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Healing Ties

Author: Christopher MacLellan "The Bow Tie Guy" on the Whole Care Network

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Beyond Caregiving: How Do We Care?
291 Episodes
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No One Without Song

No One Without Song

2021-09-2148:44

Through her marvelous book: "The Courage to Care: Being Fully Present with the Dying" Rev. Linda Bryce's mission is to pass on her understandings and show us how to be there at the bedside, fully present with anyone who is dying, and sharing in the mystery and wonder of death—and after.  When there is someone at our side, challenging times become more bearable. Whether it is an unexpected life-ending diagnosis, loss of employment or even of the ability to go places and see people, the presence of another alongside us offers reassurance and a confirmation of our value and membership in a circle of compassion, caring and love. Through the great work of Rev Linda, she is helping us keep love in hearts because love is music for the soul Listen in and learn how Rev. Linda and the chorus of Bedside Singers are creating Healing Ties all around us!
For more than thirty-five years, Author Susan Ryan has been in roles of non-professional (unpaid) caregiving support for family and loved ones. Through her experience as a family caregiver, (currently navigating her husband’s care with his diagnosis of Alzheimer’s Disease), Susan has moved from feeling frustrated, overwhelmed, and yes - sometimes frightened, to confident and balanced navigating the transitions being care receiver, those who support us, and I are on in our journey. As a dynamic and international speaker, Sue's free caregiving tips are a must-have no matter where you are on your caregiving journey. Listen in and learn how Sue is creating Healing Ties all around us!
Zander Keig, MS, MSW, LCSW, and Jennifer Henius, LCSW are caregivers and social workers embarking an ambitious and much-needed project to launch the LGBTQ Caregiver Center as a new online resource hub as part of the Caregiver Wellness Collective Inc, a new nonprofit startup based in greater Tampa Bay, Florida. The LGBTQ Caregiver Center aims to raise awareness of the unique challenges faced by #LGBTQCaregivers and those who care for #LGBTQ individuals, empower LGBTQ Caregivers to live with #pride and #dignity, and serve as a conduit for education, wellness, training, and research. The Center provides information and resources, delivers training and innovative services to enhance the health and wellness of LGBTQ Caregivers. Listen in and learn how Jennifer and Zander are creating Healing Ties all around us!
Jodi O’Donnell – Ames is a professional speaker, wellness and empowerment coach, author, podcaster, and tireless advocate for Lou Gehrig's disease, or ALS (Amyotrophic Lateral Sclerosis). Jodi is also the founder and current board member of Hope Loves Company, a non-profit organization committed to providing educational and emotional support to children and young adults who have had or have a loved one battling ALS in their lives. Now on her second career after caregiving has ended, Jodi is helping people change their lives by empowering people to live happily through wellness in body, mind, and spirit. Listen in and learn how Jodi is creating Healing Ties all around us!
Marianne Scuicco is a registered nurse, dementia daughter, and author of the novel Blue Hydrangeas, an Alzheimer’s love story. She is also a founding member and manager of AlzAuthors.com, the global community of authors writing about Alzheimer's and dementia from personal experiences. On Alzauthors.com you’ll discover hundreds of inspirational stories which span all Alzheimer’s and dementia stages to offer you keen insights and better understandings of this insidious disease. Marianne also hosts and produces the popular Untangling Alzheimer's and Dementia podcast. Listen in and learn how Marianne and the entire team of contributors at AlzAuthors are creating Healing Ties all around us!
Dr. BJ Miller is a longtime hospice and palliative medicine physician and educator. He currently sees patients and families via telehealth through Mettle Health, a company he co-founded with the aim to provide personalized, holistic consultations for any patient or caregiver who needs help navigating the practical, emotional and existential issues that come with serious illness and disability. BJ has worked in all settings of care: hospital, clinic, residential facility, and home. Led by his own experiences as a patient, BJ advocates for the roles of our senses, community and presence in designing a better ending. His interests are in working across disciplines to affect broad-based culture change, cultivating a civic model for aging and dying and furthering the message that suffering, illness, and dying are fundamental and intrinsic aspects of life. His career has been dedicated to moving healthcare towards a human-centered approach, on a policy as well as a personal level. Listen in and learn how BJ and the staff at Mettle Health are creating Healing Ties all around us!
Award-winning author Trish Laub’s expertise is derived from the full-time care of her parents, one with Alzheimer’s and one with stage 4 cancer, for whom she delivered the care and end of life they desired. She served not only as a hands-on caregiver but also as the manager of both of her parents’ daily and medical care, as well as their in-home caregivers and overall care team. She has gone on to assist many others through their care journey. Trishs' "Comfort in Their Journey" book series provides the clear, concise, and easily accessible information that she wishes had been available to her. She now leads presentations and workshops and offers consulting services on the subjects covered in the books, and hosts a bi-monthly live radio show A Cup of Comfort™ during which she and her guests talk about everything related to providing dignified care, including sometimes the uncomfortable topics. Listen in and learn how Trish is creating Healing Ties all around us!
Dr. Hsien Seow and Dr. Samantha Winemaker have worked their entire careers helping those who are facing serious illnesses. For years, they often heard patients and families say they felt unprepared and overwhelmed. Despite years of education, research, and advocacy, they continued to hear patients and families say “Why didn’t anyone tell me that sooner…” They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experience. They wanted to educate …and build a community to share deeply human stories about caring for others.  Because Palliative care shouldn’t be a scary word. Listen in and learn how Hsien and Sammy are creating Healing Ties all around us!
Why Is Grandma Naked?

Why Is Grandma Naked?

2021-07-0645:37

Ellen Prober Rittberg is an award-winning journalist whose humorous essays and features have appeared in the NY Times, HuffPost, Reader's Digest, and other major platforms. After being a caregiver to her mother for six years and realizing even though as an attorney she'd represented senior citizens for many years and had written reports and recommendations for judges on other cases, she felt overwhelmed and largely clueless when she began caregiving. From her personal and professional experience ….Ellen wrote Why is Grandma Naked? Caring for Your Aging Parent….in a practical and humorous way because of her belief that all caregivers are stressed to some extent, and humor can lighten the burden.  Listen in and learn how Ellen is creating Healing Ties by sharing her story and special humor in a practical and humorous way because of her belief that all caregivers are stressed to some extent, and humor can lighten the burden.
LGBTQ seniors are among the most important and rapidly growing segment of our community. Understanding LGBTQ history can help us be better caretakers and advocates for LGBTQ older adults. Our guest, Amy Whelan has been a Senior Staff Attorney at the National Center for Lesbian Rights (NCLR) since 2011 and works on NCLR’s full range of litigation, policy, and public education work. Amy litigates complex civil cases around the country regarding marriage equality, employment discrimination, Title IX, family law, access to healthcare, prisoners’ civil rights, the First Amendment, and other constitutional matters. Amy and the entire staff at NCLR keenly understand the special needs of the LGBTQ community, especially our LGBTQ seniors and their caregivers. Listen in and learn how Amy and the National Center for Lesbian Rights are creating Healing Ties all around us!
Susie Singer Carter is a writer/director/producer who has an intense passion for projects that emphasize girl power of all kinds - for all ages. Above all that... Susie is an extraordinary caregiver too! Featuring the late great Valerie Harper, Susie's critically acclaimed film…My Mom and the Girl is based on her true story of caring for her Mom, is a heart-warming, uplifting film that gives an unexpected and joyous look at Alzheimer's, diversity, and caring. Listen in and learn how Susie is creating Healing Ties through her Love Conquers Alz podcast and awarded winning film My Mom and the Girl.
Elissa Lewin is a licensed psychologist, licensed marriage and family therapist, who has been in practice over 30 years, and she’s the Founder and Executive Director of Nancy’s House. Nancy’s House is a program designed to break the isolation and exhaustion that can come with being a family caregiver. The program evolved from Elissa’s own experience as a “serial caregiver”. Nancy’s House is a unique program in the US. It combines rest and nurturing with self-care skills, connection and support for caregivers in 1-day and 3-day retreat. Throughout the episode you'll learn about all the wonderful programs available at Nancy’s House, the annual conference (virtual this year) on Saturday, Nov 6, and bi-weekly informal call-in support groups. Listen in and learn how Elissa and the entire staff at Nancy's House are creating Healing Ties
At any age, a dementia diagnosis is difficult to grasp... But a dementia diagnosis at age 42? This episode of Healing Ties features special guest David Benedetto who shares his important story about being diagnosed with Early Onset Dementia at 42 and Dementia Care expert Gary Joseph LeBlanc from the Dementia Spotlight Foundation . Listen in and learn how David and Gary are inspiring other and creating Healing Ties by sharing their stories and critical resources to help those with faced with this diagnosis be better prepared for their own personal journey.
Judy Cornish is an author, founder of the Dementia & Alzheimer’s Wellbeing Network (DAWN®), creator of the DAWN Method® and retired elder law attorney. Her two books (The Dementia Handbook and Dementia With Dignity) take person-centered dementia care from theory to practice by identifying the skills not lost to dementia. Through DAWN, Judy provides counseling, private classes and an online video program for families and home caregivers. Judy's goal is to help families learn how to truly support their loved ones and enjoy more companionship as they live with dementia. Listen in and learn how Judy is creating Healing Ties through a person centered approach to dementia care.
Emilia Bourland, OTR, ECHM is an occupational therapist who has spent her career advocating for and treating the needs of clients and caregivers. As an educator at Texas Woman's University Master of Occupational Therapy program, and as a clinician working in settings as diverse as the ICU, acute care, inpatient rehab, skilled nursing, home modification, home health, and outpatient clinics, Emilia came to see two well defined truths. Caregivers are foundationally vital to our healthcare system.Caregivers are rarely, if ever, given the tools, knowledge, and skill-set they need to safely care for others and themselves. Acknowledging her own ability to address this problem, Emilia set about creating an organization that could provide vital, practical, accessible training to caregivers all over the world. Using education to empower others, Emilia's mission is to improve the safety and quality of life of caregivers and the people they care for. Listen in and learn how Amelia is creating Healing Ties through her work at Higher Standards Caregiving Training.
We've all heard the phrase, "when life gives you lemons, make lemonade" ...cancer coach and motivational speaker is Revolutionizing Growth and making lemonade all over the world with his inspiring story of hope and love. As a two time cancer survivor and kidney transplant recipient , Jeff Studzinski shares his inspiring story that will warm your heart and fill you with hope. Listen in and learn about Jeff's "angel" and how he is creating Healing Ties all around us!
Irvine Nugent has spent the majority of his career helping leaders and organizations and people like me harness the power of their emotions. Irvine's new book Leadership Lesson's from the Pub was born out of the unique Irish wisdom Irvine learned growing up in his family’s pub in Northern Ireland. Journey through Ireland’s rich pub culture and back to the boardrooms and offices of the organizations you lead or manage. It’s a journey into the struggles and joys of leadership that will show you how to harness the power of your emotions to have deeper connections, make better decisions, and increase your influence. Listen in and learn how Irvine is creating Healing Ties by providing us with the skills to harness the power of our emotions.
Caregiving is not simply a local issue, Caregiving is a universal issue impacting the lives of millions of people from around the globe. Through their work at Care.ly and Caregiving.com Mike Eidsaune and Christina Best are providing Caregivers from across the globe the opportunity to gather valuable resources and share their stories to help manage their caregiving day. Listen in and learn how Mike and Christina are creating Healing Ties all around us!
Ben Rao is the author of Paying For Long Term Care , Co-Founder of Mom's House enterpriser, philanthropist, lover of music, art, and cool shoes whose positivity and energy are contagious. After going through the journey of placing his beloved step-father, Tom, in to long term care, Ben discovered how difficult and taxing the ordeal was and decided to use the experience he has gained working in the senior space, to help make other families’ journey easier, less stressful, and provide clear direction so that they can focus on what is important to them, and to him, family. Listen in and learn about Mom's House and how Ben in creating Healing Ties through is book and sincere efforts to make transitions to senior living easier for the entire family.
Melanie Maynor grew up in a small town in south Louisiana surrounded by the love and care of her grandparents and great-grandparents. That love and care lead Melanie on a path to become a Geriatric Care Manger who is a willing and capable advocate for her clients and families, because of her innate passion for everyone to Age Gracefully. Listen in and learn how Melanie Maynor is creating Healing Ties through her work as a Geriatric Care Manager in St. Louis, MO.
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