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Ep23: Social Media

Ep23: Social Media

2022-11-3051:24

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)SMA UK host Ross Lannon chats to guests Sandie Roberts and Maxwell Mcknight about social media. Exploring the pros and cons and looking at how it can offer a great job opportunity for people and even lead to a career!*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️You can contact SMA UK on the following social media platforms ⬇️⬇️▶ | INSTAGRAM:  https://www.instagram.com/sma_uk▶ | TWITTER:  https://twitter.com/SMA_UK_▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/If you do have any questions for Ross, Sandie, Maxwell and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk*Living With SMA - 'Social Media' disclaimer:*The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
22 - The Right Mindset

22 - The Right Mindset

2022-11-1152:07

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE) *TRIGGER WARNING*The conversations that take place today are of a sensitive nature regarding mental health, disability and mindset.  THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMAThis content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️SMA UK host Ross Lannon chats to guests Anna Litvinova and Luis Canto E Castro about 'The Right Mindset'.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Anna, Luis and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukSMA UK Support & Outreach Service:https://smauk.org.uk/the-outreach-serviceMind: https://www.mind.org.uk/information-support/Samaritans:https://www.samaritans.org/how-we-can-help/contact-samaritan/talk-us-phone/Living With SMA - 'The Right Mindset' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 2️⃣  of Episode 21 of the #LivingWithSMA Podcast we'll be looking at the pros and cons of university. We'll also be talking about work experience and sharing advice for those who decide not to go to university. #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophyWatch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Mia, Steven and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA-'Higher Education, University & the transition into employment' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 1️⃣ of Episode 21 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon talks to Mia Myers and Steven Jones about the university experience. They also look at whether having a disability makes you look at things differently when exploring higher education and they talk about accessibility and fighting for justice.Watch this episode on our YouTube channel here.Ross, Mia and Steven all come from different angles.  Mia is currently at University, Steven has graduated from University and in employment and Ross did not go to university, but is doing also in employment and doing a career he loves.The aim of today's podcast is to share the experiences of Ross, Mia and Steven and to show that regardless of your disability, interests and education, you can still get to where we want to be! #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophyEach of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Mia, Steven and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA-'Higher Education, University & the transition into employment' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 3 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about the barriers they faced during their secondary school experience. We also talk about whether school days really are the best days of our lives and the assumption that people with physical disabilities also have learning difficulties. #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophyWatch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Sam, Alex and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'Disability & Education' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 2 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about the barriers they faced during their secondary school experience. We also talk about whether school days really are the best days of our lives and the assumption that people with physical disabilities also have learning difficulties. #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophyWatch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Sam, Alex and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'Disability & Education' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 1 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about having a disability and being in the education system.  We discuss how difficult it was for Sam and Alex to find an accessible school close to home and we also talk about social media and how it has developed over time. #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy Watch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Sam, Alex and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'Disability & Education' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.PART 4 provides a fitting finale to a Episode 19 of the #LivingWithSMA Podcast.  SMA UK Host Luis Canto E Castro chats to 11 year old Sonny and his mum Grace about what life is like with SMA.  As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.   Watch this episode on our YouTube channel here.#LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA #SpinalMuscularAtrophy  Each of our guests today shares their own personal views and individual stories. You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Luis, Sonny, Grace and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'SMA Life Through the Ages' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 3 of Episode 19 of the #LivingWithSMA Podcast, SMA UK Host Luis Canto E Castro chats to 18 year old Maxwell Mcknight about what life is like with SMA.  As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.    Watch this episode on our YouTube channel here.#LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA #SpinalMuscularAtrophy Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Luis, Maxwell and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'SMA Life Through the Ages' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 2 of Episode 19 of the #LivingWithSMA Podcast, SMA UK Host Luis Canto E Castro chats to 56 year old Joan Turner about what life is like with SMA.  As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.   Watch this episode on our YouTube channel here.#LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA #SpinalMuscularAtrophy Each of our guests today shares their own personal views and individual stories. You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Luis, Joan and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'SMA Life Through the Ages' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.In PART 1 of Episode 19 of the #LivingWithSMA Podcast, SMA UK Host Luis Canto E Castro chats to 23 year old Becca Torricelli about what life is like with SMA.  As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience in this episode.   Watch this episode on our YouTube channel here.#LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA #SpinalMuscularAtrophy Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Luis, Becca and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'SMA Life Through the Ages' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast. In our final part of episode 18, Ross Lannon, Luis Canto E Castro, Connor Thompson and Lauren Townsend talk about:The rewards and benefits of being a PAThe media representation of PA’s and Care in General‘The Fundamentals of Caring’ film starring Paul Rudd, Craig Roberts and Selena Gomez What would you say to someone potentially thinking about becoming a carer?Watch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for  Ross, Luis, Connor, Lauren and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'You've Got a Friend in Me' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.  Today in part 2 of this episode, Ross Lannon, Luis Canto E Castro, Connor Thompson and Lauren Townsend talk about setting boundaries with your PA, the relationship process, the skills needed to become a PA and the importance of empathy and compassion. Watch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for  Ross, Luis, Connor, Lauren and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'You've Got a Friend in Me' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.  In this latest 3 part episode, Ross Lannon, Luis Canto E Castro, Connor Thompson and Lauren Townsend have a very intimate conversation, talking about the positive side of care and the benefits that both the carer and the disabled individual can get from this relationship. Watch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories.You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukIf you do have any questions for Ross, Luis, Connor, Lauren and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'You've Got a Friend in Me' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.  In the final part of this 'About Toilets' episode, Luis Canto E Castro, Ross Hovey and Jasmine West discuss shared space bathrooms, queue jumping and ignorance and feeling like a burden.Watch this episode on our YouTube channel here.Each of our guests today shares their own personal views and individual stories on accessible toilets.You can contact SMA UK on the following social media platforms ⬇️⬇️Twitter:         twitter.com/SMA_UK_Facebook:    facebook.com/SpinalMuscularAtrophyUK/ Instagram:    instagram.com/sma_ukIf you do have any questions for Luis, Jasmine, Ross and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukLiving With SMA - 'About Toilets' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.  In part 2 of this 3 part episode 'About Toilets' episode, Luis Canto E Castro, Ross Hovey and Jasmine West  discuss gender neutral bathrooms, policy standards and lack of awareness.Watch this episode on our YouTube channel here.Each of our guests today shares their own  personal views and individual stories on accessible toilets.You can contact SMA UK on the following social media platforms ⬇️⬇️Twitter:         twitter.com/SMA_UK_Facebook:    facebook.com/SpinalMuscularAtrophyUK/ Instagram:    instagram.com/sma_ukIf you do have any questions for  Luis, Jasmine, Ross and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.ukAdditional Links:Changing Places £30 million Investment:https://www.changing-places.org/local-authority-funding/ps30-million-investment-to-provide-changing-places-toiletsReferences to Changing Places toilets in 'Amendments to the Approved Documents' The Building Regulations 2010 (July 2020):https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/901882/200717_AD_M_July2020_amend.pdfLiving With SMA - 'About Toilets' disclaimer:The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.
Welcome to the Living With SMA Podcast.  This is not just a standard episode on toilets.  In this latest 3 part episode, Luis Canto E Castro, Ross Hovey and Jasmine West discuss and share their own personal views and individual stories on using accessible toilets in the UK.  Watch this episode on our YouTube channel here.Luis, Jasmine and Ross are talking about the challenges they face on a regular basis and share some ideas on what they think toilets should look like in the future and where they believe people are going wrong.  Twitter:         twitter.com/SMA_UK_Facebook:    facebook.com/SpinalMuscularAtrophyUK/ Instagram:    instagram.com/sma_ukIf you do have any questions for  Luis, Jasmine, Ross and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk
Welcome to the Living With SMA Podcast.  In this latest episode, Michaela Hollywood, Luis Canto E Castro and Katy Etherington talk openly about Personal Assistants and share their own personal views and individual stories. Watch this episode on our YouTube channel here. -- SOME BACKGROUND -- There is a huge shortage of PAs in the UK at the moment, and this is impacting on thousands of people across the disabled community. To promote a broader view of what it's like to be a PA, and to share the brilliant work PAs do, SMA UK would love you to share your pictures and PA stories using the hashtag #ItsNotJustCare , tagging SMA UK on social media and / or emailing: connections@smauk.org.uk You can contact SMA UK on the following social media platforms ⬇️⬇️twitter.com/SMA_UK_facebook.com/SpinalMuscularAtrophyUK/instagram.com/sma_ukUSEFUL LINKS: Video that shares personal examples of NHS Funded Continuing Healthcare (CHC) & Local Authority Funded Social Care in action:NHS Funded Continuing Healthcare (CHC)Local Authority (LA) Funded Social CareWhat is the role of a PA?Personal Assistants (PAs)Employing your own PAs
15: Health Screening

15: Health Screening

2022-03-0434:37

Welcome to the Living With SMA Podcast.  Today SMA UK Host Kerry Thompson talks to Sue Tucker and Clare Gray about Health Screening with a focus on mammograms and cervical screening.If you prefer to watch this episode, please visit our YouTube channel here.Kerry is 42 years of age.  At 24 she was diagnosed with a rare form of Muscular Dystrophy called FHL1 Gene mutation.  Kerry writes the blog 'My Life Kerry's Way' (kerry-thompson.com), she is a campaigner for Disability Rights, most notably for her work campaigning for Changing Places Toilets and for better accessible housing.  Kerry also works part-time for the charity MDUK.Sue Tucker is 56 years old and has SMA Type 2.  Sue has been working in accountancy for a number years and currently lives in Devon.Clare Gray is 52 years old and has SMA Type 2.  Clare has worked in the disability sector for 30 years and currently works for one of the largest charities in the country, Shaw Trust, employed as their Organisational Lead for Disability Advocacy.  Clare is a member of the Independent Living Strategy Group, a member of the APPG for Disability and the Professional Advisory Group for the Disability Confident Scheme.  In 2018, she joined the Advisory Board for the government think tank at 'Reform' and more recently became a member of the Health Model Advisory Group for DWP and project lead for the Power 100, a publication in its fifth year profiling the most influential disabled people in the UK. Clare has been involved in the APPG Women and Work Committee, contributing to the recent report on Women Returners.Each of our guests today shares their own  personal views and individual stories.If you do have any questions for Kerry, Sue, Clare and the team at SMA UK please email us at connections@smauk.org.ukTwitter: https://twitter.com/SMA_UK_Facebook: https://www.facebook.com/SpinalMuscul...Instagram: https://www.instagram.com/sma_uk
14: SMA Type 3

14: SMA Type 3

2022-02-1158:01

Welcome to the Living With SMA Podcast.  Today SMA UK Host Steve Jones talks to Eden Kent and Josh Wintersgill about SMA Type 3.If you prefer to watch this episode, please visit our YouTube channel here.Steve is 28 years of age, lives in London and currently works for the UK Government in the Civil Service, where he has worked in a number of different roles from EU Exit to Code Response and is now involved in the HMRC.  Steve also has SMA Type 3. Eden Kent is 21 years of age and is in her final year at the University of East Anglia  studying Psychology and also has SMA Type3.Josh Wintersgill is 28 years old, he was diagnosed with SMA at 18 months old.   Josh graduated University in 2015 after studying IT, Management and Business.  He worked for a couple of years in cyber security then founded Able Move 3 years ago, working closely within the aviation and travel industries.  Each of our guests today shares their own  personal views and individual stories.If you do have any questions for Steve, Eden, Josh and the team at SMA UK please email us at connections@smauk.org.ukTwitter: https://twitter.com/SMA_UK_Facebook: https://www.facebook.com/SpinalMuscul...Instagram: https://www.instagram.com/sma_uk
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