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Connecting ALS

Connecting ALS

Author: ALS Association

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Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter. We aim to discuss research and technology developments, highlight advocacy efforts, and share the personal stories woven through the community.
36 Episodes
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"Intimacy and ALS..."

"Intimacy and ALS..."

2020-07-0922:00

Welcome to Connecting ALS. In this episode, we discuss intimacy in relationships where ALS is present with Dr. Alair Altiero of Penn State’s Hershey Medical Center.
Welcome to Connecting ALS. This week, we talk to Dr. Richard Bedlack, director of the Duke ALS Clinic and head of ALSUntangled, about a recent paper he co-authored laying out common red-flags patients need to know about when considering off-label treatments.
Welcome to Connecting ALS. This week, we commemorate Global ALS/MND Awareness Day with members of the International Alliance of ALS/MND Associations and get an update on the fight against ALS motor neurone diseases around the world.
Welcome to Connecting ALS. This week we talk to Larry Falivena about his 2019 tour of Major League Baseball stadiums to raise awareness of ALS, his thoughts on Lou Gehrig’s birthday and why the Iron Horse continues to inspire people today, and how Father’s Day has changed since Larry’s 2017 diagnosis with ALS.
Welcome to Connecting ALS. This week we learn more about The ALS Association’s partnership with I AM ALS to provide a $500,000 grant to BrainStorm to study biomarkers during BrainStorm’s ongoing phase 3 clinical trial of NurOwn.
Welcome to Connecting ALS. This week we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.
Welcome to Connecting ALS. On this episode we talk to Dr. Merit Cudkowicz about the impact of COVID-19 on conducting clinical trials.
Welcome to Connecting ALS. This week we look at the devastating impact ALS has on kids and the ways we can help.
Welcome to Connecting ALS. For our Mother's Day episode we talk with one family about how they're creating new traditions while living with ALS.
Welcome to Connecting ALS. This week we talk about the Jane Calmes ALS Scholarship Fund, which is currently accepting applications from people affected by ALS who wish to pursue college degrees or vocational certificates.
Mother's Day will be here before you know it and we've been thinking it would be great to share some amazing stories of moms in a special episode.
Welcome to Connecting ALS. This week we celebrate National Volunteer Week by exploring some of the creative ways volunteers are continuing to serve the community during COVID-19.
Welcome to Connecting ALS. In this episode we look into health care scarcity and rationing during the COVID-19 pandemic and what people living with ALS can do to prepare.
Welcome to Connecting ALS. In this episode we are focusing on collaboration in ALS research and implications of the COVID-19 pandemic.
Welcome to Connecting ALS. In this episode we are focusing on the evolution of clinical care during the COVID-19 pandemic and how telehealth has quickly moved from an ideal to a reality.
A quick check-in with Calaneet Balas to discuss how The ALS Association is staying focused on mission delivery through COVID-19.
Welcome to Connecting ALS. In this episode we are focusing on advocacy during the COVID-19 pandemic and how you can influence legislation from home.
Welcome to Connecting ALS. In this episode we are focusing entirely on COVID-19 and what you need to know.
Welcome to Connecting ALS, your weekly podcast from The ALS Association. This episode centers on helping people living with ALS and their caregivers live longer, better lives.
Welcome to Connecting ALS, what is now a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter.
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