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The biggest cancer conference in the world,  the American Society of Clinical Oncology (ASCO) 2022 annual meeting, was back in person after 2 years online during the COVID pandemic. Some of the research highlights presented this year are “practice-changing.” and received a rarely given standing ovation. What is  practice changing in MBC?  Get the answer to this  question and a lot more in the report back from ASCO.Just like the conference itself, the report back from ASCO has become an annual event and a tradition at SHARE.  Shortly after the conference the co-producers of the Our MBC Life podcast Natalia Green and Victoria Goldberg welcomed Dr Niel Iyengar to SHARE to talk about the main highlights in Metastatic Breast Cancer from 2022 ASCO. Thanks for listening!More info is available in our episode notes for this series on our website:  www.ourmbclife.orgGot something to share? Feedback?Email: ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife 
Welcome to the third and final episode in our series on the potential of psilocybin-assisted therapy to relieve the existential distress of, and help us live as well as possible with, metastatic breast cancer. In this episode, we speak with two women taking action to increase legal access to psilocybin-assisted therapy in the United States. The first is a patient living with MBC who, along with her doctor, has brought a lawsuit against the Drug Enforcement Agency which is denying her access to psilocybin in the palliative care setting and under existing Right to Try laws for promising investigational medications for the terminally ill. The patient petitioner, Erinn Baldeschwiler, tells us why she joined the lawsuit, what she hopes to gain from psilocybin-assisted therapy, and what it’s been like to deal with all the legal proceedings on top of a progressing MBC diagnosis. Our second interview in this episode is with the attorney who is leading the legal case to open access to psilocybin under Right to Try legislation, Kathryn Tucker of the Emerge Law Group. Kathryn explains why psilocybin should be immediately available to patients suffering from distress, anxiety, and depression under FDA rules and state and federal Right to Try laws. But the DEA is continuing to block access and hold psilocybin on Schedule 1 of the Controlled Substance Act. It’s confusing, but we explain it all here. Lastly, see the episode notes for a current petition to the DEA to step out of the way and grant access to psilocybin to anyone with a terminal illness. This series has been led by our incredible series producer, Dr. Paula Jayne with expert assistance from co-host Lynda Weatherby (new to the podcast this season!), and senior producer and host Lisa Laudico. Thanks for listening!More info is available in our episode notes for this series on our website:  www.ourmbclife.org Got something to share? Feedback?Email:ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife  
Welcome to the second episode in our series on the potential of psilocybin-assisted therapy to help us live as well as possible with metastatic breast cancer.In this episode, we talk to two women with breast cancer who had legal access to psilocybin-assisted therapy. Journalist and writer Erica Rex participated in a clinical trial at Johns Hopkins after being diagnosed with early-stage breast cancer. Mari Singfield, a young Canadian woman living with MBC, gained access through an exemption to Section 56(1) of the Canadian Controlled Drugs and Substances Act, a process facilitated by the organization, TheraPsil. Both women shared with us the process that they went through to gain legal access to psilocybin-assisted therapy, what the treatment was actually like for them,  and what, if anything, changed in their lives afterward.This series has been led by series producer and co-host, Paula Jayne,  with assistance from co-host Lynda Weatherby, and senior producer and host, Lisa Laudico.Thanks for listening!More info is available in our episode notes for this series on our website:www.ourmbclife.orgGot something to share? Feedback?Email: ourmbclife@sharecancersuupport.orgSend us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife
Welcome to our series on the potential of psilocybin-assisted therapy to help us live as well as possible with metastatic breast cancer. Distress, including anxiety, depression, and loss of meaning, is a common side effect for those of us living with MBC.  Psilocybin-assisted therapy has been tested and found effective in relieving distress among advanced cancer patients but is not widely available. Our new series provides an introduction to the potential of psilocybin-assisted therapy in healing—rather than suppressing—our distress. In this first episode, co-host and producer of this series, Dr. Paula Jayne, and co-host Lynda Weatherby interview Dr. Boadie Dunlop, Director of the Mood and Anxiety Disorders Program at Emory University.  Dr. Dunlop shares existing and emerging data on how psilocybin may help those of us living with MBC and discusses an upcoming pilot trial of psilocybin-assisted therapy at Emory University’s Palliative and Supportive Care Clinic.Thanks for listening!More info is available on our website:  www.ourmbclife.orgGot something to share? Feedback? Email:   ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.
How does one even begin to bring up the topic of metastatic breast cancer to a child? In this third episode of our MBC & Parenting series, we’ll talk to three experts that can give us some insight and guidance on how to talk with our children in the most open and safe ways.  First up, Co-host Martha Carlson and Senior Co-host Victoria Goldberg speak with Dr. Leeza Park, psychiatrist, clinical researcher, and Deputy Director for the Comprehensive Cancer Support Program at the University of North Carolina (UNC) at Chapel Hill.  Finally, Senior Co-host and Producer, Lisa Laudico and Co-host Martha Carlson have an illuminating conversation with Morgan Livingstone, Certified Child Life Specialist based in Toronto, Ontario Canada, and Amanda Celeste, Parenting Expert for Project Life, mother, wife, and teacher.  Thanks for listening!More info is available on our website:  www.ourmbclife.orgGot something to share? Feedback?  Email: ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife
What does a metastatic diagnosis mean for our children? In this second episode of our MBC & Parenting series, we talk to the kids of those women in our community who are thriving with metastatic breast cancer and those kids whose mothers have died because of it.  Our interviewees range from ages 6 to 29, lending their diverse voices to the conversation and their unique perspectives on being a part of the metastatic community.  Spoiler alert - we found out that the kids will be and are alright. Special thanks to our school-age guests: Rosie, Joshua, Michael, Charlotte, Krissy, Zhaynah, and Meica; and our young adult guests: Matthias Laudico, Alex Laudico, Vivian Pham, Steph Poland, and Sarah Poland.  Thanks for listening!More info is available on our website:www.ourmbclife.orgGot something to share? Feedback? Email: ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife  
Brain metastases are unfortunately an all too  common and devastating complication of breast cancer.  The blood-brain barrier has long been a key obstacle to developing effective systemic therapies; however, newer agents are showing signs of overcoming this  challenge. Dr. Nancy Lin explains in this Road to a Cure episode, hosted by Victoria Goldberg.Thanks for listening!More info is available on our website:www.ourmbclife.orgGot something to share? Feedback? Email:ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.
Remember all those birth and parenting books we poured over as newly minted parents? Well, I bet if we checked, there would be nothing on how to parent while living with MBC. This episode is one of three in our series of “MBC & Parenting,” where we will address all things related to being a parent living with a metastatic breast cancer diagnosis. In later episodes, we’ll share some viewpoints of their children and information from a panel of experts that will provide insight into tackling some of the hard subjects we tend to shy away from. First up, Senior hosts and producers Lisa Laudico and Natalia Green sit down with Martha Carlson, Ashley Fernandez, and Lynda Weatherby as they discuss what they feel worked (and what didn’t) for them as they learned to marry living with MBC while raising their families. Thanks for listening!More info is available on our website:www.ourmbclife.orgGot something to share? Feedback? Email:ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.
About 80% of breast cancers are ER+, meaning that the cancer cells have estrogen receptors, and estrogen is likely to make them grow. Here’s the good news/bad news story for ER+ MBC patients. First, the good news: there are a number of effective medications that either reduce available systemic estrogen or block its ability to stimulate cancer growth. The bad news: over time, ER+ cancers develop resistance to these medications, resulting in cancer progression and signaling the need for a new treatment. Fortunately, there is more good news: the best minds in cancer research are on the case. In this episode, the Our MBC Life team hears from two dynamic MSK oncologists  Dr. Pedram Razavi and Dr. Komal Jhaveri on treatment strategies and the latest research around the problem of endocrine resistance Thanks for listening!More info is available on our website:www.ourmbclife.org Got something to share? Feedback?Email:  ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife.
In the inverted language of MBC, “unremarkable” is something we all aspire to, and “progression” is something we dread. Progression means that our current medication regimen is no longer working and cancer is spreading and/or growing. It means that treatment is likely to change—bringing new drugs with new side effects. It also means that we’ve exhausted one of the available treatment options for our disease, leaving fewer remaining lines of treatment. In this episode, breast oncologist Dr. Stephanie L. Graff helps us unravel the mysteries of progression and resistance, tissue and liquid biopsies, tumor markers and scans. Thanks for listening.  More info is available on our website:  www.ourmbclife.orgGot something to share?  Feedback? Email: ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.  
This episode has been a long time in the making.  We knew that to cover our varied perspectives on grief, loss, and end-of-life, a discussion on faith traditions would be an important part. The world around us infers that talking about death is not the same as talking about the joy of birth or the happiest of life's milestones. Certainly this unspoken “sweeping under the rug” of what is actually happening to all people and all families can feel so isolating.  We wanted to hear some messages of love and hope from those at the front lines of faith and spirituality, whatever your faith or spirituality may be. We recognize that all of us approach life and death in general from the perspective of our faith traditions, our family cultures, and the traditions and culture we choose as adults.  All this shapes how we approach our end-of-life planning.   Senior Hosts and Producers, Lisa Laudico and Natalia Green, along with Hosts Shonte Drakeford, Ashley Fernandez, Ellen Landsberger, and Lynda Weatherby interviewed 10 faith leaders.  We hear from Jaclyn Roessel, Navajo Nation culture leader; Minister Barbara Bigelow and Elder Chester N. Bigelow of the New Samaritan Baptist Church; Reverend Kendy Easley, of Bethany Community Church; Rabbi Mychal Springer, Chaplain & Manager of Clinical Pastoral Education at NY-Presbyterian Hospital; M.R. Ravi Vaidyanaat Sivachariar, Spiritual Leader of The Hindu Temple Society of North America; Brother Marcus Martin, Leader, Church of Jesus Christs of Latter-Day Saints; Chaplain  Rhonda Alderman and Tupten Tendhar, Professor of Buddhism, Non-violence & Peace Studies. Our last interview is with Dr. Kamal Abu-Shamsieh, director of the inter-religious chaplaincy program at the graduate theological union in Berkeley, CA.  He sums up how we feel perfectly: “We need to look at death from a more human way. And when I say we, I don't mean just Muslims. When I say we, I say before we were Muslims, before we were Catholics, before we were Jews, before we were Hindus in those, before we were secular humanists, we were humans." Thanks for listening.  More info is available on our website:  www.ourmbclife.orgGot something to share?  Feedback? Email: ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.  
Before our MBC diagnosis, many of us saw our doctors once or twice a year or even less often. And most visits were likely routine check-ups or focused on a particular issue with a relatively straightforward solution. But MBC changes all that. It throws each of us into an unfamiliar world--with its own language, new and complex information shared in high stakes appointments and a relationship with our oncologist that immediately becomes one of the most important relationships in our life. This episode of Our MBC Life, the first in our MBC 101 series, includes perspectives, insights and suggestions from both sides of the critical doctor-patient relationship. Our panel of patients share their own experiences—good and bad—and what they’ve learned about navigating the unique communication challenges of this intense and intimate partnership. Dr. Lidia Schapira, medical oncologist and professor of medicine at Stanford University School of Medicine  talks with  our hosts Victoria Goldberg, Martha Carlson, and Kate Pfitzer] about what makes a good doctor-patient relationship. The Our MBC Life team is grateful to Dr. Lidia Schapira and to our fellow MBC patients for generously sharing their time, their experience and their wisdom in this episode. More info is available on our website:  www.ourmbclife.orgGot something to share?  Feedback? Email:     ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.  
How does one do things right at the end of life?  There are many ways to answer this question, as varied as all of us.  In this episode, we continue with our Grief, Loss, and End-Of-Life series.  Co-hosts Shonte Drakeford, Ashley Fernandez, Natalia Green, and Lisa Laudico speak with Julie McFadden, aka Hospice Nurse Julie; Jennifer O’Brien, author of Hospice Doctor’s Widow; Cal Cates, Hospice Massage Therapist; and Sundari Malcolm, Birth, Death, and Grief Doula.  More info is available on our website:  www.ourmbclife.orgGot something to share?  Feedback? Email:     ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website. Follow us on Facebook, Instagram, and Twitter @ourmbclife.  
This is a new stop in our ongoing series Road to a Cure. From the start, our goal for this series was not only to educate and give hope to every listener  but also to ensure that  each of these special interviews feels like an intimate conversation with our smartest friend who also happens to be an oncologist researcher. Co-hosts Victoria Goldberg and Dr. Paula Jayne sit down with neuro-oncologist Dr. Priya Kumthekar to talk about leptomeningeal metastases: what they are, how are they treated, and what research is upcoming, including a discussion on ANGled, the new Phase 3 trial for MBC patients newly diagnosed with leptomeningeal metastases.  We end this episode on a hopeful note with  a little Dash of Joy  from our Creator and Senior Producer Lisa Laudico.More info is available on our website:   www.ourmbclife.orgGot something to share?  Feedback? Email:   ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife
All of us have experienced a wide range of loss and grief from the last 2 years of life under a pandemic.  In this second installment of our focus on grief and Loss, host Lisa Laudico speaks with leading social scientist, family therapist, professor, and writer Dr. Pauline Boss about all of her research and her latest book, The Myth of Closure: Ambiguous Loss in a Time of Pandemic & Change.  Dr. Boss has extended the lens of her groundbreaking research to the world we live in today.  This is another episode that has something for everyone – not just those of us living with MBC or a terminal diagnosis.  It is a privilege to listen to Dr. Boss speak and teach.   This type of interview will now be part of our new, “Our MBC Bookshelf” series that will highlight the authors and books who make a difference in our lives.  If you have an author whom you would like us to interview – drop us a line.   Finally, we have launched a new version of our very popular Dash of Joy – this season we want to hear your little dashes of joy and we will play them in future episodes.  Moments of joy do not have to be (maybe shouldn’t be?) big splashy insta moments but the big and small real moments of joy that help us each day to have some lightness in our heart even when life feels so hard.  Listen here for Dar Finkelstein’s introduction of this new mini segment this season. More info is available on our website:   www.ourmbclife.orgGot something to share?  Feedback? Email:   ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbclife
The future of personalized care for those living with MBC is already here, and it is happening in Kansas City, Missouri. Dr. Timothy  Pluard,  Medical Director of  the Kansas City's  Saint Luke's  Koontz Center for Advanced Breast Cancer  is with us today.  We'll ask him how he and his team create an individualized, completely comprehensive plan for each woman.More info is available on our website www.ourmbclife.org Got something to share? Feedback? Email: ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.   Follow us on Facebook, Instagram, and Twitter @ourmbclife
Welcome to our premiere episode of Season 4!  We wanted to bring you something very special and our guest, Lara MacGregor certainly delivers on that and more. Host Lisa Laudico spoke with Lara in November of last year.  In 2012, Lara MacGregor founded Hope Scarves which to date has sent over 20K scarves to people facing cancer in every state in the US and 29 countries around the world.  In 2014 when Lara was diagnosed with metastatic breast cancer the focus of Hope Scarves broadened to include support for metastatic breast cancer research.  Lara died in January 2022  of MBC and in her last year of life, Lara turned the camera on herself to share the unvarnished truth of declining well with hope.  Always hope as she would say.  This is an interview that doesn’t shy away from the hard conversations that we have when diagnosed with a terminal disease and gives Lara the opportunity to tell us what it has all felt like for her.  We are also joined by April Stearns, founder and editor of Wildfire Magazine and The Burn Podcast.  April had been working with Lara on her soon-to-be-published book, A Hopeful Life, and we hear all about that too.  This episode felt like a gift to be part of, to edit, and to produce.  It's the perfect way to kick off a very ambitious season.   More info is available on our website www.ourmbclife.org Got something to share? Feedback? Email: ourmbclife@sharecancersupport.org Send us a voice recroding via email or through speakpipe on our website.   Follow us on Facebook, Instagram, and Twitter @ourmbclife
Learn about the most recent information released at the annual San Antonio Breast Cancer Symposium regarding metastatic breast cancer research with Dr. Peter Schmid, Professor of Cancer Medicine at Barts Cancer Institute in London, England. Dr. Schmid will provide a comprehensive update and answer your questions about these new developments.More info is available on our website www.ourmbclife.orgBe sure to rate, review us, and sign up for our newsblast.Got something to share? Feedback? Email:  Ourmbclife@sharecxancersupport.orgSend us a voice recording via email or through speakpipe on our website.Follow on Facebook, Instagram, and Twitter @ourmbclife
Join Co-host Sheila Johnson for a very special panel in honor of Black History Month.  Sheila speaks with Rev. Dr. Tawana Davis, Ricki Fairley, Kelle Southern, and Stephanie Walker.  This wide-ranging conversation is one not to miss as we dig into what it is like to be a Black woman seeking medical treatment for breast cancer or metastatic breast cancer and what these incredible women are doing to improve health equity for black women and men.    We believe that Black History Month should always be celebrated but let's agree that it should not be just for one month but every month and every day.  These women show us how to do that.  More info is available on our website www.ourmbclife.orgBe sure to rate, review us, and sign up for our newsblast.  Got something to share>? Feedback? Email:ourmbclife@sharecancersupport.orgSend us a voice recording via email or through speakpipe on our website.  Follow us on Facebook, Instagram, and Twitter @ourmbcliffe
 Last year in October,  SHARE and MBC advocate living with brain mets, Lianne Kraemer,   hosted two brilliant, young clinicians from Moffitt for  a discussion on the management of breast cancer brain metastases.  Today, we are bringing you this webinar with additional commentary.  AND we will let you in on a little secret...this episode is a small glimpse into how the work we are doing with our upcoming season of "Road to a Cure" where we will include more content with an educational angle for the newly diagnosed or those who ready to take a deeper dive with us into the basics.  We call it MBC101.  Season 4 will launch on March 2, 2022!Want more?Find the new Breast Cancer Brain Mets website here  - www.MBCBrainMets.org - to find a comprehensive repository of resources, clinical trials, and insights from fellow patients More info is available on our website www.ourmbclife.orgGot something to share? Feedback?Email:  ourmbclife@sharecancersupport.org Send us a voice recording via email or through speakpipe on our website.Follow on Facebook, Instagram, and Twitter @ourmbclife
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