The Threads of Life

Trish O'Dwyer primarily solo hosts an informal, 20-30 minutes, once monthly podcast for parents of autistic and/or neurodiverse children (all ages), their families and friends plus anyone wanting to understand what it's really like and how to support. The aim is for listeners to be able to take a breather, listen to someone they connect with, who knows what they are living and to feel validated and less isolated. I hope you laugh, you may cry, you may even gain some valuable real-life information and help. Above all, you will know that you are supported and that you are not alone. It is story telling in an honest & uplifting way, purely from the perspective of a parent who is learning on the go and making mistakes every day. I am parent to a wonderful nonspeaking autistic and adhd boy called Henry plus his two siblings Ben (adhd) and Abi. Topics to be talked about in a wholly non-academic fashion will be things like beginnings and diagnosis; meeting needs; judgement; relationships; transitions; regulation; sleep & sleep deprivation; literal minds; real autism awareness & general family life - teens, holidays, ageing, the works! Take this time for yourself and enjoy. Let’s keep the conversations going.

Guest Harriet Carter and her new SEN School

#1 Summary:Introducing Harriet Carter and telling the story of how we met. Harriet is opening her own new SEN primary school near Maidstone in Kent, UK in September 2025 and will be introducing Spelling to Communicate (S2C). Harriet has been in education for over 20 years, has a non speaking nephew Lenny and has spent the best of five years acquiring a site, finding investors and planning her new school called Earley Springs. We talk about her journey, some of the hardships and triumphs, why the name, S2C and looking ahead. #2 Guest:Harriet Carter - Owner, Founder and Head Teacher of Earley Springs.#3 Time Stamps:0:00 Intro - Starting Conversations, how Harriet and |I met and introducing her.4:26 Harriet tells us her personal and professional story about why she is opening this new school.7:05 Every day is a school day!8:27 Inspired by her Auntie and nephew hence the school name.10:15 SEN Schools where set up by parents, families, relatives with a connection who actually know what to provide.11:08 School name and logo + vision for the school.12:10 Top Tips. 3 Highs. 3 Challenges.14:13 The London Marathon! 17:45 Harriet's absolute dream and the curriculum.23:36 A blueprint for other parents/individuals do the same.25:00 Spelling to Communicate / S2C.34:43 Why I'm excited - the whole communication approach.36:17 True inclusion starts with presuming competence and knowing that children and adults want to and can learn.37:11 Open Day 9 August 1-3pm. All welcome.#4 Bullet Points:How Harriet and I met and who she is + what she is doing.Setting up her own school from scratch - SEN Primary.Why; behind the name; Highs and lows.The broken system and how great the need is.School BlueprintsS2C - Harriet's experience coming to observe a session of mine.Whole communication approach.OPEN DAY 9 AUGUST 2025 1-3PM.#5 External References and Links: see below #6 Calls to Action: N/A#7 Social Media:fb - Earley Springs #8 Next Episode: tbc

08-05
38:22

Common Themes on the Parent Plight

#1 SummaryTrying to tactfully (and probably not successfully) put it out there that non speaking, minimally and unreliably speaking autism is not quite the same journey as other autism or neurodivergent journeys and the therapies, schools and health care do therefore not always work as well, at all, or in the same way. There are so many commoin themes of wha tparents do to try and get their chiuldren and adults the help they need so this episode is dedicated ot sharing those, having alaugh over things tried and trying help others get honest, real advice on what pwrks, what doesn't, how and why. When all th ewhile each individual is unique and different.#2 Guest n/a#3 Time Stamps:0:00 Intro - see summary above and starting with diagnosis4:10 Do what works for you, your child and your family6:27 Speech and Language + Occupational Therapy11:42 There is nothing you should be doing, don't panic.12:09 Diet and nutrition16:37 What our children are17:24 Why do S2C - the importance of and basic right to communication19:35 Sleep onset issues23:45 adhd meds 25:20 anti anxiety meds25:56 Back to S2C. It works. New School coming soon and using S2C!28:15 Finding the right school#4 Bullet Points: Common ThemesDiagnosisSlT and OT intervention and therapyDietS2CSleepMedsSchools#5 Calls to Action:Early/mid roll - newsletterMid+ roll - Guest episode coming soon re new S2C using school!End roll - thank you re podcast#6 Links and References: n/a7# Social media: n/a#8 Next Episode:Harriet Carter of Earley Springs - new SEN primary opening in Kent Sept 2025

07-23
35:57

My Journey with Spelling to Communicate S2C - PART C

#1 SummaryMy non-speaking son Henry, now 14 and I are up on the 26 letter-board now that is hugely exciting and also challenging - a bit like starting all over again. And episode sharing our tirals and tribulations with being a parent CRP (co-regulation partner) and some tips and wisdom that have been passed on to me as a Practitioner now from the one and only Elizabeth Vosseller (EV) and her equally amazing counterpart Anna Lechleiter of Palz Ireland.#2 Guest: N/A#3 Time Stamps:0:00 Intro to Episode. 1:43 How practice is going at home and being up on the 26. 4:57 Toggling. 8:00 Mispokes and 3 board foundations.9:22 The excitement and experience of semi-opens, prior knowledge and even open questions.10:45 Encouragement, emotions and expectations.13:30 The Motor vs Cognitive balance i.e. seesaw.16:36 Reassurances and being cool!20:29 Windows into their personalities.22:07 Not assuming we know what they are thinking and feeling by looking at their bodies.24:15 Working through dysregulation and being the mailmen/women.#4 Main PointsPractice - resonating with parents.Toggling up/down on the 26 stencil.Mispokes/Typos.3 board foundationsSemi-opens and opens!Motor v Cognitive balance.Reassurance and encouragement.Not reading into what their bodies are doing.Being mailmen/women.#5 References: see below for details on I=ASC (International Association for Spelling as Communication or S2C) and Anna at Palz Ireland.#6 Calls to Action:pre-roll: welcome and thank youmid-roll: i-ascend-roll: inviting guests and how to become a practitioner#7 Social media n/a#8 Next Episode tbc

05-29
33:03

Lets Talk Travelling

#1 SummaryAn episode for those of you who live the same life as we do i.e. with neurodivergent and SEN children, to resonate with, feel validated by, laugh at and know you are not alone when it comes to travelling. And for others listening to know our struggles, become aware and help us change attitudes. Encompassing all things travel related from walking to the local shops, to cars; buses; trains, and planes. Even pushchairs! No boats though.#2 Guest: N/A#3 Time Stamps:0:00 Intro to Episode.2:14 The baby and the pushchair.5:45 These are some of the hardest moments.6:52 The post toddler and the pushchair!8:59 Public transport and hyper vigilance - walking, buses, trains.15:14 Disabled Parking Badges.19:08 Public toilets.23:26 Flying.34:24 If you never want to brave flying, that's fine.37:50 The balance.#4 Main PointsMoments and times when it's the most difficult for parents/carers.Walks, Pushchairs, cars, buses, trains.Road safety.Flying.Balance and being ok with your choices.#5 References: see below for details on I=ASC (International Association for Spelling as Communication or S2C)#6 Calls to Action:pre-roll: free 30 min episodes to please sharemid-roll: my webpage + newsletter + blogs#7 Social media n/a#8 Next Episode tbc

04-06
39:46

S2C Lesson Writing with Guest Helen Adderley

#1 SummaryAn hour long episode with guest Helen Adderley who is so charming and intelligent and joy to chat with. Helen talks us through her own personal journey with her son Phil, becoming a Spell2Communicate Practitioner and most importantly about her book of lessons for non speaking, minimally and unreliably speaking individuals learning to spell to communicate plus how to write a good lesson. it is relevant to all Practitioners, Practitioners in Training (PITs) and parents and CRP's (co-regulation partners).#2 Guest: Helen Adderley#3 Time Stamps:0:00 Intro to Episode.2:30 Introducing Helen Adderley and how her and I met.4:28 Helen and her son Phil's journey/story- PECS, Signing.9:43 Finding S2C and training to become a Practitioner.18:53 Why the lesson is so important: boredom. flow. momentum.24:23 Categorisation = Age Appropriate. Follow the flow with your questions (multicoloured).25:23 Spellers want to learn. keep it interesting, conversational. Take note of day to day things that interest or fascinate you + any of your own experiences, memories, passions.27:04 There must be a mutual respect. A lesson as Elizabeth Vosseller says is.."an invitation to have a conversation".28:15 Helen's 7 Top Tips for Lesson Writing.46:12 Helen's Book: "British -Themed S2C Lessons" is available on Amazon and is for older/adult spellers. All proceeds are being donated to the non-profit organisation I-ASC (International Association for Spelling as Communication).#4 Main PointsHelen and her son's Phil's backstoriesWhy a good lesson is importantTop Tips for parents, PITs, CRP's, PractitionersHelen's book and where to buy itWhat's next...new book for younger spellers in collaboration wiht me/Trish O'Dwyer.#5 References If you live in the North Wales area and are looking for a certified S2C Practitioner for your non-speaking, minimally or unreliably speaking child/adult please contact either Helen Adderley helenadderley@stocuk.com or Iwona Koza Iwonakoza25@gmail.com#6 Calls to Action n/a#7 Social media n/a#8 Next Episode tbc

02-27
01:01:57

adhd Parenting - the day to day woes

#1 SummaryAs much as we love and embrace our neurodivergent children, raising them is challenging and often leaves us feeling as though we are going round in circles. An honest look at parenting my own two sons and their adhd, one being 13 and non-speaking autistic, the other 21 and at home having dropped out of uni. Sharing the woes experienced with diagnosis; impulsivity in the brain; medication; executive function; disassociation, demand avoidance. #2 Guest n/a#3 Time Stamps0:00 Intro1:25 personal family history on 3 x adhd diagnoses in my two sons and daughter.2:16 Diagnosis and meds for a non-speaking autistic 8yr old7:20 Separating the autism from the adhd8:39 The 21 year old's story of adhd10:54 The day to day woes13:56 Executive function17:06 Disassociation18:31 Demand avoidance21:04 we are both learning, I am learning to not expect a neurotypical journey and to work with who my child is and what he can actually do. 22:44 Extra time in exams whine!#4 Main Pointsfamily history on adhd and diagnosingmeds day to day woes as a parentexecutive function; disassociation; demand avoidancelearning to do better as a parentwrap up with some positivity#5 References n/a#6 Calls to Actionpre-roll: thanks and share#7 Social media n/a#8 Next Episode tbc

01-24
26:51

Going Residential

#1 Even thinking about your child potentially needing a residential placement is traumatic and gut wrenching so actually sending them is the hardest decision families can make. A personal episode to raise awareness, to help the decision making process for parents/carers and to rid the stigma of what people assume it is. #2 Guest N/A#3 Time Stamps00:00 Intro and 3 reasons why I am recording this episode.2:00 Learning form our own neurodivergent children and adults.4:30 Being done with the guilt and shame of having my child in a part residential school.5:05 What others assume.6:25 What the truth is and how incredible these schools and their staff are.8:33 Our experience and the benefit to our son and family.9:32 The impact (on me) and where our son is at now 2.5 yrs on.18:21 Support for parents/carers making a decision on a residential school.#4 Summaryawareness, help in decision making, shutting the naysayers updo not judgewhat others assumethe truth - residential schools (good ones)our sons progress and the benefits to him and the familysupport, encouragement and validation for parents/carers#5 Calls to ActionPre-roll: thanks to listeners and recent statsMid-roll: n/aEnd-roll: n/a#6 References/LinksN/A#7 Social mediaN/A#8 Next Episode - tbc

11-29
27:37

My Journey with Spelling to Communicate S2C - Part B

#1 Continuing the S2C journey with my son Henry who is 13, non-speaking autistic and adhd. He is learning to point to letters of the alphabet on stencils to answer questions from age appropriate lessons and I am learning to become his co-regulation partner (CRP) on the stencils/boards. It is a long journey that takes an enormous amount of commitment. It is fraught with inconsistencies and frustrations, takes many people to be invested in it, heaps of belief and the determination to never give up. But what could be more important right? It will eventually lead to Henry being able to spell out his own thoughts and ideas giving him not only access to communication at last but agency and autonomy too. How incredible and how exciting. #2 Guest N/A#3 Time Stamps0:00 Intro to episode and Part A recap.1:00 What S2C sessions look like and involve.3:13 Becoming a co-regulation partner (CRP).9:30 What your practitioner will teach you the parent about: speech vs language; types of motor; presuming competence; the boards/stencils and how to use.14:35 Paradigm shifts to make as a parent. 19:35 What is least dangerous assumption you could make?20:57 Where I am at with Henry so far and how it has gone during the past 9 months or so.#4 SummaryPart A recapBecoming a CRPLearning about elements of S2C: speech v language; motor; competence; boardsParadigm shifts to makeWhere Henry and I are at in our journey now after 9 months or so#5 References/Links/Books:see links below#6 Calls to Actionmid-roll: my monthly newsletter on www.thethreadsoflife.co.uk#7 Social Mediasee @_thethreadsoflife_#8 Next EpisodeNovember and tbc

10-29
33:28

What Does Progress Look Like?

#1 Taking a look at what progress actually looks like for parents of neurodivergent children and adults. How their progress is typically measured. They are growing and developing all the time regardless. A brief look into Apraxia for nonspeaking individuals. Recognising that it's can't not won't; believing it gets better by just being there for them and learning every day. Learning to recognise, acknowledge and celebrate the wins, even what to others may seem tiny or insignificant. #2 Guest: N/A#3 Time Stamps:0:00 Intro0:13 Neurodivergent children are measured against what neurotypical children their same age can do. Not fair or appropriate.1:14 No-one in education is harnessing the potential of the ND mind or even being curious.3:25 The environment you place them and their amazing brains in is key.5:00 Nonspeaking, minimally or unreliably speaking individuals and Apraxia6:35 There is no look to listening or to intelligence10:07 Using my son as reference for and naming examples of - me reaching out to parents and their children/adults who are really struggling right now.16:12 There is model or previous generation experience or anything even from most of our parents on how to support and raise an ND child. 18:30 It gets better! It does. Example - sleep.21:38 The water trick and recognise, acknowledge and celebrate the tiny wins. They are actually BIG wins. #4 Summaryneurodivergent minds are simply brains that work in a range of different ways.How ND children's progress is typically measured in education.Apraxia, the brain v body disconnectThere is no look to intelligence or to listening.Reference to and examples of what progress looks like in my own son Henry who is nonspeaking, autistic and adhd.There is no guide or support for parents.It does get better, there IS progress, they do grow up.Recognise, acknowledge and celebrate the tiny wins, they are what progress looks like and they are huge!#5 Calls to ActionPre-roll: My Journey with S2C episode mention.Mid-roll: Uniquely Human Podcast.End-roll: none#6 References/LinksNone#7 Social mediaN/A#8 Next Episodetbc

09-20
27:26

Neurodiversity, the Basics including Abelism & Inclusion

#1 These days we are all largely aware of neurodiversity and roughly what it entails but, how would you describe or define it to someone? What exactly is it in average person speak and what's important about it? Who does it include? Going on to talk about abelism and inclusion and what an inclusive classroom should look like starting with presuming competence in all students. #2 Guest N/A#3 Time Stamps0:00 Intro2:05 Advocacy; Identity First Language and Disability.5:20 The Neurodiversity model of Disability.6:42 What neurodiversity is not.8:18 Abelism, what is it?10:53 We are ALL as human beings co-dependent.13:49 Myths about non speaking autistic individuals.17:35 Inclusion.#4Intro and where I have learned about neurodiversity, abelism and inclusion from.Advocacy, Identity first language; Disability models.What is neurodiversity, abelism and inclusion + what they are not.Analogies to help us understand and relate to.Myths about non speaking autistic individualsSpelling 2 CommunicateQuotes and references#5 Calls to Actionpre-roll: webpagemid-roll: thank you re podcast listens and please shareend-roll: newsletter sign-up#6 References.Quotes:Neurodiversity - Judi Singer; Steve Silberman (author of Neurotribes book); Thomas Armstrong.Inclusion - Miller & Katz 2002; Newton 2017; Cheryl Jorgensen.#7 Social mediaN/A#8 Next EpisodeWhat does Progress Look Like?

07-25
24:53

My Journey with Spelling to Communicate S2C - Part A

#1 Part A of my journey with my non speaking son Henry age 13 and S2C - Spelling to Communicate. Where it began and how I find out about it; understanding presuming competence and that it his body he cannot control well (including the eyes) in purposeful motor movement. Our first sessions and being introduced to a practitioner and the stencil alphabet boards. #2 N/A#3 Time Stamps:0:00 Intro1:50 Where it all began/how I found out about 2:56 Tit bit - put yourself out there, take the plunge, it's a journey4:14 Meeting Emma Bond (and her son George)5:00 Act for Autism - Tessa and Jane, Warwickshire (+ their book)6:17 S2C - A personal story in a book called "Underestimated". So, what is it?10:26 Elizabeth Vossellor (EV), Founder of S2C and evidence based methodology12:13 Meeting EV and Anna Lechleiter of Palz Ireland, in London13:30 Session 1 - not good15:45 Hope and skepticism + Session 219:30 Disappointment21:53 Re-start: Take 223:08 Parent Cohort#4How I found out about S2CThe Book called "Underestimated"The website and founder Elizabeth VossellorGoing into London for 5 sessions over 3 daysStepping away and returning#5 See links below#6 Calls to Action:End-roll: website, social media, newsletter, podcasts#7 N/A#8 Next episode - tbc#4

06-21
25:54

Our Children Can be Happy and They are Lovely Humans

#1 A look into how often others/society makes assumptions about neurodivergent and/or disabled people's intelligence just by what they see. having heard about the children/adults and their parents struggles the assumption is that they are always miserable and struggling and a real challenge for their parents, as if there is no joy. What is presuming competence and the true meaning of inclusion, all in Mum/S2C Practitioner-speak!#2 Guest N/A#3 0:00 Intro/Welcome, I'm back2:51 Today's episode 2:51 The assumption by others/people/friends you know that our autistic and/or neurodivergent children are always struggling and unhappy and that it is an exhausting all day every day challenge for parents.10:15 There is always a unique personality with interesting thoughts and ideas in every neurodivergent or disabled person you meet.11:06 What is presuming competence? 12:57 Definition - Cheryl Jorgensen 200515:57 Speaking age appropriately to my autistic non speaking son Henry20:53 Podcast - follow - review - share. Thank you.23:58 The true meaning of inclusion 25:15 Interested in S2C? Have a look at www.i-asc.org#4Assuming and judging others intelligence by what we seeAll neurodivergent people have unique personalities with their own thoughts and ideas and they are most often fascinating, interesting, humorous, lovely, lovely people. Be curious.Presuming CompetenceSpeaking age appropriately to disabled peopleThe true meaning of inclusionInterested in S2C?#5 Calls to ActionPre-roll: web pageMid-roll: podcast follow/review/shareEnd-roll: look up I-ASC#6 Next Episode - tbc

05-24
26:34

My Guest Tracy on NVR, PDA and a new venture

#1 A good hour long episode chatting to Tracy; how we met; Tracy's background as an OT; her PDA (pathological demand avoidance) and autistic son Jack; their family; discovering NVR (Non Violent Resistance) and a new family venture called 'Aspects Together'!#2 Tracy Weiner#3 Time Stamps:0:00 Intro to this episode and Tracy, how we met and Tracy's journey6:35 Why is my child not coping? What is wrong with my parenting? Discovering PDA and getting no support.15:08 "It's can't not won't" and "meet their storm with your calm"16:40 NVR - non violent resistance, a theraputic parenting program through CAMHS32:08 PDA Tops Tips45:35 'Aspects Together' - new venture with husband Mark - see fb page52:13 A story about my Dad and being a carpenter...link to men's mental health and the woodworking workshop at 'Aspects Together'57:27 a long and positive and uplifting round-up#4 SummaryIntroducing Tracy, her OT background and familyPDA - the journey and top three tipsNVR - a pivotal part of Tracy's journey so much so that she is now a registered practitioner. Tracy's new venture with her husband Mark called 'Aspects Together'#6 N/A#7 PDA Society; NVR and Aspects Together + Blinkvist - see research links#8 Next Episode :Neurodiverse people can be happy and are wonderful human beings.

03-23
01:05:44

In the home with neurodiverse children 24 hours at a time

#1 This is not an episode on bad parenting or bad children, its an episode why we feel like bad parents and why our autistic and/or adhd and/or neurodiverse children are often made to feel this way. How us parents wish someone could come into our homes and simply observe and offer helpful advice on how to make getting through each 24 hr cycle easier + have someone who actually can witness and believe us and our children. Why its a challenge every single day and what a quick run through of 24 hours in the home is like.#2 Guest N/A#3 Time Stamps:0:45 Intro to this episode1:00 feeling like a bad parent2:37 who is there for the parent for those 12-16 hours every day?2:57 what we wish we had...someone actually come into our home to observe3:30 someone to believe us and believe our children6:00 my experience with this actually happening for me and the difference it made8:30 rant about social service11:39 Friends or relatives or 1:1's or ta's etc wanting to know what its actually like and how to help14:57 can't NOT won't17:00 The 24 hours!#4 Summaryfeeling like a bad parentwhat we parents wish someone would do for uswhy social services does not work for neurodiverse familiesour autistic and/or adhd and/or neurodiverse are not bad or difficult, just different and with unique sensory challengeswhat a 24 hour cycle can be likehow to be a better friend or relative and helpyou are not alone, your child will be okSpellX event online. Free!#6 Calls to Action:Pre - roll: I am 20 episodes in...thank you for your listens and shares and followsMid-roll: newsletter sign up via website and how to find it quicklyEnd roll: The free online SpellX event#7 SpellX - see research links#8 next Episode- tbc

02-23
26:19

Food Wars - autism, adhd, spd, the neurodiverse

#1 Food wars vs food relationships and the battle with their sensory systems that are constantly changing. There is so much more going on than just the food. It's different to the neuro-typical journey of fussy or picky eaters. My own experiences and advice from having raising a now 20 yr old son who is adhd plus my youngest Henry who is on speaking, autistic and adhd, age 12. They do grow and develop and their eating habits, relationships with food and mealtimes do get better. Look to professionals (nutritionists, dietitians etc)who are autistic themselves and/or actually live the autism journey as parents for the right advice e.g Yaffi Lvova.#2 GUEST: N/A#3 0:00 Intro0:48 'food wars' should really be 'food relationships'1:37 It's not war against the child, its against their sensory systems2:00 Its not just about the food4:04 what's especially tough for parents5:31 my own experiences and examples with two of my 3 children9:37 under/over weight11:25 Nutritionist and other 'experts' advice14:00 mix it up, experiment, try not to get riled, forget the traditional rules/norms/manners17:25 The younger years and thinking things would never get any better, and the now22:00 Our childrens brains work differently, it is not the same22:30 Yaffi Lvova, nutritionist and dietitian who lives it and knows the autism journey.#4 food wars vs food relationshipsit's about so much more than the foodwhat we all know as fussy or picky eatersit's different for autistic, adhd, spd, neurodiverse childrenexpert advice should come from those who are actually autistic or actually live itmy own experiences wiht a 20yr old adhd son and a 12 yr old non speaking, autistic and adhd younger son. it will get better, it takes time and adjustments, experimenting, mixing things up, never giving up# 5 Calls to Actionpre-roll: new name, website, newslettermid-roll: thank you for the listens + follow + review/comment#6 see under 'research links'#7 N/A#8 n+Next Episode...tbc

02-16
24:08

Stop apologising for your child's autism

#1 The message as per an original unisex 'Autism Threads' slogan T-shirt is "NO APOLOGY". Autism is part of who our children at any age, are. It is part of their make-up, it is responsible for the incredible minds they do have and we should make no apology for their actions, noises, lack, of eye contact, different ways of communication. An introduction to Elizabeth Vossellor, Founder of S2C that is 'Spelling to Communicate', a film recommendation called "The reason I Jump" and what 'no apology' translates to for all of us on any given day.#2 Guest: N/A#3 Timeline:0:00 Intro - welcome and intro to my either and/or autistic, adhd, neurodiverse children.2:52 The NO APOLOGY unisex slogan T-shirt.4:35 Why NO APOLOGY?6:23 Meeting Elizabeth Vossellor, Founder of 'Spelling to Communicate/S2C' and her analogy for NO APOLOGY.14:00 The Reason I Jump film and Bradstow School.16:53 Never apologise for who you are. What's your NO APOLOGY for today?19:05 School refusal/avoidance crisis in the UK.#4 Intro - this back story to 'NO APOLOGY' i.e. a slogan T-shirt to raise awareness and support autism charities.When and why we apologise for our children's autism and why to stop doing so.Meeting Elizabeth Vossellor and her unique analogy for 'NO APOLOGY'"The Reason I Jump" British film on YouTube or AppleTV - my connection.What 'NO APOLOGY' canmean for us all and examples.Hint of a further topic and info coming soon in my February newsletter -school refusal/avoidance.#5 Calls to Action:New website + newsletter and podcast sing-upThe NO APOLOGY T-shirt#6 Links/References:https://youtu.be/W2GJO_rtzrs?si=Mjkv4pf3GsjpXMONhttps://i-asc.org/#7 Social media: N/A#8 Next Episode: When you meet an autistic person...how to engage

01-27
22:04

A non-speaking child, who has words!

#1 New Year vibes, already knackered, down with colds again and no resolutions made! Not an episode inviting a pity party but one encouraging awareness as I share what it's like for my non speaking son and I and how I describe just how fully competent he and all non speaking autistic people are and how we need to start to presume competence and treat them both with respect and age appropriately. tit bits on what I am learning as a Spell to Communicate Practitioner.#2 N/A#3 0:00 Intro 1:33 New Years vibes2:53 This is not a pity party4:08 What I assume those who know nothing of non speaking autism think my life and my sons life is like5:50 Our non speaking children ARE clever7:16 Sensory impacts7:40 What non speaking autistic people have said themselves (via spelling/typing)8:34 Cognition and Motor11:50 Diagnosis and testing14:06 The least dangerous assumption must surely be full competence? Until they themselves can communicate their thoughts to us14:50 Henry interrupts the recording and says a very poorly (he is unwell) "hello"16:16 A brief day in the life of#4This is not a pity party but an invitation to become more aware of non speaking autismThere is nothing wrong with their brains and competency/cognition, they simply have a brain body disconnect and a sensory system that is constantly going offline making motor tasks extremely challenging eg speech!Diagnosis and Intelligence testingWhat I assume others think my life with a non speaking child is likeA day in the life of#5 Calls to Action:Intro only - new name and webpage + newsletter sign-up#6 Books:The Reason I Jump by Naoki HiagshidaIdo in Autismland by Ido Kedar (available in audible too)Carly's Voice by Arthur Fleischmann & Carly*Underestimated by JB Handley & son*= reference to S2C Spelling to Communicate program and EV, my course leader!#7 N/A#8 TBA

01-16
23:11

Sleep Sagas

SHOW NOTES:#1 News on the new podcast name and website coming soon. Announcement about a new training course I am on and an informal, lighthearted look at sleep issues for both autistic children and adults plus their parents. The why and what helps in terms of sleep onset problems and paying attention to ourselves as parents and the physical and mental impacts of years of sleep deprivation. #2 NO GUEST#3 0:00 - 4:45 Intro - new podcast name and why1:32 Spell to Communicate (S2C) practitioner in training, ooh err.7:08 Sleep onset issues and why9:46 Sleep aids11:04 Melatonin medication16:07 Parents and sleep deprivation21:18 Remaining calm24:34 Christmas!#4 Summarynew podcast name and training coursesleep issues and whysleep onset and what helpssleep deprivation and being aware if the impactsremaining calmChristmas!#5 Calls to Action:pre-roll: new name and website + how to followmid-roll: share with friends and family, review an episodeend-roll: thank you for your continued support#6 References:https://i-asc.org/trishandpaul@sky.com for any non or minimally or unreliably speaking autistic children or adults interested in free 45 min - 1hr weekly spell to communicate sessions in Tonbridge, Kent.#7 Instagram: @_thethreadsoflife_ #8 Merry Christmas! I'll be back 12 Jan 2024.

12-08
26:08

Do you sometimes feel manipulated and/or controlled by your child?

#1 An informal, light hearted, parent speak, type of chat about the current parent generation and their unique struggles plus the parent child shift in terms of respect and what our children and especially autistic children are doing when they need to control and manipulate us parents. An example of setting boundaries and mentioning motor loops. #2 N/A#30:00 Intro and new podcast name, website, blogs, newsletter + maybe one iconic awareness tee, all coming soon. Also a little teaser about my new job ie S2C practitioner training!4:00 Being in the pity pit as a parent and all parents of my particular generation aka the current 50 somethings...12:03 Being aware that both you and the environment are being controlled and in the case of an autistic child allowing it and why.16:09 Setting boundaries and motor loops - the dining chairs example.22:27 Can't not won't24:13 A "Uniquely Human" podcast episode recommendation on the many meanings of the word NO and why our children might and also may need to use it.#4What's coming soonthe 50 somethings parent 'pity pit': raising kids with tech; woke and jobless and partner-less young adults; zero grandchildren babies; ageing parents still alive and needing care.what the actual intention of an autistic child's need to control and manipulate a parent might besetting boundaries and how its different with autistic children and adultsrecommending the 'Uniquely Human' podcast episode on saying NO and all its many meanings.#5 Calls to ActionPre-roll: new podcast and website name plus newsletter sign-upMid-roll: noneEnd Roll: 'Uniquely Human' podcast recommendation#6Uniquely Human: The Podcast - Uniquely Human: The Podcast#7 N/A#8 A guest: Tracey Weiner on her autistic son Jack, PDA, NVR and her new venture.

11-24
25:54

The siblings of autistic children - introducing Ben and Abi

#1 My guests today are autistic, nonspeaking and adhd Henry's older siblings. An informal chat about their own experiences with their brother, understanding what autism is and coming to terms with how it impacts their brother and the whole family. As usual with the siblings they become mentors for the parents, just the most unconditionally accepting and loving humans who have none of the deep concerns of the parents and do not see the autism at all. #2 Ben (20) and Abi (18) - Henry's siblings. Henry is 12.#3 0:00 Intro1:41 Introducing guests...Ben and Abi, the siblings!2:17 Discovering autism in their sibling and how they felt3:30 The play date with Jess and her younger children4:45 How do they feel about autism now and would they change it?8:25 has your sibling ever embarrassed you?13:17 The wonderful, divergent, aware, understanding younger generations15:10 Worry for their sibling19:30 The uniqueness of their sibling and what they love about him23:56 Noticing the parent strain28:05 Hopes for their siblings future#4 Finding out your sibling is autisticWishing your sibling wasn't autistic, or not wishing itIs life unfair and does your sibling embarrass you?Worry for your siblingWhats great about their personality and/or autismThe strain on the parentsThe future for your autistic sibling#5 N/A#6 Calls to ActionPre=roll: changes afoot and new name coming soon.#7 N/A#8 Next Episode: School options for your autistic child

11-10
37:41

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