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Go Shout Love Podcast

Go Shout Love Podcast

Author: Go Shout Love

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Go Shout Love tells the stories of amazing kids on rare medical journeys and sells creative apparel inspired by the kids to benefit their families. In the GSL podcast, we interview the parents of these amazing kids and offer other conversations designed to inspire and encourage anyone who listens.
61 Episodes
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Josh talks with Colton and Katie, the parents to Shiloh who is the feature kiddo for June 2020. Shiloh is the sweetest 11 month old girl who has Cri Du Chat Syndrome. Colten and Katie talk about the early days of their journey from tests during pregnancy reading that things were normal, to further tests that suggest something else. They talk about their time in the NICU and describe the setting of the uncertainty and confusion of waiting for answers after delivery. Connect with Colton and Katiehttps://www.instagram.com/colton.christofferson/https://www.instagram.com/katiechristofferson_/https://www.facebook.com/katie.christofferson.12https://www.facebook.com/colton.christofferson.92Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
Josh talks with Cassie, the mother to Jack who was one of four feature kiddos in October of 2019. Jack has a rare medical diagnosis called Lissencephaly Miller-Dieker's Syndrome. Cassie opens up and shares about the extreme ups and downs of life with Jack’s diagnosis, especially during a time when the world is dealing with COVID. Connect with Cassiehttps://www.instagram.com/jcgrass/https://www.facebook.com/TheJackOfOurHearts/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
Josh interviews Tameka, the amazing mother of Evely who was our feature kiddo in September of 2019. Evely has a rare medical journey includes being born without eyes. Tameka gives us an update on her family and Evely’s medical journey. She also talks about dealing with COVID and surviving with a child on a rare medical journey and gives us great insight on what really matters in life. Connect with Tamekahttp://instagram.com/housegypsyhttps://www.facebook.com/ThroughEvelysEyes/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
The conversation with Kevin and Jess continues in the second episode of this two part interview. They are the parents of Molly, our featured kiddo for May from Celina, Ohio. Molly is a beautiful and joyful two-year-old who is lovingly referred to as ornery. In part two of the conversation, Kevin and Jess open up and talk about their marriage, their relationships, and their community as they continue to raise and care for their beautiful daughter.Molly is a fighter who constantly pushes herself and her family onward. Every purchase from the Go Shout Love shop in May will help cover the cost of installing a wheelchair ramp in Molly’s home and the home of family members who help care for Molly. Support Molly now with a purchase at www.goshout.love.Connect with Jess & Kevin:http://instagram.com/jesskramerhttp://instagram.com/kozmokConnect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
Josh chats with Kevin and Jess, the parents of Molly, our featured kiddo for May from Celina, Ohio. Molly is a beautiful and joyful two-year-old who is lovingly referred to as ornery. In part one of the conversation, Kevin and Jess introduce us to Molly's personality, share openly about the difficulties of the unexpected complications at Molly's birth, and the rollercoaster months that would follow as they looked for answers.Molly is a fighter who constantly pushes herself and her family onward. Every purchase from the Go Shout Love shop in May will help cover the cost of installing a wheelchair ramp in Molly’s home and the home of family members who help care for Molly. Support Molly now with a purchase at www.goshout.love.Connect with Jess & Kevin:http://instagram.com/jesskramerhttp://instagram.com/kozmokConnect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
At 20 years-old, Marcela survived a fatal car accident. New to the United States and knowing very little English, her life took a tragic turn that night as she lost her boyfriend in the car accident as well as her ability to function physically as she always had. Today she leverages the power of social media to document what traveling looks like for people with disabilities and highlights opportunities for communities to become more accessible. Connect with Marcela:https://www.instagram.com/thejourneyofabravewoman/https://www.facebook.com/MarceTurnage/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
In this week's episode, Josh interviews Dr. Gerald Nebeker, a social enterprise entrepreneur with an incredible resume of meaningful work. But at the top of his list of accomplishments he put his family, his wife Laurel and their eight terrific kids, the youngest of whom has Down Syndrome.In his professional experience and the personal experience of having a child with a disability, Dr. Nebeker recognized a gap that comes for parents when a diagnosis is received - a gap between the life they thought they would have, and the life they were blessed with. Out of this reality, Dr. Nebeker launched Orange Socks, a community uniquely created to resource and support parents with kids on rare medical journeys. He is an expert in nonprofit governance and is an advocate, researcher, and national presenter in the field of developmental disabilities. In 1987 he started RISE, Inc., a nonprofit organization which provides services for people with disabilities including residential settings, day programs, employment assistance, managed care, and home and community based services.Connect with Orange Socks:https://orangesocks.org/https://www.instagram.com/orangesocks__/https://www.facebook.com/orangesocks.org/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
Mindy Scheier was in the middle of a successful career in the fashion industry when the realities of her son’s rare medical journey exposed a challenge in clothing for people with different abilities. This moment launched Mindy in a completely different direction that would advocate for all people to have the confidence that comes with adaptive clothing. In 2014 she launched Runway of Dreams which is reshaping the fashion industry, including working with Tommy Hilfiger, Zappos Adaptive, Kohls, Nike, and Target.Shop new designs in the GSL shop that are benefitting people with disabilities in response to COVID-19 at https://goshout.love. Connect with Mindy:https://www.facebook.com/runwayofdreamshttps://www.instagram.com/runwayofdreams/https://www.facebook.com/gamutmanagementhttps://www.instagram.com/gamutmanagement/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
Josh chats with Shane Burcaw and Hannah Aylward of the popular YouTube Channel, Squirmy and Grubs. Shane and Hannah use their platform to shift the narrative and dispel myths around interabled relationships by sharing openly and honestly about their life together. This conversation covers real feelings on the topic of receiving and giving care. They also discuss the work being done by Laughing at My Nightmare, a nonprofit organization started by Shane... A nonprofit organization that we are grateful to be partnering with in April to help provide Covid-19 relief resources for people on rare medical journeys. Half of all gross profit during April will sales will help provide $100 gift cards for those who need it most. Shop new designs now at https://goshout.love. Connect with Shane & Hannahhttps://www.instagram.com/shaneburcaw/https://www.instagram.com/hannahayl/https://www.instagram.com/laughingatmynightmareinc/https://www.laughingatmynightmare.com/https://www.youtube.com/channel/UCdomP1JqhnyBQGaBmfDl4KQConnect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
52 - Swimwear for all

52 - Swimwear for all

2020-03-3124:20

Quickly leaving the pool to get to the restroom only to have to wrestle a wet swimsuit for several minutes... If you're a parent with a child on a rare medical journey, you likely understand this scenario.In this episode, Josh chats with a mom who believed there had to be a better way. Nikki Green is the founder of Victory Adaptive Collection, a company offering fashionable and functional adaptive swimsuits. Listen in to learn more about the products and how the company got started.Connect with Victory Adaptive Collection: https://victoryadaptivecollection.comhttps://www.facebook.com/victoryadaptivecollectionConnect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
An organization that means a lot to Maddy (this month's featured kiddo) is a nonprofit called Team IMPACT which has given her the opportunity to be part of the Syracuse University Women's Lacrosse team. In this episode, Josh chats with Ali Peters and Shanna Gershman, two staff members of Team IMPACT, who give us an overview of the organization and insight into the amazing work they are doing.Connect with Team IMPACT: https://www.teamimpact.org/https://www.instagram.com/goteamimpact/https://www.facebook.com/GoTeamIMPACT/Connect with Go Shout Love:https://goshout.lovehttps://www.instagram.com/goshoutlove/https://www.facebook.com/goshoutlove/
Josh chats with disability inclusion educator, Tina Beauvais. A mom of five, including one on a rare medical journey, you will hear how the passion behind her work is an extremely personal one. Tina B. shares extremely helpful insights for kids and adults in creating equitable spaces. Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with Tina B.:https://disabilitieseducator.comhttps://www.instagram.com/disabilityinclusioneducator/https://www.youtube.com/channel/UCeneMrxPZaksNzjDJzRh-0Qhttps://www.facebook.com/Tina-B-Disability-Inclusion-Educator-103207564480690/This episode brought to you by:https://victoryadaptivecollection.com
look into a planner that is uniquely designed to meet the needs of families and caregivers loving little ones with special needs and the story behind the company making it happen. In this episode, Josh chats with Amanda Cunningham, founder of The Glory Days Co. After receiving a diagnosis for her daughter, Amanda quickly realized the difficult realities of juggling multiple appointments, a new level of stress, and the importance of checking in on her herself to stay healthy and whole. It was in navigating that journey that Amanda realized a unique unmet need for a planner designed with the special needs caregiver in mind. Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with The Glory Days Co.:https://theglorydaysco.com/https://www.instagram.com/theglorydaysco/https://www.facebook.com/theglorydaysco/https://twitter.com/theglorydayscoThis episode brought to you by:https://www.chick-fil-a.com/OrderFood/cicero
48 - Meet Maddy

48 - Meet Maddy

2020-03-0342:55

Maddy is a spunky, brave, amazing five-year-old girl from Liverpool, New York. But her journey started with significant complications and difficult decisions for her parents coming at birth. This conversation with Maddy's parents, David and Erin, will walk you through the unexpected challenges they faced and what life has looked like for their family after receiving a diagnosis. Maddy loves to spend her days making those around her laugh, playing with her toys, and being out and about with her family and peers. She has a personality that shines wherever she goes. She is a fighter, a go getter, and a change maker.Learn more about this family's journey and see the "Amazingly Made" t-shirt design that is inspired by Maddy at www.goshout.love/Maddy. Every item sold in March will be used to help replace the deck in their backyard with a patio and ramp that is easy for Maddy to navigate.Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with Maddy's family:https://www.instagram.com/AmazinglyMaddy/
Josh & Kristin have a chat with our first official family, the Jacobsens. We featured their son, Silas, back in June 2014. This was the first month we designed a t-shirt inspired by a kiddo’s story. We’ve been connected with Si and his family for six years now. It’s been beautiful to watch Silas grow up and see his Allison and Sol blossom into parenthood. In this episode, Allison gives us an authentic look into their journey and a sincere glimpse into some of the darkness that can surround the grief of diagnoses. We are so thankful for Allison and her transparency.Every purchase from our shop in February will benefit this month's featured kiddo, Miller. This includes the popular "All the Cool Kids Make a Difference" t-shirt design that was inspired by Si, found here: https://goshout.love/shop/all-the-cool-kids-adult-tee/Connect with Allison:https://www.instagram.com/arjake/Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveThis episode brought to you by:http://ARemarkableHome.com
“We were never meant to journey this life alone. The power of community and being together-there is not much that comes close to the hope and strength that is needed to get through things.”This episode is truly something special. We sat down with Katie and Jacque, the moms to Beckett and Miller, and talked about how the diagnoses of their boys brought them together. It is a conversation about loss and support, community, and friendship.Learn more about this month's family and see the "See Beyond the Giant" t-shirt design that is inspired by Miller at www.goshout.love/Miller.Connect with Jacque:http://instagram.com/jacthweattConnect with Katie:http://instagram.com/beckettstrong1http://instagram.com/kspenc73/Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveThis episode brought to you by:http://ARemarkableHome.com
In February of 2019 we featured a sweet boy from Texas named Beckett. He stole the hearts of the entire Go Shout Love community. With the support raised through sales during the month, Beckett and his family were able to visit Disney World, checking off the top item on their bucket list for Beckett. Just a couple weeks after returning from their trip, Beckett passed away, ending an incredibly brave battle with Leigh's syndrome.In this episode, Josh and Seth sit down with Beckett's parents, Tyler and Katie, where they give a raw and honest take on what life has looked like for them as they've walked this incredibly difficult road. They touch on how everyone grieves differently, how words and acts of support have helped carried them, how Beckett has inspired a legacy that continues to this day, and how a powerful relationship with February 2020's family (Miller) has created a bond that helps both families journey through tough days. Learn more about this month's family and see the "See Beyond the Giant" t-shirt design that is inspired by Miller at www.goshout.love/Miller.Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with Katie:http://instagram.com/beckettstrong1http://instagram.com/kspenc73/This episode brought to you by:http://ARemarkableHome.com/
44 - Meet Miller

44 - Meet Miller

2020-02-0441:33

In this episode we sit down with the Josh and Jacque, the parents of three-year-old Miller from Abilene, Texas. In this chat we learn about Miller's joyful and resilient personality, his diagnosis of Leigh syndrome, and a connection with a previous Go Shout Love family that nominated Learn more about this family's journey and see the "See Beyond the Giant" t-shirt design that is inspired by Miller at www.goshout.love/Miller.Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with Jacque:http://instagram.com/jacthweattThis episode brought to you by:http://ARemarkableHome.com/
Josh and Kristin introduce the newest member of the GSL team, Julie Walls! The three of them talk about Julie's background in education and how the journey of a former educator and current medical mom have brought a desire to see classrooms be a place of inclusion and kindness. Also introduced in this episode is a brand new free resource, specifically designed for classroom use, as a complement to The Thin Skin Gang book including activities for kids. Get the Thin Skin Gang book and Classroom Resource:https://goshout.love/classroomFor questions on The Thin Skin Gang Classroom Resource or becoming a sponsor:Email Julie at julie@goshout.love.Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with Josh:http://instagram.com/joshveachConnect with Julie:http://instagram.com/juliewalls12Connect with Kristin:http://instagram.com/krisestok
In this episode we hear from Allison, Samuel’s mom (August 2018), as we get an update on how they are doing and what has been going on since their time on Go Shout Love. The conversation covers surgeries Samuel has had, his experience with school and new friends, and becoming a big brother. Josh and Allison also chat about the power of leveraging social media as well as some precautions and boundaries to put in place to protect privacy. This episode is full of updates and stories on how Allison and Jeff (Samuel’s Dad) are continuing on this encouraging, beautiful journey as a family. See Samuel’s video and original podcast episode:https://goshout.love/SamuelFollow Samuel’s journey: https://www.instagram.com/strengthforsamuel/https://www.facebook.com/Strength-for-Samuel-1638013253119638/Connect with Go Shout Love:https://www.instagram.com/goshoutlovehttps://www.facebook.com/goshoutloveConnect with Josh:http://instagram.com/joshveach
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