Unraveling Cancer

Join us for the Unraveling Cancer Podcast Series where we explore stories and news about living with cancer, the latest research from conferences, and patient advocate stories. Our patient hosts are joined by leaders in the field; from researchers working on the treatments of tomorrow, to holistic practitioners and mental health professionals.<br /><br />Patient Power® is a leader in supporting patients with cancer and caregivers in their treatment journey; interviewing top medical experts and researchers to offer the latest findings and information, as well as personal accounts from dedicated advocates, patients, and care partners.<br /><br />We are committed to helping each person approach their illness in a way that gives them the best chance of regaining and maintaining good health – from fully understanding their individual diagnosis, to seeking the best care, to getting second or third opinions, to consider a clinical trial.<br /><br />Find us at https://www.patientpower.info/

Is Fixed Duration Therapy the New Standard?

Patient advocate, Michele Nadeem Baker, hosts Boyu Hu, MD, Director of Lymphoma and Chronic Lymphocytic Leukemia at the Huntsman Cancer Institute at the University of Utah for a discussion on fixed duration treatment.

11-19
24:46

From Diagnosis to Treatment End: Navigating Fixed-Duration Therapy for CLL

Physician assistant Jill Miller shares what CLL patients really need to know about fixed-duration treatment. Learn how to manage side effects, what to expect month by month, when treatment ends, and how to navigate the emotional transition from active therapy to surveillance.

10-30
33:24

Functional Cure? The Promise of CLL Combination Therapy

In this episode of Patient Power’s podcast Unraveling Cancer, patient host Michele Nadeem-Baker speaks with Daniel Ermann, MD, Huntsman Cancer Institute, about how combination therapies are revolutionizing treatment for chronic lymphocytic leukemia. Dr. Ermann shares updates from recent clinical trials, the growing reality of chemo-free treatment, and promising developments such as bispecific antibodies and CAR T-cell therapy. The conversation gives patients insight into the rapidly advancing world of CLL care and what’s on the horizon.

10-17
24:37

Strategies to Combat Fatigue

In this episode of Patient Power’s podcast Unraveling Cancer, patient host Michele Nadeem-Baker sits down with Lucy Potter, MD, MPH, MD Anderson, for a conversation about one of the most common challenges in cancer care: fatigue. They explore practical behavioral strategies to ease day-to-day exhaustion, discuss when medications may be helpful, and highlight key tests that can uncover underlying causes.

09-19
29:10

Choosing Between CLL Treatments

In this episode of the Patient Power podcast, Unraveling Cancer, patient host, Michele Nadeem-Baker is joined by Deborah Stephens, DO, UNC at Chapel Hill, for a conversation about choosing a treatment for CLL, when to consider a clinical trial and the pros and cons of fixed duration vs continuous therapy.

09-10
18:36

Getting the Most Out of Your Doctor’s Visit

In this episode of the Patient Power podcast, Unraveling Cancer, patient host, Michele Nadeem-Baker is joined by Kerry Rogers, MD, from The Ohio State University, for a conversation about preparing for an upcoming doctor’s visit, how to have a productive conversation about treatment decisions and what to do when you don’t feel you are being heard.

08-25
24:51

Treating CLL in Older Adults

In this episode of the Patient Power podcast, Unraveling Cancer, patient host, Brad Adams is joined by Thomas Kipps, MD UC San Diego, for a conversation about why the move from chemotherapy to targeted treatments is a game changer for older CLL patients and those with co-morbidities.

08-22
18:58

Unraveling Cancer: Frontline Therapies for Mantle Cell Lymphoma

In this episode of the Patient Power podcast, Unraveling Cancer, patient host Larry Fagan is joined by Benjamin Heyman, MD, UC San Diego, for a conversation about frontline therapies for mantle cell lymphoma, the results from the ECHO trial, and the role of combination treatments in a frontline setting moving forward.

02-28
26:33

SM and Skin: A Dermatologist Explains What’s Going On

In this episode of the Patient Power podcast, Unraveling Cancer, Patient Power host, Ruth Fein and Lauren Madigan, MD, University of Utah, discuss a multi-disciplinary approach for diagnosis and treatment of systemic mastocytosis, the role of dermatology in identifying and managing skin-related symptoms, and what is in the pipeline for new therapies in the future.

10-29
36:05

The Importance of Preventative Care and a Supportive Healthcare Team

In this episode of Unraveling Cancer, Patient Power host, Michelle Nadine-Baker, is joined byKerry A. Rogers, MD, The Ohio State University Comprehensive Cancer Center – The James, to explore the importance of building a comprehensive healthcare team, scheduling regular screenings, and ensuring you and your support network are equipped for the journey ahead.

10-29
31:41

Living Well With Indolent Systemic Mastocytosis

In this episode of the Patient Power podcast Unraveling Cancer, we explore indolent systemic mastocytosis. Patient Power host Ruth Fein is joined by John Fahrenholz, MD, Vanderbilt University Medical Center, to discuss diagnosis, emerging treatments like avapritinib, and the importance of patient advocacy and collaboration between specialists.

09-30
36:50

What to Eat While Being Treated for CLL

In this episode of Unraveling Cancer, Patient Power host and chronic lymphocytic leukemia (CLL) patient advocate Michele Nadeem-Baker is joined by Julie Lanford, MPH, RD, SCO, the Cancer Dietician. Julie explains the top three most important things to eat daily, why nothing is off limits, and advises care partners on the best ways to support a loved one’s nutritional goals. Resources discussed during the program: www.cancerdietitian.com www.AICR.org www.cookforyourlife.org

09-30
37:03

How Can CLL Patients Help Researchers Find a Cure?

In this episode of Unraveling Cancer, come meet the chronic lymphocytic leukemia (CLL) detective team at the UCSD Center for Novel Therapeutics. Thomas Kipps, MD, PhD, opens the door to the lab and introduces Patient Power co-founder and host, Andrew Schorr, to two members of his team: Emanuela Ghia, PhD, and Daniel Elson. Together, they explain current CLL research, where they believe they are headed, how close we may be to a cure, and the important role played by people with CLL around the world.

09-17
39:58

Addressing Challenging Thoughts During Cancer

“It’s not the thoughts, it’s what you do with those thoughts” In this episode of the Patient Power podcast, Unraveling Cancer, Patient Power host, Michelle Nadine-Baker, and Dr. Rachel Goldman, Clinical Assistant Professor, Department of Psychiatry, NYU Grossman School of Medicine explore common mental health struggles experienced by cancer patients, address the issue of body image during cancer treatment, and the importance of seeking professional help.

08-29
36:38

Confessions of a Clinical Trial Junkie

“Smart Patients get Smart Care” Brian Koffman, MD, Chief Medical Officer and Executive Vice President of The CLL Society, joins Patient Power co-founder, Andrew Schorr to advocate for clinical trials.   For more on on CLL, visit us on Patient Power, https://www.patientpower.info/chronic-lymphocytic-leukemia

08-28
30:06

How Patients With SM "Are Their Own Quarterback"

In this episode of the Patient Power podcast, Unraveling Cancer, Patient Power host, Zach Berkowitz is joined by Dr. Aaron Gerds, Cleveland Clinic, to discuss the difficulties patients face coordinating care between health care providers, the importance of advocating for oneself and the exciting approvals of new treatments for systemic mastocytosis.

08-26
31:57

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