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Spotlight on Care

Author: UCI MIND

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Welcome to Spotlight on Care, the podcast where we share stories, experiences, tips and advice on caring for loved ones affected by Alzheimer’s and other dementias. Spotlight on Care is produced by the University of California, Irvine Institute for Memory Impairments and Neurological Disorders, UCI MIND. Please subscribe to the Spotlight on Care podcast wherever you listen. For more information, visit mind.uci.edu. What would like to hear about next? Email us at mwitbrac@uci.edu.
15 Episodes
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Virginia and Steve discuss the legal concerns that arise after a dementia diagnosis with Orange County probate attorney, Stephen Magro, JD, who has 30 years of experience in elder law.  Mr. Magro outlines the legal steps needed to help protect loved ones with dementia including setting up a will and trust and establishing an advanced health care directive.  For more information about Stephen Magro’s law firm, visit www.smagrolaw.com. What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, the co-hosts sit down with Cleo Dougherty to discuss the importance of finding the right support group for patients and their caregivers.  Cleo shares her story caring for her husband, Tom who was diagnosed with Alzheimer's disease in 2006 and recalling her experience as both a member and a leader of a support group. For more information about support groups at the Alzheimer’s Association, visit: https://www.alz.org/ or the Savvy Caregiver Program through Alzheimer’s Orange County, visit: https://www.alzoc.org/events/savvy-caregiver/. What would like to hear about next? Email us at mwitbrac@uci.edu. 
In this episode, co-hosts Steve and Virginia have a conversation with Keith Swayne about the importance of communicating with family throughout the Alzheimer's journey.     Keith elaborates on his own process for sharing with his children and extended family about his wife, Judy's journey from diagnosis to her passing  in 2014.  What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, Steve and Virginia chat with Joe Gonzalez about tips for finding the right care facility for someone living with dementia.  Joe shares his experience caring for his wife, Barbara as he navigated the transition from caregiving at home to a memory care facility.
Roger Riley, author of the book, Lifelines: A Care Partner's Survival Guide, joins Steve and Virginia for a discussion about letting go of the past and making new memories with your loved one.  Roger gives the listeners a few tips for using hobbies and games from your past to engage your loved-one and improve everyone's quality of life.  What would like to hear about next? Email us at mwitbrac@uci.edu.
Guest Pam Ostrowski joins Steve and Virginia for a conversation about compassionate communication.  She recalls her own experience caring for her mom with Alzheimer's and relays some of the experiences that she has had with her clients as she helps them navigate dementia caregiving.   Pam emphasizes the importance of  prioritizing being happy over being right when communicating with loved ones living with dementia.  To learn more about what Pam does, visit her website at www.itsnotthatsimple.com. What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, Steve and Virginia interview retired HR executive Mark Wilson, who cared for his mother with Alzheimer's disease, about in-home caregiving. He gives the listeners his expert tips on finding the right caregiving team  to support in-home care.  What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, Virginia and Steve are joined  by husband and wife team, Don Wendorf and Lynda Everman who discuss their journeys as caregivers for their loved-ones with dementia.  They introduce the concept of Person-Centered Care  and help us understand how empathy is critical to dementia care.  What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, co-hosts Steve and Virginia interview Denny Barker about his caregiving journey with his wife, Kay.  He recalls an incident at his wife's memory care facility and the consequences that followed.  Steve and Virginia reflect on their own experiences of dealing with their loved ones' dementia induced personality changes.  What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, Steve  and Virginia  interview Kim Bailey, MS, Gerontology who is the Education and Programs Specialist at Alzheimer's Orange County.  She provides tips for getting the most out of doctor visits for loved ones with dementia.  Kim also discusses her person-centered approach to medication management.   For more information about the resources at Alzheimer's Orange County, visit: www.alzoc.org or call the help line at 844-373-4400. What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, Steve O'Leary and Virginia Naeve interview Chelsea Cox, Associate Director of Education at UCI MIND, whose father was diagnosed with early-onset Alzheimer's disease when she was in high school. Chelsea shares an honest account of her family's journey through diagnosis, assisted living placement, end-of-life, and coping with loss. What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, co-hosts Steve O'Leary and Virginia Naeve address the topic of anger, a common emotion experienced by many Alzheimer's disease caregivers.  Their guest, Roger Lisabeth shares some tips for developing patience from his own experience  in caring for his wife, Lucy.  What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, co-hosts Steve O'Leary and Virginia Naeve discuss their experience getting an initial diagnosis of Alzheimer's disease for their loved ones. Guest Lisa Up de Graff shares personal challenges and successes in navigating diagnosis and care for her mother, who was diagnosed with Alzheimer's disease five years ago. What would like to hear about next? Email us at mwitbrac@uci.edu.
In this episode, co-hosts Steve O'Leary and Virginia Naeve share some early signs and symptoms they observed in their family members with Alzheimer's disease. Guest Bill Edwards discusses his personal experience with early-onset Alzheimer's disease in his wife, Nancy. What would like to hear about next? Email us at mwitbrac@uci.edu.
Meet the Co-Hosts

Meet the Co-Hosts

2021-01-1219:11

Co-Hosts Steve O’Leary and Virginia Naeve share their personal caregiving journeys, provide an overview of the series, and offer some initial caregiving tips. What would like to hear about next? Email us at mwitbrac@uci.edu.
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