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Know Stroke Podcast S4E1 Jordyn Sims Pierce MS, CCC-SLP, ATP Vice President, Clinical Operations & Development Constant Therapy In this kickoff episode to Season 4  (not 3 like I mentioned at the start of the show!*) we were fortunate to bring on Jordyn Sims Pierce, who is a Speech-Language Pathologist & Assistive Technology Specialist.  She serves as the Vice President, Clinical Operations and Development at Constant Therapy Health.   In addition to her role on the Constant Therapy team, Jordyn also is the Founder and Director of Pierce Speech, Language, and Learning Center in Lenox MA which is where we caught up to her for the recording of this podcast. To watch this episode and get a glimpse of the Berkshires too go to our YouTube Channel: https://youtu.be/mKjw3B3Df7sMore about Jordyn:Jordyn is an accomplished SLP professional and (like Mike and I) we found out she is also a rehab tech geek as well! We encourage you to learn more about Jordyn by joining us for this episode and be sure to check out her impressive bio for more professional accomplishments and contributions she has made in her field.  https://piercespeech.com More about Constant Therapy:The mission of Boston based Constant Therapy is to help reimagine and improve access to therapy and recovery through their award-winning cognitive, language, and speech therapy mobile app and next-generation digital therapeutics platform. https://constanttherapyhealth.comIn the News Resources: International Stroke Recovery and Rehabilitation Alliance The Brain Bar (Share Your Stroke of Genius) *[Personal Sidebar]- Even with the flub at the intro it was great firing up the pod mics and getting back to recording live podcast sessions again with my co-host Mike Garrow and learning more what’s the “craic” with Mike.  We’ll have more great announcements coming later this season as well with a focus on rehab technologies, more survivors and health professionals that are making ripples in the stroke community and recovery industry to encourage change and improve stroke outcomes. Mike dropped one teaser on this episode on how we are planning on growing the pod via the Health Podcast Network and expanding our reach this season.  More to come in the next episode! Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 Be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the  Know Stroke Podcast For more information about joining our show or advertising with us visit: https://enable4us.com Support the show
Today is the start of World Stroke Month, celebrated throughout the month of May. In this episode we are going to share a discussion we had with Carolyn Brown, Founder of Stroke OT and Marina Borukhovich of YourCoach at the Rehab Tech Summit on March 3rd. Watch full episode on our YouTube ChannelThis past week there was news that Noom inc, a weight loss app will be laying off a quarter of their health coaches. While this is devastating  for those coaching losing a job, it highlights just what Noom was missing - personalization.  Mike will speak to some of his thoughts on what else led to this decision for Noom, and what it means for health coaching to work in stroke rehab.We are excited to start Season 4 soon and  share more about what it means for us to be apart of the Health Podcast Network. For more information about joining our show or advertising with us visit: https://enable4us.com Support the show
Know Stroke Podcast Season3 Episode7 Welcome to the Know Stroke Podcast.  I’m your co-host David Dansereau flying solo in this episode! If you like the show leave a review on the Apple podcast app and subscribe on your favorite podcast platform.  And if you’d like sponsor a show contact us through links below in our show notes.  In this episode and on this #WorldHealthDay recording we are talking all things health as it relates to  Stroke “In the News” including: 7000 Steps for Health? Strokes and Health Equity AFib and Stroke An update on Our Boston Marathon episode guests And a plea for help finding my co-host! All coming up in this episode…. Mentions on this show:  First thank you to UConnHealth for having me for their March Stroke Support Group- I certainly hope we picked up a few podcast fans that are listening today-we had a great conversation around strategies to get moving after a stroke and what simple tools and resources you might try to get your brain and body back in balance. Thank you to Brooke for the invite, ( a guest on a previous episode of the show and by the way does a great job providing resources for her stroke support group, very impressive Brooke! Listen to Brooke's Interview  https://www.buzzsprout.com/1751132/9542853 Lester Leung Tuft’s Medical Center Episode Caroline and Travis Boston Marathon EpisodeProduct Mentions:KardiaMobileApple Watch Series 7 with ECG Here’s the Resources Links to the "In the News" this Week: How many steps should you take a day? Hitting 7,000 may reduce risk of early death, study says: https://www.usatoday.com/story/news/health/2021/09/16/how-many-steps-should-take-per-day-study-death-risk/8321904002/ Are strokes a social justice issue? A new study suggests they could be. https://www.newswise.com/articles/are-strokes-a-social-justice-issue-a-new-study-suggests-they-could-be A-Fib Detected in Nearly Three in 10 Cryptogenic Stroke Patients https://www.physiciansweekly.com/a-fib-detected-in-nearly-three-in-10-cryptogenic-stroke-patients Our Top Gun ACE Producer: We wouldn't be able to get these episodes churned out so quickly without our great podcast producer! Thank you Jake! Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777Connect with the Know Stroke Podcast Hosts:Please connect with us on social.  We appreciate your comments.  We are here to help you! https://www.enable4us.com https://twitter.com/Enable__Us https://www.instagram.com/enable.us/ Thanks For Listening! For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Season 3 Episode 6 -On The Road! Before we get to our "Stroke in the News" this week we would be remiss not to pause and reflect that this episode is being recorded asynchronously amidst the backdrop of war in Ukraine. As we all finally sense an end to the COVID-19 crisis, we find ourselves in the midst of another one, and the extent of which is still unclear. It is hard to put into words what it means to watch the invasion of a sovereign nation, and honestly we’ve all struggled with the immediate human costs and certainly more lives will be senselessly lost.  Also realizing the  potential implications of the Russian invasion of Ukraine, we have found hope in the strength of the Ukrainian people and we stand with them in support of democracy.  In the news...Boston Accents?  Give us a review if you like the  pure content of this podcast, but don't pick on Bostonians (and David)  please if you find Boston accents "irritating"- this was in the news this week...Resources mentioned in this episode: ISC Stroke Connection- Post Acute Rehab After Stroke-Getting it Right and why I believe they should have worked harder to offer this free for survivors.  My opinions here on The Know Stroke Blog  Healthline reporter Cathy Cassata article on Peloton Instructor Bradley Rose Stroke with PFO spotlight  UConn. Health PFO Closure Article Caroline and Travis Boston Marathon episode with link to updated fundraising pagehttps://www.buzzsprout.com/1751132/9933604 Mike and I will be presenting at the Rehab Tech Summit March 4-5th (Neuro Edition) Use code KNOWSTROKE for 10% off admission at checkout-Rehab Tech Summit: https://rehabtechsummit.com  We also wouldn't be able to get these episodes churned out so quickly without our great podcast producer Jake Dansereau. Thank you Jake! Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 Please connect with us on social.  We appreciate your comments.  We are here to help you!Connect with Team EnableUs and the Know Stroke Podcast Hosts: https://www.enable4us.com https://twitter.com/Enable__Us https://www.instagram.com/enable.us/ For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Lauren Sheehan S3E5 : OT in Tech, Co-Founder Rehab Tech Summit As you’ll learn on this episode, my co-host first met Lauren while doing stroke research as part of his Masters degree in Dublin. Lauren is a Product Manager with Neurolutions, Inc. and has been in the medical device industry for the last five plus years. Her clinical background is primarily in outpatient neurorehabilitation. She has held administrative roles in clinic management and as a department director.  Lauren is a founding member of the American Congress of Rehab Medicine's Clinical Managers Task Force, serves as the Productive Aging Special Interest Section Technology Coordinator for the American Occupational Therapy Association and has served as an Adjunct Faculty Member at Samuel Merritt University in Oakland, CA. In addition, she serves on the Advisory Board for a developing Occupational Therapy Doctoral program at Keck Graduate Institute.  In addition to adopting a new cat who you’ll meet briefly in this episode, Lauren is also a new mom and home owner.  In her spare time (LOL!),  Lauren co-founded the Rehab Tech Summit, an online conference and community that aims to bring together industry professionals and rehabilitation clinicians, researchers and entrepreneurs to share information and ideas in the rehabilitation technology space. Mike and I are delighted that we’ll be joining Lauren this year at the event to hold a roundtable discussion on the adoption of digital health and coaching to improve quality of life for those living with neurological disorders.  Watch this episode on YouTube: https://youtu.be/VK3gL46U1GY Show Mentions: Neurolutions was featured previously on our podcast in this episode https://www.buzzsprout.com/1751132/8496172https://www.neurolutions.com/ Marina Borukhovich, CEO of YourCoach HealthListen to our interview with Marina here:https://www.buzzsprout.com/1751132/9849819https://yourcoach.health/ Jane Connoley, OT https://healthebrain.org/ Rehab Tech Summit: https://rehabtechsummit.com  We also wouldn't be able to get these episodes churned out so quickly without our great podcast producer Jake Dansereau. Thank you Jake! Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 Please connect with us on social.  We appreciate your comments.  We are here to help you!Connect with Team EnableUs and the Know Stroke Podcast Hosts:https://www.enable4us.comhttps://twitter.com/Enable__Ushttps://www.instagram.com/enable.us/ For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Know Stroke Podcast Season 3 Episode 4Mike and I sat down earlier this week to share in some great conversation with our guest Kyle Mengelkamp.  We were drawn into his story involving basketball, his stroke recovery , his why and creative producing vision in the upcoming premiere of his mini-documentary examining stroke recovery from three personal perspectives, sharing their stroke of genius. About the Event: Reborn Decades Apart Three basketball players - Kyle Mengelkamp, Cory Weissman, and Ty Hawkins - bonded by the love of the game they once played, by stroke, and recovery. The three former competitive basketball players meet up at one of NYC's famed city basketball courts for a game of P.I.G.  During the game they share their personal stories of recovery and discovery.  Inspiration included. Please join us on Sunday, January 30th at 4pm EST for the premier screening of REBORN DECADES APART.  A Q&A with Kyle, Cory and Ty will follow the screening.  Tickets: $20Learn more and purchase your tickets here Watch this Episode on our YouTube Channel: https://t.co/cwRESvpsKN For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Welcome to Season 3 Episode 3 of the Know Stroke Podcast! We were delighted to bring back an old friend, intro voice of the podcast, and stroke thriver, Caroline Goggin. Caroline shared her story with us as our inaugural guest on Season 1 Episode 2, if you haven't listened to that interview you can go back and listen here.  In that episode Caroline gave credit to her husband, Travis, for saving her life. He recognized the symptoms and acted FAST! It has been a long road ever since, and we’re humbled that after hearing Caroline's side of the story in season 1, we now got to hear from Travis what those early days were like as a caregiver. One adjective we heard a lot from Travis during this conversation was 'hopeless'. Hopelessness is a feeling many caregivers often go through when they have a loved one who suffered a stroke. Travis does an exceptional job of walking us through his thoughts, and what has changed from the day he was in the hospital at Carolines bedside to today - preparing for the Boston Marathon.  Returning to running is something near and dear to our co-host David's road to recovery who has now completed two Boston Marathons since his stroke. David and Caroline now have connected as part of their stroke recovery journey a common link with Tedy's Team, the non-profit launched by New England's own Tedy Bruschi. Since his stroke Tedy and his wife Heidi been on a mission to advance awareness and research for stroke. Caroline and Travis  will be running as part of Tedy's Team, and along with training over 500 miles for the 26.2 mile run they aim to raise $18,000 to advance stroke research. This conversation was a lot of fun, and as expected Caroline and Travis shared many gems. We hope you enjoy this episode as much as we did. You can watch this episode on our YouTube Channel as well For information on how to donate please visit their Tedy's Team Fundraising Page  Follow Caroline on Twitter @CarolineGogginFollow Travis on Twitter @tgeldridConnect with Team EnableUs and the Know Stroke Podcast Hosts:https://www.enable4us.comhttps://twitter.com/Enable__Ushttps://www.instagram.com/enable.us/As always, thank you for your support-please give us a like, follow and review our show. Finally.  most important-Please Share Your Stroke Knowledge with Those in Need! For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Welcome to Season 3 episode 2 of the KnowStroke Podcast. In this episode we sat down for a stimulating conversation with Sandra Saldana, CEO and co-founder at Alva Health. Sandra launched  Alva Health as a spin out from Yale University entrepreneur fellowship program in 2017. Alva Health's mission is to develop, commercialize, and make accessible a first-in-class medical device that accurately detects strokes using patient-worn wearables. 2021 was a milestone year for Alva Health as they were selected as the winners of the Medtech Innovator accelerator program - the industry's global competition and accelerator for early and mid-stage medical device, diagnostic, and digital health companies. The device is shown below and looks like a livestrong band which is meant to be worn 24/7 - currently it detects hemiparesis which is a common biomarker of stroke. The more a user wears the device, the more it learns about the movement of that specific user. For any irregularities the device will alert the patient and notify 911. In the future they will be iterating on the product to incorporate speech and facial recognition technology. Born in Monterrey, Mexico, she moved to the US at 12 years old and grew up in Houston, Texas. Sandra's father ran a successful business so from a young age she remembers having the itch to start her own company one day. She began her studies at Cornell University in upstate New York and then moved back to Houston to study a PhD in Cancer Biology. After a few years in academia Sandra made the move into industry and had her first taste of the med-device / pharma industry while running sales for a start-up in Boston. After a few years of the C-Suite she was eager to start her own company. Not long after being accepted to Yale's MBA in healthcare program she met her co-founders and being validating a concept for a wearable to detect stroke. It was a long journey, one that she explains in detail in this episode and speaks to the hurdles along the way.Sandra has a true understand of what is wrong with the current stroke care pathway, this will become evident when you hear her answer to our Magic Wand question. Alva Health will be launching clinical trials in the second half of 2022. We encourage you to reach out and get involved!  See links below if you'd like to learn more and get in contact with Sandra or the team. Alva Health - https://www.alva-health.com Reach out to Alva Health - https://www.alva-health.com/cover-page-1Twitter - https://twitter.com/alvahealthLinkedIn - https://www.linkedin.com/company/alvahealth/ Watch the YouTube Videocast with Sandra here : https://youtu.be/s49Pvj9Nd2YEpisode 3 is going to be a special one as we welcome back our good friend and stroke THRIVER Caroline Goggin alongside her husband Travis. We also wouldn't be able to get these episodes churned out so quickly without our great podcast producer Jake Dansereau. Thank you Jake! Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 Please connect with us on social.  We appreciate your comments.  We are here to help you! Connect with Team EnableUs and the Know Stroke Podcast Hosts: https://www.enable4us.com https://twitter.com/Enable__Us https://www.instagram.com/enable.us/ For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Welcome back to Season 3 of the Know Stroke Podcast! We hope everyone had a relaxing holiday season and had time to catch up with family and friends. If you didn't catch our bonus episode released before the new year you should go back and check it out - https://www.buzzsprout.com/1751132/9804997  In that bonus episode David and I spoke to some of our personal goals this year and tee'd up a theme that we'll be speaking to a lot during Season 3 - Goal setting and accountability.  We've heard from many guests over the first 2 seasons the importance of accountability and 1-1 support post stroke. The role of a Health Coach has been used in other disease management programs effectively, and we see this role having a potential to support the stroke population. A Health Coach working as part of the care team can provide that extra layer of 1:1 support and accountability - saving Stroke Nurse Navigators and clinicians time.  To kick off Season 3 David and I were honored to sit down with Marina Borukhovich, CEO of YourCoach Health to discuss the Health Coaching Revolution she and her team are spear-heading. Marina is a transformative tech leader, an exemplar of the power of health coaching, a breast cancer superhero, and a passion-driven CEO. After moving to Amsterdam and receiving her breast cancer diagnosis, her mission became to help other women feel in control and beautiful. Shortly after her diagnosis, she received her health coaching certification, which guided her to discover an opportunity to innovate in the increasingly important field of health coaching. She founded YourCoach.Health as a practice management platform and interface for all things health coaching, to kickstart the Health Coaching Revolution. It’s Marina’s mission to bring the power of health coaching to as many people as possible. Out of the office, Marina enjoys boxing, wife-ing, mom-ing and catering to Bentley, her French bulldog and Chief Emotional Support Officer. YourCoach.Health is your virtual home for all things health and wellness coaching. Built for coaches, by a health coach, it’s a practice management platform and one-stop-solution for cultivating coaching and client relationships and achieving real and lasting health outcomes. https://yourcoach.healthWatch this episode on our YouTube Channel: https://youtu.be/rh8ECHUYwMA If you are enjoying our podcast please help us grow by sharing, rating, and most helpful, please write us a quick review on your favorite podcast player! We are trying to get on Apple Podcast trending podcasts so a review there for The Know Stroke Podcast would be a great help! Here's the link to our show on Apple Podcast: Simple scroll down to the "Write a review" link lower on this page.  Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 Please connect with us on social.  We appreciate your comments.  We are here to help you! Connect with Team EnableUs and the Know Stroke Podcast Hosts: https://www.enable4us.comhttps://twitter.com/Enable__Ushttps://www.instagram.com/enable.us/ Wishing you a happy and healthy 2022, David & Michael For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Before we take the Next Step Forward into 2022 we wanted to get together one last time to reflect and give thanks to our community for the past year and the growth of the podcast.  We share how we both have grown as well as podcast co-hosts over the past year and that would not have been possible without our listeners and the feedback that was shared with us.Spoiler Alert- we also show off our new KnowStrokePodcast swag so if you want a look- watch the YT Videocast here : https://youtu.be/0rP-cFliFN4In this brief episode we take a few minutes closing out the year discussing goals for 2022 and what moves us individually and as leaders of Team EnableUs.  We also wouldn't be able to get these episodes churned out so quickly without our great podcast producer Jake Dansereau. Thank you Jake!Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777Please connect with us on social.  We appreciate your comments.  We are here to help you!Connect with Team EnableUs and the Know Stroke Podcast Hosts:https://www.enable4us.comhttps://twitter.com/Enable__Ushttps://www.instagram.com/enable.us/About the Know Stroke PodcastWelcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.comWe get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care. Complete our patient survey at:https://know-stroke.orgFor more information about joining our show or advertising with us visit: https://enable4us.comWe are grateful for you! Please stay tuned for more great shows to come in 2022.  Thank you!David and MikeEnableUs- Supporting Life After Strokehttps://enable4us.com#KnowStrokePodcast For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
In our last episode of Season 2 we welcome Kate Skeels, Stroke Advance Practice Nurse at Tufts Medical Center to the show. We picked the great discussion right up where we left off with her Tufts colleague Dr. Lester Leung from our previous episode. We learned what brought Kate from her western New York roots with her family to Boston and where she fell in love with the stroke patient population, met “baby” Lester and began growing the program at Tufts together “like 2 peas in a pod”. Curious?  Listen to Kate tell the whole story in her interview!Including- How the addition of Kate to the Tuft’s Team provides dual leadership and drives better outcomes for patients while allowing for the shared  perspectives of Nurse Practitioner (NP) and Physician (MD) team model. This discussion through Kate’s NP lens was fascinating.  You’ll learn about different advanced level NP providers and how Kate’e training opens her role up as an advanced practitioner, and how NPs deliver care  similar to how quarterbacks plan, prepare and execute plays in the NFL!  Well,  this was Mike and I offering analysis of Kate’s role in our show intro after learning all she does every day!  In fact, we decided to give her the title of the Tom Brady of the Tufts Comprehensive Stroke Center (even though she still is a Buffalo Bills fan, sorry Patriots Nation!) Carrying the team discussion into a deeper dive of the SAYA Program and Stroke Clinic with Kate we learned how they manage patients at their high risk stroke clinic, offer telehealth, group and in person visits to provide longitudinal stroke care support as “care is needed at different points in a season of stroke”. Love this! Also we learn how they go the extra mile at Tufts to manage and personalize care including how the team often has a “discharge time out”  (yes, another football reference, how fitting!) to stop, regroup and build a plan for the patient that offers help around the focus of attention needed when discharge weaknesses are discovered.  You’ll also learn about the great educational efforts Kate and her team are involved with through their Annual Tufts Stroke Symposium to share stroke education with other providers.  Finally, Kate’s magic wand answer, well let’s just say she scored a touchdown on this one with Mike and I !  Give it a listen as part of your own stroke game plan!As always, "in the News” segment- Mike and I discussed the climbing rates of high blood pressure since the start of the pandemic and with it increased stroke risks.  Here’s that article link.You’ll also want to watch this interview on YouTube just to see where in the world my co-host Mike was when we recorded this episode! To Get in touch with our guest:kskeels@tuftsmedicalcenter.orghttps://www.tuftsmedicalcenter.org/physiciandirectory/katelyn-skeelshttp://youngadultstroke.org Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777Visit: https://www.enable4us.com Complete our patient survey at: https://know-stroke.org For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Season 2 Episode 7 -Lester Y. Leung, MD, MSc Tufts MCQuick Bio: Board certified vascular & general neurologist Assistant Professor of Neurology Director, Comprehensive Stroke Center at Tufts Medical Center Director and Founder, Stroke and Young Adults (SAYA) Program Principal Investigator, Tufts Vascular Neurology Research Group Director, Stroke Service at MetroWest Medical Center Co-Chair, American Heart Association-American Stroke Association Massachusetts Stroke Systems of Care This was a real impactful episode for my co-host Mike and I as we convened late this past Sunday evening to interview board certified vascular and general neurologist, Lester Leung, MD, MSc of Tufts MC.   For myself (co-host David Dansereau), this episode was also very personal as I was able to thank Lester for the critical role he played in my own stroke recovery both as my neurologist and as a friend and coach.   Lester grew up in New Orleans,  LA and after coming to Boston to attend college he returned home to New Orleans for medical school and found himself on a mission to help rebuild New Orleans post Hurricane Katrina. From this early advocacy, rebuilding homes and riding with EMS to help Katrina victims “where they were” he was moved and impacted by the fractured healthcare system and all the challenges it presented for victims during an emergency like Katrina.  Lester credits these early lessons learned as well as having really dynamic mentors along the way, in particular New Orleans based stroke neurologist Sheryl Martin-Schild, MD,PhD for enlightening him on how people with stroke are suffering and have multifaceted unmet needs.  This early career experience solidified Dr. Leung’s dedication to neurology and when he later moved back to Boston to begin his career you’ll learn how these early lessons sparked his passion to do more for the stroke community, with a special interest in the needs of young stroke. This was a moving and enlightening discussion and together, Lester, Mike and I unpacked many stroke topics including:  Exploring and studying screening of late complications after stroke among stroke survivors, esp. young stroke survivors Dr Leung’s advocacy to spearhead a statewide/regional/(global)* PSA on the need to seek emergency care for stroke despite the pandemic surge. * Mike revealed he even viewed and heard Lester’s PSA used across the Atlantic as a model to use as a stroke awareness call to action while in Dublin! Treating patients at Tufts in later time windows after stroke (late presenter thrombolysis) Understanding disparities and stroke recovery outcome, including novel factors like neighborhood income inequality, and community investment in stroke rehab resources.   Use of high technology and investment in stroke recovery vs high touch longitudinal coaching and education models and how both involve following the reimbursement dollars for care delivery and addressing recovery plateaus The Comprehensive Stroke Center at Tufts, including its first in the nation SAYA Program (Stroke And Young Adult)  an outpatient longitudinal care model founded by Dr. Leung.   Watch on YouTube: https://youtu.be/YEp0i78HtyIhttp://lesterleung.comhttp://youngadultstroke.orghttps://www.tuftsmedicalcenter.org/physiciandirectory/lester-leungPSA from Tufts : https://youtu.be/UdHSYjKzG-g For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Know Stroke Podcast Season 2 Episode 6Welcome back to the Know Stroke Podcast! Our guest today is Kaitlyn Jones. Kaitlyn is an occupational therapist and currently a Program Manager working with the XBOX Gaming Accessibility Team where she is able to use her clinical background and perspectives to help guide inclusive product design. She is very passionate about the ways in which technology that is accessible can enhance the quality of life of all people. She has done extensive research exploring the benefits of video game play that extend beyond fun and leisure to functional performance, mental health and social participation. She was the 2018 recipient of the Edward Leahy Jr Award for Innovation in Technology and the 2017 recipient of the Maria Gervasio Award for Outstanding Commitment to Professional Development in Occupational Therapy.  Kaitlyn was inspired by her father who founded Warfighter Engaged in 2012. Warfighter Engaged is a on-profit with a mission to improve the lives of severely wounded and disabled warfighters through custom adapted devices. Serving as the Director of Clinical Outreach, Kaitlyn interfaces with clinicians, private practices, hospitals and other clinical organizations regarding the importance of inclusive design, adapted technology, and the benefits of video game integration into therapeutic settings.  She is currently pursuing her Doctorate of Occupational Therapy degree with a thesis focused on promoting the use of commercial video game-based interventions for improved patient outcomes. In this conversation we dive into: How Kaitlyn started a career at the intersection of OT & Technology What the role of Accessibility is in the tech industry  Why OTs and other therapists are important for product design The difference between leisure and therapeutic video game based interventions What the barriers are to using video game based therapy in the clinic, and home What Kaitlyn sees as the future of therapy in the home We hope you enjoy this conversation! Watch this episode on our YouTube Channel:https://youtu.be/ENZhmxd2tEo You can find Kaitlyn on Twitter: @kaitlynjones_  And check out the amazing work happening at War Fighter Engaged: @WFEngagedMusic Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 About the Know Stroke Podcast Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? Connect with Team EnableUs and the Know Stroke Podcast Hosts:https://www.enable4us.comhttps://twitter.com/Enable__Ushttps://www.instagram.com/enable.us/Complete our patient survey at:https://know-stroke.org For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Know Stroke Podcast Season 2 Episode 5 Navigator: one that navigates or is qualified to navigate.Who are some people that come to mind when you think of navigators? Most navigators have personality traits of wanting to help others achieve their goals. Brooke Medel is a Stroke Nurse Navigator at UConn Health in Farmington, Connecticut. Joining the team at UConn in June Brooke has come into a crucial role supporting stroke survivors in the transition of care from the hospital back home and in adapting to life after stroke. Sounds like an important job, right? Brooke was born for this job. Once you listen to her story you'll understand the passion she brings into the role and why her patients are so lucky to have her. In this episode Brooke brings us through her day to day as a stroke nurse navigator. We explore the many challenges faced by stroke survivors and their loved ones at the point of discharge and her approach to supporting these challenges. You'll also hear about the Stroke Clinic at UConn Health and the amazing support they provide to the stroke thriver community. Brooke gives us a recap of the 3rd Annual Stroke Symposium which was held last month as part of World Stroke Day, October 29th. We've shared a link to a replay of that event for you below, and also links to the UConn support group which meets the fourth Monday of every month. You can attend these support groups in person if you are in the Central Connecticut area, or you can tune in virtually. Check it out, ask questions, and connect with fellow stroke thrivers!Show Resources for this Episode:Support group: https://health.uconn.edu/stroke-center/events-and-programs/ Event recap: http://mediasite.uchc.edu/mediasite41/Play/963820ef2b6344eeb76e3cbfdc303bfc1dFACEBOOK PAGE: Search Connecticut Stroke Awareness (made by one of the stroke survivors that shares information from UConn support group) For more on “In the News” segment referenced in this episode visit:https://journals.lww.com/neurotodayonline/fulltext/2021/11040/the_challenges_of_maintaining_telehealth_access_in.8.aspx About the Podcast: To listen to this episode on our podcast channel visit:  https://knowstrokepodcast.buzzsprout.com/  To watch this episode on our VideoCast YouTube Channel:https://youtu.be/p042m3p3p_A Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 About the Know Stroke Podcast Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?  Contact us here: https://enable4us. For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Know Stroke Podcast S2E4 Our brains are incredible organs that center our thoughts, record our experiences and emotions, control our behaviors and provide the processing power that enable us to move our bodies. With the upcoming #WorldStrokeDay (October 29th) this brief episode focused on patient focused events and resources that help our incredible brains stay healthy and repair by sharing lived experiences and knowledge to empower our brains and our souls to heal and recover after stroke.On Episode 4 of season 2 of the Know Stroke Podcast we started the conversation with a little trust exercise where David asked Mike to open up the show “live and unscripted” before he revealed a special guest.  Besides being a great sport Mike shared his, of course, new and ever changing secret location for this podcast filming,  a personal story about his own stroke thriver (his mom) and her positive experience sharing her own survivor story for the first time.  Along with it he provided a resource for an upcoming patient event where you can meet other survivors and hear their inspirational stories and perspectives here:UConn Health’s 3rd Annual Stroke Survivors Symposium (offered virtually October 28th 5-7pm EST)  Advanced registration recommended here: https://uchc.webex.com/webappng/sites/uchc/meeting/register/862651b29173452890785abfdb865d5a Mike and David also provided a reminder and call to action to head over to their own mission driven patient resources, surveys, survivor stories,Next Step Forward Program and rehab technology interviews  at https://www.enable4us.comBesides offering insights into the benefits of pet therapy David added one of his favorite free print resources, Brain and Life Magazine (brainandlife.org) by the American Academy of Neurology.  To get your free home delivery, head online to http://www.myBLsub.com to subscribe. About the Podcast:To listen to this episode on our podcast channel visit:  https://knowstrokepodcast.buzzsprout.com/ To watch this episode on our VideoCast YouTube Channel:https://youtu.be/xGJe5Hr9U8oMusic Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777About the Know Stroke PodcastWelcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.comWe get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? Contact us here: https://enable4us.com/survivor-storiesComplete our know stroke patient survey at https://know-stroke.orgGet this latest episode and all previous podcast episodes here: https://knowstrokepodcast.buzzsprout.com/Reach out to ma For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
On Episode 3 of Season 2 of the Know Stroke Podcast we were joined by an old friend, Dr. Carolyn Brown. Before Dr Brown joined, per usual, David and Mike covered this past weeks "In The News" section. The headline that popped for us this week was  Mindmaze scores big with $125M for gamified neurotherapeutics platform This is a company Mike has had his eye on since researching the use of Virtual Reality for stroke rehabilitation as part of his Masters Thesis. MindMaze is making a push to repairing neurological damage caused by stroke. MindMaze’s platform comprises a series of video games that, when combined with a motion-tracking camera and customized to a patient’s individual condition and needs, can support both rehabilitation and restoration of brain function. Several of the programs have already been cleared for use in the U.S. and Europe, and a new line of funding will now help make them even more widely available. Watch this space, we think it's going to have some massive potential. Oh, and so does Leonardo DiCaprio, he added MindMaze to his list of investments back in 2017. Dr Brown first assisted us with the Next Step Forward Program back in May 2020. Dr Brown is a clinically certified occupational therapist with over 25 years experience in neurological and orthopedic rehabilitation.  Prior to the pandemic Carolyn ran a series of exercise classes for stroke survivors in a clinic setting. In March of 2020 she quickly brought these classes online, delivered through Zoom. To her delight survivors loved the online classes. She continues to deliver weekly Telehealth classes, and is so bought into the potential of digital for occupational therapy that she launched her own non-for-profit, StrokeOT.  https://www.strokeot.org In this discussion we explored what is making telehealth stick from a patient/survivor perspective, what things need to be happen from a regulatory view for the commercial model to make sense, and what Carolyn has in her crystal ball for the future of stroke care.  And make sure you stick around until the end, we close things off with a short breathing exercise, you'll be sent off with your body and mind at ease.  To reach Dr. Brown: https://www.strokeot.org/about-me/ To watch this episode on our YouTube Channel visit:  https://youtu.be/nF1P0Tle2VI Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 About the Know Stroke Podcast Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?  Contact us here: https://enable4us.com/survivor-stories Complete our know stroke patient survey at https://know-stroke.org Please support the show https://paypal.me/SmartMovesPT Get this latest episode and all previous podcast episodes here: https://knowstrokepodcast.buzzsprout.com/ Reach out to make a one time donation to our mission or inquire about becoming a Know Stroke show sponsor at https://enable4us.com  Support For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
About this Episode (S2E2):  Co-Founders of EnableUs and Co-Hosts of the Know Stroke Podcast Michael Garrow and David Dansereau recap In the News this past week and discuss more great media coverage on music therapy and how things continue rocking and rolling for MedRhythms. A few days after we released this episode, Brian Harris (Co-Founder and CEO) and the team announced a partnership with Universal Music Group. The partnership gives MedRhythms access to UMG’s entire catalog of music! Be sure to listen to our last episode (S2E1) with Brian if you missed it here:https://www.buzzsprout.com/1751132/9259638 We also recapped Mike’s great blog post on this music news on our site, read it here: Walking to the Beat of Music https://www.enable4us.com/post/walking-to-the-beat-of-music Besides Mike "getting personal", then reminding David of his age and need to keep stretching (and then trying his best to cover it up with a compliment of his great podcast voice), the co-hosts got back on track and also reflected on how music moves them,  on the year past and what is hopefully emerging as a Season of Change for stroke survivorship and prevention. Finally, this condensed episode also included previewing future guests to reflect on  lessons have we learned from COVID, what barriers to care still exist and what new ones have emerged, as well as how technology could impact change to support digital care delivery in stroke care and recovery.  Oh and last but not least, in this episode we give a shout out to show gratitude for  our great podcast producer Jake Dansereau for always producing our episodes quickly, with great quality and a great show jingle to broadcast his own music talent too! To connect with the EnableUs Team: Web: https://www.enable4us.comDavid on LinkedIn: https://www.linkedin.com/in/daviddansereau/Michael on LinkedIn: https://www.linkedin.com/in/michaelgarrow/Instagram: https://www.instagram.com/enable.us/Twitter: https://twitter.com/Enable__Us To watch this episode on our YouTube Channel visit:  https://youtu.be/YCkOjMuhsPo Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777 About the Know Stroke Podcast Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?  Contact us here: https://enable4us.com/survivor-stories For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
Know Stroke Podcast S2E1-Brian Harris Interview-MedRhythmsAbout Our Guest: Brian Harris is the Co-Founder and CEO of MedRhythms; a digital therapeutics company focused on the intersection music, neuroscience and technology.  Brian is a board-certified music therapist and one of 350 Neurologic Music Therapist Fellows in the world. Brian’s clinical work is focused at Spaulding Rehabilitation Hospital in Boston, USA where he created and implemented their first inpatient full time Neurologic Music Therapy program, specializing in Traumatic Brain Injury, Stroke, and neurologic disease and built this program to be the most comprehensive NMT program in the country.  Brian is also the Co-Founder of the Arts & Neuroscience group at the American Congress of Rehabilitation Medicine and sits on the Advisory Council of the Academy of Neurologic Music Therapy. He has been an invited speaker at venues throughout the world including: the American Association of Neurological Surgeons, Harvard Medical School, the American Congress of Rehabilitation Medicine, Stanford University, Berklee College of Music, The Neurology Foundation of India, and Google.  Brian is an author on multiple publications related to music and rehabilitation and is listed as an inventor on several patents related to MedRhythms digital therapeutic platform.  His work has also been featured in Forbes, CNBC, The Huffington Post, TechCrunch, Pitchfork, Mashable, The Boston Herald, XConomy, MedTech Boston and on Chronicle Boston. Brian has been named to MedTech Boston's 40 Under 40 Healthcare Innovators and Top 100 Innovation CEOs by World Biz Magazine.To connect with Brian Harris and the MedRhythms Team:Web: https://www.medrhythms.comLinkedIn: https://www.linkedin.com/company/medrhythms/Facebook: https://www.facebook.com/MedRhythmsInstagram: https://www.instagram.com/medrhythms/Twitter: https://twitter.com/medrhythmsYouTube:https://www.youtube.com/channel/UCGbpHpHMXKCbAbYLv1cig2QTo watch this episode on our YouTube Channel visit: https://youtu.be/gPM97xor7N8Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777About the Know Stroke PodcastWelcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.comWe get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? Contact us here: https://enable4us.com/survivor-storiesComplete our know stroke patient survey at https://know-stroke.orgPlease support the show https://paypal.me/SmartMovesPTGet this latest episode and all previous podcast episodes here: https://knowstrokepodcast.buzzsprout.com/Reach out to make a one time donation to our mission or inquire about becoming a Know Stroke show sponsor at https://enable4us.com For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
In Episode 8 it was our pleasure to welcome Seamus Small, the Co-Founder and CEO of Kinesis Health Technologies an innovative health technology company based in Dublin, Ireland.  His company is focused on falls prevention in older adults as well as gait and mobility assessment. QTUG, is their proprietary technology for clinicians and researchers which uses body worn sensors combined with a standard clinical test (the Timed Up and Go - TUG) to better assess risk of falls, gait and mobility.  www.kinesishealthtech.com/QTUG QTUG can be used for population level screening of mobility and falls risk as well as ongoing objective assessment for use in rehabilitation. In this episode Seamus discussed their latest product, Kinesis Balance,  a consumer friendly smartphone application for remote monitoring and self-assessment of balance and falls risk.  This new tech uses machine learning algorithms combined with questionnaires and wearable or smartphone sensors to provide reliable assessment of balance and falls risk in the home and give users more control and insight into their daily mobility and safety.  It is currently available for free in the Google Play store. Learn more about Kinesis and contact Seamus here: https://www.kinesis.ie This episode can be played on all your favorite podcast players by searching Know Stroke Podcast.  The direct link to our podcast website is here: https://knowstrokepodcast.buzzsprout.... Watch this episode on our YouTube Channel: https://youtu.be/aggtlLGDZmY Music Credit to JAKEEZo on Soundcloud  @user-257386777 About this podcast: Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?  Contact us here: https://enable4us.com/survivor-stories Complete our know stroke patient survey at https://know-stroke.org Please support the show https://paypal.me/SmartMovesPT For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
In this episode David and Mike discuss recent real life experiences of one of the many friction points stroke survivors and caregivers experience - getting access to a reliable marketplace to purchase equipment for adaptive home management.  After all, feeling safe in your own home is an important goal in your daily life, especially after surviving a stroke.  Cooking, cleaning, laundry, paying your bills, and yard work are some occupations that can become challenging after a stroke yet important milestones and goals to achieve for returning to independence.  Oftentimes, mobility aids and adaptive tools or remote monitoring equipment are needed to ensure safety and help optimize rehab outcomes. It starts with maybe a Google search, then if you're lucky you might ask your occupational or physical therapist, but either way you're left with a maze of choices and reviews from people in different situations than yours. Now what if you had a marketplace that brought all of these items together for you into one place, with reviews from folks just like you!? Dave and Mike dive into why this concept of a comprehensive stroke marketplace and community support was and remains one of their top "magic wand" answers they want to achieve for better support for life after stroke.  In this episode, they discuss what this might look like and why simple is the best strategy when looking at improving access to stroke rehab. Resources from "In the News":Hot off the Press: 1. Walking speed after stroke may help predict which patients will show greater post-rehab improvement in their ability to simultaneously walk and perform a second task 2. The iReadMore app  This episode can be played on all your favorite podcast players by searching Know Stroke Podcast.  The direct link to our podcast website is here: https://knowstrokepodcast.buzzsprout.... Watch this episode on our YouTube Channel: https://youtu.be/IImdAWDUioc Music Credit to JAKEEZo on Soundcloud  @user-257386777 Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?  Contact us here: https://enable4us.com/survivor-stories Please complete our know stroke patient survey at https://know-stroke.org  Your confidential answers help us research what you are looking for and add value for our community by helping is select the guests we invite to our show. Support the show For more information about joining our show or advertising with us visit: https://enable4us.com Support the show (https://paypal.me/SmartMovesPT)
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