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We discuss the autoimmune disease Lupus, with Paul Howard, the CEO of Lupus UK. And Rachel Hall, who has lived experience of Lupus. Paul talks us through what the disease is and the symptoms to look out for and Rachel shares how Lupus has affected her, and the health journey she has been on. The conversation is packed with ways to support your career and where to turn to for support.Rachel has created an online group to offer support to other people with Lupus.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support and resourcesLupus UK Lupus UK Twitter Lupus UK Facebook Lupus UK Instagram Lupus UK Employment Guidance  Lupus_gurl:Rachel’s blog   Rachel’s Twitter  Rachel’s Instagram Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.com
“Functional neurological disorder is a really common neurological condition. It happens because of a problem with brain signalling. So, it's involving brain networks rather than specific anatomical damage and it can affect any part of the nervous system.”Dr Chris Symeon, is a consultant neuropsychiatrist at St George’s University Hospital NHS Foundation Trust and the clinical lead for the FND rehabilitation programme. Dawn Golder, is a National Advocate of FND Hope UK and has lived experience with FND.In this conversation we get answers to the questions raised by Sunflower wearers about FND. Advice about diagnosis and access to treatment pathways.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support and resourcesFND Hope UKFND Hope USWorkplace Adjustments WebinarmyFND AppFND Hope UK online movement and wellbeing classesNewsletterHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower
“But you can end up in a coma if your sugar levels are too high because your body just can't function with so much sugar.”We are joined by Sunflower Friend - Emma Cathro. Emma has recently graduated with a First Class Honours in German and Sociology at the University of Aberdeen and is now a research associate. Emma has type 1 diabetes and shares her story of living life with the condition. We cover the main symptoms and what to look out for prior to getting a diagnosis. Emma explains her daily routine of how she ensures that she maintains safe levels of insulin and the technology she uses to do that.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportJuvenile Diabetes Research Foundation, JDRFDiabetes UKResources/technologyFreeStyle Libre glucose sensor Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower  
Dr Andrew Whittamore of Asthma and Lung UK and Felicity Payne join us to talk about Chronic obstructive pulmonary disease, COPD which is the name for a group of lung conditions that cause breathing difficulties. Felicity has emphysema which comes under the umbrella of COPD, and explains how she has grown used to the condition, after initially finding herself feeling isolated with many unanswered questions. Felicity shares the activities she does to keep her lungs as strong and healthy as she can.Dr Andrew Whittamore provides us with a wealth of knowledge about the condition and the different pathways to support.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportAsthma and Lung UK COPD SupportBreathe Easy Support GroupsAsthma and Lung UK Helpline 0300 222 5800. Lines open 9am-5pm, Monday to Friday.Asthma and Lung Email helpline@asthmaandlung.org.uk Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com 
Dyslexia and Dyspraxia with Dayna HalliwellDayna is a digital content creator and actor and uses her lived experience of dyslexia and dyspraxia to raise awareness on her platforms of her learning difficulties. We talk through Dayna’s education experiences in primary school and university and the support that exists, but, also the needless and endless barriers to support from the Disabled Student Allowance, DSA.There are some great tips from Dayna on how to ‘take up space’ and not be apologetic for who you are. We talk about assistive technology including Natural Reader and Grammarly. We touch on language and the Equalities Act too as well as Reading Train Station for being accessible and Sunflower-friendly! If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportBritish Dyslexia AssociationResourceGrammarlyDyslexicdayna My Mind is a Series of Unfinished Doodles PlannerNatural Reader     Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower
“…there are some people who are super comfortable stammering who won't looking for therapy or to change anything about their relationship with their stammering and the way that they talk. For those people who are looking to change that there's a range of support and therapy options, and speech and language therapy is one of those options.”Kirsten joins us on The Sunflower Conversations podcast to share with us her knowledge. Kirsten is the Programme Lead for Adults at STAMMA and is also a speech and language therapist with lived experience of stammering.The disruption to speech isn’t a sign of intelligence, the person knows exactly what they want to say.  We discuss some of the misconceptions and stigma associated with the neurological condition and ways in which society can support people who stutter by allowing space for communication.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For supportSTAMMA  Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower
Pam joins us to give an insight to stuttering and the theme for International Stuttering Awareness Day which is Be Seen, Be Heard. The stereotypes associated with stuttering can often mean that a person that stutters is excluded, these barriers can affect self-worth.Be Seen, Be Heard seeks to challenge those stereotypes and encourage patience and acceptance to allow everyone to be their whole self. Pam explains that the neurodiverse condition isn’t a sign of intelligence but a disruption to how a person communicates, they know what they want to say but can experience a block or repetition.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportNational Stuttering Association, We Stutter Hosted by Chantal Boyle and Paul White, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower
Steph Weatherley is the Information and Support advisor at The Migraine Trust, and has lived experience of migraines. We are also joined by Katy Brown. Katy is the CEO of her own company Magic Mountain and lives with chronic migraines.In this conversation we clear up the common myth about migraines not being simply headaches, it is a neurological condition. Katy shares with us how her daily migraines impact her life and the how she has set healthy boundaries to ensure that she is able to live her life to her full potential. Both Steph and Katy discuss the many treatments available both medical and holistic and the support that Migraine Trust provides to people living with the condition.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportThe Migraine TrustMigraine in the workplace Toolkit Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower
British Dyslexia Association with Helen GoodsallHelen is the Knowledge & Information Manager at the British Dyslexia Association, an experienced workplace assessor and a parent of dyslexic children. She joins us to discuss the theme for Dyslexia Awareness week ‘Breaking through barriers’ which looks at how those living with dyslexia can overcome obstacles in their lives, this could be during education, work or general day-to-day living.1 in 10 of the population has dyslexia, a processing disorder, but with the right support and reasonable adjustments barriers to education and employment can be removed. The campaign seeks to reframe the language and stigma attached to the condition, which simply put is a different way of learning.In the conversation Helen shares with us ways society can ensure that no one is left behind due to their learning differences.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportBritish Dyslexia Association    Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Hidden Disabilities Sunflower
FASD with Jacob Casson-RennieJacob is 16 years old and lives with his parents in Ireland, who head up FASD Ireland and Hidden Disabilities Sunflower Ireland. Jacob talks to us about living with Foetal Alcohol Spectrum Disorder, FASD.  For Jacob auditory processing and memory is an issue and he explains how important it is that his peers and school are educated on the condition so that his additional needs can be understood and met. At school he has learning support staff who are crucial to his educational needs. And at his rugby club his coach has adapted his methods so that Jacob is better able to cope with the fast-paced game and make a real contribution to team.As well as supporting his parents with their vital work in raising awareness of FASD and invisible disabilities, Jacob also expresses how he uses his determination as a positive force and talks about his aspirations.When planning to have a baby, both parents should stop drinking to avoid any chance of the baby having FASD.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportFASD IrelandNational FASD UK FASD Hub Scotland Dr Raja Mukherjee Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Visit Hidden Disabilities Sunflower UK or Hidden Disabilities Sunflower Ireland
Jen Hankin is a musician who composes, teaches and performs. Her creative skills extend to fine arts (digital and watercolour), photography, videography, fashion design and writing. Jen is also autistic and has ADHD.Jen has created a new piece of music called 'The End of Torpor' which is about coming out of a period of burn out which relates to her neurodiversity.This conversation focuses on Jen's education and how she uses her experiences to teach music to young neurodiverse students.To follow Emerald Ruby and find out more use the links below:The Emerald Ruby Tiktok Emerald Ruby Bandcamp Emerald Ruby Spotify YoutubeFacebookEmerald Ruby InstagramThe End of Torpor for Flute and Cello Live VideoHosted by Chantal Boyle and Sandee Facy Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower UK or Hidden Disabilities Sunflower Australia 
Izzie is a journalist and is using her lived experience as a young woman with cystic fibrosis to combat ableism through her writing. In this conversation we discuss how her chronic health condition, cystic fibrosis affects her daily life and how she manages her healthcare routine with work.Then we move on to what ableism is,  the subtleties of it as well as the directness and where it can occur, such as on public transport and in the workplace.  Izzie shares with us her ideas around how to eradicate it from society.For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner. Cystic Fibrosis TrustHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com Visit Hidden Disabilities Sunflower 
Chloe Francis has a range of health conditions including Obsessive Compulsive Disorder and Tourettes syndrome/Tic disorder, Sensory processing disorder, Vestibular processing disorder and Hypermobility, Anxiety disorder and Sleep disorder.In this conversation we discuss what OCD really is and what it feels like to have compulsions, we also discuss panic attacks and the affect that they have on a person. Chloe talks us through her early education and the support that she received from her classmates, through to her current job at the BBC.Chloe has some great advice on how to support a friend, family, or colleague who is experiencing challenges with their mental health.For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.OCD UKOCD ActionHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower
Gemma had a missed early diagnosis of bowel cancer because the doctor believed her to be too young to have cancer at the age of 30.  In the past 8 years she has undergone many operations and treatments and is now stage 4 NED. Gemma is very open about the procedures she has had and wants to use her platform to raise awareness of bowel cancer in young people and also provide a support network to people who are living with cancer.  In this conversation we cover how important it is to fight for yourself when you believe that something isn't right with your body. Also discussed are the affects of surgery and chemotherapy, and the symptoms of bowel cancer to look out for - it is very important to seek a diagnosis as early as you can.  This was recorded 2 weeks prior to Deborah James, BowelBabe, sadly passing away. For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.Bladder & BowelBowel Cancer UKHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower 
Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein“With my Tourette's, sometimes my verbal tics can be stuff like swearing, or I might say something that's offensive, but obviously I can't help it. So when I wear the badge outside, it makes me comfortable knowing that... It just shows everyone that I can't help it.”Khovan and his mum Shireen join us to celebrate Khovan’s achievement in being awarded with The Rotary Young Citizen Sporting Hero Award. Khovan is autistic, has Tourette Syndrome as well as ADHD.As a child he struggled with communication and social interaction, but since joining a Brazilian Jui Jitsu club it has been the key to his communication skills and participation, providing him with a sense of community, development and growth.Khovan explains how the martial art answers his sensory needs and how he is committed to raising money for charities, and supporting other young people and their parents through his Tik Tok account @KhovanH where he posts videos and answers questions. For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.Tourettes ActionKhovan’s TikTok  @KhovanH Khovan’s Instagram @KhovanhnKhovan and his sisters Just Giving page for Tourette’s Action - Move for Tourette’s (ends 15th June)  Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower 
Registered blind with Claire SiskClaire had two strokes aged 29 after which she developed retinal dystrophy and is now registered blind. Following her strokes Claire has had to learn how to navigate in a sighted world and uses her Instagram account CanSeeCantSee to raise awareness of what daily life is like with sight loss and offer support and advice. Her work has recently been acknowledged with Best Social Media Impact  of the Year award from RNIB as well as appearing on TV show Steph’s Packed Lunch .Claire explains what it was like to slowly lose her sight and what adjustments she has made at home to continue to run the house and do all the chores she previously did. We also discuss accessible make up as well as the perceived barriers to employment.For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.RNIBClaire's Instagram account CanSeeCantSeeHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower
Tourette Syndrome and Autism with Martin MoxnessMartin Moxness lives in Denmark and has many talents including being a successful Instagram a_different_spectrum and Tik Tok a_different_spectrum influencer, along with being creatively gifted in music and photography. Martin is autistic and uses his platform to raise awareness of his health conditions which include Tourette syndrome and ADHD.Martin explains that he has mental tics, intrusive throughs, OCD, as well as a range of verbal tics and how they form in his mind.During the conversation we discuss how the publics perceptions and prejudices have a damaging consequence, leading to supressing tics which causes exhaustion both physically and mentally. What we take from this podcast is the importance to normalise Tourette Syndrome, including tics and stimming, to foster acceptance and understanding. For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.Tourette Action Tourette support around the world Martin's Instagram a_different_spectrumMartin's Tik Tok a_different_spectrumHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower 
Steven Mifsud MBE, is profoundly deaf and joined us on the Sunflower Conversations to talk about his cochlear implant, which is a small, complex electronic device that helps provide a sense of sound which enables him to hear.Steven explains what the difference is like between a world of silence and non-stop sound. Since his first hearing aid aged 2 technological advances have come a long way, and the sounds that he is now able to hear are vastly improved. We talk about the social and medical model of disability and how they differ, and how they impact the deaf community. Steven’s decision to have cochlear implant impacted on some of his friendships because for many deaf people the medical model of disability is wrong.For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.British Deaf Association (BDA) Royal National Institute for Deaf People (RNID)  Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower
“And I saw that British Airways most recently became involved in the Sunflower program. And that to me makes a lot of sense”Shannon is an aviation specialist and joins us from Brisbane Australia to share his expertise and insights along with helpful tips for people with disabilities who wish to travel.Sitting on the Queensland Accessible Transport Advisory Council Shannon has a wealth of knowledge and we discuss problem solving, design and how in his opinion the Sunflower is the essential travel companion. Hosted by Chantal Boyle and Sandee Facy, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower  
Foetal Alcohol Spectrum Disorder, FASD with Tristan Casson-Rennie and Jan GriffinTristan is the founder of FASD Ireland, a not-for-profit charity that aims to raise awareness and provide support to families in Ireland living with FASD.  And Jan is birth mum to Rossi who was born with FASD.They are both passionate about raising awareness of the dangers of drinking alcohol during pregnancy and removing the stigma associated with FASD in order that the families can seek the correct support. Jan didn’t realise that she was pregnant for 4 months, during which she consumed alcohol. It is important to point out that Jan doesn’t have an alcohol addiction and that once aware of the pregnancy she stopped, however there was never any guidance from her doctor to tell her do so.Tristan also has lived experience with his adopted son who has FASD and is campaigning in Ireland for the condition to be recognised as a disability to support the hundreds of babies born every year to parents who unwittingly don’t realise the harm that alcohol can have on a foetuses brain’s neurological pathways.This conversation is full of tips for parents, families and carers to use.When planning to have a baby, you and your partner should stop drinking to avoid any chance of the baby having FASD.For supportFASD IrelandNational FASD UK FASD Hub Scotland Dr Raja Mukherjee Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower  
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