In this episode, I chat with Jaycie right after she got back from the Dear Mom conference in southern California! Jaycie is the mom of a child with Down syndrome, and she got to take a weekend to meet with other disability parents, meet some of our fav influencers in this space, and connect. Listen to us recap, name drop, and talk about her takeaways from the conference.You can find Jaycie on Instagram @mrs.conley_213 at and on Tiktok at @jaycieconleyFollow the podcast on Tiktok, Instagram, Youtube, and Facebook @theinclusioneffect.Podcast art by Sara HastPodcast music by Cameron Cornell
Join me and guest Cameron Cornell as we discuss disability advocacy, the journey of adopting children with complex needs, and the importance of intersectional support and representation in media. Our conversation covers medical challenges, advocacy, and the joys and grief of parenting children with special needs.Find Cameron @letmeflyshow on Facebook, Instagram, and Tiktok. The GoFundMe for the production of Let Me Fly can be found here: gofundme.com/f/let-me-fly-broadway-recording-for-autism-musical/cl/o?attribution_id=sl:991af33b-d27d-4f5b-b255-e269973db3da&lang=en_US&ts=1772029277&utm_campaign=man_sharesheet_dash&utm_content=amp17_te&utm_medium=customer&utm_source=copy_linkFollow the podcast on Tiktok, Youtube, Instagram, and Facebook @theinclusioneffectPodcast music by Cameron CornellPodcast artwork by Sara Hast
This week, in honor of Rare Disease Day on February 28, I talked with a good friend and mom of a rare disease warrior, Marissa. Our conversation covers Marissa's journey with her daughter Lavender, who has been diagnosed with a rare disease called ataxia telangiectasia (AT). We delve into the challenges of diagnosis, the emotional impact on the family, the rareness of AT, community support, research efforts, and the complexity of the disease. Follow Marissa on Instagram @thelavender_path, Tiktok @the.lavender.path, and Facebook at The Lavender Path.www.atcp.orgFollow the podcast on Instagram, Tiktok, Facebook, and Youtube @theinclusioneffect.Podcast art by Sara HastPodcast music by Cameron Cornell
In this episode, I talk Ashley from Virgo Designs about the challenges and triumphs of disability advocacy, focusing on Ashley's personal journey with her son who has cerebral palsy. We dive into the importance of centering achild's needs in education, the impact of legislation on disability rights, and the role of community support. Find Ashley on Instagram at @virgo.design.atxFollow the podcast on Instagram, Tiktok, Youtube, and Facebook at @theinclusioneffectPodcast art by Sara HastPodcast intro music by Cameron Cornell
This week I talked with Sarah Robinson about the the experience of receiving a birth diagnosis of twins with Down syndrome, the dual diagnoses of Down syndrome and autism, the implementation of the Buddy Club respite program, and the creation of an inclusive church community. Follow Sarah on Instagram and Tiktok @down.with.the.robinsons, and follow the Buddy Club on Instagram and Facebook @buddyclubrespiteFollow the podcast on Instagram, Tiktok, and Facebook @theinclusioneffectIntro song produced and recorded by Cameron CornellPodcast art by Sara Hast