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To start off Season 3 of the GOSH Podcast, we are excited to share the story of a new educational resource for gynecologic cancer patients entitled "Gynecologic Cancers: Your Journey". This resource was developed in partnership between the Gynecologic Cancer Initiative and BC Cancer to help support gynecologic cancer patients in finding easy-to-understand information and resources after being diagnosed with gynecologic cancer. The resource presents the entire gynecologic cancer journey to them upon diagnosis and points them to relevant information and resources. Through a series of working group meetings and interviews, the resource was developed in collaboration with multidisciplinary teams at BC Cancer and GCI patient partners. This resource was built by gynecologic cancer patients for gynecologic cancer patients but at every step of the way, we received a lot of important insight from Gynecologic Oncology Specialists, Palliative Medicine Specialists, BC Cancer Supportive Care Manager, Plain Language Specialists, Library Services and many others.  The resource is now available on the BC Cancer website:http://www.bccancer.bc.ca/library-site/Documents/Gynecologic-Cancer-Your-Journey.pdf-Welcome the three patient partners Nancy Cleveland, Siv Klausen, and Nicole Keay, who played a really important role in making this resource a reality. Nicole Keay is an experienced communications professional and a patient partner with the Gynecologic Cancer Initiative (GCI). She also co-hosts the Gynecologic Oncology Sharing Hub (GOSH) podcast alongside Stephanie Lam. In her early 30s, Nicole was diagnosed with cervical cancer and underwent intense treatment including surgery, radiation, and chemotherapy resulting in the loss of her fertility. Nicole now uses her experiences to help guide, support, and be a voice for women who have been diagnosed with gynecological cancers. Nancy Cleveland has lived in Vancouver for her entire life and is married and the mom to two beautiful adult children. In her professional life, she spent 35 years as a teacher with the Vancouver School Board. In May 2019, Nancy was diagnosed with Stage 3C Primary Peritoneal Serous Ovarian Cancer after going through what she thought of as a routine laparoscopic surgery for a gallstone. Her journey has had its ups and downs, but she continues to believe that there is a lot of hope for gynecologic cancer patients and survivors. Nancy has had some great experiences with clinical drug trials and research that continues to improve outcomes for patients across BC. Siv Klausen is a Patient Partner with the Gynecological  Cancer Initiative.  After experiencing vulvar cancer in 2018, she underwent surgery, chemotherapy, and radiation at the BC Cancer Agency in Vancouver. Siv lives in Tsawwassen with her husband and son, and JoJo the poodle.  Stephanie Lam is the Research Coordinator for the Gynecologic Cancer Initiative (GCI), a province-wide initiative aimed to accelerate transformative research on the prevention, detection, treatment, and survivorship of gynecologic cancers. Currently, Stephanie supports a broad range of research activities within the GCI including clinical trials, knowledge translation, and educational programs. An important part of her role is in the area of patient engagement and patient-oriented research. _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
The final episode of Season 2 features Jessica Dietcher. Jessica is a fourth-grade teacher and a cervical cancer survivor. She is the happiest when teaching yoga, journaling, and creative hands-on projects. Jessica shares how these activities helped her navigate her diagnosis, treatment, and her recovery from cervical cancer just over two years ago. _For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
On this episode, we are joined by Kirsty Browne, a cervical cancer survivor. She was diagnosed at age 26 shortly after requesting an unplanned screening test. After successful cancer treatments, she has been cancer-free for five years and now has a four-year-old boy! Through her story, Kirsty hopes to empower and encourage women to get their regular screening tests for cervical cancer. Learn more about the Conquering Cancer Campaign: https://conqueringcancercampaign.comFollow Conquering Cancer Campaign on Instagram: https://www.instagram.com/conqueringcancercampaign/Follow Conquering Cancer Campaign on Twitter: https://twitter.com/ConqueringCancr-For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
On this episode, we are joined by Sue Collins, filmmaker of the impact film Conquering Cancer. The film is a global social impact communications initiative designed to stimulate and celebrate efforts to eliminate cervical cancer around the world. Sue shares what she learned about cervical cancer, the challenges faced in filming, and the impact she hopes the film has on the world. Learn more about the Conquering Cancer Campaign: https://conqueringcancercampaign.comFollow Conquering Cancer Campaign on Instagram: https://www.instagram.com/conqueringcancercampaign/Follow Conquering Cancer Campaign on Twitter: https://twitter.com/ConqueringCancr-For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
On this episode, we are joined by Dr. Marion Saville, Executive Director of the Australian Centre for the Prevention of Cervical Cancer and Executive Producer for the Conquering Cancer impact film. Dr. Saville discusses the progress made to increase access to cervical cancer testing in underserved and lower-income communities around the world. Learn more about the Conquering Cancer Campaign: https://conqueringcancercampaign.comFollow Conquering Cancer Campaign on Instagram: https://www.instagram.com/conqueringcancercampaign/Follow Conquering Cancer Campaign on Twitter: https://twitter.com/ConqueringCancr-For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
On this episode of the GOSH Podcast, we are joined by patient partner Marion Lahey.  She has diagnosed in 2017 with stage 4 cervical cancer but was determined to not let her cancer diagnosis define how she was going to live her life. Marion shares how she has navigates her cancer journey with a focus on acceptance and self-love. For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
On this episode of the GOSH Podcast, we are joined by gynecologic oncologist Dr. Lesa Dawson. She discusses the recent establishment of a hereditary cancer and gynecologic cancer survivorship clinic in BC. Dr. Dawson shares how a focus on early menopause management through hormone prescriptions, sexual health, and hereditary cancer has allowed them to improve the health and quality of life of many patients in BC. If you have or had a gynecologic cancer diagnosis and this clinic is of interest to you, contact Nikki Burton at nichola.burton@vch.ca. You will need a referral from a doctor to participate in this clinic. Please note this is not a general menopause clinic since it focuses on early menopause management as a result of gynecologic cancer. ---For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
In our second episode with Tracy Weiss, she and Nicole share their reflections and experiences on the survivorship aspect of their cancer journey. They chat about what it was like to first bring up their diagnosis to co-workers and loved ones, and the challenges that come post-cancer treatment. Chick Mission is a national community of patients, survivors, parents, doctors, advocates, friends and loved ones who are all working together to preserve hope and choice for women battling cancer in the US. Their mission is to ensure every young woman newly diagnosed with cancer has the option to preserve their fertility through direct financial support, educational programs and advocacy for legislative change. To learn more about them, check out their website www.thechickmission.org. Resources mentioned:Fertile Future: https://fertilefuture.ca/For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
In this episode of the GOSH Podcast, we are joined by Tracy Weiss, the Executive Director and Chief Creative Officer of the Chick Mission.  She is a cancer survivor who was diagnosed with cervical cancer at age 30. Having her insurance company denied her claim to preserve her fertility under it being ‘elective’, she realized that she has to get revenge by making sure no other woman would have to go through the same thing. Throughout this first episode with Tracy, you'll get a chance to hear her entire story from diagnosis to her work with the Chick Mission. Chick Mission is a national community of patients, survivors, parents, doctors, advocates, friends and loved ones who are all working together to preserve hope and choice for women battling cancer in the US. Their mission is to ensure every young woman newly diagnosed with cancer has the option to preserve their fertility through direct financial support, educational programs and advocacy for legislative change. To learn more about them, check out their website www.thechickmission.org. Resources mentioned:Fertile Future: https://fertilefuture.ca/For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
On September 24th, 2021 the GCI hosted a launch event for Season 2 of the GOSH Podcast: Press Play on Patient Perspectives. Patient partners Nicole Keay, Nancy Cleveland, and Debra Walker shared their reflections on the GOSH Podcast, as well as their own stories and engagement with gynecologic cancer research. We are excited to share their meaningful and insightful conversations as a bonus episode for this podcast. Press Play to hear more! You can also read more about the event on the blog on our website. For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
On this episode of the GOSH Podcast, we are joined by Dr. Mary Bryson. They talk about their project, Cancer Margins, which is the first nationwide Canadian research study designed to advance the understanding of how sexuality and gender shape the experiences of gynecologic cancer patients. They also share the importance of shifting away from the assumption that gynecologic cancer is a women's cancer in order to provide accessible and safe cancer care to all. You can learn more about Cancer Margins on their website www.lgbtcancer.ca.For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
On this episode of the GOSH Podcast, we are joined by Jessica Sutherland, a member of the Patient Research Advisory Board for the Endometriosis and Pelvic Pain Lab at UBC. She was diagnosed with endometriosis 8 years ago since joining the Advisory Board in 2017, has collaborated on 7 research projects including the development of the newly launched Sex, Pain, and Endometriosis website. During this episode, Jessica and Stephanie talk about the normalization surrounding painful periods and why treating conversations about gynecological health as taboo can be harmful to those who have periods. Sex, Pain, & Endometriosis recently launched their website, endopain.endometriosis.org, with a goal to raise awareness of endometriosis-associated painful sex and improving care by sharing evidence-based information. You can also find them on social media @sexpainendo. For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
Welcome back to the GOSH Podcast! To start off Season 2 we are joined again with Dr. Gavin Stuart, strategic lead of the Gynecologic Cancer Initiative. In this episode, Dr. Stuart summarizes what the GCI has accomplished over the past three years, discusses pandemic highs and lows, and shares what's next for the GCI. For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
Season 1 of the GOSH Podcast included 8 guests, 17 episodes, and over 500 minutes of rich storytelling and dialogue about gynecologic cancers. During a pandemic, this podcast aimed to highlight the stories of gyne cancer patients and survivors, as well as the work of researchers wanting to improve the outcomes of those with gyne cancers. Now, on the final episode of Season 1, co-hosts Nicole and Stephanie, reflect on their experiences and learnings throughout this process. For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.caWhere to learn more about us:Twitter - https://bit.ly/3jsViHMInstagram - https://bit.ly/3dRQsCFFacebook - https://bit.ly/3knUgOw
Nancy Cleveland joins us again on the GOSH Podcast! Today, she shares her appreciation for the work of the Gynecologic Cancer Initiative and other organizations for always centering patient voice. She is thankful for the various opportunities and resources patients have, such as the GOSH podcast. She discusses the importance of sharing community with those going through their cancer journey and also key lessons she has learned along the way.   For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter - https://bit.ly/3jsViHM Instagram - https://bit.ly/3dRQsCF Facebook - https://bit.ly/3knUgOw 
On this episode of the GOSH podcast, we are joined by patient partner Nancy Cleveland for a two-part podcast series. During a routine laparoscopic surgery for a gallstone in 2019, Nancy learned that she actually had stage 3C ovarian cancer. Following her diagnosis, Nancy joined a clinical drug trial to give back to the incredible research that allowed her to be where she is today. Her journey has had its ups and downs but she continues to believe that there is a lot of hope for gynecological cancer patients and survivors.For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter - https://bit.ly/3jsViHM Instagram - https://bit.ly/3dRQsCF Facebook - https://bit.ly/3knUgOw 
In the second episode of this series with Jame Remocker, she shares what the BRCAinBC is currently up to, including their work advocating for population-wide genetic screening in British Columbia. She also shares about the vital community building that was needed for them to advance the mission. With the extensive leadership experience Jane has, she offers her advice for those looking to start doing work in their communities and highlights the importance of avoiding burnout.  We are so thankful to have had Jane join us on the GOSH podcast and even more thrilled to see the important work she's done! You can learn more about the BRCAinBC here: https://www.brcainbc.ca/  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter - https://bit.ly/3jsViHM Instagram - https://bit.ly/3dRQsCF Facebook - https://bit.ly/3knUgOw 
For these next two episodes of the GOSH Podcast we are joined by Jane Remocker, who founded the BRCAinBC in 2018 to honour her late husband, Jeff, who passed away from prostate cancer. Jeff was unaware of his high risk for gene mutation because of his Jewish ancestry, leaving him to only know about his BRCA2 mutation a few days before he passed. Sharing his story, Jane narrates how the BRCAinBC came to be after his passing and howstrength in numbers has mobilized their community advocacy. You can learn more about the BRCAinBC here: https://www.brcainbc.ca/  For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter - https://bit.ly/3jsViHM Instagram - https://bit.ly/3dRQsCF Facebook - https://bit.ly/3knUgOw 
On this episode of the GOSH Podcast, we are joined by Shiraz Italia. Shiraz was twelve when her mom died of ovarian cancer at the age of 48. She had also lost her grandmother to cancer. She suspected family history and decided to pursue genetic testing, but was faced with a 12 to 18-month waitlist. Following her gut feeling, Shiraz sought private testing and found out she was BRCA 1 positive.  During her preventative surgery, it was discovered she had a 1 mm-sized tumour on one of her ovaries. Shiraz shares her story on how genetic testing gave her the power to take action.  You can learn more about Shiraz's story here – https://bit.ly/3vQABxRFor more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
We are back with another bonus episode of the GOSH Podcast! At the beginning of February 2022, Dr. Gillian Hanley and her team published their preliminary research findings that suggest removing a woman’s fallopian tubes at the time of other routine gynecologic surgeries is a safe, effective way to reduce ovarian cancer risk for women. Through the support of OVCARE, Vancouver Coastal Health, Vancouver Coastal Health Research Institute, BC Cancer, BC Cancer Foundation, VGH & UBC Hospital Foundation, and the UBC Faculty of Medicine, these findings are a huge step towards learning more about ovarian cancer prevention. You can read the publication here: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2788855---For more information on the Gynecologic Cancer Initiative, please visit https://gynecancerinitiative.ca/ or email us at info@gynecancerinitiative.ca Where to learn more about us: Twitter – @GCI_ClusterInstagram – @gynecancerinitiativeFacebook – facebook.com/gynecancerinitiative
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