DiscoverSeize Your Adventure
Seize Your Adventure

Seize Your Adventure

Author: Francesca Turauskis

Subscribed: 17Played: 315
Share

Description

Explore the spectrum of adventure sports and outdoor living, through narratives and interviews from people living with epilepsy.

From long-distance hikes in Europe to skiing in snowstorms, the storytelling episodes will share life-changing journeys and the smaller moments spent between seizures.

The ‘chats’ with guests dive into the deeper stuff, the hidden aspects of taking on adventures with epilepsy - from carrying medication in a backpack, to assessing seizure risks in the wilderness and recognising limitations.

Learn about epilepsy, then start planning your adventure.
27 Episodes
Reverse
On Tuesday 19th May, I handed over the Seize Your Adventure Instagram account to Cath Shanks,  a skate coach who was diagnosed with temporal lobe epilepsy in 2010. In this bonus episode, you get to hear how it went, and listen to the Instagram Live interview we had afterwards. I've only discovered Cath recently, and her account @specialeptic is still new. But the account is a mix of great fun and heart-breakingly honest: "SOME DAYS.... some days are harder than others. some days are that little bit darker. some days it’s not even the seizures that are the problem. some days I think I’d rather have seizures than take meds. some days it’s just a little bit too much to cope with. some days I can pull myself out of the rut, some days I can’t. some days Epilepsy sucks WAY MORE than others. some days I just wish I had a different brain. some days, like today." Cath has also been learning to slackline during lockdown. Which is just so cool. You can see some of her progress on her YouTube channel. Cath talks about: Her cocktail of epileptic seizures Learning to skateboard as an adult Why an all-woman skateboarding lesson was perfect for her Having a seizure whilst teaching at summer camp How she got a job teaching skateboarding The comfort she has found in the epilepsy community Doing jigsaws in lockdown And more... Find Cath on Instagram as @specialeptic SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. MUSIC: Kev Rowe on Soundcloud | Creative Commons Attribution License This interview will have an auto transcript on YouTube soon!
For Jared Muscat, surfing has been a passion, an obsession, and in his own words an addiction, since he was a teenager. Surfing was part of what led Jared to his current job working for the outdoor clothing company Patagonia. And it was on Patagonia’s blog that I first read some of Jared’s story about surfing with epilepsy, his hard epilepsy diagnosis and journey, and a paddleboarding challenge he did to raise awareness for the condition. It slightly surprised me to realise that I haven’t had any sea-based adventurers on the podcast yet. The ocean has often offered ‘adventure’ in the traditional sense - the swashbuckling, finding new lands kind of adventure. But whilst the heyday of adventure on the high seas is over, in today’s conversation, we talk about how the power and unpredictability of the sea can still offer adventure of the everyday kind. In today's episode Jared talks about: Having brain surgery to stop seizures Not being allowed to surf post-surgery How yoga helped him with his recovery Whether removing his amygdala has affected his fear levels! How he got into surfing as a teenager His path to working for Patagonia How encouraging his Patagonia team have been Previous employer's discrimination because of epilepsy Paddleboarding when you can't surf 'Paddling Towards a Cure' - paddleboarding 17 miles for epilepsy awareness His reaction when doctors told him to stop surfing because of epilepsy What is Epileptic Opportunity? The importance of a good support network with epilepsy What 'adventure' means to him And more! READ JARED'S BLOG POST: Paddling Towards a Cure CONNECT WITH JARED: Instagram: @jaredamuscat SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. FOLLOW SEIZE YOUR ADVENTURE: Instagram: @SYAdventurers Facebook: @SYAdventurers Twitter: @SYAdventurers MUSIC: Kev Rowe on Soundcloud | Creative Commons Attribution License I AM STRIVING TO MAKE SEIZE YOUR ADVENTURE ACCESSIBLE. TRANSCRIPTS WILL BE AVAILABLE ON THE WEBSITE.
Annie Brooks, is a blogger and Youtuber from the award-winning blog Tales of Annie Bean, a website and video channel that covers fitness, travel, lifestyle and  (of course) adventure! Annie was diagnosed with epilepsy in the form of complex partial seizures back in 2012, so a lot of her blog journey has been about learning to be active with the condition. She recently took on 12 in 12 challenges to raise awareness to the condition, and hopefully inspire fellow sufferers to keep healthy and active. Beyond her condition Annie covers a lot of travel and takes herself on a variety of adventures with her husband Nick and dog Winnie. In today's episode we talk about: How a blog about fashion became something very different The best things to do in California Camping in the Lake District Running a 10K at the Keswick Mountain Festival Annie's epilepsy diagnosis Learning to live with partial seizures How Annie started triathlons Doing 12 challenges in 12 months for epilepsy awareness Safely doing open water swimming with epilepsy (and why she loves it!) Training for an Ironman How having a seizure during a half marathon stuck with her Running the Brighton Half in a storm! Keeping fit in lockdown And much, much more! LISTEN TO THE FULL INTERVIEW ON PATREON SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. MUSIC: Kev Rowe on Soundcloud | Creative Commons Attribution License
Enjoy this quick bonus episode from Jamie Wissinger, host of the epilepsy podcast '1 in 26' . I thought it was about time to share some official Seizure First Aid , and asked Jamie to share her knowledge as an official trainer. Be Calm Remove Dangerous Objects Always Time the Seizure If the person falls, turn them on their side Never put anything in their mouth As well as hosting 1 in 26, Jamie is a wife and a mama to three children and owns her own business. She has always had seizures, from being born two months early, to not having a breakthrough seizure until age 5, then a hiatus until age 21.  After having multiple seizures, in 2011, she decided to make a change.  She was unhappy with the way she looked, felt, and acted.  One day she decided she was no longer accepting that unhappiness and did everything she could to change her life. And it did.  Since then, she has grown mentally in ways that are amazing.  Just a few years ago she was filled with self doubt, couldn’t stick up for herself, lacked confidence and was surrounded by negativity. Now, she refuses to let that negativity bother her. It will always be there, the stress and the negativity but it is not about that, it’s about how YOU react to it.  It is her mission to support women who are affected by epilepsy and mentor them to pursue whatever they desire. Taking everything with one step at a time, it is her passion to inspire women  and not let their disability define who they are. LISTEN TO THE 1 in 26 Podcast ABOUT JAMIE: http://jamiewissinger.com/ ABOUT THE ANITA KAUFMANN FOUNDATION: http://www.akfus.org/ SUPPORT ME with SEIZE YOUR ADVENTURE: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.
"Having a chronic condition such as epilepsy consistently prevents individuals from participating in sport. For someone with epilepsy the fear of making the condition worse, sustaining injury or even dying (Kale, 1997) are regularly quoted as reasons for very low participation levels, known to be as low as half that of the general population (Han, Choi-Kwon and Lee, 2011).” Ian Johnston was a very active football coach and runner before he started having seizures. Then, he became one of the 80% of people with epilepsy who are sedentary. But such a dramatic change in lifestyle prompted Ian to go to university. He wanted to study the reasons why he, and others like him, stop doing exercise when they start having seizures. We spoke about his path towards a Master in Clinical Exercise Physiology, his research and  findings and how  study the psychology of epilepsy and exercise helped him get back to exercise himself. In today's episode we talk about: Ian's life-long love of football Doing the Great North Run when he was 12 years old Being a football coach Having his first seizure when his was 48 The physical effects of epilepsy and medication The psychological  problems returning to sports after seizures Deciding to do a Clinical Sports Physiology Masters when he was 49 years old The difficulties doing a clinical course with a sports background How his degree helped him understand his own epilepsy Learning to take blood samples and EEGs Why 80% of people with epilepsy are sedentary Developing an exercise programme for someone with epilepsy The results of his dissertation: "CAN A COACH INFLUENCE A RETURN TO EXERCISE FOR THOSE WITH CHRONIC CONDITIONS?" Plus, the footballer Leon Legge, Daniel Bedeau and more! LISTEN TO THE FULL INTERVIEW ON PATREON SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. MUSIC: Tick Tick Tick by Logic Moon| Creative Commons Attribution Non-Commercial License READ IAN'S FULL DISSERTATION on the website GET IN TOUCH WITH IAN by email READ THE FULL TRANSCRIPT at seizeyouradventure.com/transcripts
In this bonus episode, I catch-up with Becky Sampson. Four months after our initial conversation, coronavirus has changed plans for many. Becky tells me how it affected her round-the-world trip. In today's episode we talk about: Walking the Coast to Coast Track in Australia - in 9 days! Taking epilepsy medication across international borders The limits on anti-seizure medication for long journeys The unwanted side-effects of Sodium Valporate Seeing orangutans in Sumatra Being surrounded by monkeys in Angkor Wat without tourists Deciding whether to come back to the UK because of coronavirus Struggling to be repatriated Flying over the mountains in Cambodia Planning hikes in the UK Plus, what does 'adventure' mean to Becky? FIND BECKY: https://www.facebook.com/misadventuremagnet/photos SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. MUSIC: Moon Fire by Kev Rowe on Soundcloud | Creative Commons License
Welcome to Season Two of Seize Your Adventure! This season, I will be speaking to even more people about a wider range of sports, and the conversations coming up in Season Two feel even more relevant in the current climate.   Today’s chat is with a lady called Becky Sampson. Becky is from the UK, but she hasn’t been based there for over three years now. She got in touch with me over a year ago when she was halfway through riding a bike across New Zealand. I was already pretty impressed and jealous of this fact, but she went on to tell me that she had already been riding in Canada and some of the US. And after New Zealand she was heading on to Australia and then planning to cycle the long way home through Asia and Europe.I really think the guests talking about accepting and adapting to limits. In today's episode we talk about: Cycling around the world Adapting her bike to her own needs Travel insurance for long-term trips The extra costs on travel insurance for having epilepsy Which epilepsy medications is available around the world Which epilepsy medication is difficult at border crossings Changing medications and the side effects Having a seizure in a forest How travel partners have reacted to seizures The cost of an ambulance, a sandwich and a drink... Nearly running over a bear on her bike in Canada! FIND BECKY: https://www.facebook.com/misadventuremagnet/photos SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. MUSIC: Moon Fire by Kev Rowe on Soundcloud | Creative Commons License
So this is actually a sneaky extra episode of Season Two because I wanted to add a little prologue before we get into the season. Most of the interviews in the first part of this season were recorded in a very different world to one in which they are being released. The UK and a lot of the world are on lockdown because of the coronavirus pandemic. And like many in the outdoor community, in some ways seems odd to be releasing a podcast about getting outside, adventuring, not washing for days in some cases, when at the moment I am advocating for the opposite - stay close to home, stay inside. But I do feel that this is what makes Seize Your Adventure is more relevant than ever. The podcast has always toed that narrative between access to the outdoors, and being cut off from it. In many of the stories and interviews in Season Two, we talk about losing the ability to drive to our favourite places, or being stuck in hospital when mother ocean is calling. This series dives even deeper in the ways epilepsy has limited adventurous people, and how more importantly how they have either adapted to these limits. A lot of my guests talk about the long path to acceptance of living with the condition - including the fluctuations in amounts of seizures and way what we are capable of can change so quickly. And we also talk about the mental health difficulties that can spring upon us even when seizure-free - things such as anxiety and depression that are difficult to attribute to either physiology of our brains, or the psychology. BECOME A PATRON! I have - finally, after much prompting - set up a new Patreon account! If you appreciate the work I do, you can support me with monthly payments of as little as $3, less than the cost of a drink! You can sign up at patreon.com/seizeyouradventure Patrons get unique benefits and get to see some of the inner-workings of the podcasting life - from Outtakes episodes, to a Patron-only newsletter. It is a strange time in the world, and I think we can all do with a bit of good storytelling, adventure and heart-to-heart conversations in our lives. If you are in a position to support, I can continue doing this thing! READ BLOGS seizeyouradventure.com/blog
Hello everyone, I am Fran Turauskis and I’m happy to introduce you to Season 2 of Seize Your Adventure. This season continues to explore the concept of adventure on a spectrum. Over the past few months, I’ve been hunting down even more people living with epilepsy who enjoy the adventure lifestyle.  This season will have more ‘chats’ with guests. We talked about how the smaller adventures can help maintain a sense of self after a diagnosis, and how it has helped some people change their path in life. We’ll be hearing about even more sports, from cycling to surfing, and we’ll continue to shed a light on some of the hidden aspects of taking on adventures with epilepsy. The guests acknowledge the limitations of living with epilepsy everyday and also go into some of the consequences and risks of having seizures at the wrong time. Whatever your knowledge level of adventure or epilepsy, Season Two of Seize Your Adventure will help you explore what adventure means to you. Episode 0 is out on 30th March, hit the subscribe button now so you don’t miss it. In the meantime, you can head to seizeyouradventure.com for some blog posts, and follow @SYAdventurers on Facebook, Twitter and Instagram. Thanks for listening, and safe adventures! BECOME A PATRON TO SUPPORT THE PODCAST! You can now support Seize Your Adventure on Patreon. Patreon is a monthly donation platform to support creatives you believe in. You can pledge as little as $3 a month to help me run Seize Your Adventure. Head to https://patreon.com/seizeyouradventure to learn more. You can also make a one-off donation on Paypal at https://www.paypal.me/seizeyouradventure
The Outdoor Mindset

The Outdoor Mindset

2019-11-2729:57

In 2010, thirteen individuals got together in a hut in the Rocky Mountains of Colorado. The group shared a passion for the outdoors, an unyielding enthusiasm for life… and they also shared a link to different neurological challenges. These hardships could easily have led to a more subdued mindset. The thirteen people could have opted for a quieter, indoor life. But instead, they were inspired by one of the friends, whose diagnosis of a brain tumour encouraged him to use the outdoors as a way to cope, and a way to connect with others. That friend was Kyle Martin, and this meeting was the start of the organisation Outdoor Mindset (OM). Learn more about the Founders and members of the Outdoor Mindset community, and listen to how and why they chose to get outdoors and do adventure sports with conditions such as Parkinsons, MS, epilepsy and brain tumour. ABOUT OUTDOOR MINDSET: https://www.outdoormindset.org/ JOIN THE COMMUNITY: https://www.outdoormindset.org/get-involved Facebook: https://www.facebook.com/OutdoorMindset/ Instagram: https://www.instagram.com/outdoormindset/ Twitter: https://twitter.com/OutdoorMindset DONATE TO OUTDOOR MINDSET: https://www.outdoormindset.org/donate SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts MUSIC: Groovy Guitar - LOOP by joshuaempyre | License: Attribution Groovy Guitar 2 - LOOP.wav by joshuaempyre | License: Attribution Lonely Lake by Kev Rowe | License: Creative Commons
This is not quite Seize Your Adventure, but rather a short trailer episode to send you off to another podcast. Over the past few months I’ve been working on an episode for another independent podcast called Out There. It looks at the big questions in life through our relationship with the outdoors, using storytelling. So it is with huge pride that I can say my episode was released last week. It’s called “The ‘Privilege’ to Choose” and I thought I’d give you a little taster: “In this episode, we’re going to be listening to a story about choice. Having the ability to choose can be something of a privilege. For some people, the choices they are able to make can become limited by factors such as income, responsibilities or health. But can having limited choice sometimes make things easier?” Head over to http://www.outtherepodcast.com/episodes to listen to the full story. FOLLOW OUT THERE: Instagram: https://www.instagram.com/outtherepodcast/ Facebook: https://www.facebook.com/OutTherePodcast/ SUPPORT SYA! BUY MUGS, JOURNALS, & DONATE: https://seizeyouradventure.com/shop/ FOLLOW SEIZE YOUR ADVENTURE: Facebook: https://www.facebook.com/SYAdventurers/ Twitter: https://twitter.com/syadventurers Instagram: https://www.instagram.com/syadventurers/ And please listen, share, subscribe, rate… and don’t forget to tag when you do!
I get a lot of people contacting me. People who have adventurous souls and lived and breathed their sports before they started having seizures and were diagnosed with epilepsy. And the question I get asked most by people in this situation is “can I do this sport with epilepsy?”. And no matter what the sport is, my answer always has to be the same: “I cannot say”. I talk about a very valuable resource from the International League Against Epilepsy or ILAE that was recently shared with with. And I wish that I’d known about this sooner because it’s two tables that clearly lay out some guidelines for taking part in sports with epilepsy. One table is labelled ‘Seizure risk level in sport’ The second table is labelled ‘Recommended sport participation by seizure’. Listen to me talk about some of the sports on these tables, and advice on doing sports with epilepsy by the ILAE. You can find the tables by ILAE here:  https://onlinelibrary.wiley.com/doi/full/10.1111/epi.13261 DISCLAIMER: All information presented in this podcast is for your information. I have not contributed to the classing of sports. I take no responsibility for individual decisions made with regards to adventure sports or medical conditions. Risks will be different based on the sport and individual. Always speak to your neurology team. SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts FOLLOW SEIZE YOUR ADVENTURE: Facebook: https://www.facebook.com/SYAdventurers/ Twitter: https://twitter.com/syadventurers Instagram: https://www.instagram.com/syadventurers/ And tag when you listen, share, subscribe!
Three months in and seven challenges down, I am right on track with my #30at30forEpilepsy. In this bonus episode, you get to hear the seven lessons I have learned so far from ice climbing, archery, axe throwing, trail running, mountain biking, hiking at altitude and wild swimming. This is how I have safe adventures with epilepsy :) MENTIONS: Archery Fit Vertical Chill Sally Orange SayYesMore and the Yes Tribe Tough Girl Podcast and the Tough Girl Tribe Outdoor Mindset SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts
Amanda Plomp is a runner with epilepsy based in Victoria in Canada. As we heard in the last episode, discovering running in her twenties helped Amanda to feel strong and connected to her body, a feeling she had missed since her seizures started when she was a teenager. Running helps with her epilepsy. And epilepsy helps with her running.  In my conversation with Amanda, I was able to delve into this a bit more. I asked for her tips for me, as a new runner with epilepsy, and asked her to talk me through the different types of running terrain she enjoys. WE TALK ABOUT: How different seizures affect her running How running helps with epilepsy Hiking and camping in Canada Why Amanda chooses not to wear a medical alert bracelet Which is better: backwoods running, beach running or trail running? Running solo vs running races The difference between ‘active’ and ‘athletic’ The dangers of running solo in bear country Her advice for me running my first race with epilepsy How important it is to tell adventure buddies about your epilepsy Why we should teach raccoons seize first aid... Please remember all stories presented here reflect the personal experiences of contributors . Neither myself or contributors can advise or take responsibility for individual decisions made with regards to adventure sports or medical conditions. TERMINOLOGY: Myoclonic seizures/jerks: partial seizures that cause isolated jerks or twitches, for example in the arms or legs  Juvenile Myoclonic Epilepsy of Janz: epilepsy with various seizures, including myoclonic, diagnosed before adulthood (read more) Tonic clonic: a seizure with loss of consciousness and convulsions  Packed trail: maintained dirt path or trail, usually marked MORE ABOUT AMANDA: https://tremorsofmyworld.blog/ JOIN ME IN AN ADVENTURE: https://www.francescaturauskis.co.uk/30-at-30 MUSIC: Where the Wild Things Grow by Kev Rowe | License: Creative Commons SUPPORT SYA! BUY MUGS, JOURNALS AND POSTCARDS: https://seizeyouradventure.com/shop/ FOLLOW SEIZE YOUR ADVENTURE: Facebook: https://www.facebook.com/SYAdventurers/ Twitter: https://twitter.com/syadventurers Instagram: https://www.instagram.com/syadventurers/ And tag us when you listen, share, subscribe! 
DISCLAIMER: Please remember all stories presented reflect the personal experiences of contributors . We take no responsibility for individual decisions made with regards to adventure sports or medical conditions.  For most people, the teenage years are a crucial period in finding out who we are. We try out lots of new things, we meet new people, we’re growing into new bodies and we’re starting to figure out the adult we will become. It is a period in our lives when we begin to define ourselves. So it’s a horrible irony that the teenage years are also a time that a lot of people start experiencing seizures. Today’s story comes from Amanda Plomp. Nowadays, Amanda defines herself as a runner, an athlete… and as an epileptic. But that wasn’t always the case. When Amanda started having seizures in her teens, it made her feel lost in her own body. Both the seizures and the medication she was prescribed to help stop them impacted on the activities that she enjoyed, and she hid her seizures from everyone, worried it would change what people thought of her.  In the end, it was running that helped Amanda reconnect with her body, and redefine her sense of self.  TERMINOLOGY:  Myoclonic seizures/jerks: partial seizures that cause isolated jerks or twitches, for example in the arms or legs  Juvenile Myoclonic Epilepsy of Janz: epilepsy with various seizures, including myoclonic, diagnosed before adulthood (read more)  Tonic clonic: a seizure with loss of consciousness and convulsions  Packed trail: maintained dirt path or trail, usually marked  MORE ABOUT AMANDA:  https://tremorsofmyworld.blog/  MUSIC:  Where the Wild Things Grow by Kev Rowe | License: Creative Commons  Bubblegum by Kev Rowe | License: Creative Commons  E I - 5.mp3 by cunningGnome | License: Attribution Noncommercial  SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts FOLLOW SEIZE YOUR ADVENTURE:  Facebook: https://www.facebook.com/SYAdventurers/  Twitter: https://twitter.com/syadventurers  Instagram: https://www.instagram.com/syadventurers/  And tag us when you listen, share, subscribe!
Today’s story is a small epic of a tale. It starts on the other side of the world, it includes some dramatic moments, some aspirations achieved. I also had to download a beep sound to censor some swear words in this episode - and you’ll soon understand why. This is the story of my first #30at30forEpilepsy challenge. This is my ice climbing adventure.  Why Ice Climbing? Well one reason is that I am trying out some of the sports that contributors to Seize Your Adventure already do. Some of you out there will be familiar with a gentleman called Alex Staniforth. Alex was plagued by adversity and epilepsy as a child, and has gone on to do some extraordinary things, including attempting to climb Everest on two occasions. The first time he tried was when he was eighteen, which is quite incredible. So ice climbing is partly inspired by Alex.  I figured, this might be one of the harder challenges to arrange. I live near London, a place that’s not really known for its glaciers or icy mountains. I thought I’d have to jet off to another country, brave the cold on the remote side of a mountain, and contend with all the extra risks there might be from having epilepsy in that environment. But I did some research and I learned that there are actually a few indoor icewalls in the UK and the team at Ellis Brigham Mountain Sports invited me along to an session at their indoor wall, called Vertical Chill. So suddenly, from being one of the harder challenges to arrange it became the easiest. I was so excited I made it the 1st challenge and spent some time on MY ACTUAL 30th BIRTHDAY climbing a wall of ice, in the middle of London which is just... so cool. (I’m sorry for the pun.)   TRY ICE CLIMBING:   You can experience the thrill of real ice climbing in the city at the Vertical Chill Ice walls London and Manchester (located within Ellis Brigham Mountain Sports)  Vertical-chill.com   MUSIC:   Cinematic Trailer - Epic Emotional Background Music / Action Orchestral Music by AShamaluevMusic | License: Creative Commons   SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts FOLLOW SEIZE YOUR ADVENTURE:   Facebook: https://www.facebook.com/SYAdventurers/   Twitter: https://twitter.com/syadventurers   Instagram: https://www.instagram.com/syadventurers/   And tag when you listen, share, subscribe!
We’ve heard from people with epilepsy how they seize adventure. Now it’s time to put some adventurers on the spot. I talk to three people who work within the adventure field to find out what they know about epilepsy, what they don’t, and how we can get more people with epilepsy in adventure. We mention: -These three adventure professionals’ first aid and epilepsy experience -How they handle risk assessments -The different types of seizure -Basic epilepsy first aid -How to encourage people with epilepsy to take part in adventure -What adventure means to them -Where to go to learn more about epilepsy THE ADVENTURERS:  Jago Hartland (Outdoor Pursuits Guide, and fellow SayYesMore Ambassador) Find out more about Jago: https://sayyesmore.com/ambassador-jagohartland David Willis (Bushcraft Instructor)  Find out more about David: http://www.davidwillis.info/ Nicki Bass (Resilience Consultant) Find out more about Nicki: https://www.resiliencework.co.uk/about LEARN ABOUT EPILEPSY: https://seizeyouradventure.com/learn-about-epilepsy/ DONATE TO YOUNG EPILEPSY: https://uk.virginmoneygiving.com/epilepsy-adventure  JOIN THE YESTRIBE:  https://www.facebook.com/SayYesMore/  SUPPORT THE PODCAST:  https://seizeyouradventure.com/shop/ 
Jake Quigley is the executive director of the non profit Outdoor Mindset. The organisation’s mission is to unite and inspire people affected by neurological challenges through a common passion of the outdoors. It is a free membership-based community. When he is not working, Jake can be found adventuring outdoors with his wife, Jeanie, by foot, bike, or ski. If you haven’t listen to Jake’s story, be sure to head back to Part One so that you make the most of our conversation! We talked about: - His epilepsy diagnosis at 11 years old - How adventure can increase confidence, positivity and the ability to deal with challenge - The path to brain surgery - How to dispel the fear and stigma around epilepsy - What is telemark skiing?  - How altitude might affect epilepsy - What he could teach me in mountain biking! - Getting support from Diane Van Deren - What you CAN control when you are diagnosed - How exercise can help your brain - The influence of the outdoors on depression and anxiety - The changes in attitude towards epilepsy - His next big adventure Terminology: Grand mal: a generalised seizure where a person loses consciousness and convulses. Also known as a tonic-clonic (more modern term). Aura: a change in brain activity that causes some strange sensations. Often a warning of a seizure.  More about Outdoor Mindset: https://www.outdoormindset.org/ Follow Outdoor Mindset: Facebook: https://www.facebook.com/OutdoorMindset/ Instagram: https://www.instagram.com/outdoormindset/ Twitter: https://twitter.com/OutdoorMindset Music: Lonely Lake by Kev Rowe | License: Creative Commons SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts Follow Seize Your Adventure: Facebook: https://www.facebook.com/SYAdventurers/ Twitter: https://twitter.com/syadventurers Instagram: https://www.instagram.com/syadventurers/ And tag us when you listen, share, subscribe! 
For Jake Quigley, adventure is more than just a past time, or even a passion. Adventure is a lifestyle, and one he built up around his epilepsy. Jake was diagnosed with epilepsy when he was eleven years old. Rather than being scared by the condition, those around him encouraged and supported Jake to try adventurous things.  But having carved out his adventure lifestyle, Jake’s seizures began to evolve when he was an adult, and they started to impact on his quality of life. Eventually, medication wasn’t working, and Jake was left with one last option. Brain surgery.  TERMINOLOGY Medically refractory epilepsy: Epilepsy that is never fully controlled by medication.  Generalised seizure: a seizure that affects the entire brain  Focal point: A place in the brain the seizure starts  Grand mal: a generalised seizure where a person loses consciousness and convulses. Also known as a tonic-clonic (more modern term).  More about Outdoor Mindset: https://www.outdoormindset.org/  MUSIC:  Groovy Guitar - LOOP by joshuaempyre | License: Attribution  Extract of "wrapped in dreams" by Frankum & Frankumjay | License: Creative Commons.   Lonely Lake by Kev Rowe | License: Creative Commons  git2016_4.WAV by Hoerspielwerkstatt_HEF | License: Attribution  BR_094_Himalaya_Buddhistmonks.mp3 by kevp888 | License: Attribution  Groovy Guitar 2 - LOOP.wav by joshuaempyre | License: Attribution  Explosion and Ski sound effects from Zapsplat | License: Creative Commons  SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure. READ THE FULL TRANSCRIPT AT seizeyouradventure.com/transcripts
Adventurer. Soldier. Author. Jordan Wylie is known for his challenges at the extreme end of the adventure spectrum. Described by Sir Ranulph Fiennes as “A determined, fearless adventurer and an inspiring man”, Jordan has run races in Iraq, Afghansistan and Somalia, he has written a book about his time tackling pirates off the coast of Africa, and he has hiked Kilimajaro... barefoot.  But Jordan is also known for his passion for helping others in his role as an ambassador, trustee and campaigner for various international charities, including Frontline Children and Epilepsy Action. He was diagnosed with epilepsy himself after he contracted dengue fever whilst in Djibouti. But rather than letting it slow him down, Jordan took on the role of an epilepsy ambassador, and continues to push the boundaries of extreme adventure. We talked about:  His most difficult challenge so far  How he was diagnosed with epilepsy  What an Extreme Adventurer does when they’re not adventuring - Who makes him starstruck  His must-visit travel destinations  How to limit epilepsy risk  Swimming with crocodiles!  And more...  Donate to Rowing Dangerously: https://www.givepenny.com/rowingdangerously  Follow the Rowing Dangerously Challenge on Twitter: https://twitter.com/RowDangerously  Find out more about Jordan: https://www.jordanwylie.org/  Jordan’s Recommendations:  Declassified Podcast  Citadel by Jordan Wylie  SUPPORT THE PODCAST: Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.
loading
Comments 
Download from Google Play
Download from App Store