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AcroTales

Author: Dan Jeffries

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AcroTales is a series of interviews with people living with Acromegaly - a rare condition caused by a benign tumour growth in the pituitary gland.If often takes 6-10 years for Acromegaly to be diagnosed and patients usually have a complicated journey to diagnosis. Acromegaly causes an excessive release of growth hormones which results in enlarged facial features, growth of hands and feet, changes in jaw and bone structures, loss of libido, visual problems and more. In each AcroTale, patient and advocate Dan Jeffries talks to acromegalics from around the world, discussing diagnosis, treatment and the effects on social and personal life.
14 Episodes
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Episode 6 - Sheila

Episode 6 - Sheila

2020-03-1826:59

In Episode 6 of AcroTales we talk to Sheila from Trieste in Italy. Sheila is 51 and was diagnosed with Acromegaly in 2003 and is currently in remission. We discuss the complications leading up to diagnosis, how it impacted on her life and the excellent work she now does with WAPO - the World Alliance of Pituitary Organisations. 
Episode 14 - Phil

Episode 14 - Phil

2021-04-1125:52

In Episode 14 of AcroTales we speak to Phil from Southampton in the UK. Phil was diagnosed on April 1st 2010 (no joke!) and tells the story of his long road to diagnosis, the impact it has had on his life but also how it has motivated him to help others who have recently been diagnosed with Acromegaly. 
Episode 13 - Spencer

Episode 13 - Spencer

2021-01-0923:33

In Episode 13 of AcroTales, we speak to Spencer in the UK. Spencer was diagnosed by a chance encounter, and talks about his experiences of diagnosis and how the condition impacted on his life.
Episode 12 - Natalia

Episode 12 - Natalia

2020-10-1924:06

In Episode 12 of AcroTales we speak to Natalia from Columbia. Natalia was only diagnosed in 2019 and so she paints a vivid yet insightful picture of her diagnosis, the impact it has had on her life plus how - just one year on - she is already supporting others diagnosed with Acromegaly. 
Episode 10 - Richard

Episode 10 - Richard

2020-07-2630:02

In this episode of AcroTales, we hear from Richard in the UK. Richard was diagnosed in his mid-60s and talks about the diagnostic journey he underwent to reach his diagnosis and the impact it's had on his life, all told with great humour.
Episode 11 - Dee

Episode 11 - Dee

2020-09-0726:35

In Episode 11 of AcroTales we speak to Dee from Maryland, USA. With her background in nursing, Dee paints an honest yet insightful outlook on her Acromegaly, the journey she underwent to get there and the shocking discovery she made all by herself, all told with a great sense of humour.
Episode 9 - Larry

Episode 9 - Larry

2020-05-1828:54

In Episode 9 of AcroTales we speak to Larry from Nebraska. Larry paints an insightful picture of the difficulties faced when you're diagnosed with Acromegaly and - whilst life was tough - he was able to use his positivity and spirituality to get him through. 
Episode 8 - Bert

Episode 8 - Bert

2020-04-0826:48

In Episode 8 of AcroTales we speak to Bert from Nebraska. Bert was diagnosed with Acromegaly in 2010 after a range of health complications led various specialists couldn't initially make the correct diagnosis. We discuss this impact this had on Bert's life, how further complications meant a return to hospital and how he now faces up to this unique condition - by giving something back.
Episode 7 - Mike

Episode 7 - Mike

2020-03-2939:50

In this episode of AcroTales we talk to Mike from London in the UK. Mike was diagnosed only a couple of years ago but has been on quite a journey since his diagnosis, and talks in depth about treatment, medication and radiotherapy. As well as this, Mike also discusses how he used various coping mechanisms throughout and the help provided by The Pituitary Foundation.
Episode 5 - Jennie

Episode 5 - Jennie

2020-03-1130:18

In Episode 5 of AcroTales we talk to Jennie from Wellington in New Zealand. Her open and honest account of being diagnosed with acromegaly explores the treatment, surgery, complications faced and how it's affected her life - but not her humour.
Episode 4 - Rachel

Episode 4 - Rachel

2020-03-0427:33

In this episode of AcroTales we talk to Rachel from Oxfordshire in the UK. At the time of recording, Rachel had undergone surgery to remove her pituitary adenoma less than two weeks before, so this is a amazing opportunity to hear from someone who is fresh out of the operating room. Rachel has also made some videos about her journey with Acromegaly, which can be found here on YouTube. 
Episode 3 - Trinity

Episode 3 - Trinity

2020-02-2124:56

In this episode of AcroTales we talk to Trinity from Phoenix, Arizona about the challenges of growing up with a pituitary condition at such a young age. We also discuss the important role that nurses have to play in the management and treatment of Acromegaly and how friends and family are such an important factor when coping with the condition.
Episode 2 - Jorge (JD)

Episode 2 - Jorge (JD)

2020-02-2123:07

In this episode of AcroTales, JD Faccinetti talks about his the long road to diagnosis, living with Acromegaly and what motivated him to begin Pituitary World News, a leading website that focuses on medical news and patient information related to the pituitary gland.
Episode 1 - Lauren

Episode 1 - Lauren

2020-02-2125:56

In the first AcroTale, Lauren from Kent, UK talks about being diagnosed with Acromegaly in her early twenties, the battle for a successful diagnosis and how this unusually large pituitary tumour impacted her life - without dampening her spirit.
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