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Description
The UpTic is a podcast that provides an opportunity for the eclectic voices of the TS community to be heard. The topics covered will be as diverse as this neurodivergent population. You will hear personal stories, learn more about Tourette Syndrome and be inspired to live fully. Wherever you are on your TS journey this podcast will inform and engage listeners and offer new insights and perspectives for self-reflection and action.
Why Listen?
- Explore the Iceberg: TS is more than tics. Discover the talents, challenges, and experiences that lie beneath the surface.
- Expert Takes: Stay updated with insights from therapists, psychologists, and neurodiversity professionals. Learn about cutting-edge TS therapies and research.
- Real Stories: Hear from diverse voices within the TS community, including LGBTQ+ and ethnic perspectives.
- Practical Tips: Get actionable strategies for managing TS in daily life.
Our Mission
We're not just here to educate; we aim to inspire action. Subscribe to join a movement committed to breaking down stereotypes and fostering inclusivity.
Tune In
Our first episode drops on November 7, with new episodes every other Tuesday. Subscribe now to never miss an episode and be part of a more inclusive world.
40 Episodes
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In this episode, I sit down with Ray Nardella, the Assistant Director of Resident Life for Student Conduct at the University of Maryland. Ray shares his extensive experience with public policy, disability law, and grassroots organizing, all while adding a touch of humor and warmth to our conversation. We discuss securing accommodations for individuals with Tourette's syndrome and other disabilities in various settings, from education to the workplace. Whether you're preparing for exams or nav...
In this episode, I'm joined by the brilliant Drs. Jay and Max Tischfield, father and son renowned Tourette researchers at Rutgers University. They share their fascinating journey into the world of Tourette Syndrome research, discussing how they use genetic data to create groundbreaking mouse models that mimic the human condition. We delve into the intricacies of gene mutations, the challenges of studying tics in mice, and the potential for these models to lead to effective treatments. You'll ...
In this episode, I had the pleasure of speaking with Ben Mooney, an Occupational Therapist based in Colorado, specializing in insomnia. He has Tourette syndrome and is a certified CBIT practitioner. We uncover how brain imaging has shed light on the nocturnal activities of our brains, particularly for those with tic disorders. Ben shares practical insights on the importance of consistent wake-up times, the impact of stress on tics, and the role of sleep in our overall health. Whether you're d...
In this inspiring episode, I sit down with Dr. Jeff Lichtman and his son, Jeremy Lichtman, PsyD, for an intimate conversation about parenting a child with Tourette syndrome. Jeff, a renowned psychologist and visionary leader in special education, shares his personal journey of coming to terms with Jeremy's diagnosis and the challenges they faced as a family. Jeremy, now a successful psychologist himself, reflects on growing up with Tourette's and how his parents' unwavering support and advoca...
In this episode of The UpTic, I'm joined by two amazing sisters, Emily and Amanda Muldowney, who open up about what it’s like to navigate life when one sibling lives with Tourette Syndrome—and the other doesn’t. Emily, who has TS, ADHD, and anxiety, shares her journey from struggling to understand her tics to becoming a fierce advocate. Amanda, her older sister, brings a heartwarming and grounded perspective on what it means to support someone you love through all of life’s highs and lows. We...
In this episode, I sit down with Hallie Hoffman—a longtime NJCTS volunteer, youth advocate, and all-around powerhouse—to dive into her personal journey with Tourette Syndrome. Hallie shares her early experiences with tics, her decision to seek a diagnosis at 13, and how that moment catapulted her into advocacy and leadership. With honesty and warmth, she reflects on how self-awareness, support systems, and community resources shaped her path to resilience and self-acceptance. We touch on ever...
Hey everyone, Michael here! In today’s episode of The UpTIC, I’m joined by Lorenzo Tiozzo, a passionate advocate who’s navigated Tourette Syndrome across two continents. Lorenzo grew up just outside Venice, Italy, and recently graduated from the University of Florida with a degree in Telecommunication, specializing in Film and TV Production. He’s also part of the Rising Leaders Program with the Tourette Association of America—and he’s on a mission to inspire others through storytelling, media...
In this episode, I’m joined by Dr. Christine Conelea, a brilliant research psychologist from the University of Minnesota, who's leading the charge in cutting-edge research around Tourette Syndrome (TS), OCD, and anxiety. We dive into the transformative innovations happening in her lab—from developing computer vision tools that can detect tics via video recordings to clinical trials testing the effectiveness of CBIT and brain stimulation therapies like TMS. Dr. Conelea shares how her team is u...
In this episode, I had the honor of sitting down with Dr. Marla Deibler, a licensed clinical psychologist and expert in behavioral and cognitive psychology, to explore a topic that's not only often misunderstood but deeply important: Body-Focused Repetitive Behaviors (BFRBs). These include things like hair pulling, skin picking, and nail biting — behaviors that are frequently dismissed or minimized, but that can significantly impact a person’s emotional and physical well-being. Dr. Deibler br...
What happens when you receive a life-changing diagnosis at 16—and decide to turn it into your superpower? In this episode, I’m joined by the incredibly driven and insightful Sree Lakkamraju. She’s a high school senior, NJCTS Youth Council member, TAA Youth Ambassador, and soon-to-be NYU student. But beyond the titles, Sree is someone who’s turned self-awareness and advocacy into action, and her journey is nothing short of inspiring. We dive into her late diagnosis of Tourette Syndrome, how sh...
In this episode, I sit down with dancer, choreographer, and advocate Marissa Lazovick for a heart-centered conversation that moves through performance, diagnosis, and the power of self-expression. Marissa shares how her journey with Tourette Syndrome has intersected with her passion for dance, leading to the creation of her powerful solo piece, "(Tic)kled." We talk about what it really means to advocate for yourself, to be understood, and to turn something challenging into something beautiful...
In this episode, I sit down with someone I’ve known and admired for years—Emily Fleischman. Emily is a nurse at Mount Sinai West in New York City and a longtime advocate within the Tourette Syndrome community. From her early days as a Youth Ambassador with NJCTS to publishing a children’s book about her experience with TS, Emily’s story is one of courage, transformation, and advocacy. We dive into what it was like being diagnosed with Tourette and OCD as a child, how that affected her family ...
What does it mean to be truly free in our creativity? How do obstacles—both personal and societal—shape the way we express ourselves? In this episode, I sit down with Sara Henya, a Philadelphia-based composer, singer, harpist, guitarist, pianist, and music teacher, to explore these questions and more. Sara shares her journey as an artist, her deep connection to the Tourette Syndrome (TS) community, and her reflections on neurodiversity, resilience, and self-acceptance. We dive into her experi...
What does it take to overcome barriers and achieve your dreams? In this episode of The Uptick, I sit down with Jenna Smith, a senior at Duke University and a newly awarded Rhodes Scholar, to talk about her journey navigating Tourette Syndrome while excelling academically and pursuing a career in law and criminal justice. From her early struggles with tics in the classroom to standing on some of the world’s biggest academic stages, Jenna shares how she built confidence, found community, and le...
Ever wondered what it’s like to be part of a life-changing leadership program designed specifically for teens with Tourette Syndrome? In this episode, I sit down with Melissa Fowler, director of the Tim Howard Leadership Academy, to explore how this immersive four-day experience at Rutgers University helps young adults develop self-advocacy, resilience, and leadership skills. We dive into the evolution of the program, the powerful mentorship provided by coaches, and the deep sense of communit...
In this heartfelt and inspiring episode, I sit down with Wilamena Dyer to explore her journey living with Tourette Syndrome and OCD. We dive into the challenges, triumphs, and surprising lessons that come with embracing neurodiversity, self-acceptance, and resilience. Wilamena shares candid stories about her experiences with tics, coping strategies, and how music has become a transformative force in her life. We also discuss different therapies, creative outlets, and why finding what works fo...
Welcome back to The UpTic! As 2024 comes to a close, I’m reflecting on the incredible conversations we’ve had this year and the powerful insights shared by our guests. In this special highlights episode, we revisit some of the standout moments from the season, featuring discussions on occupational therapy, neurodiversity advocacy, groundbreaking research, and more. Dive into inspiring stories, actionable advice, and cutting-edge research that not only demystify TS but also shine a light on th...
Joining me this week are two incredible guests from the NJCTS Community Connections program: Peyton Estabrook, a long-time participant, and Alina Lawas Osborn, the program coordinator. In this episode, we discuss how creating safe spaces for people with Tourette Syndrome can foster connection, reduce isolation, and empower individuals to thrive. From the challenges of starting new communities to the creative solutions that bring people together, this conversation is packed with insights for a...
In this episode, I sit down with Dr. Lori Rockmore and Dr. Daniela Colognori, two clinical psychologists with extensive experience treating individuals with Tourette syndrome (TS) and related conditions. Both have a rich history of working at the Rutgers TS Clinic, where they gained invaluable insights into providing holistic, family-focused care. Throughout our conversation, we discuss their personal journeys into the field, how their practice has evolved, and the incredible strengths they s...
Let’s get to work and discuss job searching and career building as a neurodivergent professional. Whether you're dealing with Tourette Syndrome, ADHD, or other conditions, this episode is packed with practical tips to help you navigate the often tricky job market. I’ll share advice on disclosing your condition during interviews, the importance of requesting accommodations, and how to frame your neurodivergence as a strength. Plus, I’ll break down some tools and strategies to help you manage t...
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