Long Covid Podcast

Episode 77 of the Long Covid Podcast is a chat with the wonderful Suzy Bolt about the fears around reinfection, or indeed infection of any kind. This is something that is a huge concern for me, and I know for many others. Suzy gives loads of really good advice - and her own experiences - around this, so I hope you're able to take as much away from it as I did. Links:360MindBodySoulThe Fern ProgrammeYouTube ChannelWorkshop on reinfection Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 76 of the Long Covid Podcast is a chat with Dr Robert Groysman about the work he has been doing treating Long Covid with the Stellate Ganglion Block. We discuss what the block is and how it can be really successful in helping people.  Facebook Treatment GroupYouTube ChannelDr Groysman's websiteDr Groysman in NewsMaxDr Groysman in a Houston Magazine Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 75 of the Long Covid Podcast is Jackie's reflections on 3 years of Long Covid, and why there is cause for positivity. Despite the many mistakes, this is reflections on a search for answers and "hacking" your way through to see improvement.This is not medical advice! Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 74 of the Long Covid Podcast is a chat with Dr Walter Koroshetz, Director of the National Institute of Neurological Disorders & Stroke, part of the National Institute of Health in the US. We chat through the RECOVER Initiative which is a huge study looking into all aspects of Long Covid, and also talk a little about ME/CFS research done by Dr Avindra Nath.Links:https://www.ninds.nih.gov/about-ninds/who-we-are/directors-cornerTranscript available under the "transcript" tab HERE-  Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

In episode 73 of the Long Covid Podcast I chat with the fabulous Dr William Li, who is a Physician, Scientist, president and medical director of the Angiogenesis Foundation, and bestselling author of “Eat to Beat Your Diet: Burn Fat, Heal Your Metabolism, and Live Longer”. Dr. Li is leading research into COVID-19 and Long Covid which is what brings him to the Long Covid Podcast!We chat through some of his findings and theories, as well as what can be done to help. I learned so much from this so I hope you do too!Photo credit: Roger Pelissierhttps://drwilliamli.comSign up for free masterclass Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 72 of the Long Covid Podcast is a chat with Professor Amitava Banerjee about the STIMULATE-ICP study which he is co-lead of. We chat a load about the different "arms" of the study itself, how it has been developed and the role of patient involvement. We also chat about how you might be able to get involved in different parts of the study.Link to website: https://stimulate-icp.org/ Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition.This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the links below.Tinnitus UK Your Covid Recovery tinnitus information Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share.Useful links below:What’s the Root Cause of My Illness? Lorrie Rivers - Living from InspirationJoin Facebook groupLorrie is also offering a few free workshops with sex and relationship therapists in February about Sex, Pleasure and Intimacy with Long Covid and ME/CFS and how to navigate it (for people who are single or in a couple).  At least one of the workshops will be live and participants can submit their questions beforehand or during the session.  The first is February 14 at 1pm Eastern US (New York time) on her IG channel (lorrierivers_).  More details via the website link above. Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more. Purchase "The Long Covid Survival Guide"Long COVID Survival Guide book exchangeThe book's page on Fiona's website (has an updated list of upcoming and past book talks people can attend or watch recorded videos of)Jennifer Brea "Unrest"Headshot - credit JJ Geiger Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms.This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions can affect one another as well as what can be done.I hope you enjoy as much as I did.Center for Complex Neurology Long Covid page Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it.If you are interested in signing up (or would just like some more information about the study) please go to DecodeME.org.ukScience for ME ForumAction for MENICE guideline for ME/CFS Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conversation - I hope you enjoy it as much as I did!Dysautonomia International WebsiteDysautonomiainternational.org/doctorslongcovidresearchfund.org Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work.If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below.Long Covid Choir - "When we sing together" by Vicky Jacobs (Sound engineer Nick Westoby) Julia's plants & artwork - see the Long Covid Podcast Creativity PageColin Pidgeon - "Stormy" (Follow Rosie on FB & Insta) Zara - "Thank you" music videoJanne Cecilie - "Long Covid" & "I'm so tired" Tabi - "You are not alone" collaboration reel with Rosie Pidgeon (hear Rosie speak in episode 61)Carol Barwick - "Choose Joy" "Long Covid is a frenemy" & "A Chronic Christmas Plea" Long Covid Kids Choir - "Winter Fantasy" by Jill GallinaLong Covid Kids website Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice.I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing?My Vedicinals blogFood Intolerance testEpisode 40 - Dr Boon LimEpisode 49 - Adrian & Leanne (wild swimming)Safe & Sound Protocol (SSP) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them! Useful links below.www.bagnellbraincenter.comhttps://www.bagnellbraincenter.com/online-forms.html"Persistent Brainstem Dysfunction in Long Covid - a Hypothesis"  Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talk Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 61 of the Long Covid Podcast is a chat with Rosie & Colin Pidgeon. Rosie has had Long Covid for a little over a year after catching it at school. Rosie talks through her symptoms & what has helped; and Colin, her wonderfully supportive Dad, describes how he's adjusted his & his family's life to help support Rosie.  Rosie is also a really talented artist, and is curating an exhibition at the start of December, in aid of Long Covid Kids. Links below (& these will get updated with anything new as the exhibition happens)This is a really candid & honest discussion of how difficult this illness is, and my thanks to Rosie & Colin for being so generous with their time & energy. Rosie Pidgeon Art Facebook Facebook event page  Art by Rosie InstagramTickets for exhibition opening (in aid of Long Covid Kids) Go Fund Me to Support the exhibition Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 60 of the Long Covid Podcast is a chat with Reema Ahmad who has Long Covid following a 2020 infection but has had a difficult route to diagnosis. We chat through a lot of her experiences and what she has learned from them, things that have helped her and lessons learned.This is a really frank and honest discussion and will hopefully make a lot of people feel validated and heard.Reema's book - Un-Parenting Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 59 of the Long Covid Podcast is a chat with the fabulous Vikki Jones, personal trainer, dietitian, wellness coach and former international athlete. Vikki is suffering with Long Covid and has developed a passion for breathing and helping others going through the "longhaul experience"We chat through all sorts of things from her own experiences, the collective trauma we all suffer as well as some practical advice for things we can do NOW to improve our breathing. Patrick McKeown - The Breathing CureVikki's Oxygen Advantage page(Transcript now live & checked for errors - thanks for your patience!)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

Episode 58 of the Long Covid Podcast is a chat with Fiona Jones, Co-lead of the LISTEN trial which is funded by the NIHR and is currently recruiting in parts of England & Wales.We chat about the 2 parts of the trial, how it's been set up and the benefit of their patient involvement both for the researchers & the the patients themselves.Home (listentrial.co.uk)What do people with long Covid think of LISTEN? (listentrial.co.uk)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com