The Long Haul with Summer

On The Long Haul with Summer we are  amplifying patient voices, talking about groundbreaking approaches to healthcare and challenging the limits of traditional medicine.

16 Doctors Dismissed Him: Eddie's Tragic Long COVID & Vaccine Story

Eddie Balter joins Summer to share his grueling two-and-a-half-year struggle with debilitating symptoms following a COVID-19 vaccine, a journey marked by medical gaslighting where specialists repeatedly dismissed his pain as "coincidental" or unrelated. Eddie finally found hope and validation through doctors who discovered he was suffering from advanced micro clots and significant venous compressions. Learn about the vital need for patient advocacy and the life-changing impact of healthcare providers who prioritize listening to their patients over traditional dismissals this week's episode of the Long Haul with Summer.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/

12-30
01:15:28

Summer's Favorite Things for Long COVID Healing

In this special holiday episode, Summer shifts from interviewing other survivors to sharing her own personal favorite things that have aided her ongoing road to recovery. Join Summer to discover integrative healing methods, with a practical toolkit for managing physical symptoms, and learn to address the cognitive and emotional toll of the illness, with mental health strategies. You will not want to miss even one of Summer's Favorite Things!Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/

12-23
30:18

Functional Medicine, Gut Health & the Path to True Healing

When traditional medicine couldn't explain why her children were sick, Jenn Devilleneuve took matters into her own hands—launching a journey that would change her family's health and her entire career. In this episode, Jenn and Summer have an honest conversation about advocating for your health, navigating dismissal in the medical system, and discovering functional medicine as a powerful tool for healing.From food sensitivities and gut dysfunction to histamine issues, chronic inflammation, and rethinking "normal" labs, Jenn breaks down how small steps and deeper questions can finally lead to answers.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/

12-16
01:07:10

Innovating Long COVID Testing

In this episode of The Long Haul with Summer, we sit down with Mendel Fishman—entrepreneur, researcher, and long COVID patient—who is pioneering new diagnostic tools to transform how long COVID is identified and managed. Mendel shares his personal journey, the challenges of launching a biotech startup, and how innovative assays could help clinicians diagnose patients faster, more accurately, and with fewer financial burdens. We also discuss collaborations, upcoming clinical validations, and what he hopes policymakers, providers, and patients understand about the urgent need for long COVID research.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/

12-09
45:56

When Lyme and Long COVID Overlap

What happens when two misunderstood chronic illnesses collide? Today, Summer sits down with Lyme expert and nurse practitioner Carrye Hodges, who shares her powerful story of being dismissed by doctors for years before finally receiving a Lyme diagnosis. Together, they break down the striking similarities between Lyme disease and Long COVID, why standard testing so often fails patients, and how true healing requires listening, deep investigation, and collaboration.This episode also introduces a brand-new integrative program designed for patients who have both Lyme and Long COVID — an emerging group that desperately needs answers. If you’ve been gaslit, overlooked, or told “your labs are normal,” this conversation is for you.Learn more about the Microvascular Research Foundation and how you can help at https://mvresearch.org/

12-02
45:44

How One Family Rebuilt After Long COVID

On The Long Haul with Summer, we dive into real stories from real people navigating life after long COVID. In this episode, Summer sits down with Juli Carr and her daughter Sara, who open up about what happens when long COVID affects not just one person—but an entire family. From sudden fatigue and brain fog to the emotional toll of watching loved ones decline, their story reveals the fear, confusion, and ultimately the resilience that shaped their journey.Juli and Sara share how they found answers, embraced outside-the-box treatments, and supported each other through the darkest moments. They talk candidly about the risk and relief of treatment, the identity shifts that come with chronic illness, and gratitude they’ve found on the other side of healing.Join us as we explore the realities so many are still facing—and the innovative care that’s helping patients reclaim their lives.Learn more about Long COVID and how we are working to overcome it at: https://mvresearch.org/

11-25
52:13

Gaslit, Then Healed: One Journalist’s Long COVID Truth

An on-air journalist who loved working out, especially running, was left crawling on the floor in 2020. She was gaslit by multiple doctors until a Facebook post led her to Dr. Jordan Vaughn in Alabama. Triple blood thinner therapy helped her kickstart the healing process, but it was when Dr. Vaughn connected her with Dr. Brooke Spencer in Colorado where she started to find true recovery. In this episode, Jillian reveals the one mindset that kept her alive. Her nearly six-year-long fight proves it's not in your head, collaboration is key and healing is possible.

11-18
48:36

Beyond the Diagnosis: A Marathon Runner's Long COVID Journey

Lifelong athlete and five-time marathon runner Mary Ann Ragan details the shocking physical deterioration she experienced after a mild case of COVID-19. Known for climbing mountains over 20,000 feet, competitive tennis, and a 40-year workout regime, Mary Ann was suddenly unable to walk across her own yard or engage in extended cardio, and only received repeated medical dismissals when she sought answers. Tune in to hear how this formerly energetic patient, who went from running 10 miles on weekends to struggling with simple movements, uncovered the physical root cause of her ailment—vascular compression—which finally explained the drastic loss of her athletic abilities.

11-11
01:06:07

A Brave Young Pioneer: Millie's Journey Through Long COVID

This is a special episode of The Long Haul with Summer, featuring Summer's daughter, Millie, a tiny pioneer for fighting long COVID. Millie discusses her experience with the illness, including the need for inhalers, breathing treatments every two hours, and frequent trips to the hospital. Tune in to hear Millie's wisdom on why patients must be resilient and what she wishes people understood about kids who are strong and brave while living with long COVID.

11-04
18:01

Summer's Story: Navigating the Long Haul of COVID-19

Summer Powers, an adult acute nurse practitioner and host of The Long Haul, shares her powerful testimony detailing her experience working the COVID ICU front lines before she and her daughter contracted long COVID. Plagued by symptoms like pericarditis and debilitating respiratory distress, she faced intense medical gaslighting, but her fierce determination led her to challenge conventional care and find treatment based on the micro-clotting theory with Dr. Vaughn's team. Tune in to hear how Summer moved beyond guidelines to achieve healing and now advocates for other patients suffering from this misunderstood disease.

10-28
01:20:05

The Privilege of Care: Driving Clinical Innovation from the Private Sector

At the Microvascular Research Foundation we believe in listening to patient voices is the foundation of clinical discovery, especially when dealing with post-acute illnesses for which there's not a book. Our founder, Dr. Vaughn discusses how physicians must synthesize patient histories and symptoms with medical knowledge to develop hypotheses and apply interventions, often leading to crucial new insights. Join Summer for our first episode and The Long Haul.

10-21
41:44

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