Larry & Rebecca Gifford dive deep in to deep brain stimulation (DBS). We learn about the innovative technology used for DBS from Dr. Alfonso Fasano, the chair of Neuromodulation and multi-disciplinary care at the University of Toronto and University Health Network.
Sonia Soriano-Espert from Valencia, Spain, through translator and friend Sabela Avion, shares her experience of having DBS surgery conducted by a robot. This interview first aired on ODNA PK radio in Spain. The hosts are PD Avengers and members of Con P de Parkinson, a growing group of women who speak Spanish and have PD.
In part-one of this two-part arc, Heather Kennedy and Becca Miller were preparing for DBS Surgery. In part two, both women share their surgery experience. The share how their children responded and how they feel about DBS, now that they have had it.
Thank you for listening.
Send us songs you would want to listen to while undergoing DBS.
EMAIL US: ParkinsonsPod@CuriousCast.ca
Or add the songs you’d want to listen to during DBS to the WLGYP DBS PLAYLIST on Spotify
Have questions for Larry & Rebecca? Do you want to share your DBS story or have an idea for an upcoming podcast? Want to share how the podcast has helped you? Click the link on your laptop or desktop and leave us a voice message. https://www.speakpipe.com/WhenLifeGivesYouParkinsons
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Thank you to the following people and organizations featured in this episode:
Alfonso Fasano, MD, PhD, Chair in Neuromodulation and Multi-Disciplinary Care, Neurologist, Co-Director of the Surgical Program, Movement Disorders Centre, Toronto Western Hospital.
Heather Kennedy, PwP, WPC2023 Ambassador a.k.a. Kathleen Kiddo
Becca Miller, PhD, PwP, Michael J. Fox Foundation Patient Council, Assistant Professor of Psychiatry at Yale University.
Michael S. Okun, MD University of Florida
Kelly D. Foote, MD University of Florida
Ted X Talk about DBS from Michael Okun, MD and Kelly Foote, MD (2012)
Sonia Soriano-Espert, PwP, Valencia, Spain. Con P de Parkinson
Sabela Avion, PwP, NYC & Spain. Founder of Parkinsonic. Con P de Parkinson
Special music acknowledgements. Thank you to Justin Timberlake. We played 12 seconds of “Cant Stop The Feeling!” Credit goes to the song writers Timberlake, Max Martin, and Johan Schuster. Timberlake and Martin are also credited as producers along with Shellback.
Thank you to Taylor Swift. We played :17 of “Shake it Off.” The song was written by Swift, Max Martin and Shellback. It was released on Big Machine records in 2014.
A special thanks to Dorothy and Scarecrow. “If I Only Had a Brain,” is heard for 31 seconds. The song is featured in the 1938 film The Wizard of Oz. It is written by Harold Arlen and Yip Harburg. Ray Bolger and Judy Garland sang it when their characters first met along the yellow brick road. The film is still under copyright by Warner Pictures.
Our Promotional Partners include:
Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.
Here is a link to Parkinson Canada’s “Together: No Matter What” campaign
Thanks also to our content and promotional partners
The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford
Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.
PD Avengers – We are building a global alliance to end Parkinson’s. Join us.
World Parkinson Congress 2023 –Make plans to join us for #WPC2023 in Barcelona, Spain.
Dila Velazquez – Story Producer
Greg Schott – Sound Design
My husband has Parkinson’s disease, he is about 63 years old it was diagnosed 2 years ago. It was getting more difficult to live for him, because of stiff muscles he couldn’t even move. Mirapex and levodopa medicines were given, but didn’t give much relief. He couldn’t eat food without choking. I thought this might be the last stage and the medications he was given did not help at all, so I started to do alot of research on Ayurveda treatments, I was introduced to Health Natural Centre and their Parkinson’s Ayurveda Protocol. He started on the Ayurveda Treatment last year, his symptoms gradually diminished including his vocal cord spasm, Muscle Weakness, Tremors and Difficulty with swallowing. Reach them at naturalherbscentre.com , he is getting active again since starting this treatment, he is able to walk again ( down the street and back ) he has also resumed exercising to strengthen muscles!! God Bless all PD Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.
I have been diagnosed with Parkinson's disease since 2010, by the VA. I found that none of the current medications worked (side effects for me). I currently take pramipexole dihydrochloride three times daily. It isn’t working well neither. I still have some tremors. Was on carbidopa levodopa but only lasted 90 minutes then wore off. Down side of carbidopa is after reaching max dosage it will no longer give relief, nothing was working for me and to make matters worse there has been little if any progress in finding a reliable medical treatment for Parkinson's disease without spending thousands of $, finally this year I was introduced to Health Herbs Clinic and their effective Parkinson’s herbal protocol. This protocol relieved symptoms significantly, even better than the medications I was given.. No case of Parkinson’s, hallucination, weakness, muscle pain or tremors. I’m strong again and able to go about daily activities. Visit Health Herbs Clinic website healthherbsclinic .com
I was diagnosed of Parkinson's Disease a couple of years ago, I had severe fatigue, difficulty with mobility and sleeping. I was given medications which helped but only for a short while. So i decided to try alternative measures and began on Parkinson's HERBAL TREATMENT from Kycuyu Health Clinic, It made a tremendous difference for me (Go to their website www. kycuyuhealthclinic. com ). I had improved walking balance, muscle strength and improved vision
excited to know about the binge watching thing. go to with your good work.
Larry this is really exciting stuff! Another potential biomarker idea: My daughter recently went to a speech at BYU where a researcher at University of Florida, David Vaillancourt, spoke on a potential biomarker for PD that can differentiate between PD MSA and PSP using diffusion MRI to measure Free-water in the Substantia Nigra. Maybe an idea for a future podcast. 😁
I am 65 years old, I was diagnosed of Parkinsons disease at the age of 59. I had severe calf pain, muscle pain, slurred speech, frequent falls, loss of balance, difficulty getting up from sitting position. I was placed on Sinemet 3 times daily, it helped me but not very much. My neurologist advised me to try natural treatments and introduced me to Rich Herbal Garden Parkinsons Disease Herbal formula, I read alot of positive reviews from other patients who used the treatment and i immediately started on the treatment. I had great improvement and relief with this treatment, total decline of symptoms. Great improvement with speech, co-ordination, balance, muscle, mood etc, I gained back my life with this treatment and can never be thankful enough. Visit Rich Herbal Garden official website w ww .Richherbalgardens .c om