Sarc Fighter: Living with Sarcoidosis and other rare diseases

The Foundation for Sarcoidosis Research is sharing a new development from the FDA that will make it easier for researchers to work in the rare disease space.  Also, a listener from New Zealand wonders if a recent Nobel Prize was granted to researchers working on Sarcoidosis, while another study ties sarcoidosis to liver damage.     Show Notes:    More on the Nobel Prize winners: https://apnews.com/article/nobel-prize-medicine More on the mouse model for sarcoidosis: https://sarcoidosisnews.com/news/1st-cardiac-mouse-model-develop- treatments-mtorc1-protein/ More on lingering heart problems from Sarcoidosis: https://sarcoidosisnews.com/news/lingering- heart-inflammation-tied-cardiac-sarcoidosis-relapse-risk/ More on Liver damage from Sarcoidosis: https://sarcoidosisnews.com/news/large-study-ties-sarcoidosis-risk-permanent- liver-scarring   FSR helps patients navigate insurance:  https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-announces-new-partnership-with-patient-advocate-foundation-to-expand-insurance-and-disability-support-for-sarcoidosis-patients/ Sarcoidosis News Pulmonary relapse report: https://sarcoidosisnews.com/news/relapse-common-pulmonary-sarcoidosis-treatment-changes/ MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me  [email protected] #sarcoidosis #sarcoidosisawareness #kidney #dermatology #cardiacsaroidosis

Jeanne Parson lives in California where she is fighting pulmonary sarcoidosis as well as cystic fibrosis.  It can't be fun.  She started noticing there was a problem where her daily walks became difficult.  Now she spends as much time managing her healthcare as she does walking -- or playing in a band which she also loves. Show Notes:    Microbe sarcoidosis study: https://sarcoidosisnews.com/news/study-challenges-theory-microbes-sarcoidosis-cause/ Support Brett for the NYC marathon: https://stopsarcoidosis.rallybound.org/2026-team-rally-for-sarc/BrettWittner Meet all the FSR runners for 2026: https://www.stopsarcoidosis.org/nyc-marathon/ FSR Sarcoidosis Summit: https://www.stopsarcoidosis.org/philadelphia-summit/ FSR helps patients navigate insurance:  https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-announces-new-partnership-with-patient-advocate-foundation-to-expand-insurance-and-disability-support-for-sarcoidosis-patients/ Sarcoidosis News Pulmonary relapse report: https://sarcoidosisnews.com/news/relapse-common-pulmonary-sarcoidosis-treatment-changes/ MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me  [email protected] #sarcoidosis #sarcoidosisawareness #kidney #dermatology #cardiacsaroidosis                           

Promising new research identifies three genes that may play a role in why people do or do not get sarcoidosis.  Also a look at why hard work makes us feel better going all the way back to the old world philosophers, and how that might help you in your battle with sarcoidosis.   Show notes:   The new Sarcoidosis Study from Sarcoidosis News: https://sarcoidosisnews.com/news/study-identifies-three-genes-influence-sarcoidosis-risk/ Support Brett for the NYC marathon: https://stopsarcoidosis.rallybound.org/2026-team-rally-for-sarc/BrettWittner Meet all the FSR runners for 2026: https://www.stopsarcoidosis.org/nyc-marathon/ FSR Sarcoidosis Summit: https://www.stopsarcoidosis.org/philadelphia-summit/ FSR helps patients navigate insurance:  https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-announces-new-partnership-with-patient-advocate-foundation-to-expand-insurance-and-disability-support-for-sarcoidosis-patients/ Sarcoidosis News Pulmonary relapse report: https://sarcoidosisnews.com/news/relapse-common-pulmonary-sarcoidosis-treatment-changes/ MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me  [email protected] #sarcoidosis #sarcoidosisawareness #kidney #dermatology #cardiacsaroidosis                   

Brett Wittner has run a lot of marathons.  A lot.  But when her tried to make a comeback something was wrong with his lungs.  Scans showed it was sarcoidosis.  Yet, he is running the New York City Marathon as a fundraiser for the Foundation for Sarcoidosis Research. Listen in as he shares his story as a runner and sarcoidosis patient. Show notes:   Support Brett for the NYC marathon: https://stopsarcoidosis.rallybound.org/2026-team-rally-for-sarc/BrettWittner   Meet all the FSR runners for 2026: https://www.stopsarcoidosis.org/nyc-marathon/   FSR Sarcoidosis Summit: https://www.stopsarcoidosis.org/philadelphia-summit/ FSR helps patients navigate insurance:  https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-announces-new-partnership-with-patient-advocate-foundation-to-expand-insurance-and-disability-support-for-sarcoidosis-patients/ Sarcoidosis News Pulmonary relapse report: https://sarcoidosisnews.com/news/relapse-common-pulmonary-sarcoidosis-treatment-changes/ MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me  [email protected] #sarcoidosis #sarcoidosisawareness #kidney #dermatology #cardiacsaroidosis                

Kimberly Cleary lives in Chicago, where she is dealing with severe pulmonary Sarcoidosis.  After a long path to diagnosis, she is working with her medical team to find a treatment that works for her.  It has't been easy.   Show Notes: Show notes:   FSR Sarcoidosis Summit: https://www.stopsarcoidosis.org/philadelphia-summit/ FSR helps patients navigate insurance:  https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-announces-new-partnership-with-patient-advocate-foundation-to-expand-insurance-and-disability-support-for-sarcoidosis-patients/ Sarcoidosis News Pulmonary relapse report: https://sarcoidosisnews.com/news/relapse-common-pulmonary-sarcoidosis-treatment-changes/ MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me  [email protected] #sarcoidosis #sarcoidosisawareness #kidney #dermatology #cardiacsaroidosis