Well Beyond Medicine: The Nemours Children's Health Podcast

When it comes to supporting our nation's military caregivers – the family members and friends caring for a wounded, ill, or injured veteran each day in their homes – the Elizabeth Dole Foundation is a true leader. The foundation aims to raise awareness, conduct research, and support military family caregivers. Among that group, you will find children, teens, and young adults impacted by or directly involved in the mental, emotional, or physical care of a wounded, ill, or aging service member or veteran. They are known as Hidden Helpers. In the first of two episodes, Steve Schwab, CEO, Elizabeth Dole Foundation, and Larry Moss, MD, President and CEO, Nemours Children's Health, discuss Hidden Helpers: who they are, who they help, and the commitment to educating physicians across the nation about these hidden heroes’ unique medical and psychological needs.Take the FREE online course "Caring for Children and Teens in Military Families." Guests:Steve Schwab, CEO, Elizabeth Dole FoundationR. Lawrence “Larry” Moss, MD, FACS, FAAP, President and CEO, Nemours Children’s HealthProducer/Host: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

When it comes to healthcare, children are not miniature adults. As growing, maturing human beings, they require regular well-child attention, care, and treatment that considers their size and their ongoing and seemingly ever-changing developmental needs as they make the trek into adulthood. Children's hospitals, in particular, play a unique role in ensuring and elevating the health of our nation's kids by providing opportunities for quality care and treatment and by addressing the non-medical factors that affect child health outcomes - the social determinants of health. As CEO of the Children's Hospital Association (CHA), Matthew Cook joins us to explain how CHA advocates for the advancement of child health in the areas of federal and state policy, research, quality care delivery, and workforce development.Guest: Matthew Cook, CEO, Children's Hospital AssociationCarol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

All across Nemours Children's Health,  from Wilmington to Pensacola to Orlando to Jacksonville, and points in between - the ethos of Well Beyond Medicine is becoming well established. That includes the Nemours Estate in Wilmington, the only public park in the nation with a hospital on its grounds. Guests Gina Altieri, Jean Hershner, Ken Darsney, and Annie Thomas-Bubel join us in this bonus episode to demonstrate how the Nemours Estate incorporates Well Beyond Medicine into what it does. Guests:Gina Altieri, Executive Vice President, Corporate Affairs and Enterprise Chief Communications Officer, Nemours Children’s HealthJean Hershner, Vice President, Nemours EstateKen Darsney, Gardens and Grounds Manager, Nemours EstateAnnie Thomas-Bubel, Learning and Programs Coordinator, Nemours EstateHost/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

"Even in the worst conditions you can be grateful in something and not have to be grateful for it," according to Lee Brower, entrepreneur coach and founder of Empowered Wealth. He joins this week's episode as we explore the power of gratitude. We're also joined by Nemours Children's Health's Dr. Alfred Atanda who shares the clinical perspective of gratitude — and how it benefits patients, families and staff.Guests:Lee Brower, Entrepreneur Coach and Founder, Empowered WealthMichael Rouse, President and Co-founder, ESF Camps and ExperiencesAlfred Atanda, MD, Surgical Director, Center for Sports Medicine, Nemours Children's Hospital, DelawareHost/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

This year – 2024 – marked the 50th anniversary of THE PLAYERS Championship, a premier tour stop for PGA golfers from around the world! Held at the TPC Sawgrass in Ponte Vedra Beach, Florida (just south of Jacksonville where Nemours Children's Health is headquartered), THE PLAYERS Championships attracts the best that professional golf has to offer for golfers, fans, and the community alike. The tournament, however, is more than just a one-week PGA stop. It’s a 52-week-a-year endeavor. Community investment, service and partnership are keys to the effort, which focuses on promoting youth services, education, character development, military support, and health and wellness. Joining us to discuss how THE PLAYERS Championship is a crucial player in improving health and wellness for the children of Northeast Florida and beyond are Nemours Children’s Health President and CEO Dr. Larry Moss, and Lee Smith, Vice President and Executive Director of THE PLAYERS Championship.Guests: R. Lawrence "Larry" Moss, MD, FACS, FAAP, President and CEO, Nemours Children's HealthLee Smith, Vice President & Executive Director, THE PLAYERS ChampionshipProducer/Host:  Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

Achieving health equity is a complex and ongoing endeavor that involves addressing various social, economic, and systemic factors that contribute to disparities in health outcomes among different populations. If it sounds like challenging work, it is. But that hasn't stopped The California Endowment's Dr. Tony Iton from making it his life's work. We sat down with Dr. Iton to discuss his insights on the root causes of health disparities, the status of health equity efforts today in the U.S., and the $1 billion effort he leads with health equity in mind. Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

In 2022, a $25 million donation from the Ginsburg Family Foundation established the Ginsburg Institute for Health Equity at Nemours Children’s Health. One major initiative of the Institute is the Ginsburg Health Equity Scholars Program. The scholars program seeks to prepare rising members of the healthcare, public health, and scientific workforce to conduct research into children’s health equity and deploy evidence-based programs and resources into underserved communities. Nancy Molello, Executive Director for the Ginsburg Institute, joined us to share details of the Ginsburg Health Equity Scholars Program alongside one of its inaugural scholars Brianna Karim.Apply to be a Ginsburg Scholar. The deadline is March 15, 2024. Guests:Nancy Molello, MSB, Executive Director, Ginsburg Institute for Health Equity at Nemours Children’s Health Brianna Karim, Health Equity Program Coordinator and Ginsburg Scholar, Nemours Children’s HealthProducer/Host: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

In 2022 a $25 million donation from the Ginsburg Family Foundation established the Ginsburg Institute for Health Equity at Nemours Children’s Health. The Institute represents a first-of-its-kind initiative to advance health equity for children in medically underserved areas by partnering with communities and codifying evidenced-based approaches that are effective, scalable and transferable. This week's guests Nancy Molello and Marc McMurrin highlight the work they have accomplished in this area as well as the Institute’s future.Learn more about the Ginsburg Institute.Guests:Nancy Molello, MSB, Executive Director, Ginsburg Institute for Health Equity at Nemours Children’s HealthMarc McMurrin, President & CEO, Ginsburg Family FoundationHost/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

From the time a pediatrician or parent suspects a child could be affected by autism spectrum disorder (ASD) until an actual diagnosis takes over two years! On today’s episode, we learn about two strategies that are currently in use to reduce that time to just weeks — or even days.Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

In part two of our series, we dig deeper into conversations with our Black physician leaders, guided by our Black, African and Caribbean Associate Resource Group. Joining the table in today’s episode is Latonya Quann, Clinical Operations Supervisor for Nemours Children’s Health, Orlando, and Jane deHeers, Director of Operations, Therapeutic and Rehabilitation Services, Nemours Children’s Health in Delaware. Latonya asks our physicians what helped them get to where they are today and to share any advice they can give to the next generation of Black leaders. Jane concludes our five-question discussion with what our physicians envision for the future of Black leaders.Answers revolving around these questions of Black leadership growth and sustainability include the magnification of imposter syndrome in the Black community, leaning on champions in your corner, the importance of sharing experiences across race and hierarchy, and the power of perseverance. Dr. Robyn Miller shares her take on the importance of DEI: “I want people to be able to show up as their authentic selves and be accepted for their authentic selves and be able to learn as their authentic selves because that's who goes in the room with patients, and patients need to see those authentic selves.” To hear a more detailed account of our physicians’ experiences, be sure to tune in and listen! Kara Odom-Walker, MD, MPH, MSHS, Executive Vice President, Chief Population Health Officer, Nemours Children's HealthAlfred Atanda, MD, pediatric orthopedic surgeon, Surgical Director, Nemours Children's Center for Sports MedicineLonna Gordon, MD, PharmD, Division Chief of Adolescent Medicine, Nemours Children's Hospital, FloridaCedric Von Pritchett, MD, pediatric otolaryngologist, Co-Director of Nemours Children's Ear, Hearing and Communication CenterRobyn R. Miller, MD, Interim Division Chief of Adolescent Medicine and Pediatric Gynecology, Nemours Children's Hospital, DelawareFeatured members of the Nemours Children's Health Black, African, and Caribbean Heritage ARG:TeNeasha Billingsley, MSN, CPNP-ACTaynika Jones, BSJane deHeer, PT, DPT, MBA, CLTLatonya QuannHost/Producer, Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

Duchenne muscular dystrophy is the most common and severe form of muscular dystrophy. According to Nemours KidsHealth.org, it affects boys more often than girls. According to the Muscular Dystrophy Association, heart and respiratory muscle problems emerge in the teen years and can lead to serious complications. In terms of the heart, the issue at hand is cardiomyopathy. Dr. Takeshi Tsuda is a pediatric cardiologist at Nemours Children’s Health who studies cardiomyopathy in boys with Duchenne. He joins this episode to talk about the unique qualities of cardiomyopathy in young teenagers with Duchenne muscular dystrophy, which have not previously been well characterized. Guest: Takeshi Tsuda, MD, Pediatric CardiologyNemours Children’s Health, Delaware Valley Host/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

Muscular dystrophy is a genetic disorder that makes the muscles of the bodies of those affected get weaker over time. There's no known cure, but there are treatments, and researchers continue to learn more about how to prevent and treat it. In this episode, we discuss one specific type of genetic disorder: Duchenne muscular dystrophy, and learn about a new FDA-approved gene therapy that is bringing hope to families.Learn More Guests: Omer Abdul Hamid, MD, Neuromuscular Neurologist, Nemours Children’s Hospital, Florida Rulla Starr, Neuromuscular Program Coordinator, Nemours Children's Hospital, FloridaHost/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

The non-profit, non-denominational St. Patrick's Center in Wilmington, Delaware, has served that community for over half a century. They provide emergency food, meals, respite for the homeless, clothing, transportation, and recreational activities for people in need on the city's east side. Our guest host, Che Parker, met up with Joe Yacyshyn, St. Patrick's Center's Board Chair, as Nemours Children’s associates were conducting a clothing drive to benefit the organization's clients. They talked about the work of the St. Patrick's Center and the strong bond between this non-profit and Nemours Children's Health.Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

SEGMENT 1: Menstruation: it's something half of the world's population experiences. Yet having the right resources - access to period products and health information about menses can prove elusive for some due to financial concerns, lack of communication and openness on the topic due to stigma, or cultural and religious considerations. Our topic with Nemours Children's Health adolescent medicine specialist Dr. Robin Miller is period equity- and how to achieve it. Nemours Period Pantry Amazon Wish ListSEGMENT 2: A partner profile of Duffy's Hope, serving at-risk teens in Wilmington, Delaware, by providing them with one-on-one mentoring, tutoring, financial literacy, educational and enrichment trips, etiquette training, school and home visits, inspirational guest speakers, and group discussions.Learn more about Duffy's Hope.Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

In the final episode of our four-part series “Hot Topics in Neonatology” we explore neonatal abstinence syndrome (NAS), a byproduct of prenatal drug exposure — one of the fastest growing public health problems in the world. In the U.S., the most recent data from the CDC indicate that the number of pregnant people with opioid-related diagnoses documented at delivery increased by 131% from 2010 to 2017. The implications for their babies include preterm birth, still birth, birth defects and neonatal abstinence syndrome, or NAS. SEGMENT 1: We talk with Dr. Ju-Lee Oei from the Royal Hospital for Women in Sydney, Australia, who provides an overview NAS — what it is, how it's diagnosed and how it's treated.SEGMENT 2: Andre Sukta, a research and development projects manager at the United States Drug Testing Laboratories in Chicago, joins us to talk about the recent history of newborn toxicology screening.Carol Vassar, producer/hostExplore the Full Series: Part 1, Episode 50 The NICU View: Mom & BabyPart 2, Episode 51 Fluid Dynamics: What's New in Treating EPRA Part 3, Episode 52 Fragile Beginnings: Exploring NEC in Newborns Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Views expressed by guests do not necessarily reflect the views of the host or management. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.