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Why might a father get a tattoo to resemble his daughter's open-heart surgery chest scar? How could getting a tattoo like that change his life? What does being an advocate for the CHD community mean to Matt Backe?Matt Backe is married to his wife Laura and together they have a 10-year-old son Jack and a 4-year-old daughter named Everly, who was born with a critical heart defect. Matt went viral on the internet after having a scar tattoo on his chest to match Everly's so she wouldn't feel alone. His wife Lauren followed suit the same day, getting an EKG tattoo on her left arm. Their unique tattoos help them to raise awareness of CHD and remind other families that they are not alone. The Backes live in Crystal Lake, Illinois, where Matt is a commercial insurance salesperson and Lauren stays home to take care of the family's needs. Everly attends preschool and loves to dance. They recently celebrated her's half birthday with a trip to Disney on Ice.In this episode of "Heart to Heart with Anna," Matt shares with Anna why he got a tattoo of a scar on his chest, how a video of that went viral, and what it means to be a Heart Dad and a Heart Ambassador.Related links:Matt's Today.com articleMatt's NBC Chicago ArticleMatt’s Twitter account: @youngestoffive2Matt’s LinkedIn accountMatt’s wife  (Lauren) is a board member of CHD NFP LJs Healing Hearts (www.ljshealinghearts.com), a member of the Advocate Children’s Family Advisory Council, an advocate of Ronald McDonald House Charity NW Indiana & Chicagoland as well as many other CHD-related not-for-profit organizations and foundations.Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show
What happens when a Fontan patient’s ejection fraction dips too low? Can a person’s heart damage be reversed? Is there hope for a cure for congenital heart defects?Brenton Ball was born in 1990. He was diagnosed with hypoplastic left heart syndrome or HLHS and was airlifted to Mercy Hospital in Des Moines, Iowa in his first week of life. He has had several heart surgeries including a pulmonary artery banding, hemi-Fontan, and completion Fontan. He's had many stents put in, a pacemaker, and two ICDs. Brenton has been married to his wife Kelsey for 5 years. They live in Iowa with their pet rabbit McBoon, a gift from Brenton’s sister last summer. They live close to their families and are a loving uncle and aunt to their four nephews and one niece. Brenton works part-time as a hotel desk clerk and enjoys reading and spending time with his family. In this episode of "Heart to Heart with Anna," Brenton shares with Anna what his medical journey entailed, how he came to take part in a revolutionary, new medical procedure using stem cells, and how he endured having COVID-19.Helpful links:Heartworks: https://www.heartworksinc.org/products-1The Use of Stem Cells in Treatment for Hypoplastic Left Heart Syndrome (HLHS)Advancements in Stem Cell Therapies and Research for HLHS Heart WarriorsStem Cells for an HLHS (hypoplastic left heart syndrome) HeartPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show
This episode deals with a very unusual congenital heart defect (CHD) -- a vascular ring defect. In this episode, we will be learning about what this heart defect is, how it affects the body, how the defect can be surgically managed, and how one mother took this experience and created a children's book to help other children with CHDs.Carli Valentine lives with her husband and their two sons, Finnegan and Lochlan, in Ogden, Utah. Finnegan was born with a heart defect which contributed to other medical challenges. Carli's experiences as a mother have informed her as an author. She has written several children's books that explore themes including congenital heart defects, ADHD, emotional regulation, executive dysfunction, and airway disorders. She hopes to share the magic of books with children to instill a passion for reading. When she's not writing, she enjoys spending time with her family and volunteering at her son's school or with CHD charities.  She is the author of six children’s books including Turkey Trot, Bad Habit Rabbit and more. You can learn more about her at Linktree and follow her on Facebook.Link to Carli’s author page on The Heart Community CollectionCarli's Facebook linkCarli's Instagram linkCarli's TikTok linkCarli's YouTube channel link Carli's Goodreads link Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show
What are Beads of Courage? Why would someone with a heart defect want to receive beads when experiencing difficulties in their medical journey? Who can benefit from the Beads of Courage program?Today’s show is Beads of Courage for CHD Warriors and our Guests are Beth Moneck and Brianna Hartmann. Beth has 6 years of experience working on a Cardiac Intensive Care Unit and Acute Care unit and Cardiac Intensive Care Unit and Cardiac Clinic as a Child Life Specialist at Children’s Hospital of Pittsburgh. For the past 7 ½ years, she has been working with the Beads of Courage program, a not for profit organization who partners with clinicians from hospitals in the US and worldwide to provide innovative arts in medicine programs to support the emotional well-being of young people coping with serious illnesses. Brianna Hartmann is a recipient of the Beads of Courage program. She has an ASD that was repaired at 6 month of age, and is currently experiencing problems with her aortic valve and blood pressure. She is 32 and lives in Minnesota. In her spare time, she loves to play music, paint pour, and hang out with her nieces and family. Beth and Brianna share their experiences with the Beads of Courage program with Anna. You can learn more about the Beads of Courage program here: https://beadsofcourage.org/Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
This is a special episode of "Heart to Heart with Anna" featuring two heart friends who interacted with one another for seven years before meeting each other face-to-face in person. Anna Jaworski, our Host, was lucky to be invited to this special event. The following day, she went back to Katie, Texas to actually conduct a face-to-face interview with these long-time friends to share the excitement of the meeting and share some valuable stories sure to touch the hearts of those who listen.Do most Heart Warriors -- men and women born with congenital heart defects -- grow up knowing other Heart Warriors? Is that something that is more common today than decades ago? What kind of bond do Heart Warriors form when they come to know each other?Today’s show is 'Heart Friends Meet for the First Time!' and our Guests are Lauren England and Jeni Busta.Jeni Busta and Lauren England were both born with hypoplastic left heart syndrome (HLHS). In the first two years of life, they underwent multiple surgeries to repair their hearts. They later developed arrhythmias and received pacemakers, but have continued to experience SVT and other arrhythmias which have disrupted their lives at different times. Jeni lives in Southern California with her husband Nick, a high school history teacher. They have been married for 13 years. Jeni has been actively involved in the CHD community since childhood. Who would have guessed that Jeni’s making of a documentary would later bring her into Lauren’s life?Lauren has lived in Texas her whole life. Her heart has led her to a passion for the arts, and a beautiful friendship with Jeni.   Helpful Links:Journey's Beginning Trailer: https://vimeo.com/31302268Surviving the Teenage Years with a CHD (podcast)Adult Congenital Heart Defect Survivors Finding Love (podcast)Anniversary of a Heart Documentary (podcast)Camp Del Corazon -- https://www.campdelcorazon.org/"The Heart of a Mother" (book) https://www.babyheartspress.com/store/p2/The_Heart_of_a_Mother.htmlPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
What is NVLD? Why do some people want to change the name of NVLD to developmental visual-spatial disorder? What difficulties do people with NVLD have?Ever since Brandon Lane Phillips, M.D. had his first open-heart surgery when he was 2 years old, he wanted to be a pediatric cardiologist, just like the doctors who helped save him. Over the years, Brandon had multiple treatments and surgeries and thrived. At school, Brandon became an academically gifted student after repeating the first grade, but often felt that he struggled to keep up. He made it into medical school and in third year was referred for an educational assessment after scoring lower on a standardized exam than expected. Dr. Brandon Lane Phillips met Dr. Amy Margolis, an Associate Professor of Medical Psychology, at a Non Verbal Learning Disorder, or NVLD, conference. Dr. Margolis is the Principal Investigator of a project sponsored by the NVLD Project that examines the neural correlates of Non-Verbal Learning Disability.   Dr. Phillips and Dr. Margolis are joining us today to share their experiences of nonverbal learning disorder (NVLD).  Helpful Links:Dr. Brandon Lane Phillips' other "Heart to Heart with Anna" appearancesInterwoven Lives and Congenital Heart Defects Heart Warrior Doctor-Nurse Team Treating CHD Patients A Wish-Made Friendship8th Anniversary Special Part 1Environment, Brain, and Behavior Lab at Columbia University (Dr. Amy Margolis)Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Why would doctors choose to spend time volunteering in another country and creating a nonprofit organization to save children’s lives overseas?Dr. Tom Forsberg and Dr. Chad Hoyt are co-founders of Healing Hearts Vietnam. Dr. Forsberg is an emergency physician with Centra Health in Central Virginia.  He currently serves in four emergency departments throughout the region. Dr. Chad Hoyt specializes in advanced cardiovascular imaging and has been in partnership with Centra Health for the past sixteen years. He currently serves as the executive medical director of Centra’s Heart & Vascular Center, a busy four-hospital system with seven office locations and forty clinical providers. For nearly a decade, Dr. Forsberg and Dr. Hoyt have shared their expertise with Vietnam. During their trips, they became aware of the great need for cardiac surgeries in children. Upon returning from Vietnam, Dr. Forsberg led the charge to form Healing Hearts Vietnam which was established in 2015. Today, Healing Heart Vietnam provides financial assistance to allow children with congenital heart disease to access life-saving surgeries.In this episode of "Heart to Heart with Anna," Dr. Tom Forsberg and Dr. Chad Hoyt share with Anna how they came to form a nonprofit organization to save the lives of children and adults in Vietnam with broken hearts. They share how certain devices have helped them identify who they can serve and how they can best help the people of Vietnam. They also share how people in the community can donate to their organization in a variety of ways.Links mentioned in the episode:Healing Hearts Vietnam websiteHealing Hearts Vietnam Facebook pageVietnamese Boat People episode with Amy M. LeVietnamese Boat People podcastPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
What was it like to be a parent of a baby with a critical congenital heart defect over 30 years ago? What was life like for Susan, Nick, and the rest of the family after Nick received a heart transplant? Why would an author choose to revise a book about her son's medical journey?Susan May is mom to Nick, 32, who was born with hypoplastic left heart syndrome, transposition of the great arteries, coarctation of the aorta, and a septal defect.  He had three surgeries at 5 days, 3 1/2 months, and one year of age, prior to receiving a heart transplant just before his second birthday. Nick is one of the first children in the US to receive a heart transplant and is the 5th longest living transplant recipient. Today, he is married with a daughter. Susan has written a book about her son's heart journey, with a revised edition released this year. Susan also writes professionally and has written 40 books in total, including a nonfiction book about a World War II flight surgeon and 33 medical romance novels. She has three other children and eight grandchildren. She likes to travel, read and sew. This episode of 'Heart to Heart with Anna" is filled with so many stories! Susan May certainly is a great storyteller. She shares so many heartfelt stories about the people who have helped Nick in his life. Anybody who is living with a transplanted heart, or whose baby may need a heart transplant needs to listen to this episode.Links mentioned in the show:Susan's 'The Heart Community Collection' page: https://www.theheartcommunitycollection.com/susan-maySusan's website: http://www.susancmay.com/Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Each Monday in February we've been broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is the last of the four Medical Monday programs and features Greg Hummer, a Senior Technical Services Specialist for Abbott.Most of the Medical Monday programs were relatively short, but Mr. Hummer talked about 4 different devices! Are you curious about the different kinds of pacemakers available? What makes an ICD different from a pacemaker? What kind of rhythm problems do pacemakers treat? What about leadless devices?  Are they science fact or fiction?Tune in for a lesson on arrhythmias heart failure, the progression some Heart Warriors face as they age, and the devices that can improve their quality of life and even save their lives.Abbott's website page on Heart Failure: https://www.structuralheart.abbott/patients/heart-failure-treatmentPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
This is the final Heart Dad Sunday episode for Heart Month, February 2022 and it features a surprise -- instead of Frank Jaworski being the Guest Host, he is the Guest and his Heart Warrior son Alexander is the Guest Host. Frank Jaworski is married to Anna Jaworski. Together they had two sons – Joey and Alex Jaworski. Frank Jaworski is a certified registered nurse anesthetist or CRNA. He has worked a number of jobs over the years and we’ll talk more about that in a little bit. He also serves as the President of Hearts Unite the Globe: A Nonprofit Organization for the Congenital Heart Defect Community – a nonprofit organization founded by Frank and Anna Jaworski, Bob Daigneault, Bill Tse, Sue Dove, and Brenda Vignaroli. Frank also did all of the illustrations for Anna’s first book, “Hypoplastic Left Heart Syndrome: A Handbook for Parents,” and for the Glossary of “The Heart of a Mother.” He wrote an essay and the connecting material for the book, “The Heart of a Father.”Frank Jaworski loves traveling, cooking, reading, writing, and playing with his two new dogs – Buck and Chloe.  In addition to hearing him on Heart Dad Sundays during Heart Month, February 2022, he was also Anna’s Fun Fact Friday Guest, and he and Anna made recipes from Amy M. Le’s cookbook “Snow’s Kitchen” for Tasty Thursday.Frank shares his journey from husband to father, from emergency medical technician to nurse, and what it meant for him to become a Heart Dad. He also shares some advice he has learned the hard way -- from saying good-bye and losing control. It's a touching interview between a man and his Heart Warrior.Baby Hearts PressHearts Unite the Globe: A Nonprofit Organization for the CHD Community Heart Dad Sunday #3: Dealing with Autism & Epilepsy Heart Dad Sunday #2: Beyond the Heart: When Neurological Problems Accompany HLHSHeart Dad Sunday #1: Dad of an ACHA Founder Fun Face Friday #4: Why do some people with bicuspid aortic valves need surgery and some don't? Fun Face Friday #3: What is prostaglandin E1 and why is it important? Fun Face Friday #2: What arrhythmias are life-threatening? Fun Face Friday #1: Who is the Father of Interventional Cardiology? Tasty Thursday #4: Lemon Cheesecake  Tasty Thursday #3: Boeuf Bourgignon Tasty Thursday #2: Yellow Curry ChickenTasty Thursday #1: Spring Rolls Alex interviewing Anna on the 300th episode of "Heart to Heart with Anna" Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!)Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsSupport the show (https://www.patreon.com/HearttoHeart)
Who was the first person to close holes in the heart between the upper chambers of the heart in the cath lab? What exactly is interventional cardiology and why is it important? What future devices do our Heart Warriors have to look forward to? Today’s episode is entitled “The Making of a Louisiana Legend” and our guest is Dr. Terry King.Dr. Terry King completed his training in Pediatrics and Pediatric Cardiology at the University of Texas and Duke University. He started practicing in 1965, caring for children in the state of Louisiana.In 1975, Dr. King and Dr. Noel Mills invented the “cardiac umbrella” to close holes in the heart without surgery and were the first to implant the device in humans. This technology forever changed how structural defects in the heart are repaired, both in children and adults. They were nominated for the Nobel Prize in Physiology in 1976.Dr. King considers the greatest responsibility you can give another person is the care of your child and he has dedicated his life and work to educating others on this important journey. He has helped to build the capacity of scholars and researchers in the field, delivering lectures and establishing a pediatric symposium for health professionals.He has helped to establish Neonatal and Pediatric Intensive Care Units in underserved areas of Louisiana to assist children with heart disease and their families who have no other means of receiving care. Support the show (https://www.patreon.com/HearttoHeart)
Welcome to Fun Fact Friday -- a special weekly podcast during Heart Month (February 2022). Each Friday we have been sharing fun facts for the congenital heart defect community. Our Guest is Frank Jaworski, CRNA -- he is a father to a 27-year-old single ventricle Heart Warrior and he's also Host Anna Jaworski's husband.In this final episode of our mini-series, Frank will answer the question, "Why do some people with bicuspid aortic valves need surgery and some don't?Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/Image by Mohamed Hassan from Pixabay  -- thanks!Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Each Thursday we will have author Amy M. Le joining us to chat about recipes from her cookbook Snow’s Kitchen. For those of you who don’t know, Amy is the author of a trilogy of books revolving around her Vietnamese mother’s journey to the United States after the fall of Saigon. The last book in the trilogy, Snow’s Kitchen is a novella and a cookbook! All of our recipes are from this cookbook.In this final episode of our Tasty Thursday mini-series during Heart Month, February 2022, Anna Jaworski and her husband Frank talk with the author of Snow's Kitchen about making Lemon Cheesecake.To make this recipe keto:Instead of using honey graham crackers, white flour, 3 cups of sugar, and store-bought lemon curd (resulting in 72 grams of carbs per serving), we substituted Cinnamon-flavored Magic Pop for the honey graham crackers, erythitol and aspartame for the sugar, almond flour for the white flour, and we still used the Dickinson’s lemon curd in the lemon curd frosting along with our home-made lemon curd. Believe it or not, by making these substitutions, our carb count was 12 grams of carbs per serving with the cheesecake cut into 12 slices.Don't miss our Tasty Thursday episode where we made Spring Rolls!or the Tasty Thursday episode where we made Yellow Curry Chicken!or the Boeuf Bourgignon 3rd episode of Tasty Thursday!To purchase Amy's cookbook, "Snow's Kitchen" use this linkFor an autographed copy of the book, use this linkAmy's website: https://www.etsy.com/shop/HeartCommunity"Heart to Heart with Anna" BONUS COUPON! To receive a 20% discount on the autographed copy of the book, plus free domestic shipping, use the coupon code TASTYTHURSDAYSpecial thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive.  https://freemusicarchive.org/music/christian-h-soetemann/music-for-museumsHere is this artist’s website: http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.htmlPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
According to an article in Neuropsychobiology entitled “Exercise and Mental Health: Many Reasons to Move”Neurodegenerative diseases become more prevalent as individuals age and, therefore, represent a serious issue for the healthcare system. Since inactivity is the number one risk factor for many diseases, physical activity has become an emerging topic of interest for many investigators. Exercise might act as an efficient and low-cost adjunctive factor in the treatment and prevention of age-related neurodegenerative processes [1, 2] . Clinical evidence has demonstrated that exercise has a positive relationship with the outcome of different mental diseases, such as depression, Alzheimer’s disease and Parkinson’s disease, improving not only patients’ quality of life but the disease itself [7–9] . Indeed, exercise is related to enhanced cognitive functioning and brain plasticity [10, 11] I think we can all agree that we feel better after a good workout but lately, I’ve been too busy to work out. I’ve been sitting at my computer cranking out scripts and recording podcasts and I’ve been building up a lot of tension in my shoulders, neck, and back. Therefore, I decided in this last episode of Mental Health Wednesday that I would do some stretching exercises. Whenever I do my yoga, I feel better and I thought that if I feel better doing those exercises, surely everyone else would, too. Exercise is good for our mental health.Helping me today is a very special Heart Warrior. She is a Hearts Unite the Globe Patron and a contributor to my newest book — “The Heart of a Heart Warrior.” Alicia Lynch and I had an opportunity to meet in person several years ago at a conference in Boston. I’m completely delighted that she is joining me in the studio today.Thanks to Tammy Oropesa for the music at the beginning and ending of this episode. Visit Tammy's website: https://www.okay-tee.com/To follow along with Alicia and me, use our YouTube link here: https://www.youtube.com/watch?v=MmketAlGRo0Thanks to Siddhartha Corsus for the music accompanying our workout“Oh, Radiant One” https://freemusicarchive.org/music/SiddharthaHere is this artist’s website: https://siddhartha.music.blog/Special thanks to Alicia Lynch for guiding us in this exercise routine. This is the final installment of our Mental Health Wednesday mini-series during Heart Month, February 2022.Special thanks to Stephanie Scherer for sound engineering and production assistance and to Spencer Tyme for being our Producer for this episode.Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Image by Gordon Johnson from Pixabay, Thank you so much!Support the show (https://www.patreon.com/HearttoHeart)
What is plastic bronchitis? What is immune deficiency and how might it be related to plastic bronchitis? More importantly, what can be done about it? Today’s Guest will answer those questions and more!Anna:  Heidi Ingvaldsen is 38 years old and lives in the north of Norway with her partner Karl Stian. The couple has three children from previous relationships, Karl's sons, Nicklas, aged 17, and Tobias, aged 14, and Heidi's daughter, Maya, aged 17. Heidi and Karl welcomed their son, Karl Emil, 5 years ago. Karl Emil was born with hypoplastic left heart syndrome or HLHS and also has plastic bronchitis and an immune deficiency. He has had three heart surgeries and lives with Fontan circulation. Heidi is committed to advocating for her son's health to get him the best care possible. Living in Norway makes advocacy more of a challenge. In this episode, Heidi shares with Anna how she is learning about pediatric cardiology and what she hopes for her son's future.Other "Heart to Heart with Anna" episodes about plastic bronchitis:Heart Family Living with Plastic BronchitisSurviving Plastic Bronchitis Thanks to a Heart TransplantFacebook page mentioned in this episode:Families Dealing with Plastic Bronchitis: https://www.facebook.com/groups/plasticbronchitisPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Each Monday in February we're broadcasting a special episode of "Heart to Heart with Anna" featuring different medical devices or products. Today's episode is the third of four Medical Monday programs and features a gentleman commonly referred to as "The Father of Interventional Cardiology."Today we’ll be talking about a congenital heart defect known as an atrial septal defect or ASD -- more commonly referred to as a 'hole in the heart' and one doctor's mission to find a way to use a device in a  cardiac catheterization to close the hole. Although ASDs were being closed via open-heart surgery in 1970s, Dr. King joined forces with Dr. Noel Millls, a cardiothoracic surgeon, and together they developed the King-Mills umbrella device. Dr. King shares how he came upon the inspiration needed to invent this life-saving device.Thanks to Tammy Oropesa for the music for this episode. Visit Tammy's website: https://www.okay-tee.com/Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
This is the 3rd of 4 episodes of Heart Dad Sunday -- a mini-series developed for Heart Month, February 2022. Heart Dad Frank Jaworski returns in this episode as the Guest Host. He interviews long-time friend, Michael Liben, about what it was like to raise a daughter with a critical congenital heart defect in Israel. Not only did Michael's daughter have double-outlet right ventricle, but she also had autism and she later developed epilepsy as well. Michael is the father of three children: 27-year old Idan, 25-year-old Sapir, and forever 15-year old Liel. Michael and Leora have been married for 34 years and Michael made aliyah to Jerusalem after college.Michael was a former filmmaker, high school teacher, adjunct professor of television and radio production, and he now works in security. For almost 6 years Michael has been working with Frank's wife, Anna, as the Host of a bereavement podcast now entitled, “Bereaved But Still Me.”Links to Michael's other appearances on "Heart to Heart with Anna"Congenital Heart Defects Around the Globe: IsraelLiel and Her Many Gifts: A Family's Decision to Donate One Girl's Lungs, KidneysMichael and Jamie: An Interview with an Organ Recipient and Donor's DadLink to Michael's podcast -- Bereaved But Still MePlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
How can a heart camp, like Camp Del Corazon, enhance a Heart Warrior's life? What made one Heart Warrior decide to become a nurse and eventually to go back to Camp Del Corazon as a Camp Nurse? What is the next step for a Heart Warrior after she is too old for camp?Carrlee McGuire-Lim is a Heart Warrior who was born with Hypoplastic Right Heart Syndrome, Coarctation, and TGA. She has had several cardiac surgeries over her lifetime and a Pacemaker placed at age 5. Carlee also has severe scoliosis requiring surgical rod placement at age 13. Carrlee knew from a young age that she wanted to be a nurse, but always had concerns if her heart would be strong enough to work the long hours in a high stress environment. Beating the odds, Carrlee successfully graduated from nursing school in 2017 and works as a NICU nurse caring for tiny newborns, some with congenital heart disease too! Carrlee pursued more and graduated with her MSN and starting teaching nursing students in 2021.She married the love of her life in 2017 and has big plans for her future.Our Guest Host is Roslyn Rivera. She is also a Heart Warrior and a nurse! Roslyn is also a Medical Advisory Board member.Links mentioned in this program:Camp Del Corazon website:  https://www.campdelcorazon.org/A video with Carrlee and Roslyn: https://www.youtube.com/watch?v=nH3dxB251cE Roslyn's former "Heart to Heart with Anna" episodes: A View From the Other Side of the BedCongenital Heart Defects Around the Globe: The Novick Cardiac AllianceNurse Burnout in the CHD Community Part 1Nurse Burnout in the CHD Community Part 2Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Welcome to Fun Fact Friday -- a special weekly podcast during Heart Month (February 2022). Each Friday we have been sharing fun facts for the congenital heart defect community. Our Guest is Frank Jaworski, CRNA -- he is a father to a 27-year-old single ventricle Heart Warrior and he's also Host Anna Jaworski's husband.In this episode, Frank will answer the question, "What is prostaglandin E1 and why is it important?"Special thanks to Scott Holmes Music for the song we're using during our Fun Fact Friday episode -- "Summer Fun" which you can find here: https://scottholmesmusic.com/Thanks to Pixabay for the image used with the podcast. Image by WikimediaImages from Pixabay Please visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
Each Thursday we will have author Amy M. Le joining us to chat about recipes from her cookbook Snow’s Kitchen. For those of you who don’t know, Amy is the author of a trilogy of books revolving around her Vietnamese mother’s journey to the United States after the fall of Saigon. The last book in the trilogy, Snow’s Kitchen is a novella and a cookbook! All of our recipes are from this cookbook.In this episode, Anna Jaworski and her husband Frank talk with the author of Snow's Kitchen about the recipe on page 175-177 of Snow’s Kitchen -- Boeuf Bourgignon.To make this recipe keto:Instead of using white flour, we used almond flour, and cauliflower rice instead of noodles, rice, mashed potatoes, baguettes, or polenta. The carb count for the original boeuf bourgignon would be about 40 grams of carbs per serving but with the modifications we made, the carb count was 17 grams of carbs.Don't miss our Tasty Thursday episode where we made Spring Rolls!or the Tasty Thursday episode where we made Yellow Curry Chicken!To purchase Amy's cookbook, "Snow's Kitchen" use this linkFor an autographed copy of the book, use this linkAmy's website: https://www.etsy.com/shop/HeartCommunitySpecial thanks to Christian H. Soetemann for his song "Asian Clothes" as found on Free Music Archive.  https://freemusicarchive.org/music/christian-h-soetemann/music-for-museumsHere is this artist’s website: http://www.cryptic-scenery.de/cryptic_scenery/cryptic_scenery.htmlPlease visit our Social Media and Podcast pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsiteAnna's Buzzsprout Affiliate Link (we both benefit if you sign up with Buzzsprout with my link - yay!) Support the show (https://www.patreon.com/HearttoHeart)
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