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Heart to Heart with Anna

Author: Anna Jaworski

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"Heart to Heart with Anna" is the only radio show devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise, and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.
320 Episodes
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What can a healthcare advocate learn by becoming a patient facing a life-and-death situation?Why might a patient advocate write a book about his life-changing heart event? How does someone who has worked in the field of healthcare for 37 years see the field of healthcare changing to better suit the needs of patients?Thomas Dahlborg is from Brockton, Massachusetts. He began his career in healthcare as a transport aid, IV aid, and housekeeper where he saw firsthand the impact of relationships and connections within a healthcare system on clinicians and staff, and patients, families, and communities. He also has the experience of being a patient, when he developed viral myocarditis and was told he would never work again and would need a transplant.Now with 37 years of experience in healthcare service and leadership, Tom is passionate about improving the healthcare system and making healthcare better – for employees to work, physicians to practice medicine, patients and families to receive care, and communities to thrive. Last year, he published his healthcare book “From Heart to Head and Back Again … a journey through the healthcare system.”Today Tom lives with his bride Darlene, and their papillon Gabriel in West Michigan; and together they enjoy visiting their three children -- Samantha, Tommy Jr., and Haylee, in New England as often as possible.In this episode, Tom shares with Anna how his experience in the medical field and his own health journey spurred him into becoming an author and what his research has led him to believe about healthcare in general. Tom and Anna also turn their attention to the current healthcare crisis thanks to Covid-19. What does Tom feel about bullying given the world’s healthcare crisis right now? What does Tom feel all people need to do in order to be better consumers of healthcare? Tune in for the answers to these questions and much more!Links mentioned in this episode:Tom Dahlborg’s book (From Heart to Head and Back Again) and website: https://www.health-caring.org/Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Support the show (https://www.patreon.com/HearttoHeart)
What is congenitally corrected transposition of the great arteries or ccTGA? Historically, people born with ccTGA tended to do fairly well. Why is it today doctors are choosing to operate on the hearts of babies born with ccTGA? What does Dr. Edward Bove think about the future of babies born with ccTGA?Erin Beckemeier is mom to Conway, born in 2007 with ccTGA, a large ventricular septal defect or VSD, and sub-pulmonic stenosis. He was later diagnosed with an Ebsteinoid tricuspid valve. At six months of age he had an arterial switch with a Senning (a double switch), VSD closure, and resection of the stenosis. Conway’s recovery from these procedures was rocky, as he suffered a seizure and complete heart block, requiring a dual-chambered pacemaker. By two years of age, he was struggling with atrial flutter, and underwent a mitral annuloplasty and ablation/Maze procedure. At five years, his RV-PA conduit was replaced and he was upgraded to a bi-ventricular or CRT pacing system. At 11 years old he needed a new atrial lead and generator replacement. The new atrial lead became infected and was removed the following month. At age 14 he received 2 new leads and his 4th pacemaker. Due to a significant growth spurt, his mitral valve, RV-PA homograft and left ventricular function are being closely monitored. Erin lives with her husband Greg and their five children. She is a fourth grade teacher and she is here today to share her story with Anna.Dr. Edward Bove is a cardiac surgeon at C.S. Mott Children’s Hospital and chair of the Department of Cardiac Surgery at University of Michigan Health System, is an internationally acclaimed, board-certified pediatric cardiac and thoracic surgeon and the chair of the Hearts Unite the Globe Medical Advisory Board! Earlier this year, Dr. Bove was awarded the 2021 Earl Bakken Scientific Achievement Award by The Society of Thoracic Surgeons during the organization’s virtual 57th Annual Meeting.My long-time Listeners will remember Dr. Edward Bove from Season 9. His show was entitled, “Advancements in Treatments for HLHS Heart Warriors” (https://tinyurl.com/357a7z4x). We are thrilled Dr. Bove is returning to the program to talk to us about a very complicated ccTGA patient of his. He will also be sharing with us a bit about the history of the double-switch procedure and who would most benefit from that invasive surgery, as well as, predictions for the future of ccTGA Heart Warriors in the years to come.Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/Support the show (https://www.patreon.com/HearttoHeart)
What happens when a Fontan patient needs a tune-up? What kinds of procedures might a Fontan patient need after living with a Fontan heart? What can we learn from an experienced Fontanner who might be facing multiple medical procedures?Leslie Castro is a 48-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. She is almost 2 years post-transplant. Prior to transplant, Leslie had a very complicated journey with her heart. In just one day, she underwent a Fontan revision, Cox-Maze procedure, and pacemaker implantation. She also experienced arrhythmias and tried a range of medications to control her symptoms. Ultimately, the Fontan revision was unsuccessful which led to her receiving a transplant from a Hepatitis C positive intravenous drug user.   Fortunately, today Leslie is doing well and she is here to talk to us about her journey to transplant. 
Links to Leslie’s other “Heart to Heart with Anna” appearances:Classic Fontan Survivor Post-Cardiac Transplant: https://www.buzzsprout.com/62761/7884964Hepatitis C and Cardiac Transplantation:  https://www.buzzsprout.com/62761/8500544An article by Dr. Barbara Deal, Dr. Constantine Mavroudis, and Dr. Carl Backer regarding their experience with Fontan revisions: https://academic.oup.com/ejcts/article/34/5/1034/379177?login=trueLinks to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
What happens when one daughter, in a set of twins, is diagnosed with a congenital heart defect and the other twin is heart-healthy? How can a family handle having one child in the hospital, separated from her twin? What should families tell their children about their medical history? What is the value of sharing family stories? 
Lisa and Michael Olivares are parents to identical twins Mabel and Maggie, born in 2013. The pregnancy was complicated by Twin-to-Twin transfusion syndrome and Mabel was smaller than Maggie. Two days after they were born, a nurse picked up a heart murmur in Mabel. She was diagnosed with coarctation of the aorta and had surgery at 9 days of age. 
Just after her first birthday Mabel was diagnosed with subaortic membrane, and had her second surgery shortly before 2 years of age, followed by a third emergency surgery at 4 years of age due to heart and lung symptoms. At the age of 4, she developed heart and kidney failure but has thankfully responded well to medical therapy. Mabel also attended physical therapy for musculoskeletal hypermobility but she has graduated from physical therapy! 
Mabel loves playing dress-up and being outside in the fresh air with her twin sister Maggie. She was nominated for Make-A-Wish and the family spent a week at Give Kids the World Village in Florida where Mabel met her favorite princess - Snow White - at Disney World.
Today the Olivares share with Anna what their medical journey with Mabel was like, some advice for other parents going through the same kind of medical journey, and why they feel sharing family medical stories is so important.
Links to organizations mentioned in this episode: Songs of Love: The Medicine of Music:  https://www.songsoflove.org/Make-A-Wish Foundation: https://wish.org/Give Kids the World Village: https://www.gktw.org/
Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817
Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
How can a mother, grandmother, and great-grandmother -- determine how to help families like her own? Why would a woman make it her mission to help others with an invisible illness? What can we learn from such a woman?Jackie Renfrow thought her family had a history of epilepsy. After losing her son Jimmy in 2000 and her daughter Crissy in 2002, she was desperate to find a way to save her two baby granddaughters. It wasn't until her own mother started fainting and having irregular heartbeats that she finally got answers. Emergency doctors performed an electrocardiogram (ECG) and promptly diagnosed her with Long Q-T syndrome. Jackie and her granddaughters Alexis and Jessica also had an ECG and they were diagnosed with the syndrome as well. Jackie has since started a chapter of the Sudden Cardiac Arrest Association in Indianapolis. She works with scientists, doctors, parents, and others to promote awareness of sudden cardiac arrest and access to defibrillation and treatment. In honor of her children and grandchildren, she works to spread awareness of Long Q-T syndrome in order to help other families prevent the loss of their loved ones. In this episode, Jackie talks with Anna about what she has learned in living with Long Q-T Syndrome and seeing it affect generations of her family.Link mentioned in this episode: Jackie's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/398945-seizing-the-day-with-jackie-renfrowJackie's appearances on "Heart to Heart with Michael"Losing Loved Ones to a Misdiagnosis: https://www.buzzsprout.com/123208/1101869Living with Loss after Loss: https://www.buzzsprout.com/123208/1133858SADS Foundation: www.sads.orgSudden Cardiac Arrest Association: https://suddencardiacarrest.org/Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/Support the show (https://www.patreon.com/HearttoHeart)
Heart Warrior Lisa Dang Colvil returns to "Heart to Heart with Anna" but this time she is joined by her mother and her daughter. Lisa was born with a complicated congenital heart defect and Anna talks to her mother, Kim, about her experience fleeing war-torn Vietnam, having a daughter in a country where she barely knew the language, and what it was like to discover her daughter had a heart defect. Anna also talks with Serenity and Lisa about being 1st and 2nd generation Americans, and how different life is here for them compared to the life their mother/grandmother lived.Link mentioned in this episode: Lisa's first appearance on "Heart to Heart with Anna" -- https://www.buzzsprout.com/62761/8083369Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Mike Edenburn was born in 1943 with Tetralogy of Fallot (ToF). Mike was the 44th patient to receive the Blalock Taussig shunt. On October 2, 1945, Dr. Alfred Blalock, Vivian Thomas, and Dr. Denton Cooley performed heart surgery on Mike. After the surgery, Mike turned from blue to pink and was able to breathe freely for the first time in his life. Mike enjoyed good health until an auto accident at the age of 20 left him with subacute bacterial endocarditis, where it was discovered that the shunt was no longer sufficient. Dr. Horace Stansel performed another TOF repair on Mike's 21st birthday in 1964. Mike is a computer specialist, entrepreneur, family man, devoted Catholic, and volunteer with friends from everywhere. He is involved with the Rotary Club's Gift of Life program, which provides life-saving care to children with heart problems. Today, Mike is 77 years old and very grateful to Our Lord and medical professionals responsible for his good health. Today Mike will talk with Anna about the legendary doctors who worked with him, the choices he made in life and what kind of quality of life he has had, and what advice he has for others who are currently living with congenital heart defects. In the last segment, Mike shares with Anna what it's meant to him to be part of the Rotary Club's Gift of Life Program and how he has witnessed it change the lives of its recipients.Links mentioned in the program:Mike's Rotary club website: http://rotarycebu.org/Mike's Rotary club Facebook page: https://www.facebook.com/rotarycebuGift of Life International website: https://www.giftoflifeinternational.org/Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)
Is it possible to meet one’s surgeon over 4 decades after open-heart surgery when you don’t even know if your surgeon was a man or a woman and you only know the last name? Who can help you when the hospital tells you that they don’t have your records anymore? What joy is to be had from connecting with someone who saved your life when you were a little girl?
Today’s show is A Surprise for Heart Warrior Amy M. Le! and our Guests are many! You will come to meet them over the course of our program.Some of you will remember Amy M. Le from just a couple of shows ago -- it was broadcast on April 13, 2021. For those of you who missed Amy M. Le's earlier show, Amy was born in Vietnam and immigrated with her family to the United States in 1980 due to the fall of Saigon. She had surgery for a congenital heart defect at the age of 5. Today, Amy lives in Oklahoma with her husband and son and is a full-time author.Links Mentioned During this Episode:

Payton's Nonprofit Organization: http://www.ourheartsjoined.org/

Amy M. Le's previous "Heart to Heart with Anna" episode: https://tinyurl.com/5yhnm4zs
Amy's website: https://www.amy-m-le.com
Amy's author page on Facebook: https://www.facebook.com/authoramymle/

The article about Susan Hall I mentioned:  
https://southsoundmag.com/south-sound-women-to-watch-2018/
Susan's TED talk: https://www.youtube.com/watch?v=2AWlehANPPo

Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817

Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:

Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2

MeWe: https://mewe.com/i/annajaworski
Facebook: https://www.facebook.com/HearttoHeartwithAnna/
Instagram: https://www.instagram.com/hearttoheartwithanna/
Twitter: https://twitter.com/AnnaJaworski
YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5Zw

Website: https://www.hug-podcastnetwork.com/
Why would a Heart Warrior choose to become a Nurse Practitioner? What does the liver and liver health mean to a Fontan Heart Warrior? What does the future hold for people with single ventricle hearts and compromised livers?Mary is a 29-year-old female with hypoplastic right heart syndrome, atrial septal defect, transposition of the great vessels, and coarctation of the aorta. At 9 days old, she had the Norwood, then at 3-6 months old, the Glenn, and Fontan around 2 years old. After the Fontan, she saw her pediatric cardiologist semiannually for routine checkups but overall felt like a “normal” child. At 15, she started having increased fatigue, which led to a pacemaker/defibrillator implantation. She was so inspired by the healthcare providers caring for her that she earned a nursing (BSN) and Nurse Practitioner degree (Doctor of Nursing Practice - DNP). She began working as a nurse practitioner in Gastroenterology and eventually hepatology. She is passionate about working with congenital heart disease patients with chronic liver disease. She has also become an advocate for CHD and started a website called notaperfectheart with her mom.Link Mentioned in this Episode:Mary's website: http://notaperfectheart.com/Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
What can encourage a Heart Warrior to start learning more about her heart condition? What kind of books has Margaret Ellis Raymond written and what’s the hold-up with the 4th and 5th books? Why would a Heart Warrior start a YouTube channel and what can we expect to see on that channel?Margaret Ellis Raymond is an author, editor, and YouTuber from Portland, Maine. She was born with tricuspid atresia and other heart defects for which she underwent three surgeries before the age of 3. Margaret's love of stories started early when her mother placed her in front of a tape recorder to tell stories. It was her way of occupying the talkative child while she got ready for her day. Her love of stories helped her to overcome reading difficulties, and by fifth grade, she began to tackle chapter books. As an adult, Margaret has written a series of three books for young children and started a YouTube channel about tricuspid atresia to educate herself and others. Her hobbies include fencing, photography, and laughing too much. One day she hopes to write a book where the protagonist has a CHD. She also hopes to self-publish an anthology of essays written by CHD patients, their friends, and family, as well as those in the CHD medical field.Links Mentioned in this Episode:Margaret's website: https://margaretellisraymo.wixsite.com/mellisrMargaret's Facebook Page: https://www.facebook.com/profile.php?id=100006756858119Margaret's 1st book on Amazon: https://www.amazon.com/Buttercup-Adventures-One-Glass-Frog/dp/0996584412Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Leslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intravenous drug user, and Leslie had to take a case study drug to avoid contracting the virus. Leslie had a very bumpy road to recovery with multiple complications involving her brain, heart, and lungs, and required procedures after the transplant to alleviate a brain bleed and drain fluid from her lungs. This is Leslie’s second appearance on the show. My loyal Listeners may remember Leslie’s other program, “Classic Fontan Survivor Post-Cardiac Transplant!” (https://www.buzzsprout.com/62761/7884964)In this episode, Leslie teaches us about how some heart transplant recipients are now receiving hearts from donors who tested positive for Hepatitis C and what that means for donors and recipients.Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Who is Eric Ankerud? Why would someone want to start a nonprofit organization to help the congenital heart defect community? What services does Heartfelt Dreams Foundation provide?Eric Ankerud’s wife, Lori, was born in 1958 with a serious heart defect called 'tetralogy of Fallot.' Lori was known as a “blue baby,” and she had a ventricular septal defect or “hole in her heart. Her first open-heart surgery was a Blalock-Taussig shunt at the age of 2. At 3, her ventricular septal defect was closed and her pulmonary artery was repaired, which allowed her to have more normal blood flow to the lungs. While Lori’s early childhood was fraught with heart procedures and doctor’s visits, it was also filled with the love of family and opportunities for her artistic abilities to blossom.Lori and Eric married in 1985. They have two adult children. Although Lori has needed follow-up care including major heart reconstructive surgery, she has led a great quality of life. She and her husband felt inspired to start a nonprofit organization to help others in the CHD community.In this episode of "Heart to Heart with Anna," Eric shares with Anna how his wife's congenital heart defect (CHD) journey has helped them to understand the needs of the CHD community and what their nonprofit is doing to help fill the needs they have witnessed over the course of their lives together. To learn more about Eric and Lori's nonprofit organization, use this link: https://www.heartfeltdreamsfoundation.org/Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
What is it like to be born in Vietnam in the 1970s with a heart defect? What efforts would a mother make to ensure her daughter has a chance for life? How does understanding one’s family history impact one’s future?Amy M. Le shares an amazing story with Anna about her mother's life-changing decision to flee war-torn Vietnam to save her daughter's life by going to the United States where her daughter could have surgery. In Vietnam, there was no hospital to take care of Amy's congenital heart defect, but in the United States, she could receive open-heart surgery and a chance for a future. Amy shares the story of what lengths her mother and cousin went to in order for them to escape and start a brand new life thanks to the kindness of strangers.Amy also shares information about the book she has written based on her mother's story. If you'd like to order a copy of the book, you can do so here: https://www.barnesandnoble.com/w/snow-in-vietnam-amy-m-le/1131712030?ean=9781948577977 or at our new Heart Community Collection cooperative bookstore: https://heartcollection.wixsite.com/bookstore/about-1-1Amy's website: https://www.amy-m-le.comAmy's author page on Facebook: https://www.facebook.com/authoramymle/The podcast where I discovered Amy: https://www.vietnameseboatpeople.org/podcast/episode/b9fe7048/22-snow-in-vietnamAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
It's official! We are celebrating 300 episodes of "Heart to Heart with Anna"! To help us with this celebration, Alexander Jaworski, Anna's son who was born with a critical congenital heart defect, is the Guest Host and Anna is in the hot seat answering questions about the podcast which you may not be aware of.How did the longest-running podcast devoted to the congenital heart defect community come to be? Who was instrumental in helping Anna get started? How did Anna choose her Guests? Who were Anna's favorite Guests? Who made trouble for Anna? What advice does Anna have for others in the CHD community who want to start a podcast? Tune in for answers to these questions and so much more!Link mentioned in this podcast:VoiceAmerica: https://www.voiceamerica.com/BlogTalkRadio: https://www.blogtalkradio.com/Hearts Unite the Globe: https://www.heartsunitetheglobe.orgChildren's Heart Foundation: https://www.childrensheartfoundation.org/The Heart Community Collective Bookstore website: https://heartcollection.wixsite.com/bookstoreThe SlugTribe (Alex's writer's group): http://www.slugtribe.org/Audacity (the editing software Anna uses): https://www.audacityteam.org/download/Half Heart Whole Life: An HLHS Dad's blog (Chris Perez): https://hlhsdad.com/WEGO Health Awards: https://www.wegohealth.com/awardsMended Little Hearts: https://mendedhearts.org/topic/mended-little-hearts-updates/Unbeatable (Margaret Ellis Raymond's show): https://www.youtube.com/channel/UCgBq478iAeZMvm0KQtkI9GAMoms of Heart Podcast (Nicole Groenewald's podcast): https://podcasts.apple.com/us/podcast/moms-of-heart-podcast/id1473078810Not a Perfect Heart (Mary Rouzer's podcast): https://podcasts.apple.com/us/podcast/not-a-perfect-heart-podcast-discussions-for-the-heart/id1556174815Heart to Heart with Nicole and David: https://www.hug-podcastnetwork.com/h2h-with-david-and-nicole.htmlGuerreros Del Corazon: https://www.hug-podcastnetwork.com/guerreros-del-corazoacuten.htmlBereaved But Still Me (formerly Heart to Heart with Michael): https://www.hug-podcastnetwork.com/bereaved-but-still-me.htmlFundacion Estrellita de Belen: https://FundacionEstrellitadeBelen.orgAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
What lessons can we learn from our adult Heart Warriors?Why might a Heart Mom write a book about her life experiences dealing with CHD? How does a Heart Mom take her personal experiences to fight for others in the hospital?Jenny Muscatell is a licensed social worker, blogger, author, photographer, and podcaster. She earned her Bachelor’s in Mental Health and Human Services through the University of Maine. She has over two decades of experience in the social services field, specializing in crisis intervention, health systems, and end-of-life care. Deeply passionate about her work, Jenny is regarded as a fierce advocate, earning her the Child Welfare Rising to the Challenge Award. Jenny lives with her husband Dan, and two daughters. Her first daughter Faith was born with Hypoplastic Left Heart Syndrome. Jenny shared her life experiences, authoring the Amazon Best Selling book, “The Journey of Faith and an Open Heart” and as a public speaker on multiple platforms. Through faith-filled presentations, heartfelt written words, and photography, Jenny’s mission is to give voice to the vulnerable, hope to the hurting, and to make way for the unspoken to be told.Link mentioned in this podcast:Jenny's website: https://www.jennymuscatell.com/about-meAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
Why would the Queen of England bestow an Order of the British Empire honor upon a doctor for his services to medicine and charity - especially when the charity does not serve the children of Great Britain? How many children around the globe have been saved by this nonprofit? What is this nonprofit organization doing to save children born with the number one birth defect - congenital heart defects?Dr. Sanjiv Nichani is a Consultant Pediatrician and the current Director of the Children’s Intensive Care Unit for University Hospitals of Leicester, UK. For over 30 years, Dr. Nichani has specialized in looking after critically ill babies, children, and teenagers following open-heart surgery. In 2009 he founded the charity Healing Little Hearts. Their goal is to ensure that every child has access to the heart surgery they need and deserve. They send volunteer teams to treat the poorest of children who come from families that do not have the resources to pay for their healthcare. The charity also builds the capacity of surgeons in these countries to help ensure ongoing care. Since 2009, Healing Little Hearts has undertaken 151 international missions to 12 countries and operated on over 2000 children. Dr. Nichani is joining us today to talk about the huge unmet need of CHD and capacity building in the developing world. Links mentioned in this podcast:Healing Little Hearts website: https://healinglittlehearts.org/Healing Little Hearts Facebook Page: https://www.facebook.com/HLHcharity/Novick Cardiac Alliance: https://cardiac-alliance.org/Global ARCH: https://global-arch.org/Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
How might a Heart Warrior use her adversity to become a poet? What might bring a woman to accept Jesus Christ into her life and thus change her future forever? What can we learn from this gentle spirit who has come close to death herself and lived to bring hope to others?Today’s show is Lisa Colvil: Heart Warrior Author and Poet and our Guest is Lisa Dang Colvil. We’ll start today’s program by learning a bit about Lisa, then we’ll actually hear Lisa reading her poetry and at the end of the program, we’ll talk to Lisa about the book she had published in 2019.Lisa Dang Colvil was born in Pennsylvania in 1979. A CHD warrior, she was born with double outlet right ventricle (DORV), severe subpulmonic stenosis, and patent ductus arteriosus (PDA). She had her first surgery at 3 months of age in her home state, and second surgery at 6 years of age at Children's Hospital of Philadelphia, which was complicated by bilateral chylothorax. As a child, she felt different from others and did not fully understand her congenital heart defect and what it meant for her life. Lisa spent much of her childhood writing poems and short stories and has honed her passion over many years. Now in her 40s, Lisa has recently published her first book, a 50-day devotional called Through the Beauty of Grace I Will. Lisa is also a devoted Christian wife and mother of two children aged 8 and 10.
How can a couple survive the loss of their precious son? What can be done when an entire country seems to be neglecting the needs of its most vulnerable residents? How can people make a difference in their community?Today's Guest, Jyoti Sagar, answers those questions and so much more!Jyoti Sagar and his wife Prema lost their son Sameer, who was born on December 20, 1983, to a congenital heart defect over 30 years ago. Devastated by the loss of their son, after some time they began working at Missionaries of Charity. It gave them a whole new meaning to life, and this is how their journey started as they felt they could reach out and assist in the best way possible - enriching the lives of others and their own. Since then, they have dedicated their lives and professions to saving the lives of critically ill children in India through their non-government organization (NGO) – Genesis Foundation. The main aim of the Foundation is to offer support to children with CHD from families where the monthly income does not exceed $198. They strongly believe that every life should be given a chance and that no child should die due to poverty.Links mentioned in this podcast:Genesis Foundation: https://www.genesis-foundation.net/Kasauli Rhythm and Blues Festival (Genesis Foundation): https://www.genesis-foundation.net/KasauliEvents.aspxMissionaries of Charity: https://www.motherteresa.org/missionaries-of-charity.htmlAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
In this touching episode of "Heart to Heart with Anna," grandmother Beverly Foster shares with Anna her heart journey with her grandson, Heart Warrior Dhillon. From diagnosis through today, Dhillon's spirit remains steadfast and everyone knows exactly what he would want them to do. Thus, Beverly and her family felt the need to create a special legacy in Dhillon's name. The result? Dhillon's Gift.Links mentioned in the program:UNC's webpage about Dhillon's Gift: https://nursing.unc.edu/giving/dhillons-gift/Dhillon's Heart Journey: https://www.facebook.com/dhillonsheartjourneyCHOP Pediatric Cardiology Center: https://tinyurl.com/oy22sjr7CHOP Single Ventricle Program: https://tinyurl.com/rymfn7ylVictory Junction Summer Camp: https://tinyurl.com/1gr5gr5vThe Gift of Life House: https://www.giftoflifefamilyhouse.org/To contact Beverly, use Bev_Foster@unc.eduAnother "Heart to Heart with Anna" episode dealing with transplantation and protein-losing enteropathy: https://youtu.be/lQeWrbT3UdEAnna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2MeWe: https://mewe.com/i/annajaworskiFacebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/Twitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hearttoheartwithanna/ Website: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
How can a child with a complex congenital heart defect survive multiple surgeries resulting in a funky anatomy and then have a successful heart transplant experience? What was it like to be a child with a congenital heart defect in the 1970s when open-heart surgery for children was something new? Why would a Heart Warrior experience Survivor's Guilt?Leslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and multiple other heart defects, and had the Classic Fontan at the age of 12 in 1985. Just over a year ago, she received a heart transplant. Her donor was a 29-year-old woman who was a Hepatitis C positive intravenous drug user, and Leslie had to take a case study drug to avoid contracting the virus. Leslie had a very bumpy road to recovery with multiple complications involving her brain, heart, and lungs, and required procedures after the transplant to alleviate a brain bleed and drain fluid from her lungs. Fortunately, today Leslie is doing well and she is here to talk to us about her early life growing up with a heart defect, and how she feels as a survivor today. Links That May Interest You:The obituary of Leslie's beloved surgeon: https://www.post-gazette.com/news/obituaries/2020/01/23/Obituary-Ralph-Siewers-Longtime-pediatric-heart-surgeon-at-Children-s/stories/202001230175The hospital where Leslie had her surgeries: https://www.chp.edu/Anna's Buzzsprout Affiliate Link (if you'd like to try Buzzsprout for your podcast and get a bonus gift card -- and Anna will, too!) use this link: https://www.buzzsprout.com/?referrer_id=16817Links to 'Heart to Heart with Anna' Social Media and Podcast Pages:Apple Podcasts: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/Instagram: https://www.instagram.com/hearttoheartwithanna/MeWe: https://mewe.com/i/annajaworskiTwitter: https://twitter.com/AnnaJaworskiYouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwWebsite: https://www.hug-podcastnetwork.com/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeart
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