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Love Conquers Alz

Love Conquers Alz

Author: Susie Singer Carter and Don Priess

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2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".
67 Episodes
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In Episode 66, Hosts Susie Singer Carter and Don Priess have a fantastic meeting of the minds with their guest from the UK, Dr. Kellyn Lee, as she breaks down her new approach to dementia care – Material Citizenship - which focuses on the important role and function of everyday - personal - physical objects & tasks make a HUGE positive impact  in the caring process. Dr. Lee is the founder of WISER Health & Social Care Ltd and The Dementia Care Hub - supporting people living-well with dementia, both at home and in formal care settings. Dr. Lee is an accomplished academic with a BPS Chartered Psychologist and over 11 years-experience in “research in aging” and dementia. She has lectured in psychological research methods & fundamentals in older persons’ complex care, Chairs the Innovation and Impact Board for the Institute of Health & Social Care Management,  and is the former Co-Director of the Doctoral Training Centre for Dementia Care at the University of Southampton. Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
In episode 65, Love Conquers Alz hosts, Susie SInger Carter and Don Priess dive deep into the world of Palliative and Hospice Care with their guest, Anne Kenny MD, Professor of Medicine with specialty training and board certification in Geriatric Medicine, and Palliative and Hospice care.    Dr. Kenny has found immense joy in her work with individuals and their families managing issues related to the diagnosis of dementia. Her experience in partnering in the care of these families touched close to home when her own mother was diagnosed with dementia. Dr. Kenny’s shares her expertise and experience ininpatient and outpatient Palliative and Hospice care which were called on whenher mother reached the final stages of living with dementia.    The Kenny family worked together for their mother’s graceful exit from this planet Dr. Kenny has been a practicing physician for nearly 30 years and has been recognized by her peers as a “Top Doc” in Geriatric Medicine. She has been honored with a Brookdale National Fellow and the prestigious Paul Beeson Physician Faculty Scholar awards.    In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging related issues such as osteoporosis, exercise, nutrition, hormone therapy, death and dying, and frailty. She is an educator of medicine and research skills. She taught and mentored clinical and research skills to all levels of trainees including medical students, post-graduate residents and fellows, and early faculty members. She has been active investigator participating in clinical research focusing on various aspects of aging. She has over 100 scientific publicationsand presentations focused on improving the care and functioning of older adults. You can connect with Dr. Kenny here: WEBSITE TWITTERLINKEDIN FACEBOOKSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
In EPISODE 64,  Co-Hosts Susie Singer Carter and Don Priess chat with Dr. Brittany Lamb, an ER Physician, Dementia Family Caregiver, Educator and Advocate. In medicine, there is a saying, "You don't know, what you don't know." Dr. Lamb is on a mission to inform Dementia Caregivers so they can make competent medical decisions on their person's behalf through anticipation and planning. Her enlightening services include such matters as advanced directives, planning for medical emergencies, how to talk to your family and determining goals of care just to name a few. So if you are someone's power of attorney, health care proxy, surrogate or default decision maker, Dr. Lamb can help create a plan to help you make informed future medical decisions and focus on spending quality time with your loved one now.Dr. Lamb openly discusses the challenges and stress doctors and healthcare workers face working within the current healthcare system. You don't want to miss this episode.You can connect with Dr. Brittany Lamb here:Facebook Group  Online Group Program Phone Consultations LinkedInInstagramFacebookSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Hosts, Susie and Don are joined by Professor/Author/Caregiver, Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies - including literature -  that she used to stay connected and to manage her sadness.The narratives of the authors alternate in the book. Cindy tells the story of her father's illness, and how 30 years ago scant information was available to families about this vicious disease. She also tells the story of his life, and along the way, weaves in observations about literature and the insights she has gained from her favorite books. Bruce takes over certain sections of the text offering in-depth explanations of the science behind neurological topics including the brain, Alzheimer's and language.Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women’s Fiction, and African-American literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In 2018-19, she was an Atlantic Fellow in the Global Brain Health Institute based at UCSF and Trinity College Dublin, where she studied neurology with an interdisciplinary group of scientists, artists, social scientists, and physicians. During this time, she worked with Dr. Bruce Miller on Finding the Right Words. WEBSITETWITTERLINKEDINAMAZONCALTECHSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
In Episode 62,  Love Conquers Alz Co-Hosts and award-winning filmmakers, Susie and Don  discuss what motivated them to produce their upcoming film, NO COUNTRY FOR OLD PEOPLE (NCFOP).  An important documentary that will be the required punch to the gut that forces people to take a good hard look at the Long Term Care crisis that has been going on for decades and the health-care system that is literally collapsing around us.NCFOP will be a cautionary tale that exposes the dangerous façade of stability and safety held tightly by Long Term Care (LTC) nursing facilities. A pretense propagated by a system that subscribes to the notion that honesty is far less profitable than dishonesty and cavalierly regards human beings as commodities. A system that relies on deceitful marketing to successfully divert most Americans away from the fact that decades of underfunding has left the nursing home system in dire need of a seemingly unachievable overhaul. In a case of every cloud having a silver lining, we have Covid-19 to thank for pulling the curtain back on this nationwide crisis. Still, without comprehensive and accurate data, interventions to improve outcomes and quality are limited and consumers have a difficult time discerning how risky a particular facility might be.  According to their producing partner, former Assistant Attorney General of Virginia, Rick Mountcastle (portrayed in the Hulu miniseries Dopesick by Peter Sarsgaard), it all comes down to understaffing. "With most not-for-profit nursing homes offering low pay, limited benefits, and not nearly enough training, and for-profit companies (that dominate the industry) having incentives to keep their costs low, neglect has regrettably become the industry standard."In the first six months of 2022, Susie was witness to this systemic crisis. She saw things she cannot unsee. Things  she won't unsee.  Her mother had been a resident at a 5-Star Nursing Facility in Los Angeles for 5 years – a place where she took solace in believing her mother was receiving the very best care possible.  And as it turns out, she was. Unfortunately, the “best” turned out to be the worst. Susie had been on the front lines of what she calls a systemic catastrophe daily for the first six months of 2022.  And despite her relentless advocating, her mother died July 17, 2022 from what was inarguably egregious nursing home neglect and abuse. It's unimaginable to think what happens to residents without advocates. This is Susie's mother’s story. But it could be yours For more information: No Country For Old People** If you've been a victim of Nursing Home Neglect and/or abuse, and would like to share your story in this documentary, please contactus at LoveConquersAlz.Susie@gmail.com.Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
In Episode 61, Don and I had the pleasure of speaking with Adria Thompson, a speech language pathologist, dementia educator, and owner of Be Light Care Consulting. Adria has over 8 years experience in working with individuals one on one providing speech therapy services for those with dementia.Adria has also created a dementia training program to teach therapists in 13 states how to increase their creativity, efficiency, and compassion. She creates daily content for over 200,000 professional and personal caregivers of individuals with dementia on social media platforms in a relatable, positive way that makes the condition seem a little less scary. I was particularly interested in talking to Adria about dysphagia (difficulty in swallowing) which often presents in late-stage dementia patients. Although dysphagia can only truly be diagnosed via Videofluoroscopy (VFS), also called a modified barium swallow study (the gold standard),  many Long Term Care Facilities use antiquated ways to make their official assessment based on budget and man-power. This is what happened to my mother in the last 6 months of her life. Without having her properly tested, the facility that she was at claimed she could no longer swallow safely and insisted she be fed via a G-Tube. They also refused to allow her to have anything orally for fear she would aspirate. But the truth was, my mother was not only able to swallow, she wanted to desperately.  Despite my advocating, they forbid it. I was finally able to convince them to have her assessed by their speech therapist who proceeded to diagnose her with dysphagia by watching her and placing a finger on her throat. I implored the therapist to watch me give my mother liquids from one of the sponges used for oral care. She agreed that my mother was able to swallow...for me. Her final decision was that I would be allowed to give liquids to my mother via a sponge on a stick. No one else would be given permission. Let's be honest - the decision was based on the fact that they were understaffed.  And potential liability.  Consequently, my mother suffered for 6 months from an unnecessary G-Tube,  solid chunks of mucus that formed daily which happens when liquid is withheld from a person, and the monotony of almost zero oral gratification! Can you imagine? I say almost zero, because everyday for 6 months, I brought my mother "something to drink". I was restricted by their edict that it could only be provided by a sponge that my mother had to suck. It was heartbreaking. Their attempt to keep my mother from aspirating and developing pneumonia GREATLY affected her quality of life. In truth, it was an exercise in futility and really a distraction from the stage 4 pressure sore they allowed to develop and neglected to care for properly  which ultimately resulted in sepsis and pneumonia several times during her last six months. We must protect our LOs from decisions based on policy that benefit the establishment andSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Don and I had the pleasure of speaking with  DR. DELON CANTERBURY, Board Certified Geriatric Pharmacist and Founder of GeriatRX, a Deprescribing Accelerator Program based on the premise that the majority of patients taking 15-18 medications annually are aged over 65, preventable medication errors cost nearly $21 billion dollars annually, and the ongoing inappropriate , HARMFUL, use of medications in the senior population. Too many Americans are dying from harmful medications and wasting thousands of their hard earned dollars on unnecessary prescriptions. Over 275,000 people die each year due to medication mismanagement. While other American's are wasting over $6,000 per year on unnecessary medications.GeriatRX  is a pharmacist-lead consulting service that identifies that there is a lack of support for caregivers advocating for the elderly who need help in maneuvering a very difficult health care landscape by providing high quality evidence-based medication management for our most vulnerable patients, the elderly.  Connect with Dr. Delon Canterbury:FacebookLinkedInTwitterSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
There are no Survivors of Alzheimer's Disease. And the grief is unique, complicated, and layered. In Episode 59, Love Conquers Alz Host/Filmmaker, Susie Singer Carter, who lost her mother last month and Daughterhood the Podcast Host, Rosanne Corcoran, who lost her mother last year,  share a very candid and revealing conversation about their personal experiences dealing with the final death of their beloved mothers and the veritable storm of the  "typically untypical" process known as Dementia Grief. Both Susie and Rosanne have spent over a decade as hands-on caregivers for their mothers and bring an abundance of invaluable experience, knowledge, and perspective on the End of Life stage of Alzheimer's and beyond.Rosanne Corcoran is a former caregiver and founder and host of “Daughterhood The Podcast: For Caregivers”  She is also a regional Daughterhood Circle Leader - a group that provides resources and support while caregiving. Connect with Rosanne:TwitterFacebook Instagram Blog Daughterhood Website Connect with Susie:IMDBLinkedInFacebookInstagramWikipediaTwitterWebsiteSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Our guest, Rayna Neises, has the story no one wants to have. Rayna  lost both of her parents to Alzheimer's disease 20 years apart.  Her mom was diagnosed when she was just 16, living 12 years with the disease.  Her dad lived 14 years with the disease being diagnosed just 6 years after her passing. But even still, Rayna feels blessed to be able to share her family’s story of journeying through Alzheimer’s Disease in her book No Regrets: Hope for Your Caregiving Season. Rayna understands the joys and challenges that come from a season of caring. She helped care for both of her parents during their separate battles with Alzheimer’s over a thirty-year span.  And she is able to look back on those days now with no regrets – and she wishes the same for everyone caring for aging parents.No Regrets: Hope for Your Caregiving Season, is a book filled with her own heart-warming stories and practical suggestions for journeying through a caregiving season.Rayna is an ICF Associate Certified Coach with certifications in both Life and Leadership Coaching from the Professional Christian Coaching Institute.  She is the host of “A Season of Caring Podcast” and a passion speaker.Rayna lives on a farm in southeast Kansas with her husband, Ron, and small pack of adorable dogs. She is the baby of her family, but most would never guess that. She is a former teacher and enjoys crafts of all kinds and spending time with her grandkids most of all.  Facebook.com/ASeasonofCaringRaynaNeisesLinkedin.com/RaynaNeisesInstagram.com/RaynaNeisesPinterest.com/thcoachinghttps://twitter.com/raynaneiseshttps://www.ASeasonofCaring.comhttp://www.NoRegrets-book.comSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Annie Wood is a Hollywood native, neurodiverse, Israeli-American  actor (Good Luck Chuck, My Sister’s Keeper, Becker) an internationally exhibited mixed media artist, an author, screenwriter, and playwright. Annie was the host and co-producer of the nationally syndicated dating game show, BZZZ! making her the 3rd female solo dating game show host in the history of television.  The Hollywood Reporter compared Annie’s comedic chops to the legendary actresses, Jean Harlow and Mae West declaring that a new comic blonde is on the scene! Annie Wood is a find!  Annie was a guest on The Tonight Show with Jay Leno and Politically Incorrect with Bill Maher and confesses to being a “creative compulsive.”  Annie can juggle kiwis for about 3 seconds.  (The fruit, not people from New Zealand.) Now you know everything. Almost...Annie's father was diagnosed with dementia but only after researching his horrible reaction to the antipsychotics that his doctors put him on did she do a deep dive to discover that he most likely had Lewy body dementia, the kind without Parkinson's.  His main symptom is he has auditory hallucinations.  And in particular, one that recurred on a very consistent basis. After a stressful few months with ER visits and lots of wild times, Annie placed her father into assisted living (he was previously living in a senior living place with his own apartment without additional help) and is able to see him almost everyday. During the really chaotic time when her father thought the voice was going to kill her,  Annie turned to her talents to cope - writing,  painting, as well as other expressions of art, which resulted in 44 powerful  pages of art and poems that she shares HERE.Annie is currently writing a play called "Nudnik", the nickname she gave the main voice her father hears, that is scheduled to be read at the Dramatist Guild upon its completion. She is thinking about a documentary short incorporating her poetry.  Connect with Annie:TWITTERINSTAGRAMPINTERESTGet her book, "Just a Girl in The Whirl", HERE on AmazonSUPPORT OUR NEW AFFILIATES!MEUNDIES  - use the promo code LOVEALZ for 15% off your first purchaseYOUTHFORIA - use the promo code LOVE  for 10% off your first purchase   Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
In episode 56 of Love Conquers Alz, my outstanding guest co-host, Rosanne Corcoran and I have a very candid and extremely important conversation for anyone who has a loved one in a nursing home or anyone planning to live a long and fulfilling life.  Like me, Rosanne cared for her mother, Rose, over a 12 year span.  in 2019, Rosanne started a regional Daughterhood Circle in  Philadelphia  and  created Daughterhood The Podcast. You can also visit Rosanne on her website HeyRoe.com for  information, inspiration and a little company. Previously, I spoke with Rick Mountcastle -Assistant Attorney General for the Commonwealth of Virginia and retired Federal Prosecutor.  Rick and his partner, Randy Ramseyer, led the investigation and prosecution of Purdue Pharma, for falsely marketing OxyContin as told in the Hulu miniseries "Dopesick", where I literally gasped out loud when it was revealed in the last episode that they were going to go after Abbott Laboratories for falsely marketing  Depаkote to nursing homes- the drug responsible for rendering my physically healthy mother non ambulatory and incontinent in a matter of seven days. Rick is back  with one of his lead investigators, John Peirce, to talk about a healthcare fraud investigation that they led of providers that included physicians, pharmaceutical companies, nursing homes, and pain clinics.  John went boots on the ground inside Nursing Homes  across the US. and  witnessed the many negative results of understaffing that is now too common in too many nursing homes - where people are viewed as commodities and compassion is a liability.  John  was employed as a Special Agent – Criminal Investigator with the Criminal Investigation Division of the IRS in western VA, eastern TN, & western NC.  investigating numerous cases of tax fraud and financial crimes In 2007, John was hired as a Criminal Investigator by the Virginia Office of the Attorney General, Medicaid Fraud Control Unit. Note: There are many facilities that still provide excellent care,  but there is nevertheless a crisis that must be stopped now..   Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Do you feel it is difficult to be a care partner to someone that suffers from memory loss? Have you been looking for tools to cope with certain symptoms associated with dementia? Are you looking for respite and interesting in learning more about improving quality of life in your household?If you answered yes to any of these questions we are happy to introduce you to Alban Maino, noted Franco-American media producer who is passionate about integrative health. After personal experiences in his family with palliative care, Alban embarked on a social impact mission to help people living with memory loss. After several years of product development in Europe and New England, he launched in 2022 the first streaming platform for people living with dementia: www.memory-lane.tv. A therapeutic digital intervention designed to help people living with dementia and their care partners through interactive multi-sensory stimulation. FINALLY!!! I have been banging the drum about this for years... but Alban actually did it!!Passionate about mindfulness and philosophy, cinematography and photography, goat cheese and wine, hiking and walking in noble silence, music and poetry...among other things…Alban believes that life’s purpose is to remain optimistic on all levels and do your best to make other people feel good. We do, too!GET MEMORY LANE TV HEREFIND OUT ABOUT CARETRAINR and use "Susie" to receive a discount when you sign up.CHOOSE YOUR STRUGGLE PODCASTSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Greg O’Brien was 59 years old when diagnosed with early-onset Alzheimer’s disease, unmasked by doctors after suffering a serious head injury. The award-winning  journalist, husband, and father of three, lost his mother, father, paternal grandfather, and paternal uncle to Alzheimer’s.Greg learned from his beloved mother, Virginia, what it means to truly live with Alzheimer’s, and it was her inspiration that prompted him to write and speak openly about his own diagnosis.  Ever since, Greg has been chronicling his thoughts, addressing medical conferences and Alzheimer’s support groups around the world. In 2014, Greg, now 72, published a memoir called On Pluto: Inside the Mind of Alzheimer’s, which won the 2015 International Book Award for Health.  The memoir is the first book written by an investigative reporter embedded inside the mind of Alzheimer’s, chronicling the progression of his own disease.  Lisa Genova, author of the best-selling Alzheimer’s novel, Still Alice, whose screen version won an Academy Award, wrote the foreword. “If you’re trying to understand what it feels like to live with Alzheimer’s…then you need to read this book,” Now, a new documentary feature film, Have You Heard About Greg? A Journey Through Alzheimer’s with Faith, Hope and Humor, about Greg’s life opens nationwide May 6, 2022.  (Written and coproduced by Greg O’Brien. Directed and coproduced by his childhood friend, Steve Ecclesine.)Powerfully told, HYHAG puts a human face on the most terrifying disease of Alzheimer’s and other forms of dementia. Don and I spoke with Greg and Steve about the inspiration behind the documentary and why its message is so very important.Enjoy!xoxo Susie(Greg is a board member of UsAgainstAlzheimer’s in DC, has served on the national Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
FACT: We are currently experiencing a global Caregiving Crisis.I just experienced  the affects of this crisis and it is terrifying.  Here are some harrowing facts:53 MILLION PEOPLE ARE CAREGIVERS  75% OF THOSE WORK FULL TIME30% OF EVERY WORKFORCE IS CARING FOR OLDER LOVED ONES$68 BILLION ANNUALLY IN CAREGIVER RELATED COSTS THAT AREN'T  CONSTRUCTIVEDon and I  spoke with Debbie Howard, a former caregiver on a mission to change the way the world looks at caregiving so the impacts are not so devastating. Her work focuses on providing companies with support programs for working caregivers to mitigate the related risks of absentee-ism, employee turnover, and extra healthcare costs. With the launch of  Aging Matters International and The Caregiving Journey in 2016, Debbie has brought her market research acumen to the world of caregiving. Her first book The Caregiving Journey: Information. Guidance. Inspiration supports individuals in going beyond logistics in managing their caregiving situations with ease and grace. Her second book The Caregiving Crisis: What It Costs Your Business and How to Fix It   (due out this spring 2022), helps companies with practical ways forward in terms of supporting their employee caregivers. Debbie lived and worked in Japan for 30+ years; she founded Japan Market Resource Network (JMRN) in 1989, merged in 2012 to form CarterJMRN. Debbie translates consumer research into clear strategic direction for global clients across a wide range of categories (including Age-Tech). She served as President and Chairman of the American Chamber of Commerce in Japan (ACCJ) from 2004~2007, and as President Emeritus (2008~present) LINKS TO RESOURCES MENTIONED IN THIS EPISODE:FAST FORWARD DOCUMENTARYP.A.C.E. PROGRAMSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
It was so refreshing to speak with Jennifer Lagemann!! Jenn  is a former family caregiver, and has spent most of her career in the private duty home care industry as a scheduling and intake coordinator. Caregiving for her best friend, her grandmother,  lead Jennifer to want to pursue the home care industry.  Her experience marries home care and digital marketing skills to help  businesses succeed. At only 23, Jennifer is highly motivated to change the face of aging, dispel myths, and challenge the narrative and uses a PRO-AGING philosophy in all of her work. We need to sprinkle more Jennifers all around the world!!Connect with Jennifer:LINKEDINTWITTERFACEBOOKSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Rick Mountcastle  is not only an Assistant Attorney General for the Commonwealth of Virginia and a Retired Federal Prosecutor, he is a bonafide hero.  Rick, along with his partner, Randy Ramseyer, led the investigation and prosecution of Purdue Pharma, as well as its CEO, General Counsel, and Chief Medical Officer, in an unprecedented case, that, at the inception of the opioid crisis, held the opioid manufacturer and its top executives criminally and civilly responsible for falsely marketing OxyContin.  This case was at the center of Beth Macy's best-selling book, "Dopesick," and the the riveting, IMPORTANT, Hulu miniseries  of the same name that  premiered in October 2021. Rick is beautifully  portrayed  by Peter Sarsgaard. I binged all eight episodes of "Dopesick" which was eyeopening and absolutely horrifying. Showrunner/Executive Producer, Danny Strong,  did an amazing job putting faces on the opioid crisis, as well as the crusaders who relentlessly pursued "Big Pharma".  (One being our guest, Rick Mountcastle.)I was already blown away by Rick and Randy's passionate pursuit in taking down Purdue Pharma, but I literally gasped out loud when it was revealed in the last episode that they were going to go after Abbott Laboratories for falsely marketing  Depаkote, a drug that is meant to treat epilepsy, and tаrgeting nursing homes to treat agitation associated with Alzheimer's and dementia.  Depakote is the drug responsible for rendering my otherwise healthy mother non ambulatory and incontinent in a matter of seven days.Rick led the investigation and prosecution of Abbott Labs which resulted in criminal and civil penalties totaling $1.5 Billion (at the time the largest pharmaceutical settlement involving a single drug in U.S. history).  I had to thank him.  I did and asked if he might share what he had learned while investigating Abbott. Turns out Abbott Labs are not the only pharma targeting the under-staffed and over-worked nursing homes. Listen or watch this episode and TAKE NOTES. And HUGE thanks  to my special guest co-host, Trish Humenansky-Laub , Founder of Comfort in Their Journey LLC, guiding: Alzheimer's 🐞 Dignified Care 🐞 End of Life Author•Consultant•Speaker. xoxoxAnd if you are interested in joining me in a coalition to get the states to regulate Skilled Nursing Homes by requiring a specific minimum level of staffing, you can DM ME.Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
 I literally panic every time I can’t remember a word or a someone's name.  And If you're caring or have cared for someone living with dementia or Alzheimer’s, like me, you probably experience similar anxiety when it comes to forgetting.  It's terrifying.  Well, Don and I are kicking off SEASON 4/EPISODE 50 with a very special guest, the distinguished memory researcher,  Dr. Scott Small,  who is going to share some new scientific findings that are going to give you some welcomed peace of mind in terms of normal forgetting and he also shared some GROUNDBREAKING DEVELOPMENTS ABOUT ALZHEIMER'S DISEASE.  Scott is Director of the Alzheimer's Disease Research Center Columbia University, is a neurologist and neuroscientist known for his work in Alzheimer's disease and normal cognitive aging. His research focuses on the hippocampus, a circuit in the brain targeted by Alzheimer's disease and aging. He is also the author of author of the 2021 book, Forgetting: The Benefits of Not Remembering, published by Crown/Penguin Random House.  Until recently, most everyone--memory scientists included--believed that forgetting served no purpose. But new research in psychology, neurobiology, medicine, and computer science tells a different story. Forgetting is not a failure of our minds. It's not even a benign glitch. It is, in fact, good for us--and, alongside memory, it is a required function for our minds to work best.Scott’s book includes a wide variety of studies that include pigmy chimpanzees in the wild, visits with the iconic painter Jasper Johns, as well as the renowned decision-making expert Daniel Kahneman, looking across disciplines to put new scientific findings regarding forgetting into illuminating context.These studies revealed that forgetting benefits our cognitive and creative abilities, emotional well-being, and even our personal and societal health.  As frustrating as a typical lapse can be, it's precisely what opens up our minds to making better decisions, experiencing joy and relationships, and flourishing artistically. So, the next time you forget where you left your keys,  remind yourself that a little forgetting does a lot of good!Love.Susie and Don xoxo Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Earlier in the year, (Episode 38), Don and I had an absolutely inspirational conversation with ANTHONY COPELAND PARKER. In 2014, Tony, and his partner, Catherine (Cat) Elizabeth Popp, were in their 50’s when they found out that he needed a heart-valve replacement, and she had early-onset Alzheimer’s. But even though their life had was about to change forever, they were not about to let it stop them from chasing their dreams. With a shared passion for traveling and histories as endurance athletes, their reaction to the news was to retire from their jobs, sell their home, and become nomads, running marathons and half-marathons all over the world.  Since then, the duo has traveled to 82 countries and run marathons and half-marathons in thirty-five countries, on all seven continents.  Tony’s new memoir - Running All Over the World: Our Race Against Early-Onset Alzheimer’s - tells their story.  In Episode 49, both the author, Tony, and his partner, Cat, join Love Conquers Alz for a uplifting conversation about the book which includes traveling, marathons, and living their best lives… despite Cat’s Early Onset diagnosis.  Tony is committed to being Cat’s caregiver 24/7 and it is beautiful watching how great they are together.  He shares that the book came directly from his blog, runningwithcat.com, that he began writing when he and Cat started traveling about seven years ago. Initially he was doing it to record memories for both of them, but them he decided he wanted to inspire others to look at the diagnosis of Alzheimer’s a little bit differently … and turned the blog into a book that combines their passion for running, travel, and each other. FOLLOW TONY ON INSTAGRAMSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Once in a GREAT while, you read something and the author seems to be speaking directly to your heart. Like an old friend.  That's what happened when I read a powerful missive Robert Pardi posted on LinkedIn. After that, I was hooked! I did a deep dive and, OMG,  everything he shares about Caregiving and living your best life is incredibly astute and profoundly resonates  with me.  I am thrilled to have him as our guest and share his beautiful story that led to him being the dynamic leader in the Caregiving community that he is today. In Episode 48, Don and I spoke with the wildly  passionate and perceptive Robert Pardi and found him so engaging, we didn't evening realize the sun had begun to set!  Robert, born in NYC, is one of those rare individuals who embraces change and lives what he calls “possibility in action” – taking his desire for transformation and putting it into action daily. He received his MBA from Columbia University and was quickly recruited by the Abu Dhabi Investment Authority, one of the largest sovereign wealth funds. Shortly after, his wife Desiree, was diagnosed with Stage 3 breast cancer. Unfortunately, she passed 11 years later. After, throwing caution to the wind, Robert leapt from his comfort zone.  He changed careers and moved to the same Italian village his great grandfather immigrated from over 100 years ago.  He is now a certified life coach, adjunct professor, international guest speaker, and the Author of Chasing Life - The remarkable true story of love, joy, and achievement against all odds.If you like our show and find value in it ...HERE'S HOW YOU CAN SUPPORT USBUY US A CUP (OR TWO) OF COFFEE!How to find Robert:www.robertpardi.comwww.chasinglifethebook.com https://www.instagram.com/robert.pardi/https://www.facebook.com/robert.pardi.lifecoachinghttps://www.linkedin.com/in/robert-pardi-63b05921/Support the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
Wander (verb) - To walk or move in an aimless way.Wandering is an all-too-common behavior amongst people with dementia, Autism spectrum disorder, and Down syndrome, and are a huge fear for those concerned for their safety and well-being. A person's failing memory and declining ability to communicate can make it impossible for them to remember or explain the reason they wandered.In episode 47, Don and I had the honor of speaking with retired Manager, Systems Engineer, *Kirk Moody, and filmmaker, *Thiago Didalt.  Kirk's wife was a brilliant aerospace engineer and entrepreneur, top of her class at the USC/Davis and highly respected across the industry, Nancy Paulikas, 55, was tragically diagnosed with early-onset Alzheimer's disease.  In 2016, she left to use the restroom at LACMA (Los Angeles County Museum of Art), never to be seen again. Kirk led a relentless two-year search that helped to uncover the gaps in the USA's social and health systems and bring about systemic change across L.A. County by forming LA FOUND, an organization that helps caregivers of those living with Alzheimer’s, dementia, autism, or other cognitive impairments locate their missing loved ones.We hope you find this very special episode helpful.  If you know someone who would benefit from this information, please share our LINKS to listen to LOVE CONQUERS ALZ. Loads of love,Susie xo* Filmmaker, Thiago Dadalt, made the fictionalized Oscar’s qualified short film, “Chocolate”, about a middle-age housewife with early onset Alzheimer’s disease who goes missing in downtown Los Angeles. Ironically, the film led him to direct the documentary about a family’s very real struggle to find missing housewife Nancy Paulikas. “Where is Nancy?” is currently making the rounds on the film festival circuit where it is gaining high praise and awards.  Where you can follow Thiago Didalt:INSTAGRAMFACEBOOKLINKEDINSupport the showFollow us on Twitter, FB, IG, & TiK Tok 💜 Listen on your favorite platform 💜 If you like what you hear leave us some love. 💜
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