DiscoverSound Waves
Sound Waves
Claim Ownership

Sound Waves

Author: Ellen MacArthur Cancer Trust

Subscribed: 1Played: 4


Sound Waves is the official podcast of the Ellen MacArthur Cancer Trust. The Ellen MacArthur Cancer Trust is a national charity that empowers young people aged 8-24 to embrace their future after cancer. When treatment ends, the Trust’s work begins as, for many young people, picking up where they left off before their diagnosis isn’t possible. On Sound Waves, the Trust community comes together to discuss themes and spark conversations relevant to anyone impacted by cancer in young people. From mental health to staying safe in the sun, from survivor's guilt to reflecting on where life has taken people since their diagnosis. All the while sharing tales from the Trust, and all the life-long memories made together. Come aboard!
32 Episodes
We're so glad to have this year's recipient of the Luke Gilbert Volunteer of the Year award back on Sound Waves - Wen Stone! The Trust community put forward who they want to see honoured, and nominations for Wen just kept on coming in. We chat about what it was like to win, why she ended up getting so involved over the last year, and we reflect on the year itself and our hopes from here on out.There's also a bonus, entirely unplanned, post-podcast chat. Sound Waves is wrapping up for the time being, a year to the week after it launched. Wen and host Scott look back on the last twelve months, discuss favourite episodes, and talk about how the Trust now truly feels all year-round.
One of the most impactful parts of a Trust trip, if not the most impactful, is bringing young people together. It might be the first time they’ve met someone else their age who’s been through what they’ve been through.That’s the ethos behind Alike as well. A digital community for people with cancer by people with cancer, this week we’re talking to its founder Brad, and one of its Trustees Rachel, who is also a long-time volunteer with the Ellen MacArthur Cancer Trust, having been supported herself after treatment. They talk about experiences with loneliness and isolation, how that led Brad to setting up Alike, and the difference it makes having a community around you.Alike:
It's happening! After months (and months) of planning, we are so excited to share our hopes for summer 2021. Join Trust CEO Frank, Operations Managers James and Laura, and medical advisor and Trustee Dr Dave Hobin, as they take you through everything you need to know. What does the season look like, how did it come together, how will we make trips as safe as possible? All your questions and so much more are answered here.With any luck, we will be seeing you soon.Note: there are changes to this year's eligibility criteria. Frank invites people with questions or anyone who wants to discuss this further to contact 
This week we’re talking about something we want everyone to know about, because it is one of the best ways for young people to have their voices heard among the massive Trust community: the Trust's Youth Board. The Youth Board is a group of young people who’ve been supported by the Trust in the past, and they're there to help and amplify the voices of young people and their families. That means ideas, questions, anything you might want to raise. They might not only be the right people to talk to, but also the most effective way of making things happen.Join Jess, Victoria, and chair of the youth board Dan as they share how young people are able to have their say, and we get to know a little more about them along the way!Contact the Youth Board at: 
Following on from James and Krissi sharing their lived experience of overcoming barriers to education and employment last week, Professional Careers Consultant Emma Francis joins us to give her expert advice on what you can be doing right now that will stand you in good stead for the future.Emma is the Trust’s parent Trustee, and her daughter has been supported by the Trust, so she has specific insight about the barriers a cancer diagnosis throws up for young people. She offers in-depth and eye-opening tips that are manageable even when times are hard, and reassures that no matter what anxieties you may have about your career right now, things will be okay.Emma wrote a blog for the Trust which can be found here.Her Careers Development Plan can be found here.The accompanying support guide can be found here.
As National Careers Week approaches, young people and professionals will be sharing their experience and insight about overcoming barriers to employment following cancer at a young age.James and Krissi were supported by the Trust before becoming volunteers and joining the Trust's Youth Board. They have both featured in the Trust’s My Life Now series, which checks back in with young people to see where life has taken them. They talk about going from where they were to where they are now in their education and employment, and offer insight into what helped them along the way, as well as some insider knowledge about what employers are looking for.Part 2 will be released next week, featuring professional Careers Consultant and Trustee Emma Francis offering further insight and advice. 
Greg and Georgie have both been through cancer, they both have experience with brain tumours, and they recently stole the show on Grand Designs as they built their dream home together.The young couple met on a Trust trip ten years ago and, following on from their amazing Grand Designs episode, now seemed like the perfect time to check back in with them. From going through the struggles of treatment and raising awareness of brain tumours, to building a house and their epic engagement, we catch up with the couple at the heart of one of the loveliest hours of TV ever. G-W Enterprises: 
Today we’re talking about vaccines. Specifically, the COVID-19 vaccines. They’re in the news every day, we know the order in which different groups of people will receive them, but we can never have enough reassurance about how they’ve been made, how they work, and how they’re administered.Frank Fletcher, the Trust’s CEO, sets the scene, explaining why we're talking about this now. Dr Dave Hobin, Trustee and consultant paediatric oncologist, takes us through how the vaccines have been developed so quickly and covers some of the more common anxieties people have about receiving them. Anniela Etheridge, a senior clinical pharmacist, walks us through what you need to know in advance of your jab and what it’s like once you’re at the vaccination site. And Dan, a member of the Youth Board, has had his vaccine. He tells us what it was like and how he’s doing.Why you have to wait for your COVID-19 vaccine: What to expect after your COVID-19 vaccination:
Young people, aged 13 and under, experience mental health as much as teenagers and adults. They may express it differently, they might not have the words to communicate how they’re feeling, but it doesn’t mean it's any less present.In this episode we talk about noticing ways under 13s display their mental health, what support there is out there, and the importance of listening, as part of Children's Mental Health Week.Joining us is Gavin Sterry, a mental health first aider and good friend of the Trust. His insights are eye-opening: from a cancer diagnosis to a national lockdown, a young person will be impacted by what's going on in their lives, no matter how young. Gavin signposts to a number of support services during the conversation, including:Childline - Samaritans - Kooth - Young Minds - 
It's not every day you raise over £4.7m, but that's just what Lewis did when he was part of this year's Rickshaw Challenge for Children in Need. He returns to Sound Waves to talk about what it was all like, from having to cycle at home after someone in the crew contracted COVID-19, to bonding with his teammates over Zoom.Joining him is Pam, a regional grants officer at Children in Need and good friend of the Trust, who pulls back the curtain on how our invaluable partnership works. Holly from the Trust team joins too, whose role is linked with Children in Need’s support. She’s integral to piecing together everything needed to put young people in touch with the Trust so they can access the support they want and need. This is our final episode of 2020. Thank you so much to everyone who's checked out an episode and listened along since we launched Sound Waves in the spring. We'll be back in the new year. Until then, Merry Christmas and a Happy New Year!  
The Luke Gilbert Volunteer of the Year award was created to recognise when someone goes above and beyond to ensure young people in recovery from cancer have the support they need. The award was named for Luke Gilbert, a young man who sailed with the Trust while in recovery and who went on to become the kind of volunteer everyone loved and looked up to. It was set up in his name to remember him and his contributions, which will forever play a part in shaping the Trust as we continue to look to his example, embodying what it means to be an irreplaceable part of the Trust family.Joining host Scott this week are three of the four previous recipients of the Luke Gilbert Volunteer of the Year award, Paul, Rosa, and Alex. From the Trust team, Lorna joins them to give an overview of what volunteering has been like in 2020, and how things are shaping up for 2021. Rosie, who received the award for 2017, was unable to join the gang on this occasion, but we send out our love and look forward to her joining Sound Waves again in the future.While listening to their conversation, if you joined the Trust for any events this year or have listened to previous podcasts, keep in mind the volunteers you've come across in 2020. It would mean a lot to them if you put them forward for Volunteer of the Year, which you can do on the Trust's website here: 
Thank you. For making sure we were there to support young people throughout 2020. For ensuring we'll be there for them in 2021. For being there with us through the most difficult year the Trust has faced. Thank you.Host Scott is joined by Trust CEO Frank Fletcher, as well as Leanna, Morven, John, and Ed, who all planned to join us on trips this year. Instead, they were at the heart of the Trust's Virtual Summer, getting involved in all sorts of activities together while we were apart.It's down to your support that young people were still able to access the support they wanted this year. If you can pick up a Christmas gift from our online shop or take part in some festive fundraising, that will continue to make a massive difference. But things aren't easy at the moment, and we understand completely if you can't. What matters this Christmas is that we know you're with us. 
Following her treatment for alveolar rhabdomyosarcoma, Ellie became infertile and started living with the menopause. She tells Sound Waves how her friends were talking about boyfriends and periods while she felt 18 going on 80. Her experience had impacted her plans for a family and she was constantly exhausted.But she adapted. Ellie has since found all the right support and is in control of the track her life is on. From coming to terms with her infertility, to seeking out specialist knowledge of menopause symptoms - all the while reminding young people that romantic partners will love them and think they're amazing regardless of how their body functions - Ellie will keep on talking so others know they're not alone. 
Content warning: This episode contains references to hair loss, amputation, and weight fluctuations.This week, we're talking to Sarah. She was supported by the Trust while in recovery from osteosarcoma, a diagnosis which led to her leg being amputated when she was 16, along with other changes to her body. Now in her mid-20s, Sarah shares her story by giving talks to school pupils and other young people. Talking to Sound Waves, she tells of being a teenager who found these physical changes tough, to becoming someone with ownership over her relationship with her body. Along the way, she's taken part in lots of exciting opportunities, such as modelling for a high street clothing brand. We're grateful she shared her story with us here.
This past weekend saw World Mental Health Day. The day itself will mean lots of different things to different people, but what we’ve chosen to do is have a chat about what 2020 has been like, with a positive twist.Wen is a volunteer and was supported by the Trust when she was younger, and joined us on the first episode of Sound Waves earlier in the year. Jack has been supported by the Trust on a number of trips and was due to sit his volunteer training this year. Chatting with Wen and Jack, even though we wish for things to have been different, it felt good to take stock and be thankful. This conversation is us sitting down and noticing the ways in which we have looked after ourselves and each other, and will continue to do so. 
Medics of the future

Medics of the future


For a lot of people, their time with the Trust isn't a one-and-done. They return for more trips, then maybe they go on to become volunteers, constantly taking ownership of each new experience.They're able to take their relationship with the Trust into the future with them, as their lives change from one thing to another.This week we're joined by Charlotte and Alex, two young people who've gone on to become volunteers, and are at the beginning of careers in the medical sector. They tell us about that journey from being supported themselves to being the ones giving out that support, and how the professional and the personal come together. 
September is Blood Cancer Awareness Month.What these awareness days, weeks, and months do is put into focus the specificities of lived experienced. We talked about sarcoma awareness back in season 2, and hearing George, Chloe, and Lewis talk about what that diagnosis had been like for them was illuminating.This week, we're talking to Holly and Thomas. Holly's been involved with the Trust since 2014 and became a volunteer last year, and Thomas came on his first trip last year. They talk about it where it all began for them, and where it's taken them since. No two experiences are alike, and this is a conversation with different discoveries and different kinds of personal support when dealing with blood cancer.As mentioned in the episode, here are some peer-reviewed scientific readings on:Sugar and cancerCannabis, cannabis oils, and cancer
We know recovery doesn't end when treatment does. Survivor's guilt can hang over a young person as they move forward with their lives, remembering their peers who passed away. And despite being a difficult and conflicting feeling, often it goes unshared and unsupported. Teenage Cancer Trust Nurse Consultant Sue Morgan MBE & Annie, who has sailed with the Trust, have given talks on survivor's guilt. They share with Sound Waves why it's important we all acknowledge it - young people and practitioners alike - to make sure no one is made to cope all on their own.  
Looking ahead to 2021

Looking ahead to 2021


With one of the strangest and toughest years on memory winding down, it is time to look to the future.2021.What might next year's season look like? How can we run activities while keeping them COVID secure? How can you keep up to date with all that's happening?Join Trust CEO Frank along with James and Laura, the Trust's operations managers for the north and the south, as they discuss the lay of the land. It's an exciting time, with so much potential. We're glad to have you aboard! 
The UK was in full lockdown the last time we talked about how people still can give their support to changing young lives. Now, we're starting to see some normality return. What was happening two months ago is no longer applicable, but all the same, who knows where we will be in two months' time?We’ve said it before and we'll keep saying it – once all of this is over, young people are going to need the Trust more than ever. We have to be here in 2021 and beyond to make sure those young people have access to what they need during their recovery.  There’s no one way of giving those young people your backing. Simon tells us about fundraising from home. Tim, a rotarian, tells us about how he and his district will support the Trust after choosing us as one of their charities of the year. We hear about how spreading the word, directing people to our website, sharing our posts on social media – every little helps.So join us for the season two finale of Sound Waves as we pin down exactly what kind of support is possible right now while staying COVID safe. Let's get back out there!
Download from Google Play
Download from App Store