DiscoverThe Lucky Few
The Lucky Few
Claim Ownership

The Lucky Few

Author: the lucky few Podcast

Subscribed: 326Played: 18,788
Share

Description

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://anchor.fm/theluckyfewpod/support
47 Episodes
Reverse
Wondering how to turn your passions into narrative-shifting movements? (So are we!) That’s why we sat down and chatted with some incredible advocates at the Down Syndrome Diagnosis Network’s Rockin’ Moms Retreat last month! What a joy it was to interview Kristie Magnuson (mother to @gabe.the.babe.and.co), Tamara Pursley of the National Down Syndrome Congress, and Sinead Quinn of Grateful Wellness Co.! We’re talking about everything from t-shirt design to educator conferences and even mental health for moms of children with special needs. Getting to know this community of rockin’ mamas is such a gift!And we’d love to get to know all of you even more next month at our live recording event! Join us for a night of conversation on how the entertainment industry is shifting the Down syndrome narrative with special guests Jamie Brewer, Jared Kozak, Gail Williamson who represents ABC’s Cole Sibus, and many more! Get your tickets here.---SHOW LINKSKeep up with Gabe the Babe and Co.InstagramFacebookWebsiteFind resources and more from the National Down Syndrome CongressInstagramFacebookWebsiteCheck out Grateful Wellness Co.InstagramFacebookWebsiteLIVE EVENT:Join us on the evening of Thursday, November 21st for a LIVE podcast recording event! We’re chatting with actors/actresses who have Down Syndrome, as well as their talent representative, Gail Williamson all about DS representation in the media! Get your tickets here.LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
“My doctor told me that my baby would have Down Syndrome and then they brought up termination, so I came home and googled Down Syndrome and adoption and you were the first thing that came up..” the beginning of countless conversations Stephanie Thompson shares with expectant parents.  A mother of a 27-year-old son with Down Syndrome herself, Stephanie has walked through those scary stages of the diagnosis process and now walks other parents through this journey. Knowing the uncertainty that accompanies most diagnoses, and the desire of many to parent a child with Down Syndrome, Stephanie created the National Down Syndrome Adoption Network. The NDSAN provides support, education, and counseling to parents expecting a baby with Down Syndrome. Most importantly, they provide options, including adoption. Mercedes and her family are among the many who have connected to their child through the NDSAN’s free services. Thanks to Stephanie’s counseling and guidance 6 years ago, Mercedes and her husband Andy became parents to Sunny.Today, we are so excited to interview Stephanie Thompson and share more information about the National Down Syndrome Adoption Network! Join us for a fun conversation with an extraordinary narrative shifter and don’t forget to keep shouting the worth of people with Down Syndrome wherever you go!___SHOW LINKSConnect with the Down Syndrome Adoption Network:WebsiteFacebookInstagramDonateLIVE EVENT:Join us on the evening of Thursday, November 21st for a LIVE podcast recording event! We’re chatting with actors/actresses who have Down Syndrome, as well as their talent representative, Gail Williamson all about DS representation in the media! Get your tickets here.SHOW SPONSOR: QRI (Quantum Reflex Integration)QRI empowers individuals to reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package.LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
Last month, we went to DSDN’s Rockin’ Mom Retreat in Nashville, Tennessee and partied with over 700 moms who have kiddos with Down Syndrome. And we even sat down to interview a few.. including Carissa Carroll, the founder and president of Jack’s Basket! This mother of three children (one of whom rocks an extra chromosome!) learned the hard way that a Down Syndrome diagnosis is not often met with a “Congratulations!” And so, she took matters into her own hands and created Jack’s Basket, a nonprofit organization that hand delivers complimentary gift baskets to families with a new DS diagnosis. Not only has Carissa changed the diagnosis experience for over 1,700 families in 11 different countries, she has developed educational resources for the medical professionals delivering the diagnosis.We cannot wait to tell you more about Carissa and her extraordinary efforts to shout the worth of babies with Down Syndrome. Join us throughout October as we celebrate Down Syndrome Awareness month with more interviews from amazing advocates in this community.__Visit jacksbasket.org for more information on this incredible organization!Follow Jack’s Basket on Instagram and Facebook!UPCOMING:Stay tuned for a super special live event announcement from us! All you need to know right now is that you’ll want to be there, (oh and it’s happening in November!)Find a Buddy Walk near you to celebrate Down Syndrome Awareness Month in October!SHOW SPONSOR: BEHNOGuided by ethical principles and sustainability, Behno is a NYC fashion brand that creates beautiful and quality products, including the ‘Nini’ tote to support NDSS! Purchase a tote (or two) and use code: NDSS at checkout to receive a complimentary Tara cardholder, valued at $75.SHOW SPONSOR: QRI (Quantum Reflex Integration)QRI empowers individuals to reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package.LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
We’re all hoping for great friends for our kiddos, right? And as parents of kids with Down Syndrome, we might be hoping for those great friends even more than most. That’s why we are so excited to talk to you all about Best Buddies, an international non-profit organization that focuses on creating meaningful, one on one, friendships between students with and without different abilities. Here today to tell us all about the program and share their amazing friendship story is (our co-producer) Val Schlieder & her sister, Allison Covell. Starting out as high schoolers in the program and then eventually going on to co-launch their own college group, both ladies have been involved with Best Buddies for nearly 10 years! This set of sisters credits Best Buddies for introducing them to the Down Syndrome community and their best friend/sister, Linzey! Because of what they learned about inclusive friendships, they’re now strong advocates in the differently-abled world, both online and off! You can follow @linzeyslight on Instagram for all things dancing, adults with Down Syndrome, friendship, & more!So friends, join us as we answer your questions about all things inclusive friendship and Best Buddies! How can parents of kids without different abilities encourage their children to have inclusive friendships? How can we make sure students value friendships with their peers who have different abilities? And, how can you join or start a Best Buddies program at your school?__SHOW LINKSFind out more about Best Buddies and how to join (or start) a program near you!Keep up with today’s guests on Instagram: @linzeyslightWatch Val’s “In Search Of The Lucky Few” video here.Curious about the AAC (augmented alternative communication) device Micha mentioned? Check it out here!SHOW SPONSOR: BEHNOGuided by ethical principles and sustainability, Behno is a NYC fashion brand that creates beautiful and quality products, including the ‘Nini’ tote to support NDSS! Purchase a tote (or two) and use code: NDSS at checkout to receive a complimentary Tara cardholder, valued at $75.SHOW SPONSOR: QRI (Quantum Reflex Integration)QRI empowers individuals to reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package.LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
The National Down Syndrome Society (NDSS) gave his family hope when his sister was born, and now he’s giving it right back. Friends, meet Shivam Punjya, the founder of Behno and the brother of Nini, his younger sister with Down Syndrome. Although his beautiful NYC brand of ethically designed handbags started out with goals to increase sustainability and support workers in India, Shivam’s most recent outreach efforts include a cause that’s pretty close to our own hearts.. The Nini Collection! That’s right, he made fashionable, quality handbags accessible to his sister, Nini, and anyone else who might benefit from a rounded zipper and bigger storage space! We love functional fashion, but we love Behno’s collaboration with NDSS even more!  That’s because 20% of every purchase of a ‘Nini’ tote goes straight to NDSS. Check out this extraordinary partnership and join us for an interview with it’s creator, Shivam!  We’re chatting about all things related to having a sibling with Down Syndrome: perspective shifts, family dynamics, sibling rivalries, and more!__SHOW LINKSSupport Behno and NDSS by purchasing the ‘Nini’ tote! 20% of sales go straight to NDSS. Shop here.UPCOMING:Stay tuned for a super special live event announcement from us! All you need to know right now is that you’ll want to be there, (oh and it’s happening in November!)Find a Buddy Walk near you to celebrate Down Syndrome Awareness Month in October!SHOW SPONSOR: BEHNOGuided by ethical principles and sustainability, Behno is a NYC fashion brand that creates beautiful and quality products, including the ‘Nini’ tote to support NDSS! Purchase a tote (or two) and use code: NDSS at checkout to receive a complimentary Tara cardholder, valued at $75.SHOW SPONSOR: QRI (Quantum Reflex Integration)QRI helps individuals reach their potential by strengthening neurological connections through cold laser and reflex integration! Head to reflexintegration.net and use code: QRILuckyFew for a FREE QRI Computer Harmonizer valued at $159 with the purchase of an Essentials Package.LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
Another week back to school and we feel all kinds of grateful for the amazing teachers in our lives who literally make learning happen for our kiddos every single day.  Teachers, we’re here to say that we see you, we love you, and we appreciate you!  That’s why today we’re answering questions from you dear listeners about how teachers can modify their classrooms, advocate for all of their students, and become lifelong learners in the process!  Because let’s face it, we ALL have some learning to do, we ALL have some listening to do, and we ALL have some believing-the-best-in-every-student to do!  It’s time to partner with teachers to counter a system that is not in place to support our kiddos with different abilities so we can watch our kids (and their peers!) grow!So friends, join us for a chat about some of the most important adults in our kids' lives, all the ways you can partner with your child’s teacher, and what Heather wishes she knew when she was an educator.  Oh, and we may or may not have a special live event announcement coming your way soon, stay tuned!__SHOW LINKSStay tuned for a super special live event announcement from us! All you need to know right now is that you’ll want to be there, (oh and it’s happening in November!)Find a Buddy Walk near you to celebrate Down Syndrome Awareness Month in October!LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
Anyone else feel overwhelmed and under-qualified when the back to school season begins?!  We know we do! But here’s the thing: when it comes to your child’s education, YOU DO YOU.  If you doing you means homeschooling, great!  If it means a fully inclusive general education setting, great!  If it means a special education class setting, great!  This week we’re here to say that we are cheering for you and your child with Down Syndrome at school, at home, and in every space you occupy.  Because when it comes down to it, choosing the “perfect” (if there is such a thing) classroom for your child with Down Syndrome depends on so much more than meets the eye.  We get it, family dynamics shift.  School districts have limited options.  Working parents need to have their kids in school full time.  Accessing the resources to advocate for full inclusion is challenging.  Most education systems are not built for kids with different abilities.  The list goes on, friends.Long story short, we’re all doing the best with what we know.  We’re not all going to die on the same education hill.  In fact, we’re all on different hills supporting our kids and this community the best that we can.  Truth be told, people with Down Syndrome (and all of us!) are lifelong learners.  Remember that we can shout the worth of our kiddos from any platform, in every classroom!  Join us for a chat about all the education options, why we have chosen our paths, and how to feel good about your decisions for your child!  Here’s to lifelong learning, friends!__SHOW LINKSRead “Teaching Math to People With Down Syndrome” by DeAnna HorstmeierCheck out Terry Brown’s So Happy To Learn educational resources for students with Down SyndromeWatch “Not Special Needs” on YoutubeLET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
It’s official friends, we are back to school.. and we are taking you all with us!  First things first, let’s talk IEPs with the founders of The Inclusive Education Project: Amanda Selogie and Vickie Brett.  These two bright and beautiful lawyers use their extensive knowledge of education law and their passion for people with different abilities to educate families on special education rights and connect them with pro bono legal aid.  And fortunately for us, they’re sharing their top IEP tips and strategies today!  They encourage all of you parents to follow up (in writing) about post-IEP-meeting tasks, provide clear expectations, and create (reasonable) deadlines for everyone on your child’s team.  And remember, if something in the classroom is happening differently for your child than all the other students, it needs to be on the IEP.There is truly no better way to kick off our September Back to School series than with Amanda, Vickie, and their nonprofit - The Inclusive Education Project.  And friends, you can keep the IEP conversation going.. find all the special education information you need and more on Amanda and Vickie’s podcast!  Good luck with all of your back-to-school adventures!  We are cheering you on, friends!___SHOW LINKSConnect with Inclusive Education ProjectWebsiteIEP PodcastInstagramTwitterFacebook PageFacebook Community Group Fundraiser EventLET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!CHECK OUT HEATHER’S NEW BOOKScoot Over and Make Some Room: Creating a Space Where Everyone Belongs by Heather Avis is NOW available on Amazon.Head to Youtube and subscribe to The Lucky Few’s NEW Channel: In Search of The Lucky Few. Click here to start watching now!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
This week on The Lucky Few Podcast, we are remembering James Eugene Lanto, better known as Jimbo, and even better known as Jimbo_Is_The_Man on Instagram.  Oh friends, where do we begin?  How do we honor such a valued life and such an important part of this community?  You see, for many of us in the online Down Syndrome world, Jimbo’s Instagram account was the first glimpse of what an adult life could look like for our little ones with extra chromosomes.  Jimbo’s spirit seen through those little squares on our phones gave us immense hope and great joy for our child’s future.  And for those of us who have other children without Down Syndrome, the loving action of Jimbo’s sisters erased our fears that our children’s siblings might one day grow bitter or resentful against their brother or sister with Down Syndrome.  In the eyes of Jimbo’s sisters (and all of his 10 other siblings), Jimbo was more than enough just as he was, never a burden, and always a blessing.So friends, you know that Jimbo truly is the man, and his life deserves a celebration.  Who better to honor Jimbo than his sisters?  (Again!)  That’s right, we are re-releasing a very special episode featuring two of Jimbo’s sisters, Pam and Julie, that our long time listeners might recall as only our 2nd official episode of this podcast!  You see, Jimbo truly has been part of our journey since the very beginning.  We want to thank Jimbo’s entire family, especially his wonderful sisters, for sharing their light and truth with us.  You’ve given us hope and joy like no other.  And Jimbo, you did more for this world in 57 years than most could do with 500.  We are so lucky to have crossed paths with you and your family.  You truly make us #TheLuckyFew._SHOW LINKSRemember Jimbo on Instagram: @jimbo_is_the_manCare to listen (or re-listen) to some of our older episodes? You can find them all here.LET’S CHATEmail hello@theluckyfewpodcast.com with your questions and Good News for future episodes.HELP US SHIFT THE NARRATIVEInterested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
Do you want to help us shift the Down Syndrome narrative in a super practical and very simple way?  Then this is the episode for you!We talk a lot about how doctors deliver a Down Syndrome diagnosis on this podcast, but we've never discussed doctors and diagnoses and DS with actual medical researchers!  Meg Wilkes and Stephanie Meredith are literally shifting the diagnosis narrative through their research.  Meg is pursuing a masters degree in genetic counseling at the University of South Carolina and her thesis is on: ‘Redefining the Essential Informational Needs of Parents Receiving a Diagnosis of Down Syndrome.’  Stephanie is the medical outreach director at the University of Kentucky who is overseeing Meg’s research, and her 19-year-old son has Down Syndrome!  Thankfully, this dynamic medical duo knows that a newborn with DS has a lot more than health issues and doctors appointments ahead of them, and that’s why they’ve created a survey for all of you!  Parents of children with Down Syndrome, you’re invited to tell Meg all about your diagnosis experience:  what you needed to know, what you did not need to know, and what you wish you knew!  Take the 10-15 minute survey, tell a friend (or 10), and help us redefine the Down Syndrome diagnosis. It’s time to bridge the gap between the matter-of-fact-scary-medical stuff that the doctors warn you about, and the wonderful-life-giving-hopeful stuff that social media advocates promise!  So join us for and our fabulous guests as we chat about the research that will challenge doctors to rethink the Down Syndrome diagnosis.  Then, share your thoughts by taking Meg’s survey!__SHOW LINKSSurvey for ParentsSurvey for Genetic CounselorsStephanie is the author of the materials on lettercase.org as well as the co-author of the books on downsyndromepregnancy.org. Stephanie is also a contributer to Amy Julia Becker’s blog, you can read her post here.  And most recently, she wrote for Think Inclusive.SHOW SPONSOR: PRIDE SOCKSPride Socks empowers wearers to be proud of who they are! They also collaborate with Ruby’s Rainbow to help send individuals w/Down Syndrome to college! That’s right, a great product with a great goal! Visit https://pridesocks.com/ and use code: theluckyfew at checkout for 15% off your purchase!--- Send in a voice message: https://anchor.fm/theluckyfewpod/messageSupport this podcast: https://anchor.fm/theluckyfewpod/support
loading
Comments 
loading
Download from Google Play
Download from App Store