trust administration, and guardianship offers valuable perspective for anyone navigating the complex legal landscape of aging and caregiving. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned www.NAELA.org The National Academy of Elder Law Attorneys website has a searchable directory. "They have a really good search function where you can type in your zip code and find elder law attorneys within a certain radius," Courtney notes.State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (www.AFELA.org).Beth Prather: https://www.gskattorneys.com/attorneys/beth-a-prather/Courtney Lovejoy: https://www.gskattorneys.com/attorneys/courtney-van-emmerik-lovejoy/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: How to Find an Attorney Who Specializes in Elder Law Finding the right elder law attorney requires more than just a quick Google search. Here's how to identify professionals with genuine expertise in this specialized field: Look for Specialized Credentials Professional credentials can be helpful indicators of specialized knowledge in elder law: Board Certification: IMaster of Laws (LLM) in Elder Law: Ask the Right Questions How many Medicaid applications did they file last year?What percentage of their practice focuses on elder law?Do they handle guardianships, Medicaid planning, or VA benefits cases regularly? Use Reliable Resources to Find Specialists NAELA.org:State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (AFELA.org).Personal referrals: Tip 2: Prioritize These Legal Documents and Planning Tools Once you've found an elder law attorney, certain planning tools should take priority: Comprehensive Durable Power of AttorneyConsider Long-Term Care InsuranceLimit or Avoid GiftingAvoid DIY Planning Common DIY mistakes include: Adding children to bank accounts or property titlesGiving away assets based on outdated or incorrect adviceTrying to "hide" assets from Medicaid Tip 3: Understand Medicaid and VA Benefits Options A significant part of elder law involves helping clients navigate government benefits for long-term care: Tip 4: Use This Time to Address Other Important Legal Matters Review Beneficiary DesignationsCreate an Asset InventoryConsider Account ConsolidationAddress Healthcare Decision DocumentsBe Cautious About Adding Others to Accounts or DeedsDiscuss End-of-Life Preferences

When you’re grieving, the last thing you need to be doing is planning a service. Pre-planning allows you to make only two decisions when death occurs: what day and what time the service will be held. Everything else can be arranged in advance, giving you the space to honor your loved one while processing your grief. We are Sue Ryan and Nancy Treaster, and we recently spoke with Greg Cannon, who has more than 45 years of experience in the funeral profession, including as a funeral director. Greg shared his expertise on planning ahead for a loved one’s service, offering eight essential tips that can make all the difference during a difficult time. Rate, Subscribe, Share the Podcast and Share Your Tips on Social Media! Please click here to review, follow, subscribe to and share our podcast.   Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/finding-peace-in-preparation-end-of-life-service-preplanning-eight-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned End of Life Service Worksheet here Takeaways Tip 1: Choose a Funeral Home Select a funeral home that will meet your needs. This choice may be based on location, previous experience with them, or their reputation.  Tip 2: Decide on Burial or Cremation This fundamental decision shapes many subsequent choices.  If choosing burial, consider: Cemetery locationIf the person is married, reserving an adjoining space for the spouseWhether traditional burial or green burial options are preferred. For cremation, consider: Whether the cremation will happen before or after the service.What will be done with the cremated remains afterward. In both cases, you’ll need to decide what clothing the person will wear. Greg advises bringing a complete set of clothing, including undergarments and outerwear. Shoes are optional and often difficult to put on, but can be included if they’re meaningful. Tip 3: Decide on the Type of Service Funeral services have evolved beyond the traditional.  Traditional Service (for either burial or cremation) Memorial Service Green Burial Direct Cremation or Direct Burial Tip 4: Choose a Location The location for the service could be: A funeral homeA place of worshipA location meaningful to the deceased Tip 5: Prepare the Obituary Rather than writing the complete obituary under time pressure, prepare by: Compiling all necessary information ahead of timeCreating a comprehensive list of family members to includeSelecting a photo or photos to accompany the obituary. Tip 6: Create a Notification Tree Decide ahead of time: Who needs to be notified of the deathWho will notify whomCreate a “notification tree” so you’re not responsible for contacting everyone. Tip 7: Plan the Service Consider these elements and include your care receiver as much as possible: Officiant: Choose the clergy or person who will lead the serviceEulogies: Decide who will deliver them and provide guidanceMusic: Select meaningful songs or hymnsReadings: Choose scripture, poetry, or other readingsPersonal touches: Include memorabilia, photos, or items that represent the person’s life. Consider alternatives to traditional floral arrangements: Family quiltsMeaningful objects (like golf clubs for an avid golfer)Photos. Tip 8: Plan the Gatherings Consider various types of gatherings: Private family dinner before the serviceReception after the service for all attendeesInformal gathering at home with close family and friends.

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that there are many misconceptions about hospice care. Today, we're joined by hospice nurses Nancy Heyerman and Brenda Kizzire to help clarify what hospice really is and when to consider it. Through their extensive experience, they've developed four essential tips to help you navigate this important transition in your caregiving journey. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/when-to-call-in-hospice-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned The Hospice Care Plan website here Frailty scale here The Hospice Care Plan booklet here The Hospice Care Plan YouTube channel here YouTube video - End of life for a person with dementia here Takeaways 1. Access Your Care Receiver Using the Frailty Scale One of the most important tools in determining when hospice might be appropriate is the frailty scale. This helps track changes that might indicate a need for hospice care. What to Monitor: - Weight loss patterns - Ability to feed themselves - Changes in mobility (e.g., walking distance decreasing) - Transition from walking to wheelchair - Changes in activities of daily living - Increased anxiety or behavioral changes - Decreased verbal communication - Mental status changes 2. Start Documenting This tip might seem obvious, but proper documentation can make a significant difference in getting hospice care approved. How to Document: - Keep a calendar with regular weight measurements - Note changes in mobility and daily activities - Use your phone to track behavioral changes - Record any falls or incidents - Track medication changes and effectiveness - Document observations from other family members and caregivers Important Note: Many primary care providers may not be familiar with the latest hospice criteria. Your documentation helps build a case for hospice evaluation and provides concrete evidence of decline. 3. Research Hospice Organizations  Don't wait until you're in crisis to start researching hospice organizations. Start your research early and be prepared. What to Research: - Available hospice organizations in your area - Their team structure and approach to care - Response time for evaluations and care - Experiences of other families - Specific services offered - Their experience with dementia patients Additional Tips: - Ask for recommendations from other caregivers - Read reviews and testimonials - Consider visiting their facilities if applicable - Ask about their approach to dementia care - Understand their after-hours support system 4. Request a Hospice Evaluation Don't be afraid to ask for a hospice evaluation, even if you're not sure your loved one qualifies. Steps to Get an Evaluation: 1. Ask your primary care provider for a hospice evaluation 2. If met with resistance, emphasize your goals of care 3. Frame it as establishing a baseline if needed 4. Remember that two physicians must agree - your primary provider and the hospice doctor 5. Be prepared to be a "squeaky wheel" if necessary The Hospice Care Plan: A Valuable Resource Nancy and Brenda have created "The Hospice Care Plan: A Path to Comfort," a comprehensive guide that helps families navigate hospice care. This resource includes: - Detailed symptom management guidelines - QR codes linking to instructional videos - Space for individualized care plans - Information about the hospice team - Practical tips for daily care Read More in This Blog here

As caregivers for our loved ones with Alzheimer's and other types of dementia, we often face the challenging question: "Is it time to change my care receiver's living situation?" We are Nancy Treaster and Sue Ryan, and through our experiences, we've developed five essential tips to help you navigate this complex decision-making process. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/ Takeaways 1. Understand Your Financial Resources This foundational step requires a thorough assessment of both current and future financial resources. Professional Resources to Consult: - Financial advisors (especially those specializing in senior care) - Elder care attorneys - Government program specialists Income Sources to Consider: - Care receiver's savings - Pensions - Long-term care insurance - Public health insurance (Medicaid in the US) - Social Security disability benefits - Family contributions Expenses to Evaluate: - Home modifications - Safety adjustments - In-home caregiving costs - Day program fees - Potential lost income if reducing work hours - Care community costs 2. Research Care Options There are three main categories of care options to evaluate: Non-Residential Options: - Respite programs - Memory cafes - Day programs In-Home Options: - Professional caregiving services - Government programs (VA benefits, Medicare services) - Family caregiver arrangements Care Communities: - Memory care specific facilities - Communities with memory care units - Different care models and staffing levels - Waiting list considerations 3. Assess Home Safety This evaluation should include multiple perspectives: Medical Assessment: - Get an updated medical evaluation - Discuss current and future safety risks - Request occupational therapy assessment Key Safety Considerations: - Wandering risk - Cabinet and door safety - Mobility challenges - Fall prevention - Depth perception issues - Stairs and accessibility - Emergency services access 4. Evaluate Medical Needs Current and Future Medical Considerations: - Impact of multiple diagnoses - Care complexity - Required medical procedures - Medication management - Physical care requirements 5. Prioritize Wellbeing for Both Care Receiver and Caregiver This final tip focuses on quality of life considerations for everyone involved. Socialization Needs: - Care receiver's social preferences - Community engagement opportunities - Caregiver isolation prevention - Balance of stimulation and comfort Safety and Emotional Considerations: - Physical safety for both parties - Emotional wellbeing - Caregiver burnout prevention - Managing aggressive behaviors - Personal boundaries Making the Final Decision: - Consider all evaluation points - Involve family members - Maintain awareness of available options - Stay connected with potential care communities - Be prepared to act when needed

When you’re caring for a family member with Alzheimer’s or other type of dementia, you’ve probably heard countless times: “Don’t forget to take care of yourself.” While well-intentioned, this advice can feel overwhelming when you’re already juggling multiple responsibilities! Through our conversation with Elizabeth Miller, we’ve learned that effective self-care is about more than just general advice — it’s about finding practical, sustainable ways to maintain your own wellbeing while caring for others. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Happy Healthy Caregiver website here  20 for 2025 Funsheet here Self-Care at Sea cruise here Happy Healthy Caregiver podcast here Just for You daily journal here Takeaways Tip 1: Give Yourself Permission One of the biggest barriers to self-care is the guilt that comes with taking time for yourself. Many caregivers feel it's selfish to focus on their own needs when their care recipient is struggling. Tip 2: Think Broadly About Self-Care Self-care encompasses much more than just physical health. Elizabeth identifies eight key categories: - Practical self-care (like organizing your desk) - Emotional self-care (therapy, journaling) - Social self-care (connecting with others) - Spiritual self-care (following your spiritual path) - Intellectual self-care (learning new things) - Financial self-care (budgeting, planning) - Professional self-care (career development) - Physical self-care (exercise, nutrition) Tip 3: Prioritize and Schedule Self-Care The best self-care strategy is simply putting it on your calendar. Elizabeth recommends creating a "20 for 25" list—twenty things you want to do this year that bring you joy, energy, or peace of mind. These can range from small activities like learning a new game to bigger plans like taking a vacation. Tip 4: Give Yourself Credit Instead of focusing solely on to-do lists, create a "ta-da" list celebrating what you're already doing right. Remember that self-care includes basic activities you're already doing: - Getting sleep - Preparing meals - Basic hygiene - Managing finances - Taking breaks Read More in This Blog here

When you’re caring for a family member with Alzheimer’s or another type of dementia, worries can keep you up at night — but they don’t help you. Through our conversation with Denise Brown, we’ve learned having a solid emergency plan helps calm your worries, reduce your fears, and provide you with peace of mind. Full Show Notes https://thecaregiversjourney.com/are-you-ready-for-an-emergency-get-a-plan-four-essential-tips-alzheimers-other-dementias/ Additional Resources Mentioned Slides used in episode here Caring Our Way community here Family Emergency Plan space on Caring Our Way here Schedule of free planning sessions with consultant here Takeaways Tip 1: Name Your Worry The first step in creating an emergency plan is identifying specific concerns that keep you up at night. Denise's Family Emergency Plan includes eight categories of common caregiver worries: - Delays - Health emergencies - Hospitalizations - Behavioral challenges - Transportation issues - Medication management - Care coordination - Communication needs Tip 2: Develop Your Plan Once you've identified your concerns, it's time to create actionable plans. Remember that plans can take many forms: - Written instructions - Maps or diagrams - Medication lists - Contact information - Behavior management strategies - Transportation arrangements Tip 3: Communicate Your Plan Effective communication ensures everyone involved understands their role. Consider multiple methods of sharing information: - Written letters or emails - Shared online documents - In-person meetings - Physical copies in accessible locations - Regular updates and reminders Tip 4: Update Your Plan Regularly Emergency plans should evolve as circumstances change. Watch for these common triggers that signal the need for updates: - Changes in your care recipient's condition - New diagnoses or medications - Shifts in your own availability - Family member changes - Service provider updates - Transitions to palliative or hospice care About Our Guest Expert Denise Brown founded the Caring Our Way community to support family caregivers. The community offers free resources, including: - Monthly planning sessions - Family Care Manager course - Downloadable planning templates - Online support spaces - Access to certified caregiving consultants You can find these resources at caringourway.com. Read More in This Blog here

When a parent is diagnosed with Alzheimer’s or another type of dementia and the other parent begins their caregiving journey, the dynamic between the caregiving parent and child shifts dramatically. Through our experiences and conversations with families navigating this transition, we've developed six essential tips to help you support your parent as they take on the role of primary caregiver. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes Takeaways Tip 1: Insert Yourself into the Journey The first step is making your presence and support known while respecting your parent’s role as primary caregiver. Key points: Increase visit frequency or phone callsPosition yourself to observe daily dynamicsAvoid judgment of decisionsListen more than adviseShow support without taking over Tip 2: Monitor Caregiver Health Ensuring your caregiving parent maintains their own health is crucial for sustainable care. Key points: Ask specific questions that can’t be answered with “I’m fine”Monitor medical appointmentsDiscuss challenges they’re facingWatch for signs of stress or exhaustionEncourage preventive health care Tip 3: Provide Emotional Support Help your parent maintain connections and avoid isolation while caregiving. Key points: Listen actively to what’s said and unsaidValidate feelings before offering solutionsMaintain normal conversations beyond caregivingEncourage outside activities and interestsHelp research support resources Tip 4: Share the Load Even from a distance, there are many ways to help manage caregiving responsibilities. Key points: Handle digital tasks remotelyCoordinate with local friends and familyCreate support networksHelp with scheduling and planning Tip 5: Participate in Care Details Get involved in both practical and legal aspects of care management. Key points: Obtain necessary legal documents earlySecure medical power of attorneyAddress privacy laws and documentationArrange financial access if neededSupport decision-making processes Tip 6: Support Through Grief Grief occurs throughout the journey, not just at its end. Key points: Acknowledge “drip grief” throughout the journeyHelp maintain connections during caregivingSupport through the final transitionAssist with post-care legal mattersBe sure to process your own grief Special Considerations When creating support systems: Develop emergency plans earlyCreate shared care plansDocument important informationKeep contact lists updatedMaintain flexibility in arrangements About Our Guest Expert This episode featured Andrew Phipps from Empathy Unbound, who shared his personal experience supporting his father as he cared for Andrew’s mother with dementia. Andrew created Empathy Unbound to promote the idea that empathy is one of our greatest superpowers — one that we often don’t recognize or use enough. As Andrew explains, “The ability to take on the experience or position of another to help understand them is invaluable. Putting ourselves in someone else’s shoes helps us understand their situation in a way we couldn’t otherwise.” You can find the Empathy Unbound podcast wherever you get your podcasts. Read More in This Blog here

"I discovered a growth on his gum that was only slightly smaller than a marble. That's when I learned dental care involves much more than just brushing teeth."   As caregivers for our loved ones with Alzheimer's and other types of dementia, we're continuously learning and adapting our care approaches. Through recent experiences, we've discovered important new aspects of dental care that we believe could help other caregivers on their journey. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned Other episodes mentioned Episode 15 here Large cell granuloma picture here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Oral swabs hereSuper soft toothbrush hereFresh Breath mouthwash here Full Show Notes here https://thecaregiversjourney.com/dental-care-update-three-new-tips-alzheimers-and-other-dementias/

When your loved one experiences delusions or hallucinations for the first time, it can be frightening and overwhelming for everyone involved. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we've learned how to navigate these challenging moments. See Full Show Notes here Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electronic medication dispensing and monitoring device for caregiver here

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often struggle with adapting activities to their changing abilities. Through our experiences, and what we’ve learned from others on their caregiving journeys, Nancy Treaster and I developed three important tips to help you create meaningful engagement that honors who our care receivers are today. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned Other The Caregiver’s Journey podcast mentioned Home Safety here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Large plastic rings child's toy that center screws into base hereAdult coloring book hereDementia friendly puzzle hereLavender lotion hereBead maze hereFidget blanket herePhoto giftsShutterfly hereMemory Cafe example here Takeaways From the moment of diagnosis, we need to shift our focus from what our care receivers used to do to what brings them joy now.  Tip 1: Adjust Our Expectations Our care receivers’ engagement and abilities change throughout their journey — even throughout each day.  Key points: Let go of ‘before’ comparisonsLet go of outcomesWatch for signs of enjoyment or frustrationPay attention to new interestsAdapt activities to current abilitiesAccept different ways of engaging Tip 2: Prioritize Their Safety As we introduce or adapt activities, safety must be a primary concern, considering both cognitive and physical abilities. Key points: Consider vision changes and depth perception challengesAdapt activities to safely maintain independenceProvide appropriate supervision and get creative in places to find itMake creative adjustments to familiar activitiesCreate support networks for safety Tip 3: Create Engaging Activities Create activities to reflect their personal history, career, hobbies and interests, while engaging their senses. Whenever possible, engage multiple senses for a deeper connection and engagement. Key points: Engage their senses:• Touch (e.g.: fidget blankets, textured items)• Sound (e.g.: familiar music, calming sounds)• Smell (e.g.: familiar scents, cooking aromas)• Sight (e.g.: colorful objects, family photos)• Movement (e.g.: seated dancing, simple exercises)Create social connections through:• Small group activities• Religious or spiritual practices• Memory cafes• Senior center programs• Family gatherings When planning activities: Observe body language for signs of engagement or distressHave backup calming activities ready if they get agitatedRemember that watching can be a form of participationConsider “drip grief” (see bottom of post for definition) — both yours and theirsBe flexible and creative in your approachAccept help from others who want to support you Read Full Blog here

"If you give me a spa certificate but no gift of time to go with it, I'll probably never use it." As friends and family of Alzheimer’s and other dementia family caregivers, we want to give meaningful gifts that will actually be used and appreciated. Through our experiences and what we've learned from others on their caregiving journeys, we've developed five important categories of gifts that truly make a difference in a caregiver's life. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Begin your self-care journey guide hereScented soap Herbaria - here Sue’s favorite popcorn hereCare support coordinationMealtrain.com hereCaringbridge.com herePhoto giftsShutterfly here

"I wish I had started monitoring my husband's medication sooner than I did." As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that medication management becomes increasingly challenging. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed four important tips to help you support your care receiver with medication management. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electronic medication dispensing and monitoring device for caregiver here

“We’ve both had ‘that’ trip — the last trip that you take when you decide we’re not traveling ever again with our care receiver. Or, as we like to say, it’s the trip after the last trip you should have taken!” We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned travel decisions require careful consideration. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you decide whether you and your care receiver should stay home or go on what could be ‘that’ trip. See Full Show Notes here  Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Fidget blanket here Takeaways Tip 1: Pre-test Travel Readiness Key points: Test longer car rides (at least an hour round trip)Try interstate driving if that will be part of your journeyExperience crowds and noise if those will be presentTest unfamiliar environmentsPay attention to any existing signs of travel difficulty. Tip 2: Evaluate All Trip Components Key points: Assess sleeping arrangements and bathroom accessibilityConsider the need for quiet spaceEvaluate support options at the destinationThink about familiarity with locationsListen to your inner voice about the decision — is this the wisest choice? Tip 3: Plan Comprehensively Key points: Minimize advance information to avoid overwhelming your care receiver.Pack comfort items: Fidget blanketsFamiliar snacksFavorite music and headphonesPhoto booksFamiliar entertainment (DVDs, etc.) 3. Plan around normal routines: Meal timesSleep scheduleBest times of day for different amounts of activity 4. Prepare for emergencies: Take IDs and insurance cardsBring extra medicationsPack legal documentsConsider anti-anxiety medication optionsShare detailed itinerary with family membersHave your emergency contact information easy to find on your care receiver and in case something happens to you. Tip 4: Prepare Others Key points: Explain current abilities and challengesProvide conversation guidanceDemonstrate proper approach techniquesGive permission for others to opt out if they’re not comfortableShow grace toward those processing their own emotions Read More in This Blog here

The moment you realize your loved one with dementia is missing, every second feels critical. While the natural instinct is to immediately begin searching, having a clear action plan can make the difference in finding them quickly and safely. Through insights from John Clark, a specialized dementia search and rescue expert in Georgia, we've compiled three essential tips for these frightening situations. Additional Resources Mentioned Georgia Emergency Search and Rescue John Clark USA 404-309-7386 carmen@georgiaemergencysearchandrescue.org Professionally Trained in Urban Searches Alzheimers, Dementia, Children, Evidence Recovery, Major Disaster Search, NASAR, Disaster Assistance Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Takeaways Tip 1: Make the Right First Move Key points: Call emergency services immediately, before starting your own searchDon't wait to make the call while searching on your ownAsk if there are dementia-specialized search teams in your areaRemember that it's okay to search after making the call Tip 2: Provide Critical Information to Searchers Key preparation points: Keep current photos readily available: Essential information to share: Recent conversations and topics they've discussedTheir maiden name or previous namesNicknames family members useCommon walking routes or regular destinationsNearby water sources (pools, ponds, lakes)Places from their past they might seek outTheir current stage in their dementia journeyRecent behaviors or patternsCurrent medications Tip 3: Know What to Expect After They're Found Standard procedures: Medical evaluation is typicalTransportation to hospital via ambulance or police carAssessment for any injuries or exposure For More Read Full Blog here Building Better Local Resources Not every community has specialized dementia search and rescue teams, but there are ways to improve local capabilities: Steps to take: Contact your local Alzheimer's Association chapterAsk about existing specialized search resourcesInquire about training opportunities for local emergency servicesAdvocate for specialized training in your communityNetwork with other caregivers to share experiences and resources Note: If you're in Georgia, specialized dementia search and rescue services are available. Contact your local emergency services or Alzheimer's Association chapter for more information.

The secret to successful holiday celebrations with our dementia care receivers isn't perfect decorations or parties—it's having a peaceful retreat space ready for them when needed. As caregivers navigating the holiday season with loved ones who have Alzheimer's and other types of dementia, we've learned that intentional planning makes all the difference. The holiday season brings additional activities, decorations, and visitors that can disrupt the routines so vital to our care receivers' well-being. Success requires careful observation, thoughtful preparation, and gradual adaptation of celebrations. Through our experiences, what we've learned from support groups, and from others on their journeys, we've developed five essential tips to help create positive holiday experiences while maintaining the calm and familiar environment your care receiver needs. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Takeaways Tip 1: Preserve Daily Routines The holidays and routines might share the same number of letters, but that's where their similarities end. While the season pulls us toward special events and gathering, we must remember that routines are the cornerstone of stability for our care receivers. These familiar patterns aren't just habits—they're vital anchors that help our loved ones navigate their days with confidence and security. Tip 2: Be Prepared With a Calm Retreat Space In the midst of holiday celebrations, having a sanctuary becomes essential. Think of this space as your loved one's personal haven—a place where the overwhelming stimuli of holiday gatherings can't reach. Just as we all need a quiet moment sometimes, our care receivers often require a calm, familiar space where they can retreat and regroup when festivities become too much. Tip 3: Set Expectations With Visitors While Also Acknowledging Their Feelings The holiday season often brings an increase in visitors, each carrying their own expectations and memories of past celebrations. While these visits can be precious opportunities for connection, they require careful management to ensure everyone's comfort—especially our care receivers. Understanding and communicating about the current reality of your loved one's condition helps create more meaningful interactions and minimize uncomfortable situations. Tip 4: Teach Visitors How To Visit Creating successful visits is about helping others understand how to connect with your care receiver in their current reality. As their ability to process information changes, the ways others can best interact with them evolves too.  Tip 5: Introduce Changes Gradually The magic of holiday decorations and traditions can quickly become overwhelming for someone with dementia. What once brought joy might now cause confusion or distress. This doesn't mean we must abandon all holiday cheer—rather, we need to be thoughtful about how we introduce these changes to our environment. Think of it as slowly turning up the dimmer switch rather than flipping on bright lights all at once.

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned eating and drinking become significant challenges. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed seven important tips to help you and your care receiver navigate dining. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned Episode 13 - Incontinence Overnight here  These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Bibs here Spork here Lowbowls hereGrippy placemats here Other great caregiver dining aid products here Takeaways Tip 1: Observe Their Natural Eating Habits Observe and record how they naturally eat and drink (e.g., time of day, order, how they cut their food, which hand they use for each utensil).Continuously observe, adjust, and share with others who are helping your care receiver with their eating and drinking.  Tip 2: Utilize Pre-made Meals and Visual Cues Leave pre-made meals in easily accessible places (e.g., eye-level in the refrigerator).Use visual cues like notes on the refrigerator or preset table settings with a note where the plate will go that tells your care receiver where the meal is.Check to make sure they have actually eaten their food and finished what they had to drink so you know if they’re able to understand what to do. Tip 3: Pre-cut Food, Adjust Portions, Observe How They’re Able to Eat and Drink Pre-cut food into manageable pieces.Consider converting sandwiches and other foods into finger foods.Be aware of changes in hand stability, grip strength, vision, and coordination.Some people with dementia diagnoses lose regulation with their appetite. It’s important for us to observe how they’re eating and the portions they’re eating to make sure they’re getting the proper amount of food. Introduce non-breakable drinkware, consider tops or adult sippy cups.  Tip 4: Prepare for Messier Eating Consider using regular bibs or large disposable bibs Place a towel on the chair to catch spills.Keep a basket of cleaning supplies (e.g. paper towels, hand wipes, table wipes) handy for quick clean-ups. Tip 5: Simplify Eating Utensils and Tableware Low bowls with a slight rim make it easier to push food onto utensilsSporks combine the functions of spoons and forks, so one utensil can be used.Grippy placemats keep plates from sliding. Tip 6: Monitor and Adjust Nutrition Watch for unexplained weight loss or gain.Consult with doctors if you notice sudden changes.If you move your care receiver to a memory care community, develop nutrition plans and weight monitoring processes and stay actively engaged with them.  Tip 7: Gradually Take Over Feeding and Hydration Position yourself closer to them at mealtimes to make assistance easier.What begins as prompting them to eat or drink and gradually increases to handing them their utensils and/or putting food on their utensils, showing them their drinking glass becomes modifying their drinking glass to make it easier for them to use, to eventually fully feeding them and controlling their beverages. Read More in This Blog here See full show notes here

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that shaving, trimming nails, brushing teeth and trimming hair - what we’re calling personal care - can become challenging. These challenges often arise around the same time as bathing and dressing difficulties. How we provide support for our loved one will vary based on whether they stay at home during their journey or move into a care community. Not surprisingly, personal care is an area where many tips can be provided!  Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four initial areas of tips to help you and your care receiver with their personal care. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electric razorFor men hereFor women hereOral swabs hereSuper soft toothbrush hereFresh Breath mouthwash hereElectric hair trimmers here Full Show Notes https://thecaregiversjourney.com/personal-care-four-essential-tips-alzheimers-and-other-dementias/ Takeaways Understanding Personal Care Challenges in Dementia Care Tip 1: Mastering the Art of Shaving Transition to an electric razor as early as possible.  Begin your support by prompting and supervising, gradually inserting yourself into the process.Try shaving when your care receiver is calm, possibly after meals or during naps.Aim to shave men's facial hair at least every other day to prevent discomfort from longer hair. For women, transition to electric razors for safety. Women also tend to become comfortable with letting their body hair grow.As early in their diagnosis as possible, get a thorough dental examination. If there is any dental work that's important to be completed, do it while they still understand and can participate.Consider transitioning to a dentist specializing in disabilities.If possible increase dental visits to every three months.Start by reminding your care receiver and supervising their tooth brushing.Gradually take over the process - for example, begin by handing them their toothbrush, transition to handing them their toothbrush with toothpaste on it, then transition to beginning to brush their teeth.Use a soft-bristled toothbrush and less toothpaste to prevent swallowing.Consider using disposable oral swabs with mouthwash for additional cleaning. Tip 4: Hair Care and Trimming Take photos of the hair style your loved one has.If they color their hair, talk about keeping it colored or letting it become their natural color.There are hair stylists who will come to your home instead of you having to go into a salon. Consider transitioning to easier-to-manage hairstyles.Learn basic haircutting techniques or ask their stylist to teach you.For women, longer hair in a soft bun might be easier than short styles.Personal care trimmers are very helpful for both men and women for eyebrows, hair in the ears and nose. Read More in This Blog here