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The Sickle Cell Podcast

Author: Sickle Cell 101

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Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education. Support this podcast: https://anchor.fm/thesicklecellpodcast/support
24 Episodes
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This one's for the 10th anniversary of World Sickle Cell Day.  🎉 Learn facts that you can share with your family and friends for World Sickle Cell Day! --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Did you think Renal Medullary Carcinoma (RMC – a kidney cancer) was a sickle cell trait complication? Listen and learn more about this rare, but aggressive kidney cancer and what signs, symptoms, and precautions to take to stay on top of this issue and your kidney health. Featuring RMC expert Dr. Pavlos Msaouel --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Girls chat! In honor of Women's History Month, we're talking about women's reproductive health and advocacy with sickle cell advocate Teonna Woolford, founder of SC-RED. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
An important discussion on the racial disparities individuals living with sickle cell disease face within the U.S. healthcare system. This episode features hematologist-oncologist physician and activist Dr. Ahmar Zaidi. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Happy holidays! Stephen and Cass have a list of questions to ask each other. Tune in to learn more about their personal lives, philosophies on sickle cell, and their deep dark secrets (haha). --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Girl chat! Fashion model and sickle cell warrior London Knight shares how she juggles being a model, advocate and inspiration to others. 💋💃🏽 You can follow London Knight on Instagram at @LondonKnight_ --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Sponsored by bluebird bio– A mother's perspective on raising her son diagnosed with sickle cell SC disease. This episode addresses the blessings and the hardships Brenda Greene has experienced as a caregiver. We also discuss discovering their genotypes, tips for newly diagnosed families, and nonprofit organization The B Strong Group's work with blood donation. We would like to thank our sponsor bluebird bio. Check out a new website to learn how you can advocate for better sickle cell care. Take some time to check out SparkSickleCellChange.com to learn more and sign up to Be The Spark for Change in Sickle Cell! --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Sickle Cell + Gene Therapy

Sickle Cell + Gene Therapy

2020-10-3001:12:32

Sickle Cell + Gene Therapy: An Honest and Open Discussion About Gene Therapy  This episode features Aeon Chintersingh, an adult who underwent gene therapy to cure sickle cell disease and Dr. Isaac Odame, a specialist and medical director of Hematology/Oncology at SickKids in Toronto. We discuss fertility, chemotherapy, genotypes, the word 'cure' and much more. We would like to thank our sponsor Aruvant Sciences, a company focused on developing gene therapies for rare diseases. Aruvant Science has an ongoing clinical trial in sickle cell that is currently enrolling participants. Please go to momentumtrials.com for more information on the clinical trial.  Aruvant neither owns nor controls this platform and does not have editorial control over content or responsibility for any other information provided. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Dedicated to all the people living with sickle cell disease (SCD) who wanted to grow up to be a doctor to treat others living with SCD. Halimat Olaniyan is living out this dream. We're chatting about her journey as a second-year med student and as an individual living with sickle cell disease. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
We're sharing stories, responses and discussing the theme of this year's Sickle Cell Awareness Month, "Sickle Cell Taught Me..." Current event links: Black Blood Matters: https://www.wavy.com/news/health/red-cross-black-blood-matters-for-some-with-sickle-cell-anemia/ Sickle Cell Patients Should Have Medical Exemption in the UK: https://sicklecellanemianews.com/2020/08/19/uk-nhs-medical-exemption-petition/ Millions of Americans carry the sickle cell trait, many without knowing it. Could they be at risk for severe Covid-19?: https://www.statnews.com/2020/09/03/millions-carry-sickle-cell-trait-could-they-be-at-risk-for-severe-covid19/ When Actions Speak Louder Than Words — Racism and Sickle Cell Disease: https://www.nejm.org/doi/full/10.1056/NEJMp2022125 --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
A 'Why Sickle Cell' episode featuring Rhiannon and her mother Scherika's inspiring journey to cure Rhiannon's sickle cell disease and lupus. An honest look into what it takes to undergo a bone marrow transplant. A huge thank you to Be the Match for sponsoring this episode. For more information about Be the Match, visit: https://bethematch.org/sicklecell --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Adult hematologist Dr. Julie Kanters talks about managing sickle cell pain at home, especially during the COVID-19 pandemic. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Featuring sickle cell clinical psychologist, Marsha Treadwell, PhD, we're talking about mental health, COVID-19 and tips and tricks to stay level headed and positive during these challenging times. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Let's get physicals!! We're back with our first episode of 2020, celebrating Black History Month, testing for sickle cell trait and getting physicals... with a side of cheese. 🧀 --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Sickle cell disease doesn't stop him. He received his MBA and traveled throughout Asia while doing it. This 'Why Sickle Cell?' series episode features Ade Adeyokunnu and how he navigates advocacy, higher education and travel. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
May is Mental Health Awareness Month. This episode features psychologist and epidemiologist Dr. Charles Jonassaint, PhD, MHS and delves into mental health in sickle cell disease. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
What do you get when you're an individual living with sickle cell disease and a physician? You get Dr. Oladipo Cole.  This 'Why Sickle Cell?' series episode features Dr. Cole and how he navigates living with sickle cell disease and being a physician. --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Talking with guest Dr. Q all about blood transfusions - types, benefits and risks, hydroxyurea, alternatives and more. Definitely for the nerds! 🤓 --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Talking about the mistreatment we endure in healthcare settings. Articles: • ‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted aside - https://www.statnews.com/2017/09/18/sickle-cell-pain-treatment/ • Sickle cell patients face a ‘fight for everything’ — even attention - https://usat.ly/2EGKz8J --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
Sickle Cell + Trait

Sickle Cell + Trait

2018-09-1001:07:041

Happy Sickle Cell Awareness Month! Stephen nerds out on everything sickle cell trait, hence the length of the episode. This episode delivers our usual cheese, so enjoy! :) --- Support this podcast: https://anchor.fm/thesicklecellpodcast/support
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